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Just been told I have two years to live.
Just been told I have two years to live. Male, age 73, Eligard injections, Abiraterone and Predisnone for four and a half years, some radiotherapy. PSA levels initially 69, brought down to 7 by Abiraterone. Suddenly stopped working. Went on Radium 233 trial. Never again, and it didn't work. Since then
Just been told I have two years to live. Male, age 73, Eligard injections, Abiraterone and Predisnone for four and a half years, some radiotherapy. PSA levels initially 69, brought down to 7 by Abiraterone. Suddenly stopped working. Went on Radium 233 trial. Never again, and it didn't work. Since then
ChristopherM123
in
Advanced Prostate Cancer
11 months ago
Ten Months After All Treatments Ended
My Oncologist stopped my Eligard injections in October of 2022. My August 2023 bloodwork shows that my testosterone has risen from 2.0 to 10.0 in that time. My PSA was <0.1 ten months ago and is now 0.1 (Canadian units). I know that this cancer is a long game, but given my diagnosis in 2020, I am happy
My Oncologist stopped my Eligard injections in October of 2022. My August 2023 bloodwork shows that my testosterone has risen from 2.0 to 10.0 in that time. My PSA was <0.1 ten months ago and is now 0.1 (Canadian units). I know that this cancer is a long game, but given my diagnosis in 2020, I am happy
TottenhamMan
in
Advanced Prostate Cancer
11 months ago
lucrin injections v firmagon
Hi Anyone experienced having Lucrin injections .I have been self injected firmagon since march 2022 going from originally PSA of 389 now hovering around 0.08 for the past 5 months with little or no side affects.The professors intern suggested maybe trying Lucrin injections every 3 months.A little
Hi Anyone experienced having Lucrin injections .I have been self injected firmagon since march 2022 going from originally PSA of 389 now hovering around 0.08 for the past 5 months with little or no side affects.The professors intern suggested maybe trying Lucrin injections every 3 months.A little
Brianne07
in
Advanced Prostate Cancer
11 months ago
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Clinical Trial Considerations??
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
CubFan
in
Prostate Cancer Network
9 months ago
ARX517: mCRPC treatment, if you want to know about it live via a webcast
22 october...if weather forecast says it will rain, if you are done painting the fence, if you think the Browns are will lose anyway, if you really have nothing better to do: https://lifescievents.com/event/ambrx/ results from arx517 will be presented, it looks promising, it had basically a 100% success
22 october...if weather forecast says it will rain, if you are done painting the fence, if you think the Browns are will lose anyway, if you really have nothing better to do: https://lifescievents.com/event/ambrx/ results from arx517 will be presented, it looks promising, it had basically a 100% success
Maxone73
in
Advanced Prostate Cancer
9 months ago
Veterans Administration and testosterone test .
In my previous post I wrote after 17 months of Stage 4 my T was at 64 from all being <7. I found that out thru Univ. of Chicago recent labs . I have both V.A. and U of C MOs . I had a talk with my U of C MO yesterday and he was happy to retest T next week for my piece of mind. In the17 months of being
In my previous post I wrote after 17 months of Stage 4 my T was at 64 from all being <7. I found that out thru Univ. of Chicago recent labs . I have both V.A. and U of C MOs . I had a talk with my U of C MO yesterday and he was happy to retest T next week for my piece of mind. In the17 months of being
reconjj
in
Advanced Prostate Cancer
1 year ago
Albumin
New paper below [1]. About 18 years ago, a man who headed a PCa group in CA told me to forget PCa-related markers - the best indicator that a man wouldn't be around in 6 months was albumin. My albumin had been 3.9 at diagnosis. I worked to reduce sub-clinical inflammation via polyphenols (inhibitors
New paper below [1]. About 18 years ago, a man who headed a PCa group in CA told me to forget PCa-related markers - the best indicator that a man wouldn't be around in 6 months was albumin. My albumin had been 3.9 at diagnosis. I worked to reduce sub-clinical inflammation via polyphenols (inhibitors
pca2004
in
Fight Prostate Cancer
1 year ago
Experiances with Kaiser SF?
