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Autologous stem cell transplant
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Living in the UK, Transplant approval been initiated to QEH Birmingham.
Im 37 struggling to come to terms with a Liver Transplant advised April 19’ I have AIH/PSC/UC Absolutely scared after going through surgery for clearance of stones in intrahepatic bile ducts + removal of gall bladder and liver biopsy recently and trying to recover. I have had repeated cholangitis and
Im 37 struggling to come to terms with a Liver Transplant advised April 19’ I have AIH/PSC/UC Absolutely scared after going through surgery for clearance of stones in intrahepatic bile ducts + removal of gall bladder and liver biopsy recently and trying to recover. I have had repeated cholangitis and
RPancho
in
British Liver Trust
5 years ago
I have TP53
I was told I will not react to chemo (anymore) and based on my mutations is either CarT or Stem Cell Transplant. I am deadly afraid of the latter and can't afford CarT. Are there any Clinical trials for CarT at this point? Presently I am on Ibrutinib (have been for 10 months and doing relatively well
I was told I will not react to chemo (anymore) and based on my mutations is either CarT or Stem Cell Transplant. I am deadly afraid of the latter and can't afford CarT. Are there any Clinical trials for CarT at this point? Presently I am on Ibrutinib (have been for 10 months and doing relatively well
Doremefasol
in
CLL Support
5 years ago
Spider angioma
Hi all.excuse the state of my hand. Stupidly As a gas man I always put these spider veins down to the physical job I’ve got of replacing the highway gas mains in all weathers.five years ago I had my first Bleed in my oesophagus but developed this spider Naevi five years before.so in hindsight I should
Hi all.excuse the state of my hand. Stupidly As a gas man I always put these spider veins down to the physical job I’ve got of replacing the highway gas mains in all weathers.five years ago I had my first Bleed in my oesophagus but developed this spider Naevi five years before.so in hindsight I should
Popel
in
British Liver Trust
5 years ago
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Introduction
Hello I got my very Kidney Transplant in Jan. 2018. Just wanted to in and say hi... looking for support and suggestion.
Hello I got my very Kidney Transplant in Jan. 2018. Just wanted to in and say hi... looking for support and suggestion.
Sammie82
in
Kidney Transplant
5 years ago
Hi 👋
Hello my name is Kristel and my daughter Leah has been on pd since she was 5 days old !!! She has also had open heart surgery She does pd Dialysis At home everyday We are still waiting for transplant We have a page for on face book called Leah storms journey to a kidney transplant
Hello my name is Kristel and my daughter Leah has been on pd since she was 5 days old !!! She has also had open heart surgery She does pd Dialysis At home everyday We are still waiting for transplant We have a page for on face book called Leah storms journey to a kidney transplant
Kidney4leahstorm
in
Parents of Children with Kidney Disease
5 years ago
Unexplained Weight loss
Hi all I have Primary APS which has led to bilaterally renal vein thrombosis and renal failure. I was fortunate to have a kidney transplant from my husband in 2000 which continues to function well. I also have psoriatic arthritis. My key issue is fairly severe ongoing weightloss - I've had full GI investigations
Hi all I have Primary APS which has led to bilaterally renal vein thrombosis and renal failure. I was fortunate to have a kidney transplant from my husband in 2000 which continues to function well. I also have psoriatic arthritis. My key issue is fairly severe ongoing weightloss - I've had full GI investigations
Womanfriday
in
Hughes Syndrome APS Forum
5 years ago
Cmv
My kidney transplant was 1 and 1/2years ago ALL has been great. However this past week they discovered that I had been tested positive fot the CMV virus and immediately put on the Valcyte Drug. Can anyone help me with your experience with this?
My kidney transplant was 1 and 1/2years ago ALL has been great. However this past week they discovered that I had been tested positive fot the CMV virus and immediately put on the Valcyte Drug. Can anyone help me with your experience with this?
kidneytransplan
in
Kidney Transplant
5 years ago
10 months post Stem Cell Transplant
It's been a long time since I last posted on here! 10 months ago I was lucky enough to receive donor cells from a 10/10 match. It's been a rollercoaster ride but looking back, I've been very lucky as it has been nowhere near as bad as I had read it could be. Yes there have been some challenges, felt
It's been a long time since I last posted on here! 10 months ago I was lucky enough to receive donor cells from a 10/10 match. It's been a rollercoaster ride but looking back, I've been very lucky as it has been nowhere near as bad as I had read it could be. Yes there have been some challenges, felt
KAS8
in
CLL Support
5 years ago
Update on my PKD
Hello all, been a while since I’ve been on, well had my appointment with my Gen and my GFR is at 18 with high creatinine level, just got my 3 rd blood pressure pill and baking Soda pills, tests are gonna start now for a kidney transplant, hoping for a match from my youngest daughter for a live donor,
Hello all, been a while since I’ve been on, well had my appointment with my Gen and my GFR is at 18 with high creatinine level, just got my 3 rd blood pressure pill and baking Soda pills, tests are gonna start now for a kidney transplant, hoping for a match from my youngest daughter for a live donor,
bonneville
in
PKD Charity for Autosomal Dominant PKD
5 years ago
Fatigue after liver transplant
I was diagnosed with alcohol related liver disease (cirrhosis) in Sep 2016. I went through the normal process of tests at my local hospital and then got referred to Kings for assessment. I was accepted in Nov 2017 and had a transplant in Dec 2018. My main symptoms were fatigue, lack of strength, asities
I was diagnosed with alcohol related liver disease (cirrhosis) in Sep 2016. I went through the normal process of tests at my local hospital and then got referred to Kings for assessment. I was accepted in Nov 2017 and had a transplant in Dec 2018. My main symptoms were fatigue, lack of strength, asities
Bgc58
in
British Liver Trust
5 years ago
Since I'm up anyway
With this stupid sciatica keeping me up all hours, I thought I'd mention something that might be of interest and even more to fellow COPD sufferers, and especially for those who might be seeking lung transplants. I have a neighbor who had a transplant not long ago. Maybe two years? I'm not really sure
With this stupid sciatica keeping me up all hours, I thought I'd mention something that might be of interest and even more to fellow COPD sufferers, and especially for those who might be seeking lung transplants. I have a neighbor who had a transplant not long ago. Maybe two years? I'm not really sure
challny
in
Lung Conditions Community Forum
5 years ago
QE Birmingham, Liver transplant Support Group – Volunteers Required.
