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It has been a really long time that I've shared anything on this site. I read others posts, & sometimes I'll even comment on them. There are a few of you whom I message back & forth with. I found out where my PBC came from. Not the cause of it but where I got it through the family. Since 2012, when
It has been a really long time that I've shared anything on this site. I read others posts, & sometimes I'll even comment on them. There are a few of you whom I message back & forth with. I found out where my PBC came from. Not the cause of it but where I got it through the family. Since 2012, when
Shulsey
in
PBC Foundation
6 years ago
Sickle Cell News
Telemedicine Mobihealth (UK) is set to revolutionize healthcare delivery for SCD and other health conditions in Africa ‘But you don’t look sick!’ Looking OK is worlds apart from Feeling Ok – why people with SCD need better understanding and acceptance, by Lady Anne Welsh, former Chairperson, Sickle Cell
Telemedicine Mobihealth (UK) is set to revolutionize healthcare delivery for SCD and other health conditions in Africa ‘But you don’t look sick!’ Looking OK is worlds apart from Feeling Ok – why people with SCD need better understanding and acceptance, by Lady Anne Welsh, former Chairperson, Sickle Cell
sicklecellnews
in
Sickle Cell Society
5 years ago
Completed lung transplant assessment ...
Hello All, My mother and I have just completed a lung transplant assessment with Papworth. It was definitely jam packed with tests and they wanted to paint a realistic sobering picture of life post transplant and possible complications... The end result is that my mother needs to have an angiogram before
Hello All, My mother and I have just completed a lung transplant assessment with Papworth. It was definitely jam packed with tests and they wanted to paint a realistic sobering picture of life post transplant and possible complications... The end result is that my mother needs to have an angiogram before
Queenbean
in
Lung Conditions Community Forum
6 years ago
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Protect Cancer Medications for People on Medicare
Cancer ABCs has Launch a National Petition to Protect Cancer, Antidepressant, Psych, Seizure, Organ Transplant Rejection, and HIV-AIDS Drugs The Trump administration is proposing new cost reduction changes to your Medicare coverage which will limit the drugs available to you. These changes will negatively
Cancer ABCs has Launch a National Petition to Protect Cancer, Antidepressant, Psych, Seizure, Organ Transplant Rejection, and HIV-AIDS Drugs The Trump administration is proposing new cost reduction changes to your Medicare coverage which will limit the drugs available to you. These changes will negatively
JoelT
in
CLL Support
6 years ago
Germany is the best
In Liver transplantation
In Liver transplantation
Alialt
in
British Liver Trust
6 years ago
Help Protect Medicare Drug Access
Cancer ABCs has Launch a National Petition to Protect Cancer, Antidepressant, Psych, Seizure, Organ Transplant Rejection, and HIV-AIDS Drugs The Trump administration is proposing new cost reduction changes to your Medicare coverage which will limit the drugs available to you. These changes will negatively
Cancer ABCs has Launch a National Petition to Protect Cancer, Antidepressant, Psych, Seizure, Organ Transplant Rejection, and HIV-AIDS Drugs The Trump administration is proposing new cost reduction changes to your Medicare coverage which will limit the drugs available to you. These changes will negatively
JoelT
in
Understanding Clinical Trials
6 years ago
Help Protect Medicare Drug Access
Cancer ABCs has Launch a National Petition to Protect Cancer, Antidepressant, Psych, Seizure, Organ Transplant Rejection, and HIV-AIDS Drugs The Trump administration is proposing new cost reduction changes to your Medicare coverage which will limit the drugs available to you. These changes will negatively
Cancer ABCs has Launch a National Petition to Protect Cancer, Antidepressant, Psych, Seizure, Organ Transplant Rejection, and HIV-AIDS Drugs The Trump administration is proposing new cost reduction changes to your Medicare coverage which will limit the drugs available to you. These changes will negatively
JoelT