Hi All, I completed my radiation therapy 15 months ago at Kaiser SF with Dr. Mohan. Without Flomax, I have terrible pain when I urinate - urinary strictures I believe. My libido is shot and so are my erections...None of my doctors have addressed these issues except to say something akin to ****happens
Hi All, I completed my radiation therapy 15 months ago at Kaiser SF with Dr. Mohan. Without Flomax, I have terrible pain when I urinate - urinary strictures I believe. My libido is shot and so are my erections...None of my doctors have addressed these issues except to say something akin to ****happens
trregan
in
Prostate Cancer Network
9 months ago
Testosterone Vs. Testosterone Replacement Therapy
Need Feedback please RE: Natural Testosterone & TRT
Just spoke to my MO (a very well known Oncologist -here in LA) about my Testosterone.
Have been off Orgovyx now for 4 & half Months.
Latest Blood labs are Testosterone 79.
Oncologist says T probably will come back
Need Feedback please RE: Natural Testosterone & TRT
Just spoke to my MO (a very well known Oncologist -here in LA) about my Testosterone.
Have been off Orgovyx now for 4 & half Months.
Latest Blood labs are Testosterone 79.
Oncologist says T probably will come back
JWS13
in
Advanced Prostate Cancer
9 months ago
QOL - Keep Going
My PSA was ND and my MRI for glioma was OK - so after another Chemo - I took the family to Italy for us to enjoy the espresso at a sidewalk cafe along with gelato. see https://1drv.ms/f/s!Aj3YK_3HR4eZgznhrPKZL62aFeCH?e=nXtJbY I hope the pictures work - I can't seem to get them in chrono order so
My PSA was ND and my MRI for glioma was OK - so after another Chemo - I took the family to Italy for us to enjoy the espresso at a sidewalk cafe along with gelato. see https://1drv.ms/f/s!Aj3YK_3HR4eZgznhrPKZL62aFeCH?e=nXtJbY I hope the pictures work - I can't seem to get them in chrono order so
PabloK
in
Advanced Prostate Cancer
9 months ago
Geranylgeraniol (GG), Tocotrienols, Ubiquinol (CoQ10), & statins and their relationship w/ lipids, heart health and APC patient treatments.
It's always difficult to present complex topics on this website, which involve anything more than one drug, treatment, or supplement and there relationship/affect on APC outcomes. It's obvious that it's easier to show a double-blind study of only one treatment/drug etc. and not mix several treatments
It's always difficult to present complex topics on this website, which involve anything more than one drug, treatment, or supplement and there relationship/affect on APC outcomes. It's obvious that it's easier to show a double-blind study of only one treatment/drug etc. and not mix several treatments
GeorgeGlass
in
Advanced Prostate Cancer
1 year ago
taxotere and PSA
adt stopped 9/22, daralutamide mono therapy until 7/23. Three rounds of docetaxel until 7/17/23. PSA rose from 4.9 to 5.1. PSMA scan showed decline in bone Mets. Tried a bit of fasting. Just switched to cabitaxel due to seeming failure of docetaxel based on PSA rise. Wondering if PSA increase was the
adt stopped 9/22, daralutamide mono therapy until 7/23. Three rounds of docetaxel until 7/17/23. PSA rose from 4.9 to 5.1. PSMA scan showed decline in bone Mets. Tried a bit of fasting. Just switched to cabitaxel due to seeming failure of docetaxel based on PSA rise. Wondering if PSA increase was the
CWT53
in
Advanced Prostate Cancer
1 year ago
jaw discomfort
stage 4 PC bone Mets in pelvis diagnosed at 68yrs old ,now 75 yrs old . Started with firmagon every 28 days and exgiva. After about 2yrs got dead jaw syndrome and stopped exgiva. All healed up In about 9 months and never went back on exgiva . All is well 1.5 psa <3 testosterone. Psma cat scans all good
stage 4 PC bone Mets in pelvis diagnosed at 68yrs old ,now 75 yrs old . Started with firmagon every 28 days and exgiva. After about 2yrs got dead jaw syndrome and stopped exgiva. All healed up In about 9 months and never went back on exgiva . All is well 1.5 psa <3 testosterone. Psma cat scans all good
Dannyboy48
in
Advanced Prostate Cancer
11 months ago
Sulforaphane to lower PSA?
