Search
Search
About
Log in
Join
Experiences with
Blood cancer
Posts
Communities
86,780 public posts
Filter results
Macrogol (Dulcoease)
Hi, has anyone else found that laxative treatments containing Macrogol increases their pain and bloating considerably? I have just been put on this and Mebeverine, but am still in a lot of pain, which seems worse when I take Macrogol. Thanks
Hi, has anyone else found that laxative treatments containing Macrogol increases their pain and bloating considerably? I have just been put on this and Mebeverine, but am still in a lot of pain, which seems worse when I take Macrogol. Thanks
Gardener
in
IBS Network
5 months ago
Successful Pluvicto Treatment
I completed six Pluvicto treatments in December 2023 and returned to Mayo in Rochester on January 31, 2024 for a Choline Pet scan to see if it would reveal any non-PSMA PCa. My doctor reviewed the report and scans and informed me that my cancer appears to be in complete remission. The findings of the
I completed six Pluvicto treatments in December 2023 and returned to Mayo in Rochester on January 31, 2024 for a Choline Pet scan to see if it would reveal any non-PSMA PCa. My doctor reviewed the report and scans and informed me that my cancer appears to be in complete remission. The findings of the
Skifanatic
in
Advanced Prostate Cancer
5 months ago
PSMA-Addition Trial can give access to Pluvicto for DeNovo or mHSPC
The range of access to Pluvicto (Lu177-PSMA-617) radionuclide treatment is expanding. Great news. The PSMA-Fore trial recently showed that it iis very beneficial before docetaxel chemotherapy in mCRPC. Now a worldwide trial is exploring it in metastatic hormone sensitive PC, including de novo metastatic
The range of access to Pluvicto (Lu177-PSMA-617) radionuclide treatment is expanding. Great news. The PSMA-Fore trial recently showed that it iis very beneficial before docetaxel chemotherapy in mCRPC. Now a worldwide trial is exploring it in metastatic hormone sensitive PC, including de novo metastatic
MateoBeach
in
Advanced Prostate Cancer
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Possible NHS misdiagnosis saying clear for HPV when private home test says positive with variant 16 (the test and smear were 14 days apart)
I have tested HPV positive for 2 smears a year apart, the last one was Oct 2023. So I went for my third on 18 Jan this year and have just been given the all clear and told it will repeated in 5 years (which I doubt as I will be 71 then). HOWEVER, I had already done a home test with Medicines Online
I have tested HPV positive for 2 smears a year apart, the last one was Oct 2023. So I went for my third on 18 Jan this year and have just been given the all clear and told it will repeated in 5 years (which I doubt as I will be 71 then). HOWEVER, I had already done a home test with Medicines Online
destiny234
in
Gynae Cancer Support
5 months ago
Confused
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
MsHope
in
Advanced Prostate Cancer
3 months ago
Update after 6 and a half years of treatment with triptolerin (Decapeptyl)
My dad has been on biannual Decapeptyl injections since october 2017, when he was diagnosed with metastatic prostate cancer. The PSA readings over the last 6 years have been the following: 0.21 (January 2018) 0.07 (May 2018) 0.05 (November 2018) 0.04 (May 2019) 0.03 (October 2019) 0.03 (May 2020
My dad has been on biannual Decapeptyl injections since october 2017, when he was diagnosed with metastatic prostate cancer. The PSA readings over the last 6 years have been the following: 0.21 (January 2018) 0.07 (May 2018) 0.05 (November 2018) 0.04 (May 2019) 0.03 (October 2019) 0.03 (May 2020
nereabg
in
Advanced Prostate Cancer
3 months ago
Treatment for low-PSA mHSPCa
Does anyone have a clue for treatment of low-PSA metastatic PCa? For neuroendocrine PCa? The only study I can find on treatment for low-PSA: "Mortality Risk for Docetaxel-Treated, High-Grade Prostate Cancer With Low PSA Levels: A Meta-Analysis | Oncology | JAMA Network Open" | indicates that
Does anyone have a clue for treatment of low-PSA metastatic PCa? For neuroendocrine PCa? The only study I can find on treatment for low-PSA: "Mortality Risk for Docetaxel-Treated, High-Grade Prostate Cancer With Low PSA Levels: A Meta-Analysis | Oncology | JAMA Network Open" | indicates that
Purple-Bike
in
Advanced Prostate Cancer
5 months ago
Mets to lungs and lymph nodes need some advice
Hi there, i was diagnosed with oligometastatic pca 6 years ago,51 yo psa was 25, tried to go on a curative path and went for prostatectomy followed with radiotherapy +sbrt to ilium bone suspicion for bone met and pelvic lymph nodes +adt and abiraterone for 24 months.I have refused to chemo along
Hi there, i was diagnosed with oligometastatic pca 6 years ago,51 yo psa was 25, tried to go on a curative path and went for prostatectomy followed with radiotherapy +sbrt to ilium bone suspicion for bone met and pelvic lymph nodes +adt and abiraterone for 24 months.I have refused to chemo along
Niso
in
Advanced Prostate Cancer
5 months ago
Uncertainty is the worst
Hello!To cut a long story short, I had Hodgkins lymphoma in 2005 and therefore am at higher risk of breast cancer. A CT scan showed that something in my right breast took the dye. The follow mammogram is not showing anything but I have very dense breast tissue. The right breast is now a whole cup size
Hello!To cut a long story short, I had Hodgkins lymphoma in 2005 and therefore am at higher risk of breast cancer. A CT scan showed that something in my right breast took the dye. The follow mammogram is not showing anything but I have very dense breast tissue. The right breast is now a whole cup size
Nightkittens
in
SHARE Breast Cancer Support
5 months ago
Triplet Therapy for HSPC
This article came over on the Prostate Cancer Newletter. https://www.onclive.com/view/dr-sharma-on-questions-regarding-the-optimal-use-of-triplet-therapies-in-hspc?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter I am unsure based on lack of detail and to a smaller extent a comment by
This article came over on the Prostate Cancer Newletter. https://www.onclive.com/view/dr-sharma-on-questions-regarding-the-optimal-use-of-triplet-therapies-in-hspc?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter I am unsure based on lack of detail and to a smaller extent a comment by
treedown
in
Advanced Prostate Cancer
5 months ago
Scared and Feeling Helpless
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Cafu6
in
Advanced Prostate Cancer
5 months ago
Testosterone too high?
