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DBS
Those who have DBS - what are your thoughts on having rechargeable or not rechargeable? Am scheduled for DBS 4-4-17
Those who have DBS - what are your thoughts on having rechargeable or not rechargeable? Am scheduled for DBS 4-4-17
Dottie2
in
Cure Parkinson's
7 years ago
Deep Brain Stimulation
After much testing I was not diagnosed with Parkinson, but rather Essential Tremors. Months ago, I underwent DBS surgery, Deep Brain Stimulation at Barrows Neurological Institute, Dr. Francisco Ponce. DBS delivers minute electrical stimulation to specific areas of the brain via a surgical implant similar
After much testing I was not diagnosed with Parkinson, but rather Essential Tremors. Months ago, I underwent DBS surgery, Deep Brain Stimulation at Barrows Neurological Institute, Dr. Francisco Ponce. DBS delivers minute electrical stimulation to specific areas of the brain via a surgical implant similar
In2Az
in
Cure Parkinson's
7 years ago
Lyme disease
Has anyone had any tests for this? Apparently, it's difficult finding a positive reading. Be interesting with the similar symptoms?
Has anyone had any tests for this? Apparently, it's difficult finding a positive reading. Be interesting with the similar symptoms?
spider555
in
Fibromyalgia Action UK
7 years ago
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Anxiety at night!
My anxiety started 2 and half years ago. I had my little girl and 6 month later my mother inlaw died suddenly and my dad got cancer! My thoughts are ,I'm going to get a brain tumour, I'm going to have a stroke, just generally I'm going to die. My symtoms are Head aches, tingerling face, and just worring
My anxiety started 2 and half years ago. I had my little girl and 6 month later my mother inlaw died suddenly and my dad got cancer! My thoughts are ,I'm going to get a brain tumour, I'm going to have a stroke, just generally I'm going to die. My symtoms are Head aches, tingerling face, and just worring
hollylauracoleman
in
Anxiety Support
7 years ago
Polyarthralgia?
I had a letter of my rhumy today, my Lyme disease blood tests still are not back after having them done over 2 weeks... but the rest of my test are back... he has put at the top where it says diagnosis: polyarthralgia? I have no idea what this is i have been trying to Google but not a lot seems to be
I had a letter of my rhumy today, my Lyme disease blood tests still are not back after having them done over 2 weeks... but the rest of my test are back... he has put at the top where it says diagnosis: polyarthralgia? I have no idea what this is i have been trying to Google but not a lot seems to be
Hidden
in
LUPUS UK
7 years ago
Supporting someone with Meningitis
One of my friends is currently suffering from Tuberculous Meningitis (TBM). He is currently getting the treatment but I would like to know what I can do to support him during this time. His treatment is ongoing but it seems that he worries about not being able to make it at times and is thus under a
One of my friends is currently suffering from Tuberculous Meningitis (TBM). He is currently getting the treatment but I would like to know what I can do to support him during this time. His treatment is ongoing but it seems that he worries about not being able to make it at times and is thus under a
manan01
in
Meningitis Now
7 years ago
Shingles again?
My mother had shingles once few years(~5) ago. She is 82 yo and was diagnosed with CLL there are 6 years. Was on Rituxan and chlorambucil combination treatment already twice (each treatment with few cycles , treatments 3 years apart) and now was prescribed and started taking ibrutinib 6 weeks ago. Her
My mother had shingles once few years(~5) ago. She is 82 yo and was diagnosed with CLL there are 6 years. Was on Rituxan and chlorambucil combination treatment already twice (each treatment with few cycles , treatments 3 years apart) and now was prescribed and started taking ibrutinib 6 weeks ago. Her
J-123
in
CLL Support
7 years ago
DBS
Keen to hear if anyone has had DBS implants if so what are the pros and cons. Trying to weigh up benefits as been offered the operation Any unexpected results good or less good? Thanks Al
Keen to hear if anyone has had DBS implants if so what are the pros and cons. Trying to weigh up benefits as been offered the operation Any unexpected results good or less good? Thanks Al
Aleagles
in
Cure Parkinson's
7 years ago
Post CT Scan of Brain and MRI Scan of whole body
You may remember that the result of the CT scan to the head showed, what I was told is brain tumour. The MRI body scan was clear but my GP has phoned and told me that what had been called a tumour is in fact CAVERNOMA (hope I have spelt that right.) and not so serious. I am to see the Neurosurgeon/doctor
You may remember that the result of the CT scan to the head showed, what I was told is brain tumour. The MRI body scan was clear but my GP has phoned and told me that what had been called a tumour is in fact CAVERNOMA (hope I have spelt that right.) and not so serious. I am to see the Neurosurgeon/doctor
dennisleigh
in
Headway
7 years ago
TB - Meningitis - state of coma
Hello , My mother is 56 yrs old and just 12 days ago she had severe headache , and after 2 days of severe headache her condition got more worsen and admitted to hospital , she was diagnosed to be suffering from TBM and medication and treatment for TBM was started , after admission her condition got
Hello , My mother is 56 yrs old and just 12 days ago she had severe headache , and after 2 days of severe headache her condition got more worsen and admitted to hospital , she was diagnosed to be suffering from TBM and medication and treatment for TBM was started , after admission her condition got
Kunalshamija
in
Meningitis Now
7 years ago
Headache help πππ
I have headache from last 3 day it's not going away I'm worry about brain tumor because I have healthy anxiety some one can help me please please please.π€π€π€π€
I have headache from last 3 day it's not going away I'm worry about brain tumor because I have healthy anxiety some one can help me please please please.π€π€π€π€
srehman
in
Anxiety Support
7 years ago
Staying positive after bacterial meningitis
Hi everyone. Nearly all the stories I've read on here have been very upsetting and I really feel for the people involved. It is life changing but I'm writing this to try and give people some hope and to let you know that if you're lucky and with support you can recover from this horrendous illness.
