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so a different shoe dropped
We all started at different times but the ending seems the same - just a few years or dozens. We all know that day we were told you have cancer. Well October is the five year anniversary of his diagnosis… Halloween day to be exact But actually the journey started in 1997. That’s when he had is
We all started at different times but the ending seems the same - just a few years or dozens. We all know that day we were told you have cancer. Well October is the five year anniversary of his diagnosis… Halloween day to be exact But actually the journey started in 1997. That’s when he had is
MouseAddams
in
Advanced Prostate Cancer
9 months ago
Supplements and self-care
Hi everyone, I am new to this site and to this forum. It has been a wealth of information. I know there have been plenty of other threads, regarding supplements, and how we take care of ourselves, but some of them have aged and just wanted to start a fresh one. I am 53 and was diagnosed with stage
Hi everyone, I am new to this site and to this forum. It has been a wealth of information. I know there have been plenty of other threads, regarding supplements, and how we take care of ourselves, but some of them have aged and just wanted to start a fresh one. I am 53 and was diagnosed with stage
StayinAlive8
in
Advanced Prostate Cancer
11 months ago
WooHoo💙 Made my 552.2 mile goal to mark the 9th year cancerversary 🤙
552.2 miles on 10/13/23 to mark my 9th year with #stageivpca when the PSA was 552.2 on 10/13/14 Old data said only 28% chance of 5 years I'm still standing "Looking like a true survivor, feeling like a little kid" https://photos.app.goo.gl/4ZJiU4efqCdhWueJ6
552.2 miles on 10/13/23 to mark my 9th year with #stageivpca when the PSA was 552.2 on 10/13/14 Old data said only 28% chance of 5 years I'm still standing "Looking like a true survivor, feeling like a little kid" https://photos.app.goo.gl/4ZJiU4efqCdhWueJ6
dockam
in
Advanced Prostate Cancer
9 months ago
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Unexpected Dive in PSA
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
805guy
in
Prostate Cancer Under 60
9 months ago
The CRP:Albumin ratio & CRPC Survival
New paper from Portugal below [1]. Here is another study showing the consequences of subclinical inflammation. The inflammation markers used were C-reactive protein [CRP] & albumin. {The useful Modified Glasgow Prognostic Score uses the same markers, but in a cruder way.} It is always better
New paper from Portugal below [1]. Here is another study showing the consequences of subclinical inflammation. The inflammation markers used were C-reactive protein [CRP] & albumin. {The useful Modified Glasgow Prognostic Score uses the same markers, but in a cruder way.} It is always better
pca2004
in
Fight Prostate Cancer
1 year ago
If I heard this 5 years ago, I could have saved my life
https://youtu.be/poTcAm_rknw?si=9O_0hI3jjP0Mkz5c The headline is: If you have a psa over 1,(under 50y/o) or 1.5 (over 50y/o) demand routine psa tests to watch, despite the “standard clinical normal range” of 0-3.9. Something is wrong and it’s not ok to go home and think everything is ok. I had 3
https://youtu.be/poTcAm_rknw?si=9O_0hI3jjP0Mkz5c The headline is: If you have a psa over 1,(under 50y/o) or 1.5 (over 50y/o) demand routine psa tests to watch, despite the “standard clinical normal range” of 0-3.9. Something is wrong and it’s not ok to go home and think everything is ok. I had 3
No_stone_unturned
in
Fight Prostate Cancer
9 months ago
HELP! Firmagon reaction?
Hi - yesterday I had my 3rd monthly (80mg) injection of Firmagon. For all my previous injections, including the 2 initial loading doses, I did not have any major side effects, just some minimal soreness at the injection site which resolved in less than 2 days. Yesterday's injection was a little bit
Hi - yesterday I had my 3rd monthly (80mg) injection of Firmagon. For all my previous injections, including the 2 initial loading doses, I did not have any major side effects, just some minimal soreness at the injection site which resolved in less than 2 days. Yesterday's injection was a little bit
LongevityAT
in
Advanced Prostate Cancer
1 year ago
Next Steps?
