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Brain tumours (low-grade/mixed)
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Meds not working well again
My PD husband and has been taking 4 or 5 sinemet 50/250 CR for about a year and started using neuropro patch 2mg 6 months ago. He was on madopar for several years prior, but it was never right for him. Suddenly it seems his meds aren't working and the pd symptoms are severe again. The neurologist
My PD husband and has been taking 4 or 5 sinemet 50/250 CR for about a year and started using neuropro patch 2mg 6 months ago. He was on madopar for several years prior, but it was never right for him. Suddenly it seems his meds aren't working and the pd symptoms are severe again. The neurologist
PDsux_10
in
Cure Parkinson's
1 month ago
Shingles jab refused, ( immune suppressed )
I was 64 ( Oct 2023 ) i inquired about the shingles jab, but was refused ???
I was 64 ( Oct 2023 ) i inquired about the shingles jab, but was refused ???
alast1959
in
NRAS
1 month ago
AFib after 2nd Shingles jab
I only occasionally get Afib now following an ablation in 2020, but I had my 2nd shingles jab 3 days ago and it seems to have kicked off my afib again albeit not constantly. I just wondered if anyone else has had the same effect from the 2nd jab (as it is supposedly worse than the 1st) or is it just
I only occasionally get Afib now following an ablation in 2020, but I had my 2nd shingles jab 3 days ago and it seems to have kicked off my afib again albeit not constantly. I just wondered if anyone else has had the same effect from the 2nd jab (as it is supposedly worse than the 1st) or is it just
destiny234
in
Atrial Fibrillation Support
1 month ago
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deep brain stimulation
I am considering DBS. Please share any experiences and outcomes that may help me make the decision to whether or not… thanks in advance!
I am considering DBS. Please share any experiences and outcomes that may help me make the decision to whether or not… thanks in advance!
DonnaMc1968
in
Cure Parkinson's
1 month ago
filgotinib and shingles,
hi everyone Just getting over last 2 weeks of awful shingles ,my god painful or what!! As I am on filgotinib and it lists side effect can be reactivation of shingles virus,I can only assume it is that.Has anyone else had shingles while on any of the JAK meds? Pharmacist prescribed antivirals within
hi everyone Just getting over last 2 weeks of awful shingles ,my god painful or what!! As I am on filgotinib and it lists side effect can be reactivation of shingles virus,I can only assume it is that.Has anyone else had shingles while on any of the JAK meds? Pharmacist prescribed antivirals within
Doodlereggie
in
NRAS
1 month ago
Tremor Assessment
Has anyone had a tremor assessment prior to deep brain stimulation?
Has anyone had a tremor assessment prior to deep brain stimulation?
Ostap
in
Ataxia UK
2 months ago
Hello To You All
My husband and I continue to eat low carb, about 4 years now. Any one else continuing? Rather disappointing that low carb doesn't have a higher profile in many countries. Any idea why? My husband has also been looking into the omega 3 omega 6 ratio in our foods and the absolute intake of omega 6.
My husband and I continue to eat low carb, about 4 years now. Any one else continuing? Rather disappointing that low carb doesn't have a higher profile in many countries. Any idea why? My husband has also been looking into the omega 3 omega 6 ratio in our foods and the absolute intake of omega 6.
over61andstilltrying
in
Low-Carb High-Fat (LCHF)
3 months ago
DBS: Medtronic question re. voice
Hi everyone. As many of you know I had DBS last August. Didn’t reverse my symptoms 5 years as was touted by my neuro but patched me up to fight another couple of rounds. When I was switched on, after a day or so I noticed that it was much harder to speak: volume and articulacy were much harder to produce
Hi everyone. As many of you know I had DBS last August. Didn’t reverse my symptoms 5 years as was touted by my neuro but patched me up to fight another couple of rounds. When I was switched on, after a day or so I noticed that it was much harder to speak: volume and articulacy were much harder to produce
jeeves19
in
Cure Parkinson's
2 months ago
Insomnia
Hello, I was diagnosed PD when i was 37, now I'm 46 years old. 5 months ago i was DBS. After surgery, things did not go bad, but not as good I have expected. On March 7th i was reajusted the neurostimulator by my neourologist. On March 15th i started HDT Protocol, 50 mg sublingual on alternative days
Hello, I was diagnosed PD when i was 37, now I'm 46 years old. 5 months ago i was DBS. After surgery, things did not go bad, but not as good I have expected. On March 7th i was reajusted the neurostimulator by my neourologist. On March 15th i started HDT Protocol, 50 mg sublingual on alternative days
carlosgarcia2048
in
Cure Parkinson's
2 months ago
Self sabotage
I had a good day yesterday, my husband went away for two weeks but I am fine on my own. I cooked a nice diet friendly meal for myself. There was a small amount of wine in an open bottle so I had a glass, then decided to finish the wine another glass and a half. But then I just wanted to eat icecream,
I had a good day yesterday, my husband went away for two weeks but I am fine on my own. I cooked a nice diet friendly meal for myself. There was a small amount of wine in an open bottle so I had a glass, then decided to finish the wine another glass and a half. But then I just wanted to eat icecream,
Frenchfields
2024 January
in
Weight Loss Support
3 months ago
High BLood Pressure, Kidney failure, cause discovered
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
phebamom
in
High Blood Pressure Support
3 months ago
Gingko Biloba - Supplement Advice
Hello everyone, I'm reaching out for advice on using Ginkgo Biloba to combat brain fog. My previous experience with the Amitamin Ginkgo complex yielded promising results in boosting mental clarity. However, I've noticed it contains iodine (150ug), which I'd rather steer clear of. With that in mind
Hello everyone, I'm reaching out for advice on using Ginkgo Biloba to combat brain fog. My previous experience with the Amitamin Ginkgo complex yielded promising results in boosting mental clarity. However, I've noticed it contains iodine (150ug), which I'd rather steer clear of. With that in mind
BookLover2020
in
Thyroid UK
7 days ago
Low Carb or even Keto why is not recommended with low thyroid - can I control prediabetes with diet ?
