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DBS after 5 to 10years people experiences
anyone using DBS from past 10 Years, if Yes, how is the condition now.. is the PD stabilized or progressed?
anyone using DBS from past 10 Years, if Yes, how is the condition now.. is the PD stabilized or progressed?
Vishwa228
in
Cure Parkinson's
5 years ago
Shingles and watch and wait
I am 7 years into watch and wait- no symptoms other than steadily increasing wbc(. 200now) . Last week diagnosed with shingles and got antiviral medication , which is hopefully clearing it up. My question is , does getting shingles signal the need to start treatment? Should I let my consultant know,
I am 7 years into watch and wait- no symptoms other than steadily increasing wbc(. 200now) . Last week diagnosed with shingles and got antiviral medication , which is hopefully clearing it up. My question is , does getting shingles signal the need to start treatment? Should I let my consultant know,
Drayton1
in
CLL Support
5 years ago
Will this end
I have been dealing with hell the past few months. At this point just not sure if it will end. I worry every day all day and can’t sleep when I do wake up it’s all over again. I had been having awful headaches which lead to treacherous body aches after so many Er visits all test were negative. I started
I have been dealing with hell the past few months. At this point just not sure if it will end. I worry every day all day and can’t sleep when I do wake up it’s all over again. I had been having awful headaches which lead to treacherous body aches after so many Er visits all test were negative. I started
Silverlining101
in
Anxiety Support
5 years ago
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Mind games.
I had ERS for my acoustic neuroma one year ago.I've been experiencing mood swings, slight depression, and i'm reacting to situations in an angry way.Has anyone had similar experiences?
I had ERS for my acoustic neuroma one year ago.I've been experiencing mood swings, slight depression, and i'm reacting to situations in an angry way.Has anyone had similar experiences?
JimBeckenham
in
Acoustic Neuroma Support
5 years ago
Remote DBS in China
Remote surgery will start to become popular with 5g networks. 5G is being used to perform remote surgery from thousands of miles away, and it could transform the healthcare industry https://www.businessinsider.com/5g-surgery-could-transform-healthcare-industry-2019-8?utmSource=twitter&utmContent=referral
Remote surgery will start to become popular with 5g networks. 5G is being used to perform remote surgery from thousands of miles away, and it could transform the healthcare industry https://www.businessinsider.com/5g-surgery-could-transform-healthcare-industry-2019-8?utmSource=twitter&utmContent=referral
Hidden
in
Cure Parkinson's
5 years ago
Does DBS improve sleep?
Has anyone who has had DBS found that it improved their non motor symptoms, especially sleep?
Has anyone who has had DBS found that it improved their non motor symptoms, especially sleep?
jackedmonston
in
Cure Parkinson's
5 years ago
DBS results please
Since I am beginniing to seriously consider DBS I would appreciate your comments regarding results, positive and negative,, and when and where was your surgery. Many thanks
Since I am beginniing to seriously consider DBS I would appreciate your comments regarding results, positive and negative,, and when and where was your surgery. Many thanks
jombi
in
Cure Parkinson's
5 years ago
Risk of getting chicken pox ?
Hello friends a question my husband has bad doze of shingles am I at risk I’ve had chicken pox as child and shingles as adult ... I’m currently on 14.5 mg 😏
Hello friends a question my husband has bad doze of shingles am I at risk I’ve had chicken pox as child and shingles as adult ... I’m currently on 14.5 mg 😏
CSMM
in
PMRGCAuk
5 years ago
10 Days Ago it was DBS
Always stated to my neurologists and physical therapist for over three years now to please tell me things straight up, so they did. A few weeks ago i had my 6 month check-up, doc said "Mark you might want to consider looking into DBS, because at 1250mg of c/l per day your pushing the max level for what
Always stated to my neurologists and physical therapist for over three years now to please tell me things straight up, so they did. A few weeks ago i had my 6 month check-up, doc said "Mark you might want to consider looking into DBS, because at 1250mg of c/l per day your pushing the max level for what
TheLordsWeapon
in
Cure Parkinson's
5 years ago
Here I go again
I had a CT scan of my brain done Monday. The dr ordered it without contrast. It came back clear. I have the written report and they compared it to one I had in August 2012. Now, after googling, I am reading that CT scans can't see brain tumors unless you have contrast. How is this possible if a tumor
I had a CT scan of my brain done Monday. The dr ordered it without contrast. It came back clear. I have the written report and they compared it to one I had in August 2012. Now, after googling, I am reading that CT scans can't see brain tumors unless you have contrast. How is this possible if a tumor
Melly1209
in
Anxiety Support
5 years ago
Opicapone
My husband was given Opicapone about 18 months ago but stopped taking it for some reason. He started taking it again just over a month ago. He found immediate improvement with it eg. not having to go to the toilet so often during the night but he is finding it difficult to get the correct dose. It does
My husband was given Opicapone about 18 months ago but stopped taking it for some reason. He started taking it again just over a month ago. He found immediate improvement with it eg. not having to go to the toilet so often during the night but he is finding it difficult to get the correct dose. It does
JeanieBeanie
in
Cure Parkinson's
5 years ago
Cervical Dystonia
Hi everyone, I have had cervical dystonia for 30 years and been through many treatments.I wasn't diagnosed for 10 years and struggled on a daily basis, that was until I presented myself at the local hospital and received 1000 units of BOTOX.I had BOTOX injections for 10 years until it became ineffective.At
Hi everyone, I have had cervical dystonia for 30 years and been through many treatments.I wasn't diagnosed for 10 years and struggled on a daily basis, that was until I presented myself at the local hospital and received 1000 units of BOTOX.I had BOTOX injections for 10 years until it became ineffective.At
JJJ160
in
Dystonia Society
5 years ago
Does DBS control non motor problems, like sleep?
