Experiences with

Bladder conditions

Does anyone suffer from a flare , UTI and diverticulitis at the same time ? This last flare started after a course of antibiotics for another infection. , but now I have felt really ill for the last few days with very tender abdomen and pain all along my left side even up under my left ribs ! I also

I have pain starting from stomach then it seems to travel down to lower abdomen. I am very bloated, only burping or passing wind, my pain can be released a bit. The bloating is so bad, I couldn’t even breathe. I am wondering if anyone who have similar symptoms and how to relief such painful bloating.

I've had PV since 2015 and have been on Jakafi for 18 months. I've recently been diagnosed with age-related macular degeneration and have been treated with intravitreous avastin. I've seen some papers suggesting that AMD is more common for people with MPNs. Has anyone else had this experience? Steve

Hi all, let me start with how much I love this site everyone is so helpful and understanding. I'm sorry if I go on a bit just sometimes things seem better when you write it down and get anothers view. I've had ibs c for 30 ish years. It was just constant constipation in the beginning. As the years went

I’ve suffer a lot from this I get it around 3/4 times a year but usually lasts about a week. I’m on my third week struggling with this and can’t find a lip balm or treatment. I heard Daktarin oral gel but it’s sold out everywhere and the pharmacy said they even finding it hard to get it in for people

Hi! new here and didn’t actually know this forum was about until I started googling on the nhs site. So my question is what is ibs? I want to explain what I’m experiencing and if someone can tell me if it’s completely normal for ibs to be like this I would be really grateful. This time last year

My mother 's Ca 125 had a huge Spike from 2.74 last november to 11.42 at the begininng of May. CEA went Down instead. She changed Lab and this new Lab has a different range, the previous One used 0-21 and this One use the usual 0-35. She also had a ct scan , absolutely clear. She had , 15 days prior

Hi Everyone. I have just been told this morning that my MRI confirmed an acoustic neuroma. The ENT Doctor said he is now referring me to a specialist in Manchester. Can anyone tell me what to expect now ? Did anyone have any treatment for it ? Thank you.

Hi. I have just received a diagnosis for the above condition. I understand it’s extremely rare and would like to hear about other people’s experiences. I’m literally just on the journey and have had the first of 3 ‘rescue’ injections to prevent further sight loss. Would be good to connect with others

I don’t look like my eyes are normal size but the consultant says they are small, not deep and short ??? Says cataract op would be difficult when the time comes . Says further laser surgery not possible. has anyone else been told this ? I worries me for the future

Hello everyone I’ve been enjoying the posts on What’s in a Title and thank you to all involved. On a more mundane matter, I had a telephone consultation with I’m pleased to say, Dr Murray’s gastrointestinal/Scleroderma clinic over a week ago. It was with Kristina Clarke who I’ve met before and when

Dearest, Yesterday during a consultation was told that I have 1 in 10 chances of the chemo be able to get rid of my cancer.Is in my tummy.Extremly painful, causing obstruction of the intestines. The word used was :"you are terminal".They don't know how long I have. I will still try next week one more

Quick catch up to give a boost if you're struggling right now starting your journey 😘 Basics Stage4b hgsc hrd+ brca negative with lymph nodes next to my heart and pelvis, started carbo/taxol June 2021 had 4 rounds then paid private for operation then 2 rounds. Finished 22 infusions of avastin in April

Got diagnosed with bile acid malabsorption over a year ago terrible pain before and after bowel movements that lasts a good few hours seeing a different doctor at my surgery he said he could be the bile salts aggravating my colon so i have to up the colesevelam to 2 a day instead of 1 if that dont help

hello So I’m a long term suffer from raynauds (secondary) keeping hands warm is a challenge. I’ve got various gloves and hand warms but there are times when I can’t wear gloves or when the gloves aren’t effective. I’ve seen various hand creams to at say they warm the hands but has anyone tried any and

I just had a telephone consult with my respiratory consultant. As the steroid in my Seretide inhaler is thought likely to be the cause of my recently diagnosed adrenal insufficiency, he proposes to switch me from Seretide to Fostair as the steroid in that is less potent. I am seeing conflicting information

Are there any other LSSc people out there also suffering from varicose veins? At my last check up with Royal Free I pointed out lots of new burst veins/ thread veins in my legs. They said it as early varicose veins, but they would ask my GP to refer me to vascular specialist close to me. RF implied

Hi Everyone, Looking for some advice or anyone who's been through a similar experience. I had Endo 3 years ago some of my main symptoms where bowel issues bloating, gassy, stomach cramps and diarrhea whenever I ate to much. Initially the doctor put it down to IBS. Obviously that wasn't the case and it

Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so