I recently had my quarterly PSA and T tests, following stopping 18 months of ADT (Orgovyx) in April of 2022. PSA continued to de undetectable (<0.01) and T was 761. The last quarterly T was 706. Having had an initial PC Dx of GL9, Stage 4, Decipher .76 (July 2019) should I be concerned that T is
I recently had my quarterly PSA and T tests, following stopping 18 months of ADT (Orgovyx) in April of 2022. PSA continued to de undetectable (<0.01) and T was 761. The last quarterly T was 706. Having had an initial PC Dx of GL9, Stage 4, Decipher .76 (July 2019) should I be concerned that T is
JPnSD
in
Advanced Prostate Cancer
5 months ago
Elizabeth
Are there any support (face to face) in Glasgow? And do members find it difficult to lose weight after a thyroidectomy? Mine was removed 6 years ago dye to cancer. Regards
Are there any support (face to face) in Glasgow? And do members find it difficult to lose weight after a thyroidectomy? Mine was removed 6 years ago dye to cancer. Regards
Etblue
in
Thyroid UK
3 months ago
*NEW online session - 6th February* Our stories: having a hereditary increased risk of ovarian cancer
Good morning all, On the 6th February at 2:00pm, Ovacome will be hosting the next in the 'Our stories' series, where we are joined by member speakers who will share their experiences of one specific aspect of living with a diagnosis. This session will feature Ovacome members Hilary and Sue, who will
Good morning all, On the 6th February at 2:00pm, Ovacome will be hosting the next in the 'Our stories' series, where we are joined by member speakers who will share their experiences of one specific aspect of living with a diagnosis. This session will feature Ovacome members Hilary and Sue, who will
OvacomeSupport
My Ovacome Team
in
My Ovacome
5 months ago
Spot Radiation before Pluvicto?
Haven’t posted for a while about Mr. Spouse21 until I had some data as his PSA began to tick up a few months ago. Last week a PET FDG confirmed recent bone and CT scans. Summary of main results:
Multiple tracer avid osseous metastases. Most prominent involving right margin of T12.
Mr.Spouse was
Haven’t posted for a while about Mr. Spouse21 until I had some data as his PSA began to tick up a few months ago. Last week a PET FDG confirmed recent bone and CT scans. Summary of main results:
Multiple tracer avid osseous metastases. Most prominent involving right margin of T12.
Mr.Spouse was
spouse21
in
Advanced Prostate Cancer
3 months ago
Niraparib Time Line?
Hi ladies I am a bit confused re the length of time you are kept on PARP treatment and what happens when you stop. I have been on Niraparib for over two years now, my oncologist said they will review after three years. I haven’t any problems, my bloods and CA 125 have always been good. I read so many
Hi ladies I am a bit confused re the length of time you are kept on PARP treatment and what happens when you stop. I have been on Niraparib for over two years now, my oncologist said they will review after three years. I haven’t any problems, my bloods and CA 125 have always been good. I read so many
Jingles6
in
My Ovacome
5 months ago
ADT Holiday?
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
RunnerBiker
in
Advanced Prostate Cancer
5 months ago
Chemo Failed
My dad finished Docetaxel in November. He went to oncologist today. His PSA went from 0.58 to 2.3. Things he tried: Lupron (on for years before failed) Zytiga (worked for 18 months) Orchidectomy Then the chemo. He is not a candidate for radiation because of a previous cancer. He is going to
My dad finished Docetaxel in November. He went to oncologist today. His PSA went from 0.58 to 2.3. Things he tried: Lupron (on for years before failed) Zytiga (worked for 18 months) Orchidectomy Then the chemo. He is not a candidate for radiation because of a previous cancer. He is going to
Jshaw916
in
Advanced Prostate Cancer
5 months ago
Failing ADT
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
jfoesq
in
Advanced Prostate Cancer
5 months ago
Personal update
Ok, first blood work, 3 weeks after the last chemo of ARASENS protocol PSA is 0.39, it was 70 at diagnosis and 15 after 4-5 weeks (when I have started ARASENS) Testosterone 0.33 nmol/L well, that's it!
Ok, first blood work, 3 weeks after the last chemo of ARASENS protocol PSA is 0.39, it was 70 at diagnosis and 15 after 4-5 weeks (when I have started ARASENS) Testosterone 0.33 nmol/L well, that's it!
Maxone73
in
Advanced Prostate Cancer
5 months ago
1
...
43
44
45
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
24487 results
Advanced Prostate Cancer
12483 results
My Ovacome
4052 results
View top 10 communities
Sort by
Most Relevant
Newest