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Brain arteriovenous malformation (AVM)
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DBS for essential tremors?
I'm new to this site and am considering DBS. Has anyone had DBS (deep brain surgery) for essential tremors of hands, head (cervical dystonia) and voice? What result? My neurologists say it will help with my shaky head. I know DBS helps shaky hands, it's my shaky head that is annoying!
I'm new to this site and am considering DBS. Has anyone had DBS (deep brain surgery) for essential tremors of hands, head (cervical dystonia) and voice? What result? My neurologists say it will help with my shaky head. I know DBS helps shaky hands, it's my shaky head that is annoying!
piano_gal
in
National Tremor Foundation
5 years ago
Losing hope
Dx 2003 aged 46. until about 6 months ago i refused to be beaten. Now I am utterly beaten. For years I’ve taken madopar every 90 mins . I have always had sudden swings between off and on but was able to make them bearable – with the odd blip - with extra madopar. I worked out years ago that protein interferes
Dx 2003 aged 46. until about 6 months ago i refused to be beaten. Now I am utterly beaten. For years I’ve taken madopar every 90 mins . I have always had sudden swings between off and on but was able to make them bearable – with the odd blip - with extra madopar. I worked out years ago that protein interferes
pen1
in
Cure Parkinson's
5 years ago
Playing with the settings of my brain
Hi all This is a link to my vlog about DBS and speech issues. https://www.youtube.com/watch?v=Sn4IP7-px0w Cheers, Ian
Hi all This is a link to my vlog about DBS and speech issues. https://www.youtube.com/watch?v=Sn4IP7-px0w Cheers, Ian
Ianfrizell
in
Cure Parkinson's
5 years ago
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Anxious I have a brain tumour
I'm 19, and I'm so anxious I have a brain tumour. About five months ago, I saw bright lights all over my room for a couple of seconds and it was gone. A few days later, I developed an odd feeling in my head - like a tingling, slight pressure in my head, all over my scalp and ears. It's so bad it feels
I'm 19, and I'm so anxious I have a brain tumour. About five months ago, I saw bright lights all over my room for a couple of seconds and it was gone. A few days later, I developed an odd feeling in my head - like a tingling, slight pressure in my head, all over my scalp and ears. It's so bad it feels
Hidden
in
Anxiety Support
5 years ago
DBS, has anyone considered this procedure to help with tremors?
I am scheduled to have this procedure next month. I have heard some good things from some PD patients and would like to hear other PD patient’s prospective. My diagnosis was in early 2018. Right hand tremor, now taking 25/100 x 3 (3 times/day), my procedure will be on my left side. Meds work, but tire
I am scheduled to have this procedure next month. I have heard some good things from some PD patients and would like to hear other PD patient’s prospective. My diagnosis was in early 2018. Right hand tremor, now taking 25/100 x 3 (3 times/day), my procedure will be on my left side. Meds work, but tire
PHN001
in
Cure Parkinson's
5 years ago
Limited vasculitus I
Hi there all. Im throwing a party tomorrow and my neice has informed me she has shingles on the end stages of the illness. She is worried about passing the disease onto me if she comes she has been informed not to mix with people with low immune systems.. Has anyone had experience of shingles and
Hi there all. Im throwing a party tomorrow and my neice has informed me she has shingles on the end stages of the illness. She is worried about passing the disease onto me if she comes she has been informed not to mix with people with low immune systems.. Has anyone had experience of shingles and
foweraker
in
Vasculitis UK
5 years ago
Long term after effects of viral meningitis
I was diagnosed with VM in April 2011. So 8 years later and I still suffer from daily headaches. Some days are easier than others but I go through "spells" where the headaches get really bad for weeks at a time. I also still suffer from extreme fatigue and now have anxiety. I was on Amitriptyline for
I was diagnosed with VM in April 2011. So 8 years later and I still suffer from daily headaches. Some days are easier than others but I go through "spells" where the headaches get really bad for weeks at a time. I also still suffer from extreme fatigue and now have anxiety. I was on Amitriptyline for
Moranmom85
in
Meningitis Now
5 years ago
B1 Intolerance
My husband has tried taking B1 twice. Firstly with powder then recently with Solgar capsules as recommended. He started on 500mg capsule in the morning then 500mg late afternoon. After 7 days he felt it was making his symptoms worse and had to stop.I read how so many people are benefitting from B1 and
My husband has tried taking B1 twice. Firstly with powder then recently with Solgar capsules as recommended. He started on 500mg capsule in the morning then 500mg late afternoon. After 7 days he felt it was making his symptoms worse and had to stop.I read how so many people are benefitting from B1 and
JeanieBeanie
in
Cure Parkinson's
5 years ago
Should be better?
