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Diagnosed at 61
I had a my first tonic clonic seizure June 23. I'd been having focal seizures for 10 years but didn't know what they were, so never saw the doctor. I've had CT scan, MRI and all normal. Had an ECT and that showed abnormal electrical activity in my brain which shocked me. I started Lamotrigine in July
I had a my first tonic clonic seizure June 23. I'd been having focal seizures for 10 years but didn't know what they were, so never saw the doctor. I've had CT scan, MRI and all normal. Had an ECT and that showed abnormal electrical activity in my brain which shocked me. I started Lamotrigine in July
TheCoulerPurple
in
Epilepsy Action
7 months ago
Getting head around what to expect
I like to have facts. In times of stress I think Facts are our friend. Better to be prepared, mentally, physically, financially, with support systems, etc.. so looking for any insights as to what I should expect and prepare my husband, myself and my kids/family for in the weeks and months, years ahead
I like to have facts. In times of stress I think Facts are our friend. Better to be prepared, mentally, physically, financially, with support systems, etc.. so looking for any insights as to what I should expect and prepare my husband, myself and my kids/family for in the weeks and months, years ahead
Melzer2169
in
Advanced Prostate Cancer
5 months ago
Restless legs and peri menopause
Hi allNew to the group! I'm having a really bad time with insomnia because of RLS. I had it under control when I started on HRT. The times I've had RLS have been puberty and pregnancy. So does seem to be related to hormonal changes. I'm on highest does of HRT but seems it's not working anymore as RLS
Hi allNew to the group! I'm having a really bad time with insomnia because of RLS. I had it under control when I started on HRT. The times I've had RLS have been puberty and pregnancy. So does seem to be related to hormonal changes. I'm on highest does of HRT but seems it's not working anymore as RLS
Bluebellgel
in
Restless Legs Syndrome
5 months ago
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Apalutamide/ADT Confers 100% Recurrence-Free Survival in High-Risk Prostate Cancer
https://www.oncnursingnews.com/view/apalutamide-adt-confers-100-recurrence-free-survival-in-high-risk-prostate-cancer So if I have this right high risk patients who got RP are put on adt and apalutamide for 12 months and after two years, now with recovered tst none have had a recurrence. am a little
https://www.oncnursingnews.com/view/apalutamide-adt-confers-100-recurrence-free-survival-in-high-risk-prostate-cancer So if I have this right high risk patients who got RP are put on adt and apalutamide for 12 months and after two years, now with recovered tst none have had a recurrence. am a little
street-air
in
Advanced Prostate Cancer
5 months ago
PSA from .08 to 2.1, after 2yrs ADT with zytiga and RT @59 yr
so seems to be back and waiting on PSMA PER SCAN. From what I understand, they usually look for something and do a scavenge RT treatment. Anyone who’s gone through this did you have to go back on ADT because that just sucks.. I had high risk Gleason score 9 anybody deal with this? I’m sure. Let me know
so seems to be back and waiting on PSMA PER SCAN. From what I understand, they usually look for something and do a scavenge RT treatment. Anyone who’s gone through this did you have to go back on ADT because that just sucks.. I had high risk Gleason score 9 anybody deal with this? I’m sure. Let me know
Eieio
in
Advanced Prostate Cancer
5 months ago
Pulmonary Node revealed with PET scan not growing
During my treatment for PC the first Pet scan showed a pulmonary node. There were no Mets beyound the prostate. Three DRs., Urologist, Oncologist and Pulmonary, did not attribute the node to the PC, since it was so far removed and there were no other mets revealed. A subsquent MRI 3 months later indicated
During my treatment for PC the first Pet scan showed a pulmonary node. There were no Mets beyound the prostate. Three DRs., Urologist, Oncologist and Pulmonary, did not attribute the node to the PC, since it was so far removed and there were no other mets revealed. A subsquent MRI 3 months later indicated
Eadgbe
in
Advanced Prostate Cancer
5 months ago
Fine tuning dose.
Hi all, I've been feeling a bit 'meh' recently and after a recent blood test I'm wondering if I'm [i]slightly [/i]overmedicated[i]. [/i] Could also be HRT needs to settle. I can't decide so thought I'd ask the hive mind. :) 4th Nov - started HRT; 200mcg progesterone & 50mcg oestrogen. 26th Feb: 200
Hi all, I've been feeling a bit 'meh' recently and after a recent blood test I'm wondering if I'm [i]slightly [/i]overmedicated[i]. [/i] Could also be HRT needs to settle. I can't decide so thought I'd ask the hive mind. :) 4th Nov - started HRT; 200mcg progesterone & 50mcg oestrogen. 26th Feb: 200
WitchingHour2point0
in
Thyroid UK
5 months ago
Too old for HRT?
