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Shingles vaccine?
I unknowingly (until after) had shingles in March 2023 which I believe, triggered first episode of Afib. Now thinking about having the vaccine, concerned that it will trigger Afib. What are people's experiences of having the vaccine? Do I need it yet. Maybe still have antibodies in my system? Will
I unknowingly (until after) had shingles in March 2023 which I believe, triggered first episode of Afib. Now thinking about having the vaccine, concerned that it will trigger Afib. What are people's experiences of having the vaccine? Do I need it yet. Maybe still have antibodies in my system? Will
sunlovah
in
Atrial Fibrillation Support
11 months ago
DBS journey
Hey Gang. I thought I’d post something as I’m aware that a few of you are following my story with a mind to seeing how it fits into your own life? So, turned on Friday, felt awful Saturday (as you know) better Sunday. But yesterday and today I had awful issues with my voice. The programmer had asked
Hey Gang. I thought I’d post something as I’m aware that a few of you are following my story with a mind to seeing how it fits into your own life? So, turned on Friday, felt awful Saturday (as you know) better Sunday. But yesterday and today I had awful issues with my voice. The programmer had asked
jeeves19
in
Cure Parkinson's
11 months ago
Foslevodopa-Foscarbidopa (Vyalev)
Sign of a new delivery system for levodopa coming down the pike? or potential to replace DBS? https://www.canjhealthtechnol.ca/index.php/cjht/article/download/SR0768/1444?inline=1
Sign of a new delivery system for levodopa coming down the pike? or potential to replace DBS? https://www.canjhealthtechnol.ca/index.php/cjht/article/download/SR0768/1444?inline=1
bcjlynne
in
Cure Parkinson's
11 months ago
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DBS switch on news.
So gang. I was really off when I turned up, not having had meds for 4/5 hours? Whole body dystonia, plain awful. The switch on was good in terms of removing this dystonia but I think I was expecting a brand new body! Ali noticed a big difference when they dialled everything in. . So, my bradykinesia
So gang. I was really off when I turned up, not having had meds for 4/5 hours? Whole body dystonia, plain awful. The switch on was good in terms of removing this dystonia but I think I was expecting a brand new body! Ali noticed a big difference when they dialled everything in. . So, my bradykinesia
jeeves19
in
Cure Parkinson's
11 months ago
tetanus booster and Covid vaccine
Hello I had a tetanus booster yesterday and I asked my GP if it was ok to get Covid vaccine next Thursday. He said he didn’t know and to check with primary care. When I saw the nurse she said it’s fine as both are inactivated. Does anyone know about this ? I tried finding out but haven’t managed to
Hello I had a tetanus booster yesterday and I asked my GP if it was ok to get Covid vaccine next Thursday. He said he didn’t know and to check with primary care. When I saw the nurse she said it’s fine as both are inactivated. Does anyone know about this ? I tried finding out but haven’t managed to
Mozart150
in
NRAS
11 months ago
"BREAKTHROUGH" device approved by FDA for PD
"The U.S. Food and Drug Administration (FDA) has granted breakthrough device designation to Inbrain Neuroelectronics’ neural platform for its potential to provide more effective deep brain stimulation (DBS) as an [i]
add-on Parkinson’s treatment.
[/i]" "The platform — called Intelligent Network
"The U.S. Food and Drug Administration (FDA) has granted breakthrough device designation to Inbrain Neuroelectronics’ neural platform for its potential to provide more effective deep brain stimulation (DBS) as an [i]
add-on Parkinson’s treatment.
[/i]" "The platform — called Intelligent Network
PDWarrior1900
in
Cure Parkinson's
11 months ago
anti anxiety with Eliquis
I started having a fibs in 2007 after having Lyme disease and also possibly too much thyroid medication. I’ve managed it all these years and after I turned 65 2 1/2 years ago, the doctor started pressuring me to go on blood thinner because of stroke risk. my score is only a two and it’s a gray area for
I started having a fibs in 2007 after having Lyme disease and also possibly too much thyroid medication. I’ve managed it all these years and after I turned 65 2 1/2 years ago, the doctor started pressuring me to go on blood thinner because of stroke risk. my score is only a two and it’s a gray area for
Fblue
in
Atrial Fibrillation Support
11 months ago
Shingles vaccine
Has anyone on methotrexate and infliximab had the shingles vaccine ? Do you have to get it every year ?
Has anyone on methotrexate and infliximab had the shingles vaccine ? Do you have to get it every year ?
Grounsel
in
NRAS
11 months ago
Immunocompromised people aged 50+ are now eligible for the shingles vaccine
Immunocompromised people aged 50 and over are now eligible for the shingles vaccine. The vaccine reduces your chances of getting shingles and reduces the risk of complications if you still develop it. Read more on our website, including answers to some commonly asked questions, here: https://www.lupusuk.org.uk
Immunocompromised people aged 50 and over are now eligible for the shingles vaccine. The vaccine reduces your chances of getting shingles and reduces the risk of complications if you still develop it. Read more on our website, including answers to some commonly asked questions, here: https://www.lupusuk.org.uk
Debbie_kinsey
Administrator
in
LUPUS UK
11 months ago
When will we reconcile with the fact that there is no cure now? Possibly never?
