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Experiences with
Brain haemorrhage
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DBS and immobility
For those of you who have had DBS surgery-- When I wake up in the morning, I can't move. It is a great effort to reach for the pill bottle. Everything is stiff including my hands. Will DBS help this?
For those of you who have had DBS surgery-- When I wake up in the morning, I can't move. It is a great effort to reach for the pill bottle. Everything is stiff including my hands. Will DBS help this?
Hidden
in
Cure Parkinson's
10 years ago
Mouth shingles
Hi everyone my daughter has been diagnosed with mouth shingles, we are not sure if it will effect me in anyway. I'm on mtx 15mg. Not sure whether to fone doctor to find out don't want to panic over nothing lol luv Michelle xxx
Hi everyone my daughter has been diagnosed with mouth shingles, we are not sure if it will effect me in anyway. I'm on mtx 15mg. Not sure whether to fone doctor to find out don't want to panic over nothing lol luv Michelle xxx
chemar
in
NRAS
10 years ago
Position of relief from foot dystonia
I am experiencing more off time with increasing foot cramping, bad enough to put me on my hands and knees. Serendipity strikes! I was so tired I crawled up to a couch and rested my upper body on it. Still on my knees I pressed the top of my foot into the carpet which shut down the cramp. This was
I am experiencing more off time with increasing foot cramping, bad enough to put me on my hands and knees. Serendipity strikes! I was so tired I crawled up to a couch and rested my upper body on it. Still on my knees I pressed the top of my foot into the carpet which shut down the cramp. This was
etterus
in
Cure Parkinson's
10 years ago
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The INR Debate regarding APS
If a doctor were to agree to medicate a patient with a target INR of 4.5 – and subsequently the patient bashed their head and died of a
brain
haemorrhage
, the doctor could be sued.
If a doctor were to agree to medicate a patient with a target INR of 4.5 – and subsequently the patient bashed their head and died of a
brain
haemorrhage
, the doctor could be sued.
MeerB
in
Hughes Syndrome APS Forum
10 years ago
If the Bisoprolol is keeping AF under control Do I need Warfrin
Following diagnosis I was referred to the anticoagulation service who assessed my score as 2 possibly 3 because of a previous
brain
haemorrhage
and induced stroke due to a further bleed during surgery at which point the internal carotid was embolised, but they where really not sure what to do, so they
Following diagnosis I was referred to the anticoagulation service who assessed my score as 2 possibly 3 because of a previous
brain
haemorrhage
and induced stroke due to a further bleed during surgery at which point the internal carotid was embolised, but they where really not sure what to do, so they
saralee21
in
AF Association
10 years ago
Had DBS in July, No tremors but have taken a nose dive in other areas, anyone else have this experience?
What a gift with no tremors but now I'm experiencing what feels like some late stage symptoms. Typing this is very slow and difficult, my walk is shuffling with forward movement, almost falling lots. Slow and uncoordinated. Brain slow and difficult to coordinate, getting overwhelmed easilyl Handwriting
What a gift with no tremors but now I'm experiencing what feels like some late stage symptoms. Typing this is very slow and difficult, my walk is shuffling with forward movement, almost falling lots. Slow and uncoordinated. Brain slow and difficult to coordinate, getting overwhelmed easilyl Handwriting
jebbers
in
Cure Parkinson's
10 years ago
Lung/Chest Pain
(They thought it was blood clots due to a
brain
haemorrhage
). Its so painful, im having a flare up of it at the moment but I dont bother going to the drs as it will probably be another chest xray. Thank you.
(They thought it was blood clots due to a
brain
haemorrhage
). Its so painful, im having a flare up of it at the moment but I dont bother going to the drs as it will probably be another chest xray. Thank you.
jord38
in
Thyroid UK
10 years ago
Hearing loss
I had a
brain
haemorrhage
and hydrocephalus 5 years ago. I have a non programmable shunt. Has anyone had a
brain
haemorrhage
/hydrocephalus and/or a shunt put in and since had hearing loss.
I had a
brain
haemorrhage
and hydrocephalus 5 years ago. I have a non programmable shunt. Has anyone had a
brain
haemorrhage
/hydrocephalus and/or a shunt put in and since had hearing loss.
mylife2014
in
Headway
10 years ago
Viral Meningitis: Your Ideas
Hi Everyone We are just starting to put together our plans for the coming year. One area we are keen to focus on is viral meningitis. As many of you know, only too well, viral meningitis is often misunderstood by others. This is where we would really appreciate your ideas to help us plan our next steps
Hi Everyone We are just starting to put together our plans for the coming year. One area we are keen to focus on is viral meningitis. As many of you know, only too well, viral meningitis is often misunderstood by others. This is where we would really appreciate your ideas to help us plan our next steps
MNClaireD
Meningitis Now
in
Meningitis Now
10 years ago
This post doesn't really mean anything
I've had a
brain
haemorrhage
, and that would be no big deal [i]if I didn't have the capacity to care about it[/i]. I'm just sad at the moment, it isn't constructive, and there's nothing to be done. It's happened and it's nobody's fault. Just trying to wrap my head around that one at the moment.