Hi everyone, I’m 66 and just started HRT. I’m on Lenzetto spray and Utrogestan. I keep worrying that I’m too old to be on HRT. Are there any other ladies out there who have just started at my age and if so, has it helped?
Hi everyone, I’m 66 and just started HRT. I’m on Lenzetto spray and Utrogestan. I keep worrying that I’m too old to be on HRT. Are there any other ladies out there who have just started at my age and if so, has it helped?
Pinkisland
in
Menopause and Perimenopause Support
5 months ago
Proton Beam radiation
83 ys old, gleason 9, ADT since Feb 22=6 sessions until now. No prostatectomie. Proton beam radiation: 30 sessions = 72 Gy, result PSA 0,014 (undetectable), minor inkontinence (pads). I am very happy about the outcome. Living in Germany: insurances cover the cost( approx 50k)
83 ys old, gleason 9, ADT since Feb 22=6 sessions until now. No prostatectomie. Proton beam radiation: 30 sessions = 72 Gy, result PSA 0,014 (undetectable), minor inkontinence (pads). I am very happy about the outcome. Living in Germany: insurances cover the cost( approx 50k)
EBBEFLUT
in
Advanced Prostate Cancer
5 months ago
Decided on brachyboost plus 6 months ADT
My husband made his treatment decision today. After a lot of research, questions and consults, he has decided on brachyboost (EBRT plus brachytherapy) plus 6 months of ADT. It was a tough decision and we both know way more about prostate cancer now that we ever wanted to, but I am glad we did our due
My husband made his treatment decision today. After a lot of research, questions and consults, he has decided on brachyboost (EBRT plus brachytherapy) plus 6 months of ADT. It was a tough decision and we both know way more about prostate cancer now that we ever wanted to, but I am glad we did our due
EvFC
in
Advanced Prostate Cancer
5 months ago
Zoledex injection 2
Hi all so im had zoledex jab number 2 on tuesday and wednesday i had a major flare up and now im writing this at 3am with another major flare up.I was in A&E wednesday as the pain was so bad but after tests i was told it was uti and carry on. I was told the paind anyway by my endo nurse would get worse
Hi all so im had zoledex jab number 2 on tuesday and wednesday i had a major flare up and now im writing this at 3am with another major flare up.I was in A&E wednesday as the pain was so bad but after tests i was told it was uti and carry on. I was told the paind anyway by my endo nurse would get worse
Chartolfrey
in
Endometriosis UK
5 months ago
happy Saturday!
I brought home my dog domino following acl surgery and am overwhelmed about his rehab routine. Massage, ice, meds, trips to vet daily for laser therapy, etc. for at least 8 weeks. Has anyone else been through this and have any coping skills to suggest?
I brought home my dog domino following acl surgery and am overwhelmed about his rehab routine. Massage, ice, meds, trips to vet daily for laser therapy, etc. for at least 8 weeks. Has anyone else been through this and have any coping skills to suggest?
CatDogLover
in
Anxiety and Depression Support
10 months ago
Pulmonary Complications Post Lutetium-177-PSMA-617 Therapy in Metastatic Castration-Resistant Prostate Cancer #Pluvicto
We present the case of a patient with heavily pretreated metastatic castration-resistant prostate cancer (mCRPC) who underwent treatment with lutetium Lu-177 vipivotide tetraxetan (also known as 177Lu-PSMA-617) due to progressive disease despite multiple lines of therapy, including chemotherapy, hormonal
We present the case of a patient with heavily pretreated metastatic castration-resistant prostate cancer (mCRPC) who underwent treatment with lutetium Lu-177 vipivotide tetraxetan (also known as 177Lu-PSMA-617) due to progressive disease despite multiple lines of therapy, including chemotherapy, hormonal
God_Loves_Me
in
Advanced Prostate Cancer
5 months ago
T3/T4 HRT Meds before surgery?
