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Nanoparticle therapy shows promise at preventing fatal newborn lung disease
The disease is so rare and complex that its acronym is hard to pronounce. But for infants unlucky enough to be born with this lung disease, the outcome is usually fatal. The disease is called alveolar capillary dysplasia with misalignment of the pulmonary veins (ACDMPV). Research indicates the disease
The disease is so rare and complex that its acronym is hard to pronounce. But for infants unlucky enough to be born with this lung disease, the outcome is usually fatal. The disease is called alveolar capillary dysplasia with misalignment of the pulmonary veins (ACDMPV). Research indicates the disease
2greys
in
Lung Conditions Community Forum
3 years ago
More on Covid vaccines and the inmunocompromised.
Just saw this in the news and felt it was worth sharing. Lots of peopleScientists seek Covid protection boost for people with weakened immunity AFP, Jul 06, 2021, How effective are Covid vaccines if your immune system is compromised by HIV, cancer or a recent organ transplant? Faced with very little
Just saw this in the news and felt it was worth sharing. Lots of peopleScientists seek Covid protection boost for people with weakened immunity AFP, Jul 06, 2021, How effective are Covid vaccines if your immune system is compromised by HIV, cancer or a recent organ transplant? Faced with very little
Iupiter
in
CLL Support
3 years ago
Online support group with meetings for kids with kidney transplant?
Hi, My best friend's daughter had a kidney transplant about a year ago and sometimes she really struggles living with all the hard things that they still face. Does anyone attend (or be interested in creating) some kind of virtual meeting for parents with similar situations? She is a mom of two young
Hi, My best friend's daughter had a kidney transplant about a year ago and sometimes she really struggles living with all the hard things that they still face. Does anyone attend (or be interested in creating) some kind of virtual meeting for parents with similar situations? She is a mom of two young
jsalute
in
Parents of Children with Kidney Disease
3 years ago
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kiddny transplant patient
Hello guys , I had a kidney transplant for 8 months and now I have a lot of hair loss. if someone experienc with this issue how to stop hair fall ?
Hello guys , I had a kidney transplant for 8 months and now I have a lot of hair loss. if someone experienc with this issue how to stop hair fall ?
omid13
in
Kidney Transplant
3 years ago
Impending surgery concerns
Impending knee replacement and worried about impact anesthesia and post surgery pain killers could have on already level 3 liver disease. Has anyone undergone orthopedic surgery and how did it go? What I don’t want to happen is to get a new knee and then need liver transplant because of meds.
Impending knee replacement and worried about impact anesthesia and post surgery pain killers could have on already level 3 liver disease. Has anyone undergone orthopedic surgery and how did it go? What I don’t want to happen is to get a new knee and then need liver transplant because of meds.
Rosebud1027
in
Living with Fatty Liver and NASH
3 years ago
Online support group meetings for parents of children with kidney transplants?
Hi, My name is Jessica and my best friend has a 4 year old daughter with kidney disease and she just got a transplant a little over a year ago. My friend really struggles to cope with the pain of seeing all that her daughter goes through and the things she has to miss out on because of her health. Can
Hi, My name is Jessica and my best friend has a 4 year old daughter with kidney disease and she just got a transplant a little over a year ago. My friend really struggles to cope with the pain of seeing all that her daughter goes through and the things she has to miss out on because of her health. Can
jsalute
in
Kidney Transplant
3 years ago
Shingrix OK For Immunocompromised Adults
This article was posted today on CLLSLL groups.io and is reposted here with permission from Dr. Furman https://groups.io/g/CLLSLL/message/31608?reply=1 [i] Re: Shingrix OK For Immunocompromised Adults [/i] [i]From: Rick Furman Date: Fri, 30 Jul 2021 08:43:32 EDT[/i] [i]-[/i] [i]Shingles is the result
This article was posted today on CLLSLL groups.io and is reposted here with permission from Dr. Furman https://groups.io/g/CLLSLL/message/31608?reply=1 [i] Re: Shingrix OK For Immunocompromised Adults [/i] [i]From: Rick Furman Date: Fri, 30 Jul 2021 08:43:32 EDT[/i] [i]-[/i] [i]Shingles is the result
lankisterguy
Volunteer
in
CLL Support
3 years ago
Liver transplant
Hi everyone. I had a phone call early morning today for liver transplant, I’m going now but so worried and terrified.