I’ve been diagnosed six years now (I’m 76). Three years in, my neurologist suggested DBS so I spoke to a neurosurgeon who has done many of these procedures. He said DBS works on “motor symptoms only.” Since medicine works for me, I did not go ahead. Recently I spoke to a friend in biotech who
I’ve been diagnosed six years now (I’m 76). Three years in, my neurologist suggested DBS so I spoke to a neurosurgeon who has done many of these procedures. He said DBS works on “motor symptoms only.” Since medicine works for me, I did not go ahead. Recently I spoke to a friend in biotech who
jackedmonston
in
Cure Parkinson's
5 years ago
Did not expect this..
Saw my neuro today... I'v been taking c/l and requip. Doc said with the amount of c/l I'm currently on 250mg 6 times a day and only getting 60-90 min of relief and my age (57) I would be the perfect candidate for DBS surgery which might grant me 10-15 years of a better quality of life. I asked if he
Saw my neuro today... I'v been taking c/l and requip. Doc said with the amount of c/l I'm currently on 250mg 6 times a day and only getting 60-90 min of relief and my age (57) I would be the perfect candidate for DBS surgery which might grant me 10-15 years of a better quality of life. I asked if he
TheLordsWeapon
in
Cure Parkinson's
5 years ago
Scared/ Urgent referral
Just got a call from the clinic today, I was just there with my optometrist yesterday. She said he made an urgent referral for me to see a retina specialist, she called me quite early. I think it has to do with my eye pressure and I am so scared for this brain tumor assumption coming to life. He made
Just got a call from the clinic today, I was just there with my optometrist yesterday. She said he made an urgent referral for me to see a retina specialist, she called me quite early. I think it has to do with my eye pressure and I am so scared for this brain tumor assumption coming to life. He made
janeths466
in
Anxiety Support
5 years ago
Person with parkinsons disease
I was diagnosed in 2002 When l went to my local dr. With some symptoms of mind games, dragging one leg, writing getting scribbymas l continued writing, hard to sign my name, but no tremors yet, my dr. Sent me to a neurologist who when l told him of the symptoms, stated l had early signs of Parkinson’
I was diagnosed in 2002 When l went to my local dr. With some symptoms of mind games, dragging one leg, writing getting scribbymas l continued writing, hard to sign my name, but no tremors yet, my dr. Sent me to a neurologist who when l told him of the symptoms, stated l had early signs of Parkinson’
Bernieneedfixing
in
Cure Parkinson's
5 years ago
Worrying I have a brain tumour again
Hi everyone, I’m starting to worry I have a brain tumour again, after a very bad migraine incident, I’ve had constant headaches everyday that just don’t go away no matter what. It’s different types of headaches, some like tension and others like migraine and even experiencing ice pick headaches now.
Hi everyone, I’m starting to worry I have a brain tumour again, after a very bad migraine incident, I’ve had constant headaches everyday that just don’t go away no matter what. It’s different types of headaches, some like tension and others like migraine and even experiencing ice pick headaches now.
Sugarplum1811
in
Anxiety Support
5 years ago
Thyroid and Adrenals
Hi, I have low morning cortisol and just don’t have the energy to make it through the day. I take NDT and top up with t3 but my t4 levels are always low and out of range. I think when I try to raise my NDT it potentially back fires due to low cortisol? I have had 3 SST tests done and I pass every time
Hi, I have low morning cortisol and just don’t have the energy to make it through the day. I take NDT and top up with t3 but my t4 levels are always low and out of range. I think when I try to raise my NDT it potentially back fires due to low cortisol? I have had 3 SST tests done and I pass every time
Kellyjam1
in
Thyroid UK
5 years ago
Chronic pain after burr hole surgery
Long story short I had a
brain
haemorrhage
and emergency burr hole surgery. I take anticonvulsants for seizure activity and neuropathic pain however I still have chronic head pain at times and confusion is this common after this length of time?
Long story short I had a
brain
haemorrhage
and emergency burr hole surgery. I take anticonvulsants for seizure activity and neuropathic pain however I still have chronic head pain at times and confusion is this common after this length of time?
scotsquad
in
Headway
5 years ago
Shingles
I have been diagnosed with shingles. I noticed a rash on Thursday, however because it wasn’t hurting at all I didn’t think much of it which was very silly of me! I went to the doctor on yesterday as it was spreading and i was told it was shingles. I’m surprised that after now 6 days the rash is there
I have been diagnosed with shingles. I noticed a rash on Thursday, however because it wasn’t hurting at all I didn’t think much of it which was very silly of me! I went to the doctor on yesterday as it was spreading and i was told it was shingles. I’m surprised that after now 6 days the rash is there
Josh95
in
Pain Concern
5 years ago
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