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thrombotic thrombocytopenic purpura (TTP)
Warriors: Recently, I posted about 1 year side effects. Thank you for all of your responses. My SEs got the best of me and I’m writing from a hospital bed. The current theory is I have TTP, which is associated with hormonal therapy. I wanted to write and see if any of you have had the misfortune
Warriors: Recently, I posted about 1 year side effects. Thank you for all of your responses. My SEs got the best of me and I’m writing from a hospital bed. The current theory is I have TTP, which is associated with hormonal therapy. I wanted to write and see if any of you have had the misfortune
TMcgee
in
Advanced Prostate Cancer
6 months ago
Changing thyroid treatment and Testogel
Hi, I wonder if anyone can advise and apologies in advance for the long story! I consulted a private Endocrinologist and started taking Liothyronine in early October 1 x 5mg tablet 3 times a day. I was also on 25mg levothyroxine, 4pumps of estrogel, 2 tablets of progesterone and 1/8 pack of testogel
Hi, I wonder if anyone can advise and apologies in advance for the long story! I consulted a private Endocrinologist and started taking Liothyronine in early October 1 x 5mg tablet 3 times a day. I was also on 25mg levothyroxine, 4pumps of estrogel, 2 tablets of progesterone and 1/8 pack of testogel
Blu-cat11
in
Thyroid UK
6 months ago
Adenomyosis, should I have hysterectomy?
The short version is that I have adenomyosis. I've always had heavy periods with period pains that make my thighs numb and require prescription painkillers. At the age of 44 I had some symptoms of perimenopause and tried HRT. After two years I came off and that seems to have triggered a strong reaction
The short version is that I have adenomyosis. I've always had heavy periods with period pains that make my thighs numb and require prescription painkillers. At the age of 44 I had some symptoms of perimenopause and tried HRT. After two years I came off and that seems to have triggered a strong reaction
mavenmi
in
Endometriosis UK
6 months ago
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Why ADT after Ray treatment?
OK, I'm sure there is a logical answer to this question but at present it is evading me. So for all of us who decide to take the ADT path for a few months to stabilize our PCa and then hit it with the big guns such as a month (or more) of IMRT and in my case a follow-up of HDR Brachy Boost therapy,
OK, I'm sure there is a logical answer to this question but at present it is evading me. So for all of us who decide to take the ADT path for a few months to stabilize our PCa and then hit it with the big guns such as a month (or more) of IMRT and in my case a follow-up of HDR Brachy Boost therapy,
Mike58
in
Prostate Cancer Network
5 months ago
Prostate cancer treatment and IBS
Dear Friends and Sufferers! I've been diagnosed with prostate cancer and have the option of removing the prostate or radiotherapy with or without hormone treatment. Can anyone out there who has experience of these offer advise on their impact on IBS and bowel function? At the moment, I've got IBS looseness
Dear Friends and Sufferers! I've been diagnosed with prostate cancer and have the option of removing the prostate or radiotherapy with or without hormone treatment. Can anyone out there who has experience of these offer advise on their impact on IBS and bowel function? At the moment, I've got IBS looseness
merve1
in
IBS Network
6 months ago
Soy concerns
Hi, I have been focusing on the nutrition posts to improve my diet as I have osteopenia. I am reading a lot of posts and articles saying to incorporate soy. I stay away from soy because of breast cancer risks. I don't have breast cancer but avoid any estrogen enhancing products/medication like hormone
Hi, I have been focusing on the nutrition posts to improve my diet as I have osteopenia. I am reading a lot of posts and articles saying to incorporate soy. I stay away from soy because of breast cancer risks. I don't have breast cancer but avoid any estrogen enhancing products/medication like hormone
Truth-seeker1951
in
Bone Health and Osteoporosis UK
6 months ago
Should I have a hysterectomy?
The short version is that I have adenomyosis, but it is well enough managed on zoladex/Tibolone that I'm not having any significant pain and not bleeding enough that it is a problem, but I do have lots of more minor issues and my consultant thinks a hysterectomy would be better. I've got the op booked
The short version is that I have adenomyosis, but it is well enough managed on zoladex/Tibolone that I'm not having any significant pain and not bleeding enough that it is a problem, but I do have lots of more minor issues and my consultant thinks a hysterectomy would be better. I've got the op booked
mavenmi
in
Menopause and Perimenopause Support
6 months ago
Does ADT work for Gleason 9?
