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4 years down the road
It is now 4yrs since by MRI, I was diagnosed with HCC and Prostate Cancer (unrelated)Since that time the prostate cancer has been Controlled by Zolodex hormone suppressant. In February 2020 a large tumour was removed from my liver by open resection. Later in the year it returned and was treated by ablation
It is now 4yrs since by MRI, I was diagnosed with HCC and Prostate Cancer (unrelated)Since that time the prostate cancer has been Controlled by Zolodex hormone suppressant. In February 2020 a large tumour was removed from my liver by open resection. Later in the year it returned and was treated by ablation
Churchill2020
in
Blue Faery Liver Cancer
8 months ago
HT weight gain
My husband will be starting hormone therapy <HT> prior to radiation treatment <RT>.The weight gain associated with HT is a concern. Any suggestions? Any medication available to assist with weight loss during HT? Inquisitive One
My husband will be starting hormone therapy <HT> prior to radiation treatment <RT>.The weight gain associated with HT is a concern. Any suggestions? Any medication available to assist with weight loss during HT? Inquisitive One
Inquisitive_one
in
Advanced Prostate Cancer
8 months ago
Update: post-radiation and New meds
Hello Friends and warriors! Dragonfly is updating the latestest treatment... Radiation to the sacrum and L5 (10 treatments) ended on Dec 4th but since then I've had a rollercoaster of side effects...mostly stiffness and muscle spasms that catch me unawares when I get up or sit down. I truly thought
Hello Friends and warriors! Dragonfly is updating the latestest treatment... Radiation to the sacrum and L5 (10 treatments) ended on Dec 4th but since then I've had a rollercoaster of side effects...mostly stiffness and muscle spasms that catch me unawares when I get up or sit down. I truly thought
Dragonfly2
in
SHARE Metastatic Breast Cancer
8 months ago
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Avastin
Hi Has anyone been prescribed Avastin on the NHS? I'm paying 30000 a year for it and I don't understand why I have to pay I was diagnosed with peritoneal / tube cancer in 2021 stage 3c
Hi Has anyone been prescribed Avastin on the NHS? I'm paying 30000 a year for it and I don't understand why I have to pay I was diagnosed with peritoneal / tube cancer in 2021 stage 3c
Rosehannah7
in
My Ovacome
8 months ago
Seeking advise
Hi all, I have been diagnosed with MBC HER2 negative (mets to bones and lymph nodes). I am awaiting a brain CT scan and also another lymph node biopsy. Can anyone advise if they have heard of the below treatments or have had these treatments ( Chemoembolization and Dendritic cell therapy LANEX-DC
Hi all, I have been diagnosed with MBC HER2 negative (mets to bones and lymph nodes). I am awaiting a brain CT scan and also another lymph node biopsy. Can anyone advise if they have heard of the below treatments or have had these treatments ( Chemoembolization and Dendritic cell therapy LANEX-DC
Amk31
in
SHARE Metastatic Breast Cancer
8 months ago
Feeling Anxious
I have Metastatic Breast Cancer (MBC) I am feeling very anxious and lonely this holiday season. I live alone in Los Angeles. My family is all back East in New York. My fiancé died and 2 BFF's friends died. My "so called" friends are not there for me. I really need more support.
I have Metastatic Breast Cancer (MBC) I am feeling very anxious and lonely this holiday season. I live alone in Los Angeles. My family is all back East in New York. My fiancé died and 2 BFF's friends died. My "so called" friends are not there for me. I really need more support.
Meditator110
in
SHARE Breast Cancer Support
8 months ago
brain mets
My mom had a 13 mm brain met in July . She had the single beam one day radiation treatment and it continues to shrink. She started on evermolimus I know that’s misspelled . It didn’t work so she started xeloda. But only one cycle so not long enough to tell if it’s working . Today she a had a repeat
My mom had a 13 mm brain met in July . She had the single beam one day radiation treatment and it continues to shrink. She started on evermolimus I know that’s misspelled . It didn’t work so she started xeloda. But only one cycle so not long enough to tell if it’s working . Today she a had a repeat
Flower1513
in
SHARE Metastatic Breast Cancer
8 months ago
a amazing news!!
Well today I was back in the Oncology Department after my last treatment 6 years ago. I had been having some concerning symptoms so contacted the Oncology Team. I had an amazing response and was seen promptly with blood tests and a full body CT scan being carried out within 2 weeks. Today I receveived
Well today I was back in the Oncology Department after my last treatment 6 years ago. I had been having some concerning symptoms so contacted the Oncology Team. I had an amazing response and was seen promptly with blood tests and a full body CT scan being carried out within 2 weeks. Today I receveived
Eriksendi
in
My Ovacome
8 months ago
Second opinion on Biopsy
I am scheduled for a second Biopsy and plan to get a second opinion. I read Dr. Epstein with John Hopkins is on indefinite leave. Should I just submit it to John Hopkins, or does anyone have any suggestions for a good place for a second opinion. Previously my biopsy was 7, 3+4, but recent MRI shows
I am scheduled for a second Biopsy and plan to get a second opinion. I read Dr. Epstein with John Hopkins is on indefinite leave. Should I just submit it to John Hopkins, or does anyone have any suggestions for a good place for a second opinion. Previously my biopsy was 7, 3+4, but recent MRI shows
carlsbadjack
in
Prostate Cancer Network
8 months ago
Body jerking/spasms
Since finishing radiotherapy in August for lung cancer, I have these uncontrollable body jerking throughout the night, arms, legs, head etc. Also, twice now, I've fallen to the floor jerking on and off for nearly 30 minutes. I'm conscious, can hear things, but cannot stop the body movements. Has anyone
Since finishing radiotherapy in August for lung cancer, I have these uncontrollable body jerking throughout the night, arms, legs, head etc. Also, twice now, I've fallen to the floor jerking on and off for nearly 30 minutes. I'm conscious, can hear things, but cannot stop the body movements. Has anyone
olwman
in
The Roy Castle Lung Cancer Foundation
8 months ago
Sufficient Investigation?
