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Update after3years
I was in a covid coma 3years ago and posted in here to soon after I got home my brain was so hyper for a bout a month I felt so.guilty that I survived when ppl were loosing husband's wives children mum's dad's etc when I still do but I did survive I went to therapist who helped a lot and helped me
I was in a covid coma 3years ago and posted in here to soon after I got home my brain was so hyper for a bout a month I felt so.guilty that I survived when ppl were loosing husband's wives children mum's dad's etc when I still do but I did survive I went to therapist who helped a lot and helped me
Drewc
in
ICUsteps
7 months ago
Seeking information about encephalomalacia
Hi , I’m new to this site . I have recently given up working to become a carer for my partner who had a TBI in 2009 . He received a bleed to the brain and had to have a craniotomy . Amazingly he recovered and even went back to work but in 2018 I noticed a change in his walking and a movement in his eye
Hi , I’m new to this site . I have recently given up working to become a carer for my partner who had a TBI in 2009 . He received a bleed to the brain and had to have a craniotomy . Amazingly he recovered and even went back to work but in 2018 I noticed a change in his walking and a movement in his eye
Jasper65
in
Headway
5 months ago
Keep getting chest infections
hello I had open heart surgery in June to repair my mitral valve. The surgery was a great success, I’ve recovered well and I am back to working full time. However, whereas before surgery I very rarely got Ill , I now seem to pick up every big going 🤦🏻♀️ And end up quite poorly. I am on statins and
hello I had open heart surgery in June to repair my mitral valve. The surgery was a great success, I’ve recovered well and I am back to working full time. However, whereas before surgery I very rarely got Ill , I now seem to pick up every big going 🤦🏻♀️ And end up quite poorly. I am on statins and
Plum44
in
British Heart Foundation
7 months ago
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Pneumonia and Pleurisy- pain
Hi. I'm new here. I haven't been well since before Christmas. Initially I had a bit of a sore throat which I thought then turned into a virus- cough and sinus symptoms, shivers etc. A fortnight ago I felt pain in my chest- centre and at left hand side along ribs and behind breastbone area. Also at
Hi. I'm new here. I haven't been well since before Christmas. Initially I had a bit of a sore throat which I thought then turned into a virus- cough and sinus symptoms, shivers etc. A fortnight ago I felt pain in my chest- centre and at left hand side along ribs and behind breastbone area. Also at
Poppy16
in
Lung Conditions Community Forum
6 months ago
Bam ibs
I got diagnosed with bam in January but i noticed i always seem to get styes on eyes and cold sores on lips and skin on face is dry patchy little blisters that cluster together anyone else suffer with these conditions with bile acid malabsorption as i know its some form of ibd and an auto immune condition
I got diagnosed with bam in January but i noticed i always seem to get styes on eyes and cold sores on lips and skin on face is dry patchy little blisters that cluster together anyone else suffer with these conditions with bile acid malabsorption as i know its some form of ibd and an auto immune condition
Netbet22
in
IBS Network
8 months ago
Covid day four....U.K
Hi all. This sounds so stupid but I thought it was a regular cold. Just did a COVID test and it's positive. I think it maybe too late to access antivirals now? What should I do? Sorry, just a bit panicked. Thank you in advance.
Hi all. This sounds so stupid but I thought it was a regular cold. Just did a COVID test and it's positive. I think it maybe too late to access antivirals now? What should I do? Sorry, just a bit panicked. Thank you in advance.
Basil01
in
CLL Support
7 months ago
Dicyclomine 20 mg
Hi, Dear members, I need help from anyone who has experiences taking the medication Dicyclomine. I am suffering from severe abdominal pain and the ER doctor prescribed it to relieve the pain. I hesitate to take it for fear of aggravating my RLS. It is an anticholinergic medication. Do you think if
Hi, Dear members, I need help from anyone who has experiences taking the medication Dicyclomine. I am suffering from severe abdominal pain and the ER doctor prescribed it to relieve the pain. I hesitate to take it for fear of aggravating my RLS. It is an anticholinergic medication. Do you think if
halperinchen
in
Restless Legs Syndrome
11 months ago
Overactive thyroid and possibly Graves due to symptoms -not medically diagnosed.
Hi there , I am very new to this and I struggle at the moment as I’m falling apart. The whole of December I been basically bedridden and was wondering if you could give me some advice for when I see my doctor. I have an appointment on the 8th and I really want to understand what he is going to discuss
Hi there , I am very new to this and I struggle at the moment as I’m falling apart. The whole of December I been basically bedridden and was wondering if you could give me some advice for when I see my doctor. I have an appointment on the 8th and I really want to understand what he is going to discuss
Danathediva1
in
Thyroid UK
7 months ago
Anyone here with cervical arthritis?