Those of you who received a liver transplant over the past 12 or so years, may well have met with some of the Liver transplant Support Group volunteers either on ward 726 or even at the transplant assessment clinic. Some of you may recall Mr Alan Hyde who has been working on the ward as a Volunteer for
Those of you who received a liver transplant over the past 12 or so years, may well have met with some of the Liver transplant Support Group volunteers either on ward 726 or even at the transplant assessment clinic. Some of you may recall Mr Alan Hyde who has been working on the ward as a Volunteer for
Hidden
in
British Liver Trust
5 years ago
QE Birmingham Liver transplant news.
I was at a meeting last night with the Liver transplant Support Group at the QE. One of the items of discussion, involved the new liver transplant perfusion machine which was licensed for use back in January of this year. It has since been realised that although this machine is a wonderful piece or kit
I was at a meeting last night with the Liver transplant Support Group at the QE. One of the items of discussion, involved the new liver transplant perfusion machine which was licensed for use back in January of this year. It has since been realised that although this machine is a wonderful piece or kit
Hidden
in
British Liver Trust
5 years ago
Im stuck and I need help
hello I am Yenedith I am 16 and I am new here . I am stuck in a spiral .I want help Im just scared to be told you don't need it or you're lying or you just want attention.I am drowning with conflicts hitting me left and right in the face one after another I JUST NEED A BREAK.My stomach is slowly getting
hello I am Yenedith I am 16 and I am new here . I am stuck in a spiral .I want help Im just scared to be told you don't need it or you're lying or you just want attention.I am drowning with conflicts hitting me left and right in the face one after another I JUST NEED A BREAK.My stomach is slowly getting
yenesan1
in
Anxiety and Depression Support
5 years ago
Hi, 5 weeks post surgery
I was wondering what exercise recommendations any of you might have as I'm having trouble figuring out what to do to build up my strength and endurance to the point it was before :) -a 17 year old deceased donor kidney transplant recipient
I was wondering what exercise recommendations any of you might have as I'm having trouble figuring out what to do to build up my strength and endurance to the point it was before :) -a 17 year old deceased donor kidney transplant recipient
itsmallsx
in
Kidney Transplant
5 years ago
ED after Leukaemia (CML)
New to this. Anyone part of this group had Leukaemia and bone marrow transplant and suffered ED?
New to this. Anyone part of this group had Leukaemia and bone marrow transplant and suffered ED?
Cryptogamia
in
Erectile Dysfunction Support
5 years ago
Hello
Hello, I wanted to introduce myself, i am new to this group and it is my first post. I am awaiting a lung transplant and just got on the waiting list a couple of weeks ago. Life has been a bit tough at the moment, i am on oxygen 24/7 and even doing the smallest tasks seem so difficult for me… I am on
Hello, I wanted to introduce myself, i am new to this group and it is my first post. I am awaiting a lung transplant and just got on the waiting list a couple of weeks ago. Life has been a bit tough at the moment, i am on oxygen 24/7 and even doing the smallest tasks seem so difficult for me… I am on
Hema13
in
Lung Conditions Community Forum
5 years ago
Cryptococcus
I am a post liver transplant recipient. I got Cryptococcus in February. When oral meds didn't work, I did two months of amphotericin infusions and had VATS surgery to remove three of the eight nodules that were in my lung. I am wondering if anyone else has had this and what is your story with it? Thanks
I am a post liver transplant recipient. I got Cryptococcus in February. When oral meds didn't work, I did two months of amphotericin infusions and had VATS surgery to remove three of the eight nodules that were in my lung. I am wondering if anyone else has had this and what is your story with it? Thanks
Hidden
in
Fungal Infection Trust
5 years ago
A Wee Scottish lass
I only know her through being a Member of a Transplant Forum, Chantel, has just had her Double Lung Transplant. Join me in wishing her a Speedy and Good recovery. Get Well very Soon Chantel, Love & Healing Words from our Forum. Carolina XXX
I only know her through being a Member of a Transplant Forum, Chantel, has just had her Double Lung Transplant. Join me in wishing her a Speedy and Good recovery. Get Well very Soon Chantel, Love & Healing Words from our Forum. Carolina XXX
Hacienda
in
Lung Conditions Community Forum
5 years ago
Kidney transplant..
I am new here...and i am a kidney transplant recipent..[:
I am new here...and i am a kidney transplant recipent..[:
Vivekkiddnyy
in
Kidney Transplant
5 years ago
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