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Surgery finally scheduled but feeling so lost!
Hey everyone, I hope you’re all doing as best you can, I had a phone call with my endo specialist a couple of days ago and I’m being scheduled for another laparoscopy as my endometriosis has returned from my 2017 surgery but it’s affecting my bladder and bowels a lot worse now. I’m grateful I’ve been
Hey everyone, I hope you’re all doing as best you can, I had a phone call with my endo specialist a couple of days ago and I’m being scheduled for another laparoscopy as my endometriosis has returned from my 2017 surgery but it’s affecting my bladder and bowels a lot worse now. I’m grateful I’ve been
Leenie0811
in
Endometriosis UK
3 years ago
Experience with the Mirena Coil for Endo
Hello, After not getting on with side effects of Prostap, my gynae is proposing to trial the Mirena Coil. I'm due to have it fitted at the end of this month. I've heard mixed reviews - from horror stories (re side effects) to success stories! I just wondered if anyone who's had the coil could share
Hello, After not getting on with side effects of Prostap, my gynae is proposing to trial the Mirena Coil. I'm due to have it fitted at the end of this month. I've heard mixed reviews - from horror stories (re side effects) to success stories! I just wondered if anyone who's had the coil could share
Aussie79
in
Endometriosis UK
3 years ago
Periods after prostap
So I was on prostap for 6 months and after a while my periods finally returned in December but my period is due back again this month but no period just some pains anybody know when periods roughly return to normal
So I was on prostap for 6 months and after a while my periods finally returned in December but my period is due back again this month but no period just some pains anybody know when periods roughly return to normal
Shannon199625
in
Endometriosis UK
3 years ago
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Another FET
Just wondering if anybody else is getting ready for their get on 19th? 😬 Our first fresh round was a success. Lost a miracle natural pregnancy at 10weeks. Unsuccessful FET in July and now the last round 🤞 I can't take any more mentally sonic that doesn't work then that's it. Started with prostap
Just wondering if anybody else is getting ready for their get on 19th? 😬 Our first fresh round was a success. Lost a miracle natural pregnancy at 10weeks. Unsuccessful FET in July and now the last round 🤞 I can't take any more mentally sonic that doesn't work then that's it. Started with prostap
Buisquits
in
Fertility Network UK
3 years ago
Feeling rubbish
Hi everyone. Wondered if anyone could help me, I saw the endo constant in October who has a high suspicion I have deep infiltrating dendo, I had an mri and im seeing the consultant next week about the results. I have also been started on prostap injections which have actually stopped my periods.. The
Hi everyone. Wondered if anyone could help me, I saw the endo constant in October who has a high suspicion I have deep infiltrating dendo, I had an mri and im seeing the consultant next week about the results. I have also been started on prostap injections which have actually stopped my periods.. The
MancGirl85
in
Endometriosis UK
3 years ago
Unusual results
I have PC (originally Gleason 4+3 and PSA of 10) which has metasticised to a number of bones - pelvis, ribs, skull. I am taking Aberaterone and Prednisol, plus Prostap. My recent PSA scores have been >0.1 (undetectable), but I have just had my third PSMA PET scan which shows that the activity in some
I have PC (originally Gleason 4+3 and PSA of 10) which has metasticised to a number of bones - pelvis, ribs, skull. I am taking Aberaterone and Prednisol, plus Prostap. My recent PSA scores have been >0.1 (undetectable), but I have just had my third PSMA PET scan which shows that the activity in some
Stephen399b
in
Prostate Cancer Network
3 years ago
Prostap v Lupron
I have just had my first 3 monthly Prostap injection following 2 x 1 monthly injections. I believe Prostap is similar to Zolodex. I notice that many of you mention Lupron. Can anyone explain the differences and am I on the best option for ADT? One further question is that I am yet to have my hormone