in
Myeloma America Support
6 years ago
Help Protect Medicare Drug Access
Cancer ABCs has Launch a National Petition to Protect Cancer, Antidepressant, Psych, Seizure, Organ Transplant Rejection, and HIV-AIDS Drugs The Trump administration is proposing new cost reduction changes to your Medicare coverage which will limit the drugs available to you. These changes will negatively
Cancer ABCs has Launch a National Petition to Protect Cancer, Antidepressant, Psych, Seizure, Organ Transplant Rejection, and HIV-AIDS Drugs The Trump administration is proposing new cost reduction changes to your Medicare coverage which will limit the drugs available to you. These changes will negatively
JoelT
in
Fight Prostate Cancer
6 years ago
Help Protect Medicare Drug Access
Cancer ABCs has Launch a National Petition to Protect Cancer, Antidepressant, Psych, Seizure, Organ Transplant Rejection, and HIV-AIDS Drugs The Trump administration is proposing new cost reduction changes to your Medicare coverage which will limit the drugs available to you. These changes will negatively
Cancer ABCs has Launch a National Petition to Protect Cancer, Antidepressant, Psych, Seizure, Organ Transplant Rejection, and HIV-AIDS Drugs The Trump administration is proposing new cost reduction changes to your Medicare coverage which will limit the drugs available to you. These changes will negatively
JoelT
Administrator
in
Cancer Thrivers
6 years ago
Help Protect Medicare Drug Access
Cancer ABCs has Launch a National Petition to Protect Cancer, Antidepressant, Psych, Seizure, Organ Transplant Rejection, and HIV-AIDS Drugs The Trump administration is proposing new cost reduction changes to your Medicare coverage which will limit the drugs available to you. These changes will negatively
Cancer ABCs has Launch a National Petition to Protect Cancer, Antidepressant, Psych, Seizure, Organ Transplant Rejection, and HIV-AIDS Drugs The Trump administration is proposing new cost reduction changes to your Medicare coverage which will limit the drugs available to you. These changes will negatively
JoelT
in
American Cancer Survivors
6 years ago
Waiting for a kidney transplant in Washington, DC
Hello! My name is Elinga Atembina. I'm from the Democratic Republic of the Congo, but leaving permanently in the US for more than 30 years. I've been diagnosed with kidney disease and currently on dialysis for 3 years. Also, I've been on the kidney transplant waiting list for 3 years at the GWU TRANSPLANT
Hello! My name is Elinga Atembina. I'm from the Democratic Republic of the Congo, but leaving permanently in the US for more than 30 years. I've been diagnosed with kidney disease and currently on dialysis for 3 years. Also, I've been on the kidney transplant waiting list for 3 years at the GWU TRANSPLANT
Kidney4elinga
in
Kidney Transplant
6 years ago
Just needed some time to process things
Was away to see my consultant last week.. He told me that copd has taken 63% of my lung capacity only 37% is ok ..😢 just discovered I have Bronchiectasis to .. 😡 A lung transplant maybe on the cards but at a later date as I’m still to young and fit for it just now..😩 He sent me for a blood test
Was away to see my consultant last week.. He told me that copd has taken 63% of my lung capacity only 37% is ok ..😢 just discovered I have Bronchiectasis to .. 😡 A lung transplant maybe on the cards but at a later date as I’m still to young and fit for it just now..😩 He sent me for a blood test
Candyred
in
Lung Conditions Community Forum
6 years ago
New in fight with ALD
Hello everyone, My name is Ramona from Romania,my son was diagnosed recently with X-ALD ,he has 8 years old,we didnt knew anything about this disease till now,we still dont know much so thats why i came here to ask,read,share informations with you.He is not now eligible for a stem cell transplant or
Hello everyone, My name is Ramona from Romania,my son was diagnosed recently with X-ALD ,he has 8 years old,we didnt knew anything about this disease till now,we still dont know much so thats why i came here to ask,read,share informations with you.He is not now eligible for a stem cell transplant or
MonaStoica
in
Leukodystrophy Support
6 years ago
1 year Post liver transplant seeking communication with other 1 year post transplant recipients.
