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Cancer Fatigue and Getting Through the Holidays
The Leukemia & Lymphoma Society is offering a Free Telephone Support Program for Patients Families and Caregivers. - Click this link to register: https://pburkhard.wufoo.com/forms/qrfew60160p1a4/ or http://bit.ly/DecLnL. Cancer Fatigue and Getting Through the Holidays When: Wednesday
The Leukemia & Lymphoma Society is offering a Free Telephone Support Program for Patients Families and Caregivers. - Click this link to register: https://pburkhard.wufoo.com/forms/qrfew60160p1a4/ or http://bit.ly/DecLnL. Cancer Fatigue and Getting Through the Holidays When: Wednesday
lankisterguy
Volunteer
in
CLL Support
5 years ago
Decision time for Multiple Myeloma
I have been fighting PC for 23 years and six months ago I was told I had MM. Had treatments for MM and was told that I had an excellent response was a perfect candidate for Stem Cell Transplant even though I was 78 years old and have comorbidities. After going through what seemed like a thousand tests
I have been fighting PC for 23 years and six months ago I was told I had MM. Had treatments for MM and was told that I had an excellent response was a perfect candidate for Stem Cell Transplant even though I was 78 years old and have comorbidities. After going through what seemed like a thousand tests
mcp1941
in
Advanced Prostate Cancer
5 years ago
Blood cancers: New generation stem cell transplant significantly reduces complications for patients
Post by MPN-MATE Admin » Wed Nov 06, 2019 9:21 am Hey everyone... :-) More great good news is coming our way... This article has already successfully run 'Human Trials', and in the USA, it's about to be accepted by the FDA for a Phase III Clinical Trial... Impressive results as you will see from reading
Post by MPN-MATE Admin » Wed Nov 06, 2019 9:21 am Hey everyone... :-) More great good news is coming our way... This article has already successfully run 'Human Trials', and in the USA, it's about to be accepted by the FDA for a Phase III Clinical Trial... Impressive results as you will see from reading
socrates_8
in
MPN Voice
5 years ago
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Troponin levels elevated
Hi all. I am new here and might need guidance where to post. My back ground is... diagnosed with leukaemia last year, had aggressive chemo and a stem cell transplant. Today I saw a cardiology doctor... which Is why I am now posting here. My heart has aged due to my treatment. Echo heart test was ok
Hi all. I am new here and might need guidance where to post. My back ground is... diagnosed with leukaemia last year, had aggressive chemo and a stem cell transplant. Today I saw a cardiology doctor... which Is why I am now posting here. My heart has aged due to my treatment. Echo heart test was ok
Jalola
in
British Heart Foundation
5 years ago
Bone Marrow Transplant.
Hello fam! Im looking for info from anyone who has had a bone marrow transplant! Provided I have a viable doner I’m in line to get one. Not going to lie I’ve got all types of mixed emotions! The tough part is being told this procedure will take 3 months to complete. I will have to travel to Boston
Hello fam! Im looking for info from anyone who has had a bone marrow transplant! Provided I have a viable doner I’m in line to get one. Not going to lie I’ve got all types of mixed emotions! The tough part is being told this procedure will take 3 months to complete. I will have to travel to Boston
Seifert_09
in
AMN EASIER
5 years ago
Parents Advisory Board
bluebird bio plans to host a caregiver advisory board on November 7th in advance of the ALD Connect meeting in Waltham, MA. bluebird is looking for 6-8 caregivers of boys with ALD who have received allogeneic hematopoietic stem cell transplant (allo-HSCT) to gain insight and better understanding into
bluebird bio plans to host a caregiver advisory board on November 7th in advance of the ALD Connect meeting in Waltham, MA. bluebird is looking for 6-8 caregivers of boys with ALD who have received allogeneic hematopoietic stem cell transplant (allo-HSCT) to gain insight and better understanding into
fightald
Administrator
in
Parents of ALD Newborns
5 years ago
Today’s WSJ essay on the abject failure of medical science’s progress in dealing with this family of diseases and what must change.
An apparent extension of a highly recommended book that I had read some 8 plus years ago,,,”The Emperor of All Maladies”,,,Now a Ken Burns PBS documentary. The thrust of both books being that intensive treatment of the vast majority of cancers has for many years(4,000 in the case of “The Emperor of
An apparent extension of a highly recommended book that I had read some 8 plus years ago,,,”The Emperor of All Maladies”,,,Now a Ken Burns PBS documentary. The thrust of both books being that intensive treatment of the vast majority of cancers has for many years(4,000 in the case of “The Emperor of
Sxrxrnr1
in
Advanced Prostate Cancer
5 years ago
Stem cell transplant for Myelofibrosis
After 12 years with PV and then 2 years with MF I explained in a letter to my consultant that were the decision to have a transplant entirely mine it is what I would wish for. I'd been on Jakavi for a year and it had ceased to help. I then went onto the Pacritinib trial which curtailed night sweats
After 12 years with PV and then 2 years with MF I explained in a letter to my consultant that were the decision to have a transplant entirely mine it is what I would wish for. I'd been on Jakavi for a year and it had ceased to help. I then went onto the Pacritinib trial which curtailed night sweats
Dodders
in
MPN Voice
5 years ago
Done with Lutetium
I completed five of the six infusions in the VISION clinical trial before I was excluded due to low hemoglobin. The initial and main cause of the low hemoglobin was my bone marrow transplant in late 2017, but the level continued dropping. Lutetium reduced my PSA by about 300 per infusion, in a linear
I completed five of the six infusions in the VISION clinical trial before I was excluded due to low hemoglobin. The initial and main cause of the low hemoglobin was my bone marrow transplant in late 2017, but the level continued dropping. Lutetium reduced my PSA by about 300 per infusion, in a linear
Beauxman
in
Advanced Prostate Cancer
5 years ago
My search for the perfect anti lymphoma diet
About one year ago I discovered this wonderful site. I had been diagnosed with Mantle cell lymphoma in July 2015 and had R Chop and a stem cell transplant. One year ago I had just started a gluten free and dairy free diet and I felt great. I suggested that anyone who had lymphoma and an autoimmune
About one year ago I discovered this wonderful site. I had been diagnosed with Mantle cell lymphoma in July 2015 and had R Chop and a stem cell transplant. One year ago I had just started a gluten free and dairy free diet and I felt great. I suggested that anyone who had lymphoma and an autoimmune
Maltipoo
in
Non Hodgkin's Lymphoma Friends
5 years ago
Stem cell webinar by MJF and 1 unanswered question
Just finished listening to the MJF stem cell seminar. It was not particularly educational neither it gave any reason for optimism. Well, judge for yourself: slides are available on MJF site. I asked the panel a question but didn't get an answer. The question was: " It was reported that people who
Just finished listening to the MJF stem cell seminar. It was not particularly educational neither it gave any reason for optimism. Well, judge for yourself: slides are available on MJF site. I asked the panel a question but didn't get an answer. The question was: " It was reported that people who
felixned
in
Cure Parkinson's
5 years ago
Stem Cell Transplant That didn’t put cancer in remission
Has anyone gone through a stem cell transplant that did not put the cancer in remission? What medications did they suggest for you?