It's been nearly 12 months since my brain haemorrhage it's been a very hard road without my partner's support I don't know where I would be now we've had to fight for support professional help I'm only just now getting any professional help my mental health and anxiety levels are at a very very low
It's been nearly 12 months since my brain haemorrhage it's been a very hard road without my partner's support I don't know where I would be now we've had to fight for support professional help I'm only just now getting any professional help my mental health and anxiety levels are at a very very low
Gym1bunny
in
Headway
5 years ago
Feeling a faurd
I had a brain tumour removed in 2014. Spent 3 months in hospital due to a brain infection. I have not needed any treatment since. However my life is completely different I am unable to drive had to give up work and moved 250 miles away. People say well your lucky as it was a benign. You need to move
I had a brain tumour removed in 2014. Spent 3 months in hospital due to a brain infection. I have not needed any treatment since. However my life is completely different I am unable to drive had to give up work and moved 250 miles away. People say well your lucky as it was a benign. You need to move
Woodybeaver
in
Headway
5 years ago
shingles
Hello all I am back i have had a bad time ,my back was bad and i had shingles .Istill have pain .has any one had them ,i do not think it is normal stillto have pain .i think i will go back to doctor .
Hello all I am back i have had a bad time ,my back was bad and i had shingles .Istill have pain .has any one had them ,i do not think it is normal stillto have pain .i think i will go back to doctor .
ballyboy
in
PMRGCAuk
5 years ago
Dystonia and Parkinson's disease: What is the relationship?
Dystonia and Parkinson's disease are closely linked disorders sharing many pathophysiological overlaps. Dystonia can be seen in 30% or more of the patients suffering with PD and sometimes can precede the overt parkinsonism. The response of early dystonia to the introduction of dopamine replacement therapy
Dystonia and Parkinson's disease are closely linked disorders sharing many pathophysiological overlaps. Dystonia can be seen in 30% or more of the patients suffering with PD and sometimes can precede the overt parkinsonism. The response of early dystonia to the introduction of dopamine replacement therapy
Farooqji
in
Cure Parkinson's
5 years ago
Scared
Hi there all, I’m new to this site. Been having anxiety/panic attacks for about 2 years now. I’ve realized all my anxiety is health based. Been to the ER three times in the past 4 months. 2 times for my heart, thought I was having a heart attack, now I have this fear of having a brain tumour. I’ve had
Hi there all, I’m new to this site. Been having anxiety/panic attacks for about 2 years now. I’ve realized all my anxiety is health based. Been to the ER three times in the past 4 months. 2 times for my heart, thought I was having a heart attack, now I have this fear of having a brain tumour. I’ve had
Gmfc
in
Anxiety Support
5 years ago
Need Help and Advice On What I Can Do To Relieve The Intensity Level of My Current and Parkinsons Disease Symptoms
I was diagnosed with Parkinsons disease in 2003 disease. I have the rigidity type of Parkinsons disease and the symptoms have changed as to intensity level to be almost unbearable. It started out on the left side, but is now resident at a lesser level on my right side.The symptoms when I go into
I was diagnosed with Parkinsons disease in 2003 disease. I have the rigidity type of Parkinsons disease and the symptoms have changed as to intensity level to be almost unbearable. It started out on the left side, but is now resident at a lesser level on my right side.The symptoms when I go into
neilp02
in
Cure Parkinson's
5 years ago
Another FUS news. Now from Isreal . Looks like it's replacing DBS