I've had a
brain
haemorrhage
, and that would be no big deal [i]if I didn't have the capacity to care about it[/i]. I'm just sad at the moment, it isn't constructive, and there's nothing to be done. It's happened and it's nobody's fault. Just trying to wrap my head around that one at the moment.
B_S_A
in
Headway
10 years ago
Viral Menigitis
4 weeks ago my husband was diagnosed with viral meningitis. He is a very active guy and has always taken such good care of himself, he is an avid runner and just started competing in triathlons. We have a 19 month old beautiful baby girl and he is afraid of how much time he is going to miss out on
4 weeks ago my husband was diagnosed with viral meningitis. He is a very active guy and has always taken such good care of himself, he is an avid runner and just started competing in triathlons. We have a 19 month old beautiful baby girl and he is afraid of how much time he is going to miss out on
dhattenbach
in
Meningitis Now
10 years ago
Dreaded Angiogram.
Before my
brain
haemorrhage
nothing really bothered me, I just got on with everything, but now I've got an angiogram Tuesday - i can't get it off my mind. I've never,ever, had trouble sleeping but I'm so anxious. Feel a bit stupid really!
Before my
brain
haemorrhage
nothing really bothered me, I just got on with everything, but now I've got an angiogram Tuesday - i can't get it off my mind. I've never,ever, had trouble sleeping but I'm so anxious. Feel a bit stupid really!
trelfy1
in
Headway
10 years ago
long term help from dbs?
I would like to hear from people who have been using dbs for a long time---years. DOes it still help? How long do you see benefits from it?
I would like to hear from people who have been using dbs for a long time---years. DOes it still help? How long do you see benefits from it?
Hidden
in
Cure Parkinson's
10 years ago
Does DBS help ability to walk?
I am scheduled for DBS soon and I am still apprehensive because my main problem is that I am losing the ability to walk. I have very little tremor. Has anyone one any experience with DBS helping or not helping their ability to move or walk? Also, in the mornings I cannot move when I wake up and my whole
I am scheduled for DBS soon and I am still apprehensive because my main problem is that I am losing the ability to walk. I have very little tremor. Has anyone one any experience with DBS helping or not helping their ability to move or walk? Also, in the mornings I cannot move when I wake up and my whole
Hidden
in
Cure Parkinson's
10 years ago
Shingles vaccine
Hi I have GPA , my mom as got to have a shingles vaccine. Am I ok to see her the next day or do I have to stay away for a few days?
Hi I have GPA , my mom as got to have a shingles vaccine. Am I ok to see her the next day or do I have to stay away for a few days?
Doghouse
in
Vasculitis UK
10 years ago
DBS for bradykinesia
I am a non tremor bradykinestic type. My off periods are characterized by slowness and dystonia in my feet with anxiety. The neurologists thinks it's time for DBS. Does anyone have experience with similar symptoms?
I am a non tremor bradykinestic type. My off periods are characterized by slowness and dystonia in my feet with anxiety. The neurologists thinks it's time for DBS. Does anyone have experience with similar symptoms?
etterus
in
Cure Parkinson's
10 years ago
dbs in michigan?
Does anyone have any experience with dbs at University of Michigan? I have read everyone saying to find a good programmer but How do you know if someone is a good programmer?
Does anyone have any experience with dbs at University of Michigan? I have read everyone saying to find a good programmer but How do you know if someone is a good programmer?
Hidden
in
Cure Parkinson's
10 years ago
DBS Surgery
Had DBS in July this year. Seen Dr. twice for tweaking of the electrical currant. So far it seems to be a trade off of symptoms. Controls tremors (a blessing) but now having trouble walking, some slurred speech, ridigity. All of these were in the backgroud and minimal before. Also having trouble
Had DBS in July this year. Seen Dr. twice for tweaking of the electrical currant. So far it seems to be a trade off of symptoms. Controls tremors (a blessing) but now having trouble walking, some slurred speech, ridigity. All of these were in the backgroud and minimal before. Also having trouble
jebbers
in
Cure Parkinson's
10 years ago
Tetanus?
I have come across the following link:http://healthimpactnews.com/2013/tetanus-vaccine-causes-a-new-disease-known-as-antiphospholipid-syndrome/ Does anyone know if this has been followed up or if a response from Prof Hughes has been given.
I have come across the following link:http://healthimpactnews.com/2013/tetanus-vaccine-causes-a-new-disease-known-as-antiphospholipid-syndrome/ Does anyone know if this has been followed up or if a response from Prof Hughes has been given.
LesJames
in
Hughes Syndrome APS Forum
10 years ago
Shingles
I have shingles at the moment and am feeling dreadful. Can anyone out there tell me how long it is likely to last. The trouble is that because I feel so rotten it has made me feel so depressed as well. Doesn't time drag when you feel rotten?!!!!!
I have shingles at the moment and am feeling dreadful. Can anyone out there tell me how long it is likely to last. The trouble is that because I feel so rotten it has made me feel so depressed as well. Doesn't time drag when you feel rotten?!!!!!
PaMaBa
in
Lung Conditions Community Forum
10 years ago
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