About to start ADT for Gleason 9 (5+4) for locally advanced prostate cancer, followed by IMRT in 1-2 months. (Plan to ask about HDR boost). PSMA Pet negative for spread but MO had another radiologist look at initial prostate MRI suggests extracapsular extension along neurovascular bundle with possible
About to start ADT for Gleason 9 (5+4) for locally advanced prostate cancer, followed by IMRT in 1-2 months. (Plan to ask about HDR boost). PSMA Pet negative for spread but MO had another radiologist look at initial prostate MRI suggests extracapsular extension along neurovascular bundle with possible
Hope49823
in
Advanced Prostate Cancer
5 months ago
The importance of training your legs (if you can, of course)
Engaging in fitness activities is considered a standard of care (SOC) for many cancer patients, not only because it enhances overall health but also due to the chemical interactions between muscles and cancer cells. Comprehensive body training is essential, with an emphasis on targeting the body's largest
Engaging in fitness activities is considered a standard of care (SOC) for many cancer patients, not only because it enhances overall health but also due to the chemical interactions between muscles and cancer cells. Comprehensive body training is essential, with an emphasis on targeting the body's largest
Maxone73
in
Advanced Prostate Cancer
6 months ago
Have you had neurosurgery for your brain tumour?
Being told you, or your loved one, needs to have surgery for their brain tumour can be a worrying time, which we know many of our community face. Help us ensure that patients and their loved ones are provided with the best information and care during treatment by sharing you experience through our Improving
Being told you, or your loved one, needs to have surgery for their brain tumour can be a worrying time, which we know many of our community face. Help us ensure that patients and their loved ones are provided with the best information and care during treatment by sharing you experience through our Improving
Zhaleh_TBTC
Administrator
in
The Brain Tumour Charity
10 months ago
subclinical - do I need levo?
I have been borderline Subclinical hypothyroidism for around 10 years. The GP put me on levothyroxine 2013, I took a low dose for a month or two but couldn’t tolerate it (palpitations), so I stopped. I was referred to Endo who did a check on my antibodies - was clear. Every year, my tsh was either just
I have been borderline Subclinical hypothyroidism for around 10 years. The GP put me on levothyroxine 2013, I took a low dose for a month or two but couldn’t tolerate it (palpitations), so I stopped. I was referred to Endo who did a check on my antibodies - was clear. Every year, my tsh was either just
Rambler16
in
Thyroid UK
6 months ago
Locally Advanced PC - should I accept offer of docetaxel?
Hi I'm UK based, new to Health Unlocked and just starting to get to grips with the chats. I was diagnosed August '23 with locally advanced PV. Spread has occurred to a seminal vesicle and, very slightly, to a pelvic lymph node (Oncologist called it 'subtle') Gleason of 4+5. I immediately embarked
Hi I'm UK based, new to Health Unlocked and just starting to get to grips with the chats. I was diagnosed August '23 with locally advanced PV. Spread has occurred to a seminal vesicle and, very slightly, to a pelvic lymph node (Oncologist called it 'subtle') Gleason of 4+5. I immediately embarked
TsarskoMomche
in
Advanced Prostate Cancer
6 months ago
Androstenedione & Frailty
New study from Spain [1]. For many years, I used a product that probably contained DES (diethylstilbestrol) - perhaps 1 mg? My QoL was very good. When I eventually migrated to 3 mg DES - plus a shot of testosterone cypionate every 3 months - I began to feel frail. The new study associates high
New study from Spain [1]. For many years, I used a product that probably contained DES (diethylstilbestrol) - perhaps 1 mg? My QoL was very good. When I eventually migrated to 3 mg DES - plus a shot of testosterone cypionate every 3 months - I began to feel frail. The new study associates high
pca2004
in
Fight Prostate Cancer
6 months ago
hormonnes .. are they ok or not
have been unwel for over 4 years now I have fibromyalgia since 2014 which I managed fine until 4/5 years ago became increased unwel daily .. have had to leave my job now due to ill health … recently had health check to see if could help as GP kept saying all in my head … results for Hormonnes were as