Hello lovely people, i hope everyone is managing to catch up on the long overdue sun ;) Sadly, my gynaecologist has found an ovarian tumour which needs to be removed and biopsied. Recovery from this will take between 6-8 weeks. I am in really good health otherwise but do take 150mg Levo and 45mg Liothyronine
Hello lovely people, i hope everyone is managing to catch up on the long overdue sun ;) Sadly, my gynaecologist has found an ovarian tumour which needs to be removed and biopsied. Recovery from this will take between 6-8 weeks. I am in really good health otherwise but do take 150mg Levo and 45mg Liothyronine
Piggyoink
in
Thyroid UK
5 months ago
Making a Case for Intermittent ADT in Metastatic Hormone Sensitive Prostate Cancer
FPC'ers, Many times, we hear people claim that you should only stop ADT if you can't tolerate it any longer, and that it will not slow castrate resistance; that it increases risk for stroke, and heart attack; that it will likely take years for your testosterone to recover; that it increases mortality
FPC'ers, Many times, we hear people claim that you should only stop ADT if you can't tolerate it any longer, and that it will not slow castrate resistance; that it increases risk for stroke, and heart attack; that it will likely take years for your testosterone to recover; that it increases mortality
NPfisherman
in
Fight Prostate Cancer
5 months ago
Gleason 9 prostate cancer
Hello - my husband has aggressive gleason 9 prostate cancer. He had a prostatectomy in August 2015 but his psa remained high, suggesting it had already left the prostate. He then had IMRT to his pelvic area and was started on Zoladex adt (3monthly injections). He became castrate resistant so abiraterone
Hello - my husband has aggressive gleason 9 prostate cancer. He had a prostatectomy in August 2015 but his psa remained high, suggesting it had already left the prostate. He then had IMRT to his pelvic area and was started on Zoladex adt (3monthly injections). He became castrate resistant so abiraterone
69HumptyDumpty
in
Prostate Cancer Network
3 months ago
Phase III Study: Saruparib Combo with New Hormonal Agents in mCSPC +/- HRR Mutations: AUA 2024 EvoPAR-Prostate01 Trial
AUA 2024: EvoPAR-Prostate01: Phase III, Double-Blind, Placebo-Controlled, 2-Cohort, Randomized Study of Saruparib (AZD5305) in Combination with New Hormonal Agents in Patients with mCSPC +/- HRR Mutations (UroToday.com) The 2024 American Urological Association (AUA) annual meeting featured a session
AUA 2024: EvoPAR-Prostate01: Phase III, Double-Blind, Placebo-Controlled, 2-Cohort, Randomized Study of Saruparib (AZD5305) in Combination with New Hormonal Agents in Patients with mCSPC +/- HRR Mutations (UroToday.com) The 2024 American Urological Association (AUA) annual meeting featured a session
God_Loves_Me
in
Advanced Prostate Cancer
5 months ago
Any guidance appreciated!
Hi everyone, My Dad (77) diagnosed in January w/ stage 4 PC, mets to L5 spine. PET scan showed no other spots elsewhere. PSA was 19 at time of diagnosis, Gleason 10. BRCA negative. PSA is now at 0.2 since starting hormone therapy. Feeling good, no pain. Still works (owns his own company). Started
Hi everyone, My Dad (77) diagnosed in January w/ stage 4 PC, mets to L5 spine. PET scan showed no other spots elsewhere. PSA was 19 at time of diagnosis, Gleason 10. BRCA negative. PSA is now at 0.2 since starting hormone therapy. Feeling good, no pain. Still works (owns his own company). Started
LDC2024
in
Advanced Prostate Cancer
5 months ago
oligometastic
I had a PSMA scan that found 3 small spots. My MO and Radiation O decided to radiate the spots without ADT. PSA is 0.28
I had a PSMA scan that found 3 small spots. My MO and Radiation O decided to radiate the spots without ADT. PSA is 0.28
Howard53545
in
Advanced Prostate Cancer
5 months ago
TRAP trial: radiotherapy combined with hormone therapy can help some advanced prostate cancer patients avoid chemotherapy
TRAP is maybe not the best name for a clinical trial, but hey… https://www.icr.ac.uk/news-archive/new-trial-finds-radiotherapy-combined-with-hormone-therapy-can-help-some-advanced-prostate-cancer-patients-avoid-chemotherapy
TRAP is maybe not the best name for a clinical trial, but hey… https://www.icr.ac.uk/news-archive/new-trial-finds-radiotherapy-combined-with-hormone-therapy-can-help-some-advanced-prostate-cancer-patients-avoid-chemotherapy
Maxone73
in
Advanced Prostate Cancer
5 months ago
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