Has anyone gone through a stem cell transplant that did not put the cancer in remission? What medications did they suggest for you?
seaturtle2
in
Myeloma America Support
5 years ago
Methotrexate and healing broken bones
I'm on 7.5mg injections so quite low and RA in controlled remission. I broke my femur in 4 places in Nov 2017 and had op with rods and nails, after 6 months on ultra sound Exogen as not healing, in Feb had another op removing rod and nails and had plate and bone graft but still not healing. Next is
I'm on 7.5mg injections so quite low and RA in controlled remission. I broke my femur in 4 places in Nov 2017 and had op with rods and nails, after 6 months on ultra sound Exogen as not healing, in Feb had another op removing rod and nails and had plate and bone graft but still not healing. Next is
jaydeeh
in
NRAS
5 years ago
CLL, Bone Marrow Transplant and Hodgkin’s Lymphoma
Can’t really answer this as I haven’t had one for my CLL. Am 76 years old. Issue of bone marrow transplant has been raised several times in my CLL “career” ( 16 years ). My specialists have told me that I am too old for such a procedure. In fact one of them said it would probably kill me. And that response
Can’t really answer this as I haven’t had one for my CLL. Am 76 years old. Issue of bone marrow transplant has been raised several times in my CLL “career” ( 16 years ). My specialists have told me that I am too old for such a procedure. In fact one of them said it would probably kill me. And that response
leopardo
in
CLL Support
5 years ago
Major breakthrough in the treatment of leukemia
[i]Bone marrow aspirate showing Acute Myeloid Leukaemia (AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML. Rather than just posting a link I thought it might be easier for all to read this extract
[i]Bone marrow aspirate showing Acute Myeloid Leukaemia (AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML. Rather than just posting a link I thought it might be easier for all to read this extract
socrates_8
in
MPN Voice
5 years ago
Stem Cells!
My 22 year old son has Primary MF and one of his sisters is a 10/10 stem cell match for him - a wonderful thing for us all to hear after we discovered that a stem cell transplant is currently his only avenue for cure. My daughter is keen to raise awareness of the need for more people to register as
My 22 year old son has Primary MF and one of his sisters is a 10/10 stem cell match for him - a wonderful thing for us all to hear after we discovered that a stem cell transplant is currently his only avenue for cure. My daughter is keen to raise awareness of the need for more people to register as
christiev
in
MPN Voice
5 years ago
POST BMT 1-Year & 7 Months, BOY OH BOY!!!
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
NMMP
in
CLL Support
5 years ago
Terminated on health grounds
An mri revealed the start of a
bone
spur
and arthritis in my right shoulder. Since then I have been exploring pain medication options. Post surgery I developed difficulties with my swallow not in my throat but lower down. So have been investigated by ENT, SALT, Dietician, and Gastro.
An mri revealed the start of a
bone
spur
and arthritis in my right shoulder. Since then I have been exploring pain medication options. Post surgery I developed difficulties with my swallow not in my throat but lower down. So have been investigated by ENT, SALT, Dietician, and Gastro.
Braveheart1
in
Fibromyalgia Action UK
5 years ago
Newbie ...
Hi, I've just joined this group. I was diagnosed with leukaemia in 2010 and had a bone marrow transplant in 2011. Unfortunately that didn't work properly so I went onto a new drug to control it. This drug was really good at controlling the rare mutation I have, but came with a lot of cardio-vascular
Hi, I've just joined this group. I was diagnosed with leukaemia in 2010 and had a bone marrow transplant in 2011. Unfortunately that didn't work properly so I went onto a new drug to control it. This drug was really good at controlling the rare mutation I have, but came with a lot of cardio-vascular
SomersetJo
in
British Heart Foundation
5 years ago
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve.
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve. He refused stem cell transplant therapy after researching it, and instead started his own research. He was later treated for Graves’ disease which led him to LDN
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve. He refused stem cell transplant therapy after researching it, and instead started his own research. He was later treated for Graves’ disease which led him to LDN
liveurlife
Volunteer
in
LDN Research Trust
5 years ago
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