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Avastin
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Cancer Drugs Fund in Wales - or Lack of it
I was denied a drug
Avastin
by my local health board - Cardiff and the Vale NHS Trust. My oncologist then suggested a clinical trial at the Royal Marsden that would pay for it - a total care cost of about £34,000 all provided by the clinical trial and therefore a saving to the Wales NHS.
I was denied a drug
Avastin
by my local health board - Cardiff and the Vale NHS Trust. My oncologist then suggested a clinical trial at the Royal Marsden that would pay for it - a total care cost of about £34,000 all provided by the clinical trial and therefore a saving to the Wales NHS.
Whippit
in
Tenovus
10 years ago
The joys of Avastin and Gemzar
Went for check up to oncologist yesterday to find that after one round of chemo and
Avastin
my CA125 is down by over 25pc. I am very happy with that. Today went for 8th day Gemzar to be sent home. My white cell count was too low.
Went for check up to oncologist yesterday to find that after one round of chemo and
Avastin
my CA125 is down by over 25pc. I am very happy with that. Today went for 8th day Gemzar to be sent home. My white cell count was too low.
Hidden
in
OvaCare
10 years ago
Avastin in the News
An article on a campaign to keep
Avastin
in use for the treatment of Ovarian Cancer. http://www.dailymail.co.uk/health/article-2477015/Doctors-rationing-ban-lifted-life-prolonging-cancer-drug.html
An article on a campaign to keep
Avastin
in use for the treatment of Ovarian Cancer. http://www.dailymail.co.uk/health/article-2477015/Doctors-rationing-ban-lifted-life-prolonging-cancer-drug.html
Whippit
in
My Ovacome
11 years ago
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Avastin stopped working now
Hi , everyone, After 10 months its back had I was told yesterday after scan last week..Had a bad night even though I sort of had a feeling it was coming back.So in a few weeks start carboplatin and caelyx .Also may have to have uriney stents put in [anyone else had these].Feeling very down thought I
Hi , everyone, After 10 months its back had I was told yesterday after scan last week..Had a bad night even though I sort of had a feeling it was coming back.So in a few weeks start carboplatin and caelyx .Also may have to have uriney stents put in [anyone else had these].Feeling very down thought I
caz52
in
My Ovacome
11 years ago
Decision made - delaying 2nd treatment :)
My
Avastin
has been approved and will remain that way until I begin the regime of carbo/gem. I am pleased that I was able to take control and after speaking to the specialist nurse, she confirmed that she felt my decision was the right one.
My
Avastin
has been approved and will remain that way until I begin the regime of carbo/gem. I am pleased that I was able to take control and after speaking to the specialist nurse, she confirmed that she felt my decision was the right one.
Izzystep
in
My Ovacome
11 years ago
Avastin - Exciting news from European Society of Gynae Oncology meeting - Liverpool
As I'm sure you know, there is evidence that
Avastin
prolongs remission when given both in first line treatment and in relaps, however todays data looks at the overall survival.
As I'm sure you know, there is evidence that
Avastin
prolongs remission when given both in first line treatment and in relaps, however todays data looks at the overall survival.
LouiseOvacome
My Ovacome Team
in
My Ovacome
11 years ago
Press Article about Access to Bevacizumab (Avastin) in Wales
The Western Mail ran an article today on access to Bevacizumab (
Avastin
) in Wales and my move to England to obtain the drug. For anyone who's interested here's the online version: http://www.walesonline.co.uk/news/wales-news/welsh-cancer-patient-rents-london-6264574
The Western Mail ran an article today on access to Bevacizumab (
Avastin
) in Wales and my move to England to obtain the drug. For anyone who's interested here's the online version: http://www.walesonline.co.uk/news/wales-news/welsh-cancer-patient-rents-london-6264574
Whippit
in
My Ovacome
11 years ago
Rally for Beth Margetson
Jean's health board, Abertawe Bro Morgannwg, funds
Avastin
, my former health board, Cardiff and the Vale, has never funded
Avastin
. Chris's (Darragh) health board, Aneurin Bevan, has sometimes funded
Avastin
.
Jean's health board, Abertawe Bro Morgannwg, funds
Avastin
, my former health board, Cardiff and the Vale, has never funded
Avastin
. Chris's (Darragh) health board, Aneurin Bevan, has sometimes funded
Avastin
.
Whippit
in
My Ovacome
11 years ago
Finding it hard going
Side effects from
Avastin
are difficult and headaches and joint pain are draining me. Everyone i meet is comments on how wonderful it is that my initial treatment went so well but i just want to scream that its Stage IV and it will be coming back. Work is heavy on my mind.
Side effects from
Avastin
are difficult and headaches and joint pain are draining me. Everyone i meet is comments on how wonderful it is that my initial treatment went so well but i just want to scream that its Stage IV and it will be coming back. Work is heavy on my mind.
Missfitz
in
OvaCare
11 years ago
I am due to have a pic line fitted soon?
My veins are being difficult and keep hiding from the chemo nurses (little devils) and it has been suggested I have a pic line fitted for the remaining two chemos and for the months of
Avastin
. Any tips would be helpful. I am a little worried about the fact I already have a PUlmonary embolism.
My veins are being difficult and keep hiding from the chemo nurses (little devils) and it has been suggested I have a pic line fitted for the remaining two chemos and for the months of
Avastin
. Any tips would be helpful. I am a little worried about the fact I already have a PUlmonary embolism.
