The headline is: If you have a psa over 1,(under 50y/o) or 1.5 (over 50y/o) demand routine psa tests to watch, despite the “standard clinical normal range” of 0-3.9. Something is wrong and it’s not ok to go home and think everything is ok.
I had 3 psa test done (as response to blood in my urine ) under the age of 45. All 3 test came back high but in “normal” range. My dr. sent me home saying your fine, call me if it happens again.
Well I was clearly not fine and at age 48 was de-novo (stage 4,Gleason 9) with incurable disease.
Knowledge is power. Spread it.
Written by
No_stone_unturned
To view profiles and participate in discussions please or .
Hi Stones. Good highlight. Might be worth posting if you have not already done so in the popular and moderated Advanced Prostate Cancer Forum. Also it's not exactly the same circumstances but you might find my post from 8 months ago to be interesting:healthunlocked.com/advanced...
Exactly right... It was why I made sure my brother's course of treatment was correct and went smoothly... I had already been screwed in my experience.... I got infected after having my TRUS and being given an antibiotic that was no longer recommended to be given for the procedure due to E coli resistance.... To this day, I wonder how much cancer spreading occurred.
My brother got the MRI guided transperineal biopsy... no infection.... had a great surgeon for his RP.... so far so good.... 1 year out ...fingers crossed...
The point is ....how many people do not get the testing or follow up needed by the medical community... My urologist told me afterwards, "We'll just put you on lupron and everything will be fine..." Left him in the dust and have been at Cleveland Clinic ever since...
This was almost exactly my experience as well. PSA 0.8 in 2018, 3.7 at my 2020 physical and 3.5 at my August 2021, no alarm bells because "normal range". Went metastatic with a PSA of 63 in August 2022.
In hindsight this was completely idiotic as a 400%+ jump in any marker in medicine should raise eyebrows, even within the normal range.
As counterproductive as it is to relitigate the past, I’ll most certainly do my part to make sure no one I can reach falls victim to this miscalibration in the healthcare system. I expect As more and more men get Pc earlier and more aggressive, they are going to be forced to re-examine their guidelines. God willing.
Men should be taught to plot their PSA from a young age. Its easy and cheap. By not advising men to do this, the industry produces many good customers.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Today I need to cheer up a bit so...here is where we are heading with survival for de novo metastatic prostate cancer!
Active surveillance or treatment?
Worried! 
Cancer diagnosed and awaiting surgery