This is a vent. Sorry for this, but I am frustrated with the disease and the daily stress of living with it. People don't understand what we're going through and have limited patience with our strange condition. Family and friends who observe us at close quarters start to form their own opinions about
This is a vent. Sorry for this, but I am frustrated with the disease and the daily stress of living with it. People don't understand what we're going through and have limited patience with our strange condition. Family and friends who observe us at close quarters start to form their own opinions about
pdpatient
in
Cure Parkinson's
11 months ago
DBS and balance
My left side is amore severe than right hence the voltage is higher and more contact points . My body tends to tilt to the right’ and I tend to fall backward on the right, My neurologist tried to reduce the frequency, it helps with the balance but not so good at reducing stiffness. Any insight?
My left side is amore severe than right hence the voltage is higher and more contact points . My body tends to tilt to the right’ and I tend to fall backward on the right, My neurologist tried to reduce the frequency, it helps with the balance but not so good at reducing stiffness. Any insight?
limcheeese22
in
Cure Parkinson's
11 months ago
Too much C\L worsens symptoms?
Dx 6 years ago DBS 3 years ago . lately take extra dose for some occasions, my body becomes more tense, stiffer and slower no dskynesia though then I take another dose to address it ,sometimes work sometimes don’t, it confuses me, Does anyone have experience to share?
Dx 6 years ago DBS 3 years ago . lately take extra dose for some occasions, my body becomes more tense, stiffer and slower no dskynesia though then I take another dose to address it ,sometimes work sometimes don’t, it confuses me, Does anyone have experience to share?
limcheeese22
in
Cure Parkinson's
11 months ago
Heart pacemaker and DBS
Are there individuals or patients who have had heart pacemakers and DBS? Any thoughts, suggestions or comments. and are making use of them?
Are there individuals or patients who have had heart pacemakers and DBS? Any thoughts, suggestions or comments. and are making use of them?
surdug1
in
British Heart Foundation
11 months ago
DBS scars after one week
Hi everyone. Here’s how it looks after a week. I look a bit startled in this don’t I ? Probably astonished that the sun is shining in the U.K.
Hi everyone. Here’s how it looks after a week. I look a bit startled in this don’t I ? Probably astonished that the sun is shining in the U.K.
jeeves19
in
Cure Parkinson's
1 year ago
Heart pacemaker and DBS
Are there individuals or patients who have had heart pacemakers and DBS? Any thoughts, suggestions or comments.
Are there individuals or patients who have had heart pacemakers and DBS? Any thoughts, suggestions or comments.
surdug1
in
Cure Parkinson's
1 year ago
About me
In the late spring of 2015, I found myself depressed. I sought out a psychologist. I quite liked him, but treatment had no positive effects. I was experiencing strange physical effects at the same time… Things like walking became difficult, my body was stiff, and my sense of smell and taste had diminished
In the late spring of 2015, I found myself depressed. I sought out a psychologist. I quite liked him, but treatment had no positive effects. I was experiencing strange physical effects at the same time… Things like walking became difficult, my body was stiff, and my sense of smell and taste had diminished
Megafone
in
Cure Parkinson's
1 year ago
Out of Remission
Well, I got some not so good news today. I had my CLL check today and I'm out of remission. My WBC is now 14K. My platelets are 152. My doctor wants to start me on Zanabrutinib now. I know it seems silly when just getting out of remission and I'm not even close to a WBC of 30K yet, and I have no other
Well, I got some not so good news today. I had my CLL check today and I'm out of remission. My WBC is now 14K. My platelets are 152. My doctor wants to start me on Zanabrutinib now. I know it seems silly when just getting out of remission and I'm not even close to a WBC of 30K yet, and I have no other
MyCLLJourney
in
CLL Support
1 year ago
DBS in restless legs syndrome: a new therapeutic approach
has anyone any information on Deep Brain Stimulation (DBS) and RLS? This is the title of a short case study in Sleep Medicine 2020 by Casoni et al Might it help some of us ?
has anyone any information on Deep Brain Stimulation (DBS) and RLS? This is the title of a short case study in Sleep Medicine 2020 by Casoni et al Might it help some of us ?
thorp
in
Restless Legs Syndrome
1 year ago
I vont to be alone…………
8 years in, DBS on Wednesday. You know you’re sick when you’re actually looking forward to brain 🧠 surgery eh? 😂. I was thinking last night how much I rely on my wife these days. Such a fine woman 👩: cooks food, washes the clothes, takes our pooch for a walk, hold down a teaching job, taxis me about
8 years in, DBS on Wednesday. You know you’re sick when you’re actually looking forward to brain 🧠 surgery eh? 😂. I was thinking last night how much I rely on my wife these days. Such a fine woman 👩: cooks food, washes the clothes, takes our pooch for a walk, hold down a teaching job, taxis me about
jeeves19
in
Cure Parkinson's
1 year ago
Could Psychedelics help in Parkinsons Disease treatment?
Long read. Promises hope for stroke victims. https://www.wired.com/story/the-psychedelic-scientist-who-sends-brains-back-to-childhood/ ----------------- Here is the responses from AI when fed this article. I asked Claude to summarize the article and hypothetically project possible treatment options
Long read. Promises hope for stroke victims. https://www.wired.com/story/the-psychedelic-scientist-who-sends-brains-back-to-childhood/ ----------------- Here is the responses from AI when fed this article. I asked Claude to summarize the article and hypothetically project possible treatment options
pdpatient
in
Cure Parkinson's
1 year ago
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