I have just had my first 3 monthly Prostap injection following 2 x 1 monthly injections. I believe Prostap is similar to Zolodex. I notice that many of you mention Lupron. Can anyone explain the differences and am I on the best option for ADT? One further question is that I am yet to have my hormone
Runner1957
in
Advanced Prostate Cancer
3 years ago
Period after stopping prostap
Just looking for some advice/experiences. I stopped my prostap injections in October, I could not handle the bone pain. My pmdd and most of my endo symptoms went away whilst on the injection. My period came back on Monday, lighter than usual but more brown and thick (tmi, sorry!). I have had less cramping
Just looking for some advice/experiences. I stopped my prostap injections in October, I could not handle the bone pain. My pmdd and most of my endo symptoms went away whilst on the injection. My period came back on Monday, lighter than usual but more brown and thick (tmi, sorry!). I have had less cramping
Fortyoneandcounting
in
Endometriosis UK
3 years ago
Still waiting
Hi not wrote for a while, I'm still waiting on a hysterectomy for my endometriosis, my pain is so bad today I can't hardly move I'm due my prostap injection tomorrow is this normal it's sooooo bad I could cry xx
Hi not wrote for a while, I'm still waiting on a hysterectomy for my endometriosis, my pain is so bad today I can't hardly move I'm due my prostap injection tomorrow is this normal it's sooooo bad I could cry xx
Bubblepoppy
in
Endometriosis UK
3 years ago
Prostap experiences
Hi Had Prostap injection almost 2 weeks ago now. I’ve been diagnosed with andeno but they think I’ve also got endo. Obviously massive wait times to get anything done so they’re trying this to help the pain. Pain hasn’t gone at all and I’ve been bleeding (a lot for me). I know they said it can take 4
Hi Had Prostap injection almost 2 weeks ago now. I’ve been diagnosed with andeno but they think I’ve also got endo. Obviously massive wait times to get anything done so they’re trying this to help the pain. Pain hasn’t gone at all and I’ve been bleeding (a lot for me). I know they said it can take 4
mrsswinnydm
in
Endometriosis UK
3 years ago
So Confused!
Hi everyone. I’m just after some advice before my next follow up next week. Had a lap in July, was told endo was found and excision done, shown pictures. Biopsy came back negative for endometriosis? But he excised something?? At my last appointment I was out on Prostap and I’m now almost 3months in
Hi everyone. I’m just after some advice before my next follow up next week. Had a lap in July, was told endo was found and excision done, shown pictures. Biopsy came back negative for endometriosis? But he excised something?? At my last appointment I was out on Prostap and I’m now almost 3months in
Blue1921
in
Endometriosis UK
3 years ago
Pain with every move
Hi please help I was on the menopause injections for 2 years, I switched between zoladex and prostap, and although I bled through out the 2 years and experienced bad menopausal side effects it helped me manage my endo pains. In March of this year I reached 2 years of using these injections, and I'm
Hi please help I was on the menopause injections for 2 years, I switched between zoladex and prostap, and although I bled through out the 2 years and experienced bad menopausal side effects it helped me manage my endo pains. In March of this year I reached 2 years of using these injections, and I'm
Love_koffy
in
Endometriosis UK
3 years ago
Prostap side effects
Hi everyone! I had my first prostap injection 4 weeks ago. Im just after some advice RE side effects please! I haven’t really had any of the typical ones, hot flushes etc. My mood has been so incredibly low though and I feel really anxious and paranoid all the time. Did anyone else experience this?
Hi everyone! I had my first prostap injection 4 weeks ago. Im just after some advice RE side effects please! I haven’t really had any of the typical ones, hot flushes etc. My mood has been so incredibly low though and I feel really anxious and paranoid all the time. Did anyone else experience this?
