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Webinar - Coronavirus and acute leukaemia
Leukaemia Care will be joined by Dr Amit Patel, consultant in cellular therapies and stem cell transplantation, haematology and transplant unit from the Christie NHS foundation trust. Dr Patel will discuss the potential changes to your care as a result of the coronavirus outbreak as well as providing
Leukaemia Care will be joined by Dr Amit Patel, consultant in cellular therapies and stem cell transplantation, haematology and transplant unit from the Christie NHS foundation trust. Dr Patel will discuss the potential changes to your care as a result of the coronavirus outbreak as well as providing
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
4 years ago
End-Stage doesn’t mean it’s the end.
They sometimes refer to Stage lV as End-stage emphysema but don’t think it means you will die soon. I’ve been stage IV (FEV1 <30%) for 10 years now, following pulmonologist’s strict orders...stop smoking, exercise, and take meds. Yes, I go on waiting list in September for a lung transplant (single
They sometimes refer to Stage lV as End-stage emphysema but don’t think it means you will die soon. I’ve been stage IV (FEV1 <30%) for 10 years now, following pulmonologist’s strict orders...stop smoking, exercise, and take meds. Yes, I go on waiting list in September for a lung transplant (single
Sharp5Flat13
in
Lung Conditions Community Forum
4 years ago
KIDNEY DONOR ASSISTANCE
LOOKING FOR KIDNEY DONOR FOR LOISE, 62 YEARS . SAVE HER LIFE Loise suffers from a kidney failure and she was put on dialysis, which she attends a local hospital thrice a week. Through this, she has positive changes and much improvement. it has been our family desire to have our mother Loise undergo
LOOKING FOR KIDNEY DONOR FOR LOISE, 62 YEARS . SAVE HER LIFE Loise suffers from a kidney failure and she was put on dialysis, which she attends a local hospital thrice a week. Through this, she has positive changes and much improvement. it has been our family desire to have our mother Loise undergo
Phinehas
in
Kidney Transplant
4 years ago
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Transplant meetings
I'm on the waiting list for double lung transplant.. they do meetings nearly every month where you get to meet others on list as well. Does anyone go or have been to them . X
I'm on the waiting list for double lung transplant.. they do meetings nearly every month where you get to meet others on list as well. Does anyone go or have been to them . X
skylas
in
Lung Conditions Community Forum
4 years ago
10 weeks. Since Liver Transplant, had problems sleeping ( insomnia),anyone else experienced this?
10 weeks since liver transplant and have sleeping problems ( insomnia),anyone else experienced this?
10 weeks since liver transplant and have sleeping problems ( insomnia),anyone else experienced this?
Alyson84
in
British Liver Trust
4 years ago
Heart issues after kidney transplant
Hello all, Had a transplant 13 years ago and slowly kidney function has decreased. Current creat is 3.4 and bun in 60's. Have started to feel some compression around heart this weak and wondering if others out there have also as well and if you have any suggestions on care for heart now that I am in
Hello all, Had a transplant 13 years ago and slowly kidney function has decreased. Current creat is 3.4 and bun in 60's. Have started to feel some compression around heart this weak and wondering if others out there have also as well and if you have any suggestions on care for heart now that I am in
Chris0909
in
Early CKD Support
4 years ago
Frustrated by Kidney Transplant Evaluation
My kidneys holding steady at stage 4 and renal function a little better. Getting AV fistula in my left upper arm next Monday. Started eval in November. US showed a suspicious mass in right kidney so just had an MRI last week and is a suspicious solid mass that could be renal cell carcinoma. Waiting
My kidneys holding steady at stage 4 and renal function a little better. Getting AV fistula in my left upper arm next Monday. Started eval in November. US showed a suspicious mass in right kidney so just had an MRI last week and is a suspicious solid mass that could be renal cell carcinoma. Waiting
SadMad
in
Kidney Disease
4 years ago
Play ideas for a 5 year old 6 months after transplant
It has been 6 months now since my son had his kidney transplant. My son really wants to go and have some fun , does anyone have any ideas on where I can take him ? I am scared of all the germs but I can’t keep him from wanting to play he is only 5 years old . Any ideas anyone?
It has been 6 months now since my son had his kidney transplant. My son really wants to go and have some fun , does anyone have any ideas on where I can take him ? I am scared of all the germs but I can’t keep him from wanting to play he is only 5 years old . Any ideas anyone?
Quamel_Mom
in
Parents of Children with Kidney Disease
4 years ago
Stem Cell Transplant
My doctor says that after a 2nd remission, meaning after ibrutinib and venetoclax have failed that a stem cell transplant is the next option. I have been on IB for 14 months and it has been amazing but I am terrified about doing a stem cell transplant. Can someone share their experiences if you have
My doctor says that after a 2nd remission, meaning after ibrutinib and venetoclax have failed that a stem cell transplant is the next option. I have been on IB for 14 months and it has been amazing but I am terrified about doing a stem cell transplant. Can someone share their experiences if you have
steve_canada
in
CLL Support
4 years ago
New to lung cancer
Hello 2 greys sorry for your news.I am new to this site but have been on the copd for sometime. Now Discovered by accident I have a 4 cm tumour on my left lung.Am waiting on a biopsy to confirm if cancerous.My lung doc thinks it is.I am 80 years young and have lung problems for years so didn't think
Hello 2 greys sorry for your news.I am new to this site but have been on the copd for sometime. Now Discovered by accident I have a 4 cm tumour on my left lung.Am waiting on a biopsy to confirm if cancerous.My lung doc thinks it is.I am 80 years young and have lung problems for years so didn't think
Ragrug
in
Lung Conditions Community Forum
4 years ago
“I had no immune system for months after my bone marrow transplant. Here’s how I avoided viral illness, and how you can, too.