Good morning my fellow warriors. I have reached another cross roads in my treatment. I was set up to have HDR and SbRT as salvage treatment, but a PSMA scan showed disease progression to more lymph nodes which caused my Radiation Onc. to cancel the HDR. My regular ONC is now recommending Chemo after
Good morning my fellow warriors. I have reached another cross roads in my treatment. I was set up to have HDR and SbRT as salvage treatment, but a PSMA scan showed disease progression to more lymph nodes which caused my Radiation Onc. to cancel the HDR. My regular ONC is now recommending Chemo after
wat380bjw
in
Advanced Prostate Cancer
1 year ago
Use of CDB 10 mg pills
I am currently on 12 mg prednisone and 20 mg methotrexate a week for PsA and maybe PMR. I have heard that taking CDB can help with relaxing, sleeping and general feeling down due to the way this illness makes you feel. Is this safe?
I am currently on 12 mg prednisone and 20 mg methotrexate a week for PsA and maybe PMR. I have heard that taking CDB can help with relaxing, sleeping and general feeling down due to the way this illness makes you feel. Is this safe?
Seal49
in
PMRGCAuk
10 months ago
Retzius sparing techniques during RALP
Dear All,Since I live on the other side of the pond then we have a very different health service structure but irrespective of that fact I am very interested in the views of the forum on the cancer treatment which is available to me and how others may have found it. My story: father and brother both
Dear All,Since I live on the other side of the pond then we have a very different health service structure but irrespective of that fact I am very interested in the views of the forum on the cancer treatment which is available to me and how others may have found it. My story: father and brother both
Wishyouwerehere
in
Prostate Cancer Network
10 months ago
BP with abiraterone + prednisone, eplerenone, dexamethasone
I have been on Lupron and abiraterone with (initially) prednisone for 4.5 years, which has maintained my PSA at <0.1 since 111 at diagnosis. I have all the usual side effects. One that doesn't bother me day-to-day, but definitely concerns me, is hypertension. Before PCa, I had moderately high BP, which
I have been on Lupron and abiraterone with (initially) prednisone for 4.5 years, which has maintained my PSA at <0.1 since 111 at diagnosis. I have all the usual side effects. One that doesn't bother me day-to-day, but definitely concerns me, is hypertension. Before PCa, I had moderately high BP, which
Gearhead
in
Advanced Prostate Cancer
11 months ago
CART trial, just FYI
The use of prostate stem cell antigen–targeted CAR T-cell therapy was well tolerated and produced evidence of anticancer effects in patients with metastatic castration-resistant prostate cancer. https://www.onclive.com/view/psca-targeted-car-t-cell-therapy-demonstrates-safety-anticancer-activity-in-mcrpc
The use of prostate stem cell antigen–targeted CAR T-cell therapy was well tolerated and produced evidence of anticancer effects in patients with metastatic castration-resistant prostate cancer. https://www.onclive.com/view/psca-targeted-car-t-cell-therapy-demonstrates-safety-anticancer-activity-in-mcrpc
Bkraus1
in
Advanced Prostate Cancer
1 year ago
Need help please
Last year I was on MTX 10mg and folic acid 5mg six days a weekend apart from hair loss was ok with it. Then I had a skin cancer on my neck and subsequently had it removed the same week three days after last MTX dose. Unfortunately my wound became infected within 48 hours and stitches dropped out and
Last year I was on MTX 10mg and folic acid 5mg six days a weekend apart from hair loss was ok with it. Then I had a skin cancer on my neck and subsequently had it removed the same week three days after last MTX dose. Unfortunately my wound became infected within 48 hours and stitches dropped out and
Hustler
in
NRAS
10 months ago
ADT before Surgery?
I have a prostatectomy which is probably 6-8 weeks in my future. My outlook is that metastasis in imminent. (T3bM0n0 and no evidence of cancer outside the gland as of May 25 PSMA PET scan, but I am told I am intermediate/unfavorable and my PSA went from 10 to 12 in only a month.) Today is August 18.