The firm obtained US Food and Drug Administration (FDA) approval for its technology in 2016, based on a clinical study of 76 patients, which demonstrated that the treatment is effective and safe. A three-year follow-up of the same group of patients showed that tremor reduction was sustained over a period
The firm obtained US Food and Drug Administration (FDA) approval for its technology in 2016, based on a clinical study of 76 patients, which demonstrated that the treatment is effective and safe. A three-year follow-up of the same group of patients showed that tremor reduction was sustained over a period
Farooqji
in
Cure Parkinson's
5 years ago
PMR and Zostavax vaccine for Shingles
Hi, I know that this topic has been covered before but I thought I would add my own experience of a GP who flatly refuses to believe that there could be any link between my receiving the Zostavax live vaccine for Shingles in September 2018 and my subsequent diagnosis of PMR 6 months later. I have now
Hi, I know that this topic has been covered before but I thought I would add my own experience of a GP who flatly refuses to believe that there could be any link between my receiving the Zostavax live vaccine for Shingles in September 2018 and my subsequent diagnosis of PMR 6 months later. I have now
Cross-stitcher
in
PMRGCAuk
5 years ago
Swelling fluid after cranioplasty
Hi I had a cranioplasty (titanium plate) on 19th February. The staples were removed after 10 days and that’s when the problems started! The wounds wouldn’t heal and despite, various steps ( stitches, super glue etc) I was readmitted and then had plastic surgery on 28th March. Things are healing much
Hi I had a cranioplasty (titanium plate) on 19th February. The staples were removed after 10 days and that’s when the problems started! The wounds wouldn’t heal and despite, various steps ( stitches, super glue etc) I was readmitted and then had plastic surgery on 28th March. Things are healing much
Elainegaler
in
Headway
5 years ago
pls answer i’m scared
headache, loss of appetite, fatigue, blurry weird focus feeling in eyes, sometimes double vision, ears randomly pop sometimes, whole right side is heavy and sometimes numb, i think i have a brain tumor, i am so sure. nothing is going right, i keep having dreams of the dr coming in and saying i have brain
headache, loss of appetite, fatigue, blurry weird focus feeling in eyes, sometimes double vision, ears randomly pop sometimes, whole right side is heavy and sometimes numb, i think i have a brain tumor, i am so sure. nothing is going right, i keep having dreams of the dr coming in and saying i have brain
krob011
in
Anxiety Support
5 years ago
stilll concerned with my body.
headache, loss of appetite, fatigue, blurry weird focus feeling in eyes, sometimes double vision, ears randomly pop sometimes, whole right side is heavy and sometimes numb, i think i have a brain tumor, i am so sure. nothing is going right, i keep having dreams of the dr coming in and saying i have brain
headache, loss of appetite, fatigue, blurry weird focus feeling in eyes, sometimes double vision, ears randomly pop sometimes, whole right side is heavy and sometimes numb, i think i have a brain tumor, i am so sure. nothing is going right, i keep having dreams of the dr coming in and saying i have brain
krob011
in
Anxiety Support
5 years ago
'OPERATION LIVE' ON MY 5 CATCHUP.
I watched a fascinating programme on Thursday night this week (channel 5) in which surgery to clip an aneurism was broadcast live from the Royal London hospital. It was a 2 hour op. and showed every detail of the procedure from craniotomy right through to cranioplasty. It's not everyone's choice of viewing
I watched a fascinating programme on Thursday night this week (channel 5) in which surgery to clip an aneurism was broadcast live from the Royal London hospital. It was a 2 hour op. and showed every detail of the procedure from craniotomy right through to cranioplasty. It's not everyone's choice of viewing
cat3
in
Headway
5 years ago
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