I recently found out that the pains I've been having in my neck, shoulders and arms is arthritis. Specifically c4-c5, c6-c7. I don't want ibuprofen, Tylenol isn't working and I'm allergic to sulfa drugs; I'm kinda concerned about all the drugs, but need something to help so I can continue to work. I
I recently found out that the pains I've been having in my neck, shoulders and arms is arthritis. Specifically c4-c5, c6-c7. I don't want ibuprofen, Tylenol isn't working and I'm allergic to sulfa drugs; I'm kinda concerned about all the drugs, but need something to help so I can continue to work. I
Fleur29
in
Osteoarthritis Action
7 months ago
Stopped Prednisone Completely
Diagnosed in the fall of 2022 with PMR. Put on 13mg daily, the relief from the discomfort of PMR was immediate; overnight to be specific. The next month, began reducing my dosage about 1mg/mo. On 2023-10-06, began every other day dosage of 1mg. On 2023-12-26 I took my last dose and so far, so good
Diagnosed in the fall of 2022 with PMR. Put on 13mg daily, the relief from the discomfort of PMR was immediate; overnight to be specific. The next month, began reducing my dosage about 1mg/mo. On 2023-10-06, began every other day dosage of 1mg. On 2023-12-26 I took my last dose and so far, so good
Mansplainer101
in
PMRGCAuk
7 months ago
I could have PMR…
I posted back in September for some invaluable advice from you lovely people. I suspected I might have PMR but after being in hospital and treated for ‘infection’ which is what the doctors said I had I thought no more about it. I had high inflammation markers which were thought to be due to infection
I posted back in September for some invaluable advice from you lovely people. I suspected I might have PMR but after being in hospital and treated for ‘infection’ which is what the doctors said I had I thought no more about it. I had high inflammation markers which were thought to be due to infection
MsWhistledown
in
PMRGCAuk
7 months ago
Advice request - going in circles with doctors
Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might be something else. I've had surgery to remove endometriosis twice (and the second time I also had an ovarian cyst removed which was larger than
Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might be something else. I've had surgery to remove endometriosis twice (and the second time I also had an ovarian cyst removed which was larger than
Bookworm321123
in
Endometriosis UK
4 months ago
Latest re -Lupus and Covid?
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
BeeManShrop
in
LUPUS UK
7 months ago
New RLS member
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
Ddski5
in
Restless Legs Syndrome
7 months ago
today/tonight
this afternoon I am going to the casino to hang out with some friends from college. We’re going to shop at the outlets before checking into our air bnb and getting ready for the evening. Our plan is to gamble a bit and go to a nightclub after. Because of my anxiety I already plan on not drinking. But
this afternoon I am going to the casino to hang out with some friends from college. We’re going to shop at the outlets before checking into our air bnb and getting ready for the evening. Our plan is to gamble a bit and go to a nightclub after. Because of my anxiety I already plan on not drinking. But
Daisy425
in
Anxiety and Depression Support
7 months ago
Christmas Covid present…
My husband tested positive for Covid Christmas Day evening after feeling ill for a couple of days. I tested negative and felt ok. We avoided each other and masked up. Today, after a couple of disturbed nights and drained days I’ve tested positive. I am on 4mg pred. Do I need to contact the doctor re
My husband tested positive for Covid Christmas Day evening after feeling ill for a couple of days. I tested negative and felt ok. We avoided each other and masked up. Today, after a couple of disturbed nights and drained days I’ve tested positive. I am on 4mg pred. Do I need to contact the doctor re
Bluey-1
in
PMRGCAuk
7 months ago
covid
I had covid two weeks ago. Thankyou by the way for those who answered my post when I didn’t realise I had covid, I had pains which I thought were the pmr returning. I am recovering quite slowly, no longer feel rotten but very breathless ( I have asthma) and having pmr type pains. I don’t know what to
I had covid two weeks ago. Thankyou by the way for those who answered my post when I didn’t realise I had covid, I had pains which I thought were the pmr returning. I am recovering quite slowly, no longer feel rotten but very breathless ( I have asthma) and having pmr type pains. I don’t know what to
Yellow-dog
in
PMRGCAuk
7 months ago
Measles outbreak
Hi, not sure if I'm being silly so looking for abit of reassurance. I'm on rituximab, azathioprine and prednisolone. I'm up-to-date with vaccinations bit concerned about the measles outbreak in my area. Am I at risk due to being immunocompromised?
Hi, not sure if I'm being silly so looking for abit of reassurance. I'm on rituximab, azathioprine and prednisolone. I'm up-to-date with vaccinations bit concerned about the measles outbreak in my area. Am I at risk due to being immunocompromised?
Vqueen
in
Vasculitis UK
6 months ago
The Plot Thickens…
I posted a few days ago about shoulder pain. It has got worse and is in both shoulders and is affecting my neck. It is far worse in the morning. My Osteopath gave me a private doctor’s contact details so I could see them for a cortisone injection. I had the appointment this morning and it turned out
I posted a few days ago about shoulder pain. It has got worse and is in both shoulders and is affecting my neck. It is far worse in the morning. My Osteopath gave me a private doctor’s contact details so I could see them for a cortisone injection. I had the appointment this morning and it turned out
MsWhistledown
in
Thyroid UK
7 months ago
Mental Health
Hi. Up until now which is a week after i had a heart attack and stent fitted, ive been a bit up and down but now im finding myself speculating on my future especially to do with work. I work in train maintenance and its heavy going, stressful with shift work and long hours and ezposure to diesel fumes
Hi. Up until now which is a week after i had a heart attack and stent fitted, ive been a bit up and down but now im finding myself speculating on my future especially to do with work. I work in train maintenance and its heavy going, stressful with shift work and long hours and ezposure to diesel fumes
BaronFrankenstein
in
British Heart Foundation
7 months ago
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