Hi everyone. I had a phone call early morning today for liver transplant, I’m going now but so worried and terrified.
Rose2000
in
British Liver Trust
3 years ago
Liver Transplant assessment? any experience.. Fluid in pleural cavity ? Blood clot ?
Hello everyone, so my dad is in the middle of Liver Transplant assessment. So confusing. A social worker asked me if i was willing to stay with my dad to help recovery and I said yes, I will rent an apartment by the hospital and stay with him for the first month or so of recovery and then hire home
Hello everyone, so my dad is in the middle of Liver Transplant assessment. So confusing. A social worker asked me if i was willing to stay with my dad to help recovery and I said yes, I will rent an apartment by the hospital and stay with him for the first month or so of recovery and then hire home
alcoholicFATHERsad
in
British Liver Trust
3 years ago
Can a Kidney Transplant patient study abroad?
I received kidney transplant surgery on feb 22 ,2021. I want to go abroad and study MS.(US) in aug 2022 /jan 2023. Can we study abroad? If yes can anyone tell me safety tips? Thanks in advance
I received kidney transplant surgery on feb 22 ,2021. I want to go abroad and study MS.(US) in aug 2022 /jan 2023. Can we study abroad? If yes can anyone tell me safety tips? Thanks in advance
PatientWhizbang
in
Kidney Transplant
3 years ago
Driving me mad!
Hello, my name is Alec. I've been diagnosed with end stage cirrhosis and need a liver transplant. I'm struggling to sleep. I'm really restless and itch like mad. It's horrible and lack of sleep is making me ill. Awake for hours then suddenly hit with fatigue. My sleep pattern is all over place. I was
Hello, my name is Alec. I've been diagnosed with end stage cirrhosis and need a liver transplant. I'm struggling to sleep. I'm really restless and itch like mad. It's horrible and lack of sleep is making me ill. Awake for hours then suddenly hit with fatigue. My sleep pattern is all over place. I was
Nevergivup
in
British Liver Trust
3 years ago
Newbie
Hi everyone, just found this site through the NHS app. Had cancer twice, had chemo plus stem cell transplant. I've been left with knee problems due to Lymphoma and have to use a stroller and wheelchair. The treatment I've had has led to a deep depression and anxiety as I no longer have my independence
Hi everyone, just found this site through the NHS app. Had cancer twice, had chemo plus stem cell transplant. I've been left with knee problems due to Lymphoma and have to use a stroller and wheelchair. The treatment I've had has led to a deep depression and anxiety as I no longer have my independence
Akita1963
in
Anxiety and Depression Support
3 years ago
Kidney Transplant Waitlist
I met one patient at dialysis clinic couple years ago. I saw him did quick treatment just couple months then disappear. I asked tech where was he. Tech said that guy got the kidneys. He was judge in downtown. He had premium health ins. That was lied that you have to wait 7 to 10 years on waiting list
I met one patient at dialysis clinic couple years ago. I saw him did quick treatment just couple months then disappear. I asked tech where was he. Tech said that guy got the kidneys. He was judge in downtown. He had premium health ins. That was lied that you have to wait 7 to 10 years on waiting list
Jumbo1
in
Kidney Disease
3 years ago
Pleased to report the lump has left the building...👍👍
Following a month or so of anxiety over my neck lump and the implications re lung transplant etc.. i am delighted to report the offending item is no longer and as a few of you kind souls suggested it was probably a cyst . Anyway, starting the Nintedinab soon as i opted for this over the Pirfenidone for
Following a month or so of anxiety over my neck lump and the implications re lung transplant etc.. i am delighted to report the offending item is no longer and as a few of you kind souls suggested it was probably a cyst . Anyway, starting the Nintedinab soon as i opted for this over the Pirfenidone for
Mrbojangles
in
Lung Conditions Community Forum
3 years ago
Research- Transplant Protection Clothing- Feedback Welcome
Hi Everyone, hope you're all keeping well. I wanted to ask of your opinions to see if this idea I have is worth pursuing as a product. It is essentially seeing if this is something to investigate further. My backstory is that I had a kidney transplant at 17. Upon recovery I was interested in playing
Hi Everyone, hope you're all keeping well. I wanted to ask of your opinions to see if this idea I have is worth pursuing as a product. It is essentially seeing if this is something to investigate further. My backstory is that I had a kidney transplant at 17. Upon recovery I was interested in playing
Leggy1927
in
Kidney Transplant
3 years ago
Has anyone else had experience of antibiotics specifically Co-amoxiclav raising platelets?