Jillwendy
in
My Ovacome
11 years ago
Cancer Drugs Fund extended
It means access to drugs like
Avastin
will still be available to those who meet the criteria. http://news.uk.msn.com/uk/cancer-drugs-fund-extended-1
It means access to drugs like
Avastin
will still be available to those who meet the criteria. http://news.uk.msn.com/uk/cancer-drugs-fund-extended-1
HerThing
in
My Ovacome
11 years ago
CT scan shows significant increase in lymph nodes plus rising CA125. Planned 2nd round chemo end October.
Treatment will be carboplatin, gemcitabine plus the wonder drug
Avastin
. I know some ladies are or have received this concoction in the past so any advice welcome. I am just going to enjoy the next 5 weeks before the battle begins again. Very hard on my family at the moment. Stress levels high.
Treatment will be carboplatin, gemcitabine plus the wonder drug
Avastin
. I know some ladies are or have received this concoction in the past so any advice welcome. I am just going to enjoy the next 5 weeks before the battle begins again. Very hard on my family at the moment. Stress levels high.
Izzystep
in
My Ovacome
11 years ago
Ca125 and avast in
I had my follow up appointment after surgery with my oncologist and I am back on chemo this Friday (oh joy) along with chemo I am being started on
avastin
and was wondering if any of you had any tips on what this might be like. While on carbo taxel i was pretty lucky with minimum side effects.
I had my follow up appointment after surgery with my oncologist and I am back on chemo this Friday (oh joy) along with chemo I am being started on
avastin
and was wondering if any of you had any tips on what this might be like. While on carbo taxel i was pretty lucky with minimum side effects.
Jillwendy
in
My Ovacome
11 years ago
Wet AMD cured by just two injections
Had course of three intravitreal
avastin
injections If you see any distortions to straight line edges such as door frames or any straight line get your optician to give you an appointment to the hospital eye emergency department. Do not delay. Age 76 Nottingham
Had course of three intravitreal
avastin
injections If you see any distortions to straight line edges such as door frames or any straight line get your optician to give you an appointment to the hospital eye emergency department. Do not delay. Age 76 Nottingham
isherwoodjon
in
Macular Society
11 years ago
hello ladies.
Not sure how much longer I will be on
Avastin
but if it is working will not complain. Hope you are all doing good as we head into Autumn, which is a time I love.
Not sure how much longer I will be on
Avastin
but if it is working will not complain. Hope you are all doing good as we head into Autumn, which is a time I love.
daisies
in
OvaCare
11 years ago
I was on a clinical trial for ovarian cancer and had weekly chemo, carbo & paxi. Last chemo was 1st February 2013. Cancer has returned!
Oncologist has ordered another CT with a view to starting 2nd line treatment with
Avastin
. I do not want another round chemotherapy but feel I have no option. Any advice??
Oncologist has ordered another CT with a view to starting 2nd line treatment with
Avastin
. I do not want another round chemotherapy but feel I have no option. Any advice??
Izzystep
in
My Ovacome
11 years ago
ON THE 9TH / SEPT I HAVE MY CT SCAN.
AFTER SURGERY MY DOCTOR SET ME ON THE FOURTH TREATMENT WITH THE SAME DRUG USED (
AVASTIN
, CRBOPLATINE AND GEMZAR ) YESTERDAY I HAVE FINISHED THIS -SIXTH -CYCLES AND ON THE 9TH OF SEPT I WILL HAVE MY CT SCAN HOPE I WILL BE IN GOOD STATUE.. MEANWHILE , I SHARE MY LOVE TO ALL OF YOU LADIES.
AFTER SURGERY MY DOCTOR SET ME ON THE FOURTH TREATMENT WITH THE SAME DRUG USED (
AVASTIN
, CRBOPLATINE AND GEMZAR ) YESTERDAY I HAVE FINISHED THIS -SIXTH -CYCLES AND ON THE 9TH OF SEPT I WILL HAVE MY CT SCAN HOPE I WILL BE IN GOOD STATUE.. MEANWHILE , I SHARE MY LOVE TO ALL OF YOU LADIES.
TAROUZA
in
My Ovacome
11 years ago
Avastin & headache side effect
Hi. Just to update you. Only on the new painkillers since Friday evening, and while I had a headache on Sat morning and had to take an additional pain killer during that day - since then NO PAIN ... yippee. Had forgotten what it was like to have no pain. So pleased with the immediate benefit. Also, as
Hi. Just to update you. Only on the new painkillers since Friday evening, and while I had a headache on Sat morning and had to take an additional pain killer during that day - since then NO PAIN ... yippee. Had forgotten what it was like to have no pain. So pleased with the immediate benefit. Also, as
daisies
in
OvaCare
11 years ago
CT Scan news & side effects of Avastin
Will check in with my GP next week and talk to him also.The
Avastin
must be working, but the side effects are rough. Going on new painkillers - so fingers crossed that these will do the job and zap those headaches. Hope you are all well and coping.
Will check in with my GP next week and talk to him also.The
Avastin
must be working, but the side effects are rough. Going on new painkillers - so fingers crossed that these will do the job and zap those headaches. Hope you are all well and coping.
daisies
in
OvaCare
11 years ago
Next step of the journey
Previously have tried
Avastin
, Carboplatin, Gemcitabine & Pemetrexed. Unfortunately non of which have been successful. All hopes now on Abraxane. My oncologist certainly isn't giving up and seems to be throwing everything at me, although I'm led to believe this is our last hope.
Previously have tried
Avastin
, Carboplatin, Gemcitabine & Pemetrexed. Unfortunately non of which have been successful. All hopes now on Abraxane. My oncologist certainly isn't giving up and seems to be throwing everything at me, although I'm led to believe this is our last hope.
Hidden
in
The Roy Castle Lung Cancer Foundation
11 years ago
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