“I had no immune system for months after my bone marrow transplant. Here’s how I avoided viral illness, and how you can, too. It’s easier than you think.” A.M. Carter Mar 22 · 12 min read https://medium.com/@amcarter/i-had-no-immune-system-for-months-after-my-bone-marrow-transplant-1b097f16040c
“I had no immune system for months after my bone marrow transplant. Here’s how I avoided viral illness, and how you can, too. It’s easier than you think.” A.M. Carter Mar 22 · 12 min read https://medium.com/@amcarter/i-had-no-immune-system-for-months-after-my-bone-marrow-transplant-1b097f16040c
hsouter
in
CLL Support
4 years ago
We have seen the Heptologist
Finally the day arrived and he was great. He told us the the Child’s Pugh score was 10 and I can’t remember the name for,the other score but he said to be considered for Liver Transplant the score is 49 and my husband’s score was 51. He is putting him on to Rifaximin and wants him to reduce the amount
Finally the day arrived and he was great. He told us the the Child’s Pugh score was 10 and I can’t remember the name for,the other score but he said to be considered for Liver Transplant the score is 49 and my husband’s score was 51. He is putting him on to Rifaximin and wants him to reduce the amount
Bs1524
in
British Liver Trust
4 years ago
Survey for liver transplant patients
Calling all those who have had a transplant or are on the waiting list If you have had a liver transplant, or are waiting for one, please could you take a few moments to answer some questions to help us understand the kinds of issues you've faced and possible solutions. The views you give will help
Calling all those who have had a transplant or are on the waiting list If you have had a liver transplant, or are waiting for one, please could you take a few moments to answer some questions to help us understand the kinds of issues you've faced and possible solutions. The views you give will help
Hidden
British Liver Trust
in
British Liver Trust
4 years ago
Please can someone explain rogue DIO2 gene & Myxedema Coma to me please?
My mother passed away from Myxedema Coma, my sister fell into a Myxedema Coma & thankfully saved as lived in France & they immediately recognised hypothyroidism even though TSH normal. The NHS ignore my history & my TSH normal although I have exact symptoms down to putting on 30kg of fluid. My body is
My mother passed away from Myxedema Coma, my sister fell into a Myxedema Coma & thankfully saved as lived in France & they immediately recognised hypothyroidism even though TSH normal. The NHS ignore my history & my TSH normal although I have exact symptoms down to putting on 30kg of fluid. My body is
Hidden
in
Thyroid UK
4 years ago
in need of hope!!! husband received new kidney 11 days ago
my husband has been in hospital since the 31st of January day that he had kidney transplant! After a spike in creatinine of 30 valued he had 3 iv steroid treatment, calcium treatment and his Hemoglibin was low in need of a blood transfusion that was done 2 days ago. After a second biopsy they placed
my husband has been in hospital since the 31st of January day that he had kidney transplant! After a spike in creatinine of 30 valued he had 3 iv steroid treatment, calcium treatment and his Hemoglibin was low in need of a blood transfusion that was done 2 days ago. After a second biopsy they placed
Mafy
in
Kidney Transplant Patient Support
4 years ago
FutureLearn Liver Courses and Mental Health
Some of you will know of the two online liver courses that were run by FutureLearn. These were "Liver Disease: Looking after Your Liver" and "Liver Transplant". I, like so many have done both these courses, scoring 91% and 98% which surprised me at the time. I was therefore disappointed to learn
Some of you will know of the two online liver courses that were run by FutureLearn. These were "Liver Disease: Looking after Your Liver" and "Liver Transplant". I, like so many have done both these courses, scoring 91% and 98% which surprised me at the time. I was therefore disappointed to learn
Hidden
in
British Liver Trust
4 years ago
Gastric problems since liver transplant
Allotment,j Had liver transplant 6yrs ago and have since suffered gastric problems Wind constipation bloating Any advice Allotment
Allotment,j Had liver transplant 6yrs ago and have since suffered gastric problems Wind constipation bloating Any advice Allotment
allotment
in
PBC Foundation
4 years ago
Liver Transplant
Hi all. Just a little update from me. 21.8 19 A very brave person lost there fight for live and gave hope to others. I am one of those . I cannot express how grateful me and my family are. Every day is a blessing for us Never give up hoping ..
Hi all. Just a little update from me. 21.8 19 A very brave person lost there fight for live and gave hope to others. I am one of those . I cannot express how grateful me and my family are. Every day is a blessing for us Never give up hoping ..
donnathompson
in
British Liver Trust
4 years ago
Confused /scared about Covid 19
Hi there I’m guessing that a lot of people are in the same boat about Covid19. My husband recently underwent a stem cell transplant for ALL and is now taking immunosuppressant medication. I currently work part time in the retail sector and I’m really confused and anxious about what to do for the best
Hi there I’m guessing that a lot of people are in the same boat about Covid19. My husband recently underwent a stem cell transplant for ALL and is now taking immunosuppressant medication. I currently work part time in the retail sector and I’m really confused and anxious about what to do for the best
Clarence45
in
Leukaemia CARE
4 years ago
Coronavirus, a Fashionable way to die? medical care in America is broken, among the things that make me mad.
Terminal illness is a fate that awaits us all. We know not the pathways of our personal journey only that we will take one of those paths in a time not of our choosing. I live in the land of the chronically ill. It is that time between health and end stage disease. The Foundation's niche is fatty liver
Terminal illness is a fate that awaits us all. We know not the pathways of our personal journey only that we will take one of those paths in a time not of our choosing. I live in the land of the chronically ill. It is that time between health and end stage disease. The Foundation's niche is fatty liver
nash2
Partner
in
Living with Fatty Liver and NASH
4 years ago
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