Hi all, curious here if anyone onboard has had any positive PSA lowing results, (in the 40-60 mg doses), especially it is interesting in the Ultra-ranges, using ‘Sulforaphane’, a suppliment that uses the certain positive extracts of raw broccoli, there apparently are some good indicators of it being
Hi all, curious here if anyone onboard has had any positive PSA lowing results, (in the 40-60 mg doses), especially it is interesting in the Ultra-ranges, using ‘Sulforaphane’, a suppliment that uses the certain positive extracts of raw broccoli, there apparently are some good indicators of it being
Cetma
in
Prostate Cancer Network
9 months ago
Unexpected Dive in PSA
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
805guy
in
Prostate Cancer And Gay Men
9 months ago
Into the 4th year, updates and next step
• Aug 2019 Initial diagnosed 4 mets in pelvis area, lymph node involvement. Gleason score 5+5, somatic BRCA 2. Microsatellite stable, TMB 10. Started abiraterone and Zoladex. • Feb 2020 PSA Nadir 0.01 minimum side effects from abi+ADT • April 2020: RT 25 sessions 79 Gy, covering prostate, lymph
• Aug 2019 Initial diagnosed 4 mets in pelvis area, lymph node involvement. Gleason score 5+5, somatic BRCA 2. Microsatellite stable, TMB 10. Started abiraterone and Zoladex. • Feb 2020 PSA Nadir 0.01 minimum side effects from abi+ADT • April 2020: RT 25 sessions 79 Gy, covering prostate, lymph
Juliane314
in
Advanced Prostate Cancer
11 months ago
Sadly Pluvicto did not work ...
After receiving the results from my PSMA PET scan at the Mayo Clinic in Jacksonville, I am sad to say my disease is progressing. I had four Pluvicto infusions with no SE's what so ever.. I felt that they mirrored my Docetaxel treatments again other than my hair falling out I had no other SE's. which
After receiving the results from my PSMA PET scan at the Mayo Clinic in Jacksonville, I am sad to say my disease is progressing. I had four Pluvicto infusions with no SE's what so ever.. I felt that they mirrored my Docetaxel treatments again other than my hair falling out I had no other SE's. which
TheWizardofWesley
in
Advanced Prostate Cancer
1 year ago
Enlarged Prostate
I have an enlarged prostate and I am trying to determine if I should be taking medicines or have a procedure such as TURP. I would like to get some experiences of people that have taken Flomax or other medicines to reduce the prostate size. I have an allergy to sulfa, what makes me a little nervous about
I have an enlarged prostate and I am trying to determine if I should be taking medicines or have a procedure such as TURP. I would like to get some experiences of people that have taken Flomax or other medicines to reduce the prostate size. I have an allergy to sulfa, what makes me a little nervous about
Cachito
in
Atrial Fibrillation Support
6 months ago
Intermittent ADT
Hi all,I am wondering what are your views on intermittent ADT? PSMA Pet scan has revealed one met in my ribs...it was treated with SBRT. I was given a 3 month Lupron shot which reduces my PSA to 0.24 ug/l. I'm considering going on IADT....6 months of ADT followed by 6 months break and repeat. Anyone
Hi all,I am wondering what are your views on intermittent ADT? PSMA Pet scan has revealed one met in my ribs...it was treated with SBRT. I was given a 3 month Lupron shot which reduces my PSA to 0.24 ug/l. I'm considering going on IADT....6 months of ADT followed by 6 months break and repeat. Anyone
John347
in
Advanced Prostate Cancer
11 months ago
De-escalation
So I am following the de-escalation trials as discussed here: https://dailynews.ascopubs.org/do/clinical-conundrum-de-escalating-therapy-patients-metastatic-hormone-sensitive-prostate. I am working with my own MO on de-escalation so no ADT injection for me at the end of September and so am on the
So I am following the de-escalation trials as discussed here: https://dailynews.ascopubs.org/do/clinical-conundrum-de-escalating-therapy-patients-metastatic-hormone-sensitive-prostate. I am working with my own MO on de-escalation so no ADT injection for me at the end of September and so am on the
Brysonal
in
Fight Prostate Cancer
9 months ago
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