Has anyone else had experience of antibiotics specifically Co-amoxiclav raising platelets? I've been through a Bone Marrow Transplant to treat leukemia (2015) and one of the side effects is I am susceptible to ITP, it doesn't persist like most people's rather it occurs roughly every 2 years with no
Has anyone else had experience of antibiotics specifically Co-amoxiclav raising platelets? I've been through a Bone Marrow Transplant to treat leukemia (2015) and one of the side effects is I am susceptible to ITP, it doesn't persist like most people's rather it occurs roughly every 2 years with no
Yamaha1871
in
ITP Support Association
3 years ago
Kidney Disease Solution
For us CKD is a family affair. Out of nine children, five of us have this disease. Of those five one has had a kidney transplant and one is on dialysis. I am currently at stage 3 and I’m trying really hard to halt the progression and avoid being hooked onto a machine. To that end I bought a detailed
For us CKD is a family affair. Out of nine children, five of us have this disease. Of those five one has had a kidney transplant and one is on dialysis. I am currently at stage 3 and I’m trying really hard to halt the progression and avoid being hooked onto a machine. To that end I bought a detailed
ishymal
in
Kidney Disease
3 years ago
Another HSCT question….
There are report that young people who have cll, who have done hematopoietic stem cell transplantation (HSCT) as treatment and have completely recover, have you guys heard of this? Thank you
There are report that young people who have cll, who have done hematopoietic stem cell transplantation (HSCT) as treatment and have completely recover, have you guys heard of this? Thank you
krikri1989ho
in
CLL Support
3 years ago
NHS Organ Donation - Erin’s story
I saw this story over on the “Children’s Liver Disease Foundation” site this morning and thought it might be nice to share. If anything this should be a message of hope for all those suffering from anxiety and worrying about their liver condition. Ten-year-old Erin has just celebrated her tenth transplant
I saw this story over on the “Children’s Liver Disease Foundation” site this morning and thought it might be nice to share. If anything this should be a message of hope for all those suffering from anxiety and worrying about their liver condition. Ten-year-old Erin has just celebrated her tenth transplant
Richard-Allen
in
British Liver Trust
3 years ago
Let’s compare notes re: Covid vaccine
Hi all, just wanted to compare notes regarding the Covid vaccine. I’ve seen a lot of discussions but in addition to the need for advocating, I’m curious what you are being told from your transplant teams. I asked a million questions in my appointment today and feel hopeless leaving with no answers.
Hi all, just wanted to compare notes regarding the Covid vaccine. I’ve seen a lot of discussions but in addition to the need for advocating, I’m curious what you are being told from your transplant teams. I asked a million questions in my appointment today and feel hopeless leaving with no answers.
SOct91
in
Kidney Transplant
3 years ago
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