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DBS effectiveness.
Was DBS effective in treating your pain, stiffness, dyskinesias? Did it have any affect with freezing? I find myself taking more and more meds, and new treatments are taking to long to get here.
Was DBS effective in treating your pain, stiffness, dyskinesias? Did it have any affect with freezing? I find myself taking more and more meds, and new treatments are taking to long to get here.
cjCardio53
in
Cure Parkinson's
1 year ago
Tinnitus
Hi everyone. I’ve had tinnitus for about…..I’d say 25 years.? Started in the left (high pitched but ignorable for the most part) but about 4 months ago went over to the right. This one is much more obtrusive and sounds like someone’s hosing down a yard. A real pain in the ass and intuitively I feel that
Hi everyone. I’ve had tinnitus for about…..I’d say 25 years.? Started in the left (high pitched but ignorable for the most part) but about 4 months ago went over to the right. This one is much more obtrusive and sounds like someone’s hosing down a yard. A real pain in the ass and intuitively I feel that
jeeves19
in
Cure Parkinson's
1 year ago
Lyme Disease
Hello, I hope everyone is feeling as well as possible. Can I ask about links between Lyme Disease and RA? What is actually known? My daughter was talking about ticks the other day (we are both walkers) when I said I had had (in my late teens) a bullseye mark from a tick on my leg, she said ‘well that
Hello, I hope everyone is feeling as well as possible. Can I ask about links between Lyme Disease and RA? What is actually known? My daughter was talking about ticks the other day (we are both walkers) when I said I had had (in my late teens) a bullseye mark from a tick on my leg, she said ‘well that
Lyndy
in
NRAS
1 year ago
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shingles vaccine
no you can't have the shingles as it is a live vaccine. You don't get offered the shingles vaccine until you are 70
no you can't have the shingles as it is a live vaccine. You don't get offered the shingles vaccine until you are 70
bunnycaramel
in
NRAS
1 year ago
Shingles
I had shingles 7 years agoi am 69 and left me with the most terrible pain neurphatic pain is the worst i think no meds have helped me.i have RA lung fibrosis had cancer sjorgrens i think i canr expect more patologies.i recomend people to have the shingix vaccine because this pain is Agony!!
I had shingles 7 years agoi am 69 and left me with the most terrible pain neurphatic pain is the worst i think no meds have helped me.i have RA lung fibrosis had cancer sjorgrens i think i canr expect more patologies.i recomend people to have the shingix vaccine because this pain is Agony!!
Al1954
in
NRAS
1 year ago
Shingles Vaccine
I have RA and am currently taking hydroxychloroquin, methotrexate and amgevita. I’m trying to work out whether at age 61 with a compromised immune system, I will qualify for the new shingrix (shingles non-live) vaccine on the NHS? Does anyone know?
I have RA and am currently taking hydroxychloroquin, methotrexate and amgevita. I’m trying to work out whether at age 61 with a compromised immune system, I will qualify for the new shingrix (shingles non-live) vaccine on the NHS? Does anyone know?
CagneysMum
in
NRAS
1 year ago
Shingles Vaccine
Shingles Vaccine From September 2023 you will be eligible for vaccine from age 65. Advertised on TV yesterday Rose
Shingles Vaccine From September 2023 you will be eligible for vaccine from age 65. Advertised on TV yesterday Rose
Rose54
in
PMRGCAuk
1 year ago
DBS lead placement options.
Morning all. I had a zoom meeting with my neurosurgeon the other day. I’m pretty sure that she stated she was going for the STN as the site for leads. In my typical blokey way I just nodded along accepted whatever she said. But reading up on lead placing, I’m getting the distinct impression that for
Morning all. I had a zoom meeting with my neurosurgeon the other day. I’m pretty sure that she stated she was going for the STN as the site for leads. In my typical blokey way I just nodded along accepted whatever she said. But reading up on lead placing, I’m getting the distinct impression that for
jeeves19
in
Cure Parkinson's
1 year ago
DBS levadopa challenge. Glad its over, but it does raise a question.
Just left hospital after my levadopa challenge assessment for DBS.Wow, i wasn't prepared for how I'd be after having no meds since 7pm last night. I can honestly say I appreciate my meds so much more now. My normal day starts at 4:30am when i take my Stalevo 125mg. I'm very slow, shakey, and have some
Just left hospital after my levadopa challenge assessment for DBS.Wow, i wasn't prepared for how I'd be after having no meds since 7pm last night. I can honestly say I appreciate my meds so much more now. My normal day starts at 4:30am when i take my Stalevo 125mg. I'm very slow, shakey, and have some
gingerj
in
Cure Parkinson's
1 year ago
Which DBS system?
So it's not going to be too long now. August/September? At my last appointment they asked me which DBS system I would choose. This is at Bristol in the UK. Sayeth I , 'errrrrrrrrrrrr.........................dunno...................Id better go and ask my mates'. So my ever helpful community! Over
So it's not going to be too long now. August/September? At my last appointment they asked me which DBS system I would choose. This is at Bristol in the UK. Sayeth I , 'errrrrrrrrrrrr.........................dunno...................Id better go and ask my mates'. So my ever helpful community! Over
jeeves19
in
Cure Parkinson's
1 year ago
Automated CT analysis in ER reduces death from brain bleeds
[i]Automated analysis of CT scans enables earlier detection of brain bleeds. Photo by Triff via Shutterstock.com[/i] [i]
AI analysis of CT scans led to earlier detection of intracerebral hemorrhage, enabling physicians to begin therapeutic interventions quickly.