Hi everyone. Nearly all the stories I've read on here have been very upsetting and I really feel for the people involved. It is life changing but I'm writing this to try and give people some hope and to let you know that if you're lucky and with support you can recover from this horrendous illness.
Garfy123
in
Meningitis Now
7 years ago
DBS Off vs DBS On - Deep Brain Stimulation
Hi all This video shows the effect that Deep Brain Stimulation (DBS) has upon my Parkinson's Disease symptoms. I perform a number of tasks with DBS switched off, and then repeat them with DBS switched on - the difference is amazing! https://www.youtube.com/watch?v=D0Hlo_5nDX4 Cheers, Ian
Hi all This video shows the effect that Deep Brain Stimulation (DBS) has upon my Parkinson's Disease symptoms. I perform a number of tasks with DBS switched off, and then repeat them with DBS switched on - the difference is amazing! https://www.youtube.com/watch?v=D0Hlo_5nDX4 Cheers, Ian
Ianfrizell
in
Cure Parkinson's
7 years ago
Methylphenidate (Ritalin) and the diagnosis game
Hello everyone :) I'm about to try and get methylphenidate (Ritalin in the US, Concerta in the UK) on the NHS. I'm in a weird position, because they refuse to believe my brain injury is real. The official diagnosis is "medically unexplained symptoms", which in treatment terms gets you zilch. I'm going
Hello everyone :) I'm about to try and get methylphenidate (Ritalin in the US, Concerta in the UK) on the NHS. I'm in a weird position, because they refuse to believe my brain injury is real. The official diagnosis is "medically unexplained symptoms", which in treatment terms gets you zilch. I'm going
NightBird
in
Headway
7 years ago
No treatment options available to me
I was diagnosed recently with Hughes/Lupus & Sjogrens and they tried me on Plaquanil and the side effects and reaction was too profound, I had a letter today saying that mepacrine could be an option but it is much less likely to work and I could suffer similar adverse effects. And due to the fact that
I was diagnosed recently with Hughes/Lupus & Sjogrens and they tried me on Plaquanil and the side effects and reaction was too profound, I had a letter today saying that mepacrine could be an option but it is much less likely to work and I could suffer similar adverse effects. And due to the fact that
riannabri
in
LUPUS UK
7 years ago
brain tumour - health anxiety
okay so as i am writing this, i am balling my eyes out for the 4th time tonight as i am totally now convinced i have a brain tumour. I've been having too many headaches that it's taken me over the edge now, convinced it's a brain tumour and i am just balling. I am so worried, upset, fed up, all of it
okay so as i am writing this, i am balling my eyes out for the 4th time tonight as i am totally now convinced i have a brain tumour. I've been having too many headaches that it's taken me over the edge now, convinced it's a brain tumour and i am just balling. I am so worried, upset, fed up, all of it
miasouth4
in
Anxiety Support
7 years ago
health anxiety- need advice
okay so im visiting the doctor soon to discuss my health anxiety and get a therapist, but due to my brain tumour worry because of headaches, how can i bring this up to her? will she even do anything? i want to be checked and reassured, but I don't know if she can do much. Has anyone been through this
okay so im visiting the doctor soon to discuss my health anxiety and get a therapist, but due to my brain tumour worry because of headaches, how can i bring this up to her? will she even do anything? i want to be checked and reassured, but I don't know if she can do much. Has anyone been through this
miasouth4
in
Anxiety Support
7 years ago
Work welfare meeting
Anyone done this? My work have requested a medical report from GP which is done and very supportive of my health. Brain tumour removed and now diagnosed epileptic. Going through big change in drugs. Some days I feel I could return to work most days feel I won't. What happens at welfare meeting. Can they
Anyone done this? My work have requested a medical report from GP which is done and very supportive of my health. Brain tumour removed and now diagnosed epileptic. Going through big change in drugs. Some days I feel I could return to work most days feel I won't. What happens at welfare meeting. Can they
Hidden
in
Headway
7 years ago
Viral meningitis post 10 years.
Hi everyone. I had VM about ten years ago which left me in the hospital month. Docs said the first two days were 50/50 I'm would survive because I was also diagnosed with HIV/Aids at the same time. So I kinda got the double whammy. I was always the type that thought nothing would ever happen to me but
Hi everyone. I had VM about ten years ago which left me in the hospital month. Docs said the first two days were 50/50 I'm would survive because I was also diagnosed with HIV/Aids at the same time. So I kinda got the double whammy. I was always the type that thought nothing would ever happen to me but
dobguy1
in
Meningitis Now
7 years ago
so tired of this
so look where I am again. I'm back to write another post, although this time im not certain what im even writing. I am just tired to this point. I am fed up and tired. Ive had a headache all day, sent me worried. Got home and tried to get my mind off of it and brain tumours but i cant. all i think about
so look where I am again. I'm back to write another post, although this time im not certain what im even writing. I am just tired to this point. I am fed up and tired. Ive had a headache all day, sent me worried. Got home and tried to get my mind off of it and brain tumours but i cant. all i think about
miasouth4
in
Anxiety Support
7 years ago
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