from The Autoimmune Association...

[DonnaBoll]

Sjögren’s Disease

If you have been diagnosed with Sjögren’s Disease in the past 10 years you may be eligible to take part in a 30-minute online journal activity and a 60-minute virtual interview. Researchers would like to better understand your experiences with Sjögren’s and your opinions on treatments and care. Those who qualify and complete the study activities will receive a check for $200 as a thank you.

To see if you are eligible for the study or to get more information, please visit here, or contact Megan Hammond at [e-mail].

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Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford (CoRDS)​​​​​​​​​​​

This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access.

Cell Therapy for Cancer Now Targeting Autoimmune Diseases

Study finds that in autoimmune disease patients, CAR-T cell therapy stopped B cell development for a few months. When new healthy B cells were generated, this essentially reset the immune system.

All of these studies/topics can be found if you join The AutoImmune Association via Google. They send periodic emails on so many topics that often apply to what concerns us.