I have a prostatectomy which is probably 6-8 weeks in my future. My outlook is that metastasis in imminent. (T3bM0n0 and no evidence of cancer outside the gland as of May 25 PSMA PET scan, but I am told I am intermediate/unfavorable and my PSA went from 10 to 12 in only a month.) Today is August 18.
Lost_Sheep
in
Prostate Cancer Network
11 months ago
Blood in urine and clotting 3 weeks after starting Zytiga
After starting Zytiga I noticed a few drops of blood but only after a bowel motion. Yesterday after a big bowel motion I couldn’t pee and headed for hospital though on getting there I suppose my bladder was full enough it forced the clot out while going to the toilet. I’ve had blockage problems ana
After starting Zytiga I noticed a few drops of blood but only after a bowel motion. Yesterday after a big bowel motion I couldn’t pee and headed for hospital though on getting there I suppose my bladder was full enough it forced the clot out while going to the toilet. I’ve had blockage problems ana
Ausi
in
Advanced Prostate Cancer
11 months ago
Treatment Question
Hi to all, my dad (age 62) was diagnosed with Stage 4 prostate cancer with multiple bone metastases in October 2022. He is also BRCA2 positive. He received 6 doses of docetaxel which he completed on 1/30/2023 and has also been taking apalutamide daily and eligard injections every 3 months. His PSA on
Hi to all, my dad (age 62) was diagnosed with Stage 4 prostate cancer with multiple bone metastases in October 2022. He is also BRCA2 positive. He received 6 doses of docetaxel which he completed on 1/30/2023 and has also been taking apalutamide daily and eligard injections every 3 months. His PSA on
Juju0713
in
Advanced Prostate Cancer
1 year ago
8/4/2023 Update
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
alperk
in
Advanced Prostate Cancer
1 year ago
Newly detectable PSA after prostatectomy: RT + ADT planned; add Erleada?
Diagnosed 12/21, PSA 7, negative PSMA PET. Radical prostatectomy with extended lymph node dissection in Mar 2022. Gleason 4+5, +cribriform, +intraductal, + bilat SVI, +ECE. Margins negative (barely) and 1/34 lymph nodes positive with very small focus of cancer. PSA was undetectable until Jun 2023, then
Diagnosed 12/21, PSA 7, negative PSMA PET. Radical prostatectomy with extended lymph node dissection in Mar 2022. Gleason 4+5, +cribriform, +intraductal, + bilat SVI, +ECE. Margins negative (barely) and 1/34 lymph nodes positive with very small focus of cancer. PSA was undetectable until Jun 2023, then
Brokedown_Palace
in
Advanced Prostate Cancer
11 months ago
Recurrence?
I had my PSA at <0.006 for several years in the same clinic but now its <0.025, is it a recurrence? Please advice.
I had my PSA at <0.006 for several years in the same clinic but now its <0.025, is it a recurrence? Please advice.
carlo1993
in
Advanced Prostate Cancer
10 months ago
Bring PSA from 6.7 to 3.1 in 4 weeks by pure water fast (3wks) and vegan diet (1 wk).
Note from moderator: NO ONE SHOULD ATTEMPT THE SUGGESTIONS IN THIS POST WITHOUT FIRST CONSULTING WITH YOUR UROLOGIST AND/or ONCOLOGIST. READ ALL OF THE COMMENTS BELOW THE POST. THE WISDOM AND CONCERN OF OUR COMMUNITY IS THE ONLY REASON THIS POST REMAINS PUBLISHED, I have prostate cancer, and I
Note from moderator: NO ONE SHOULD ATTEMPT THE SUGGESTIONS IN THIS POST WITHOUT FIRST CONSULTING WITH YOUR UROLOGIST AND/or ONCOLOGIST. READ ALL OF THE COMMENTS BELOW THE POST. THE WISDOM AND CONCERN OF OUR COMMUNITY IS THE ONLY REASON THIS POST REMAINS PUBLISHED, I have prostate cancer, and I
DADICIDAD
in
Advanced Prostate Cancer
11 months ago
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