I am 1 year post liver transplant. Feeling great and very strong too. Only issues is from the immune suppressant therapy. I am having anxiety and high blood pressure. I focus on good and am doing great. I have edema and swelling in legs and feet and the swelling can cause pain when standing or long
I am 1 year post liver transplant. Feeling great and very strong too. Only issues is from the immune suppressant therapy. I am having anxiety and high blood pressure. I focus on good and am doing great. I have edema and swelling in legs and feet and the swelling can cause pain when standing or long
meme7
in
Power2Save Transplant Community
6 years ago
I have SVT and i have anxiety/ptsd
So i use to come on here alot. 2016 was my "dark year" on here. 2016 febuary my heart went into an arrythmia and at the time i wasnt even sure what it was. I didnt want to leave my bed or do anything at all. I was so scared to even walk around and do anything. Took over a year for them to catch
So i use to come on here alot. 2016 was my "dark year" on here. 2016 febuary my heart went into an arrythmia and at the time i wasnt even sure what it was. I didnt want to leave my bed or do anything at all. I was so scared to even walk around and do anything. Took over a year for them to catch
Armyguy
in
Anxiety Support
6 years ago
Immune Suppressant Side Effects
Hello, I am 15 months post liver transplant and have managed to get down to 125mg of Ciclosporin a day. I have been plagued with fatigue, a little depression and anxiety, occasionally painful joints but mostly a brain fog type feeling and ringing in my ears. This week I have been put on 500mg of Mycophenolate
Hello, I am 15 months post liver transplant and have managed to get down to 125mg of Ciclosporin a day. I have been plagued with fatigue, a little depression and anxiety, occasionally painful joints but mostly a brain fog type feeling and ringing in my ears. This week I have been put on 500mg of Mycophenolate
AndyEssex
in
British Liver Trust
6 years ago
Pets for people with kidney disease
I recently went in for a kidney transplant evaluation and the social worker told me that I am only allowed to have 3 cats (and I am no longer allowed to clean their litter box) and that I need to get rid of my birds now or I can't get the transplant but that even if I didn't need a transplant she said
I recently went in for a kidney transplant evaluation and the social worker told me that I am only allowed to have 3 cats (and I am no longer allowed to clean their litter box) and that I need to get rid of my birds now or I can't get the transplant but that even if I didn't need a transplant she said
Mindy73
in
Kidney Disease
6 years ago
Curious
Well first off, I hope everyone had a great thanksgiving yesterday! But I have some questions for those of you who had a kidney transplant.. when you got the call to head to the hospital, how did you feel? What kind of stuff did you pack? How long where you in the hospital for? How did you feel afterwards
Well first off, I hope everyone had a great thanksgiving yesterday! But I have some questions for those of you who had a kidney transplant.. when you got the call to head to the hospital, how did you feel? What kind of stuff did you pack? How long where you in the hospital for? How did you feel afterwards
Hidden
in
Kidney Disease
6 years ago
Transplant Insurance Coverage
Does anyone have a suggestion about who to consult regarding what will be paid by my Humana Advantage Medicare policy for a kidney transplant? I asked my Transplant Center Coordinator and she (curtly) replied that I had to research that information. BTW: For those just recently put on dialysis or anticipating
Does anyone have a suggestion about who to consult regarding what will be paid by my Humana Advantage Medicare policy for a kidney transplant? I asked my Transplant Center Coordinator and she (curtly) replied that I had to research that information. BTW: For those just recently put on dialysis or anticipating
TaffyTwoshoes27
in
Kidney Disease
6 years ago
Hello
Hi I'm Ruder. Had a heart transplant in 2013 after 15 years of familial dilated cardiomyopathy. I am doing great and just completed a 3 week holiday in the US.
Hi I'm Ruder. Had a heart transplant in 2013 after 15 years of familial dilated cardiomyopathy. I am doing great and just completed a 3 week holiday in the US.
Ruder1
in
British Heart Foundation
6 years ago
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