Help please wise, kind people. I am autoimmune underactive and gluten intolerant but also pre diabetic. As thyroid stabilising and generally fine, I am now trying to sort the Pre diabetes and take it off the back burner. I have been reading around this on and off for ages and never got out of the
Help please wise, kind people. I am autoimmune underactive and gluten intolerant but also pre diabetic. As thyroid stabilising and generally fine, I am now trying to sort the Pre diabetes and take it off the back burner. I have been reading around this on and off for ages and never got out of the
Sleepman
in
Thyroid UK
3 months ago
Meals for one, quick ideas please.
My other half is going to be away and I have a a couple of busy weeks -he normally cooks our evening meal. I have some things in the freezer and a few favourites I cook ’for one’ but would love some of your favourite quickish meal ideas. I eat salad for lunch every day and aim to be low carb but I eat
My other half is going to be away and I have a a couple of busy weeks -he normally cooks our evening meal. I have some things in the freezer and a few favourites I cook ’for one’ but would love some of your favourite quickish meal ideas. I eat salad for lunch every day and aim to be low carb but I eat
Frenchfields
2024 January
in
Weight Loss Support
3 months ago
Dalidoman
Newly diagnosed stage 4 prostate cancer, age 77, PSA in low 20 range. PSMA (type of PET scan) revealed metastasis to 7 bone sites, with intermittent hip pain alleviated with Tylenol. Occasionally short of breath because, I think, below normal hemoglobin, platelet and iron levels consistent with bone
Newly diagnosed stage 4 prostate cancer, age 77, PSA in low 20 range. PSMA (type of PET scan) revealed metastasis to 7 bone sites, with intermittent hip pain alleviated with Tylenol. Occasionally short of breath because, I think, below normal hemoglobin, platelet and iron levels consistent with bone
DAR1890
in
Advanced Prostate Cancer
3 months ago
anti NMDA encephalitis
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
AntiNMDAWarriorWife
in
Headway
2 months ago
AbbVie’s Produodopa approved by SMC to treat Parkinson’s disease patients in Scotland
AbbVie’s Produodopa (foslevodopa-foscarbidopa) has been accepted by the Scottish Medicines Consortium (SMC) for use within NHS Scotland to treat advanced levodopa-responsive Parkinson’s disease (PD). PD patients with severe motor fluctuations and hyperkinesia or dyskinesia when previous available combinations
AbbVie’s Produodopa (foslevodopa-foscarbidopa) has been accepted by the Scottish Medicines Consortium (SMC) for use within NHS Scotland to treat advanced levodopa-responsive Parkinson’s disease (PD). PD patients with severe motor fluctuations and hyperkinesia or dyskinesia when previous available combinations
Farooqji
in
Cure Parkinson's
2 months ago
Low carb diets
On top of everything else I'm now pre-diabetic. I wasn't prior to starting the steroids but as I'm now on 2 mg of Prednisolone a day and have been on 5 mg or less for over a year I suspect that Prednisolone is not the culprit. I've been looking at a diabetic website and it says that low carb is less
On top of everything else I'm now pre-diabetic. I wasn't prior to starting the steroids but as I'm now on 2 mg of Prednisolone a day and have been on 5 mg or less for over a year I suspect that Prednisolone is not the culprit. I've been looking at a diabetic website and it says that low carb is less
Siena62
in
PMRGCAuk
3 months ago
A Shingrix thank you
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Schubert1870
in
CLL Support
2 months ago
Iodine and Povidone - A Chemistry Lesson
Over the years, we have seen many mentions of povidone-iodine. This video is the first time I have ever come across a proper explanation as to why povidone-iodine is chosen! It then continues with its aim of extracting pure iodine from povidone-iodine. The video could be very boring if you are
Over the years, we have seen many mentions of povidone-iodine. This video is the first time I have ever come across a proper explanation as to why povidone-iodine is chosen! It then continues with its aim of extracting pure iodine from povidone-iodine. The video could be very boring if you are
helvella
Thyroid UK
in
Thyroid UK
1 month ago
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