[/i] Machine-learning analysis
[i]Automated analysis of CT scans enables earlier detection of brain bleeds. Photo by Triff via Shutterstock.com[/i] [i]
AI analysis of CT scans led to earlier detection of intracerebral hemorrhage, enabling physicians to begin therapeutic interventions quickly.
[/i] Machine-learning analysis
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
11 months ago
Shingles vaccine
Just seen the BBC news health website. Shingles vaccines being offered to over 65’s ( was 70) and, even better, to vulnerable immune suppressed people over 55 from September 2023.
Just seen the BBC news health website. Shingles vaccines being offered to over 65’s ( was 70) and, even better, to vulnerable immune suppressed people over 55 from September 2023.
Amnesiac3637
in
NRAS
1 year ago
Working full-time with a DBS
DBS Deep Brain Stimulation. 1) Are there any warriors who have received DBS and are still employed full-time? 2) Are there any IT/computers warriors who have received DBS and are still working? Just wondering if that's humanly possible. Thank you for your time.
DBS Deep Brain Stimulation. 1) Are there any warriors who have received DBS and are still employed full-time? 2) Are there any IT/computers warriors who have received DBS and are still working? Just wondering if that's humanly possible. Thank you for your time.
surdug1
in
Cure Parkinson's
1 year ago
Jaw and Shoulder Pain
Did anyone have jaw and/or shoulder pain that was eventually relieved once they found their sweetspot? I am 24 days on 100mcg T4 and 5mcg T3. I have the jaw and shoulder pain, plus still very tired. I think the brain fog is somewhat better. It is hard to sort out brain fog and fatigue at times. I can
Did anyone have jaw and/or shoulder pain that was eventually relieved once they found their sweetspot? I am 24 days on 100mcg T4 and 5mcg T3. I have the jaw and shoulder pain, plus still very tired. I think the brain fog is somewhat better. It is hard to sort out brain fog and fatigue at times. I can
HeartWoman
in
Thyroid UK
1 year ago
OFF time but so much more!
I learned so much about our disease through this video. It was about OFF time but through that lens I learned out about the medications prescribed to us. There is a clear description of the different DBS devices available. This guy made my neurologist look like an amateur. https://youtu.be/TunPzh2Lw3U
I learned so much about our disease through this video. It was about OFF time but through that lens I learned out about the medications prescribed to us. There is a clear description of the different DBS devices available. This guy made my neurologist look like an amateur. https://youtu.be/TunPzh2Lw3U
PalmSprings
in
Cure Parkinson's
1 year ago
*MCAS
We are currently in the middle of an important fundraising campaign to kickstart the production of a documentary. We are contacting businesses and individuals who share our passion for helping people with MCAS. Your donation, no matter how big or small, can make a meaningful impact and will be put to
We are currently in the middle of an important fundraising campaign to kickstart the production of a documentary. We are contacting businesses and individuals who share our passion for helping people with MCAS. Your donation, no matter how big or small, can make a meaningful impact and will be put to
Shewulf
Administrator
in
LDN Research Trust
1 year ago
Need faster research on Neuro-modulation
I attended 2 various zoom meets of Vibratory Neuro-modulation . In UK they have a CUE1 available at less than 500 dollars that is showing some amazing strides for some people. Then I watched a zoom with Dr Peter Tass who is a researcher involved with the amazing Vibratory Gloves. My wife was a participant
I attended 2 various zoom meets of Vibratory Neuro-modulation . In UK they have a CUE1 available at less than 500 dollars that is showing some amazing strides for some people. Then I watched a zoom with Dr Peter Tass who is a researcher involved with the amazing Vibratory Gloves. My wife was a participant
Furch
in
Cure Parkinson's
1 year ago
Departing the Soul
Dear friends, I have been grappling with PD now for over ten years and it is getting harder and harder to go on and I have been contemplating MAID program for a while now, but my wife, who is my only support is not letting me go through with it. She loves me dearly. Moreover, she has no one except
Dear friends, I have been grappling with PD now for over ten years and it is getting harder and harder to go on and I have been contemplating MAID program for a while now, but my wife, who is my only support is not letting me go through with it. She loves me dearly. Moreover, she has no one except
gurdeep11
in
Cure Parkinson's
1 year ago
Not sure what to do!
Had shingles about a month ago, it’s cleared up now, started after taking abatacept first injection, had anti virals, not sure now if I should go back on it, also take MTX which wasn’t working good after being on it for 16 years, funny thing is my crp came back at 3 after having shingles and anti
Had shingles about a month ago, it’s cleared up now, started after taking abatacept first injection, had anti virals, not sure now if I should go back on it, also take MTX which wasn’t working good after being on it for 16 years, funny thing is my crp came back at 3 after having shingles and anti
Kate2628
in
NRAS
1 year ago
DBS stimulator pros and cons
Can you turn DBS stimulator Off and control it with medication as before surgery?
Can you turn DBS stimulator Off and control it with medication as before surgery?
surdug1
in
Cure Parkinson's
1 year ago
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