have been unwel for over 4 years now I have fibromyalgia since 2014 which I managed fine until 4/5 years ago became increased unwel daily .. have had to leave my job now due to ill health … recently had health check to see if could help as GP kept saying all in my head … results for Hormonnes were as
kes2008
in
Menopause and Perimenopause Support
6 months ago
Speechless by my GP’s response
I messaged my GP surgery and requested a full thyroid blood test (not just TSH which is all I’ve been able to get since COVID) as well as iron, vits B and D tests. I’ve been feeling really rotten, and want to look at every potential reason. Now, bear in mind I have been on HRT (prescribed by them) for
I messaged my GP surgery and requested a full thyroid blood test (not just TSH which is all I’ve been able to get since COVID) as well as iron, vits B and D tests. I’ve been feeling really rotten, and want to look at every potential reason. Now, bear in mind I have been on HRT (prescribed by them) for
Partiallythere
in
Thyroid UK
6 months ago
Relative risk for secondary bone marrow cancer within 5 years after initial CLL chemoimmunotherapy treatment (typically BR or FCR)
In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/rituximab) are now available, the remaining reason that FCR (Fludarabine+Cyclophosphamide+Rituximab) is still sometimes recommended for the treatment of CLL is that it can be curative* about 55% of the time - but [u]
only[
In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/rituximab) are now available, the remaining reason that FCR (Fludarabine+Cyclophosphamide+Rituximab) is still sometimes recommended for the treatment of CLL is that it can be curative* about 55% of the time - but [u]
only[
AussieNeil
Partner
in
CLL Support
11 months ago
Where do I go for alternative to continuous ADT?
I am 63 yrs old and was diagnosed in March '23 with mHSPC, w/ multiple mets in lungs, bones and lymph glands. Began triplet therapy in April: Eligard shot every 3 months, Nubequa daily, and 6 rounds of docetaxel. SE's have been mild. I want to an alternative to continuous ADT, whether its IADT, BAT
I am 63 yrs old and was diagnosed in March '23 with mHSPC, w/ multiple mets in lungs, bones and lymph glands. Began triplet therapy in April: Eligard shot every 3 months, Nubequa daily, and 6 rounds of docetaxel. SE's have been mild. I want to an alternative to continuous ADT, whether its IADT, BAT
Forest1160
in
Fight Prostate Cancer
6 months ago
Does HRT cause weight gain?
Did you gain any weight when you talk HRT? I'm very concerned about this as I've read several reviews of people saying that they did and I haven't eaten disorder so that kind of thing terrifies me.
Did you gain any weight when you talk HRT? I'm very concerned about this as I've read several reviews of people saying that they did and I haven't eaten disorder so that kind of thing terrifies me.
Hidden
in
Women's Health
6 months ago
Does HRT cause weight gain?
Did you gain weight on your HRT? I'm worried about this and have read reviews of many people that gained a lot of weight on it so I'm very scared yes I haven't eating disorder say that kind of thing scares me.
Did you gain weight on your HRT? I'm worried about this and have read reviews of many people that gained a lot of weight on it so I'm very scared yes I haven't eating disorder say that kind of thing scares me.
Hidden
in
Menopause and Perimenopause Support
6 months ago
If feel a bit daft asking this here - but a very high DEXA score?
I had an ankle scan years ago as part of a work "well woman clinic" and was told I was borderline oestopenia Then as I had my ovaries out because of cysts I had a private dexa scan as a baseline for making decisions about hrt etc My results seemed a bit 'off' but everyone says oh it's fine (it probably
I had an ankle scan years ago as part of a work "well woman clinic" and was told I was borderline oestopenia Then as I had my ovaries out because of cysts I had a private dexa scan as a baseline for making decisions about hrt etc My results seemed a bit 'off' but everyone says oh it's fine (it probably
KatyMac68
in
Bone Health and Osteoporosis UK
6 months ago
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