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
Nordman
in
Advanced Prostate Cancer
8 months ago
Shingles vaccine?
I unknowingly (until after) had shingles in March 2023 which I believe, triggered first episode of Afib. Now thinking about having the vaccine, concerned that it will trigger Afib. What are people's experiences of having the vaccine? Do I need it yet. Maybe still have antibodies in my system? Will
I unknowingly (until after) had shingles in March 2023 which I believe, triggered first episode of Afib. Now thinking about having the vaccine, concerned that it will trigger Afib. What are people's experiences of having the vaccine? Do I need it yet. Maybe still have antibodies in my system? Will
sunlovah
in
Atrial Fibrillation Support
11 months ago
Ebus failure
Hi everyone, well I had my Ebus done yesterday, but unfortunately the scope just wouldn't reach the mass, although I knew it was 50/50 chance I'm so upset and dissapointed. I feel my only option now is to re live the nightmare needle ct but my anxiety is sooo bad at the thoughts of it.We are two months
Hi everyone, well I had my Ebus done yesterday, but unfortunately the scope just wouldn't reach the mass, although I knew it was 50/50 chance I'm so upset and dissapointed. I feel my only option now is to re live the nightmare needle ct but my anxiety is sooo bad at the thoughts of it.We are two months
Mindini1964
in
The Roy Castle Lung Cancer Foundation
8 months ago
Radiation therapy or Turp first?
Guys, I posted last week on this issue but looking for additional feedback. Appears my cancer is spreading after 5 years but also experiencing urination issues at same time. I met with urologist and he suggests Turp procedure. I meet with radiation oncologist next week. My question is has anyone experienced
Guys, I posted last week on this issue but looking for additional feedback. Appears my cancer is spreading after 5 years but also experiencing urination issues at same time. I met with urologist and he suggests Turp procedure. I meet with radiation oncologist next week. My question is has anyone experienced
3putt
in
Advanced Prostate Cancer
8 months ago
polycystic liver disease
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
Sing2011
in
British Liver Trust
8 months ago
Not sure what to do next
Hello. I suddenly developed loud tinnitus in my left ear 3 months ago and went to the doctors. It's a very high pitched ringing and varies between loud and very loud and sometimes has different pitches all at once like an orchestra. It's constant, 24/7. I'd had a very slight ringing for several months
Hello. I suddenly developed loud tinnitus in my left ear 3 months ago and went to the doctors. It's a very high pitched ringing and varies between loud and very loud and sometimes has different pitches all at once like an orchestra. It's constant, 24/7. I'd had a very slight ringing for several months
Sootymouse
in
Acoustic Neuroma Support
8 months ago
DBS journey
Hey Gang. I thought I’d post something as I’m aware that a few of you are following my story with a mind to seeing how it fits into your own life? So, turned on Friday, felt awful Saturday (as you know) better Sunday. But yesterday and today I had awful issues with my voice. The programmer had asked
Hey Gang. I thought I’d post something as I’m aware that a few of you are following my story with a mind to seeing how it fits into your own life? So, turned on Friday, felt awful Saturday (as you know) better Sunday. But yesterday and today I had awful issues with my voice. The programmer had asked
jeeves19
in
Cure Parkinson's
11 months ago
Small cell advanced prostate cancer spread to liver and lungs.
This is a request for a near neighbour and friend of mine, Justin, who lives 2 streets away in the UK. He is appx. 53. Please do not read the history in my profile as that sadly relates to me. Justin was diagnosed with a PSA over 100 and widespread to bones. Justin has burned through the treatments in
This is a request for a near neighbour and friend of mine, Justin, who lives 2 streets away in the UK. He is appx. 53. Please do not read the history in my profile as that sadly relates to me. Justin was diagnosed with a PSA over 100 and widespread to bones. Justin has burned through the treatments in
lcfcpolo
in
Advanced Prostate Cancer
8 months ago
Advances in solid tumors: finnish clinical trial
Interesting results are coming! Bexmarilimab seems to be able to improve immunotherapy. It was not yet tested on prostate cancer, but it's already commercially used to treat blood malignacies. As single agent: https://www.faron.com/our-science/clinical-trials/matins "Latest data showed a three-fold
Interesting results are coming! Bexmarilimab seems to be able to improve immunotherapy. It was not yet tested on prostate cancer, but it's already commercially used to treat blood malignacies. As single agent: https://www.faron.com/our-science/clinical-trials/matins "Latest data showed a three-fold
Maxone73
in
Advanced Prostate Cancer
8 months ago
Need to Change Treatment
So I have progression after two years on Ibrance and Letrozole. I have an opportunity to participate in a clinical trial in my town in which I would be randomly assigned to Giredestrant, a promising oral SERD (monotherapy) or both Giredestrant with a new Pikc3a drug. My standard of care option would
So I have progression after two years on Ibrance and Letrozole. I have an opportunity to participate in a clinical trial in my town in which I would be randomly assigned to Giredestrant, a promising oral SERD (monotherapy) or both Giredestrant with a new Pikc3a drug. My standard of care option would
Trissh
in
SHARE Metastatic Breast Cancer
8 months ago
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