Blue1921
in
Endometriosis UK
3 years ago
Moving to mini pill from Prostap injections
Hello everyone! Hope you are all well. Just wondering if anyone could share some experience from using the progesterone only mini pill. I have just had my 7th prostap injection, i am feeling well, no pain at all, and my consultant decided to swap my treatment to mini pill to see how it will go. Just
Hello everyone! Hope you are all well. Just wondering if anyone could share some experience from using the progesterone only mini pill. I have just had my 7th prostap injection, i am feeling well, no pain at all, and my consultant decided to swap my treatment to mini pill to see how it will go. Just
Pisi
in
Endometriosis UK
3 years ago
Norethisterone
Hi ladies Anyone taken norethisterone to induce period? Did you take it for 5 or 10 days. Very stressed currently. Due to start my next IVF cycle but my period is later after being on Prostap. The clinic is taking the last treatment on the 1 Dec as it needs to have a deep clean in theatre. That gives
Hi ladies Anyone taken norethisterone to induce period? Did you take it for 5 or 10 days. Very stressed currently. Due to start my next IVF cycle but my period is later after being on Prostap. The clinic is taking the last treatment on the 1 Dec as it needs to have a deep clean in theatre. That gives
Hallj10
in
Fertility, Miscarriage & IVF Support
3 years ago
norethisterone
Hi ladies. Anyone taken norethisterone to induce period? Did you take it for 5 or 10 days. Very stressed currently. Due to start my next IVF cycle but my period is later after being on Prostap. The clinic is taking the last treatment on the 1 Dec as it needs to have a deep clean in theatre. That
Hi ladies. Anyone taken norethisterone to induce period? Did you take it for 5 or 10 days. Very stressed currently. Due to start my next IVF cycle but my period is later after being on Prostap. The clinic is taking the last treatment on the 1 Dec as it needs to have a deep clean in theatre. That
Hallj10
in
Fertility Network UK
3 years ago
Help pain relief
Please can anyone give me any advice on some pain relief I can ask my doctor for nothing is helping it over a week of pain and swelling now I can go to work or fit in any clothes ! I have my gynaecology appointment on the 1st as the prostap injection isn’t working anymore !
Please can anyone give me any advice on some pain relief I can ask my doctor for nothing is helping it over a week of pain and swelling now I can go to work or fit in any clothes ! I have my gynaecology appointment on the 1st as the prostap injection isn’t working anymore !
Claire_1130
in
Endometriosis UK
3 years ago
Why do I bleed after walking?
Hi, I’m just hoping someone can help me! I’m 19 years old and have been suffering with Endometriosis for 10 years now and am currently using a wheelchair (3rd time in 7 years) as I struggle to walk due to the pain etc. For the past 5 months I’ve been having Prostap injections to help, whilst waiting
Hi, I’m just hoping someone can help me! I’m 19 years old and have been suffering with Endometriosis for 10 years now and am currently using a wheelchair (3rd time in 7 years) as I struggle to walk due to the pain etc. For the past 5 months I’ve been having Prostap injections to help, whilst waiting
Football3018
in
Endometriosis UK
3 years ago
Denosumab side effects
I was diagnosed with PC in December 2020 (Gleeson 4+3). After PSMA PET scan found it has metasticised to pelvis, ribs, skull. I am taking Aberaterone and prednisol, plus 3 monthly Prostap injection. I also have a form of blood cancer so take a chemo capsule daily. The medication seems to be working as
I was diagnosed with PC in December 2020 (Gleeson 4+3). After PSMA PET scan found it has metasticised to pelvis, ribs, skull. I am taking Aberaterone and prednisol, plus 3 monthly Prostap injection. I also have a form of blood cancer so take a chemo capsule daily. The medication seems to be working as
Stephen399b
in
Prostate Cancer Network
3 years ago
Endermitriosis and Adymiosis
Hey everyone, it has been over 2 years since I have suffered with Endermitriosis and Adymiosis when diagnosed they said my body has been like this and has deteriated since the age of 11. I'm 24 years old and still no progress of my health I have been put on pills left right and centre and now they are
Hey everyone, it has been over 2 years since I have suffered with Endermitriosis and Adymiosis when diagnosed they said my body has been like this and has deteriated since the age of 11. I'm 24 years old and still no progress of my health I have been put on pills left right and centre and now they are
Jam-Jam21
in
Endometriosis UK
3 years ago
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