Search
Search
About
Log in
Join
Experiences with
Atrial myxoma
Posts
Communities
10,587 public posts
Filter results
Oregovomab Clinical Trial
Hello, I was recently approved to participate in the Phase III trial. I am wondering if anyone has participated in the Phase II trial and what their experience has been. Also, do you think participation may exclude me from future treatments? https://clinicaltrials.gov/ct2/show/NCT04498117?term=oregovomab
Hello, I was recently approved to participate in the Phase III trial. I am wondering if anyone has participated in the Phase II trial and what their experience has been. Also, do you think participation may exclude me from future treatments? https://clinicaltrials.gov/ct2/show/NCT04498117?term=oregovomab
iqbalmel
in
My Ovacome
1 year ago
Early phase Clinical trial results offer new hope for Levadopa induced dyskinesia.
Sounds a step in the right direction for the many who suffer from levadopa induced dyskinesia. My husband being one of them. https://www.parkinsons.org.uk/news/early-phase-clinical-trial-results-offer-new-hope-dyskinesia-treatment
Sounds a step in the right direction for the many who suffer from levadopa induced dyskinesia. My husband being one of them. https://www.parkinsons.org.uk/news/early-phase-clinical-trial-results-offer-new-hope-dyskinesia-treatment
Zella23
in
Cure Parkinson's
1 year ago
Confused
Diagnosed with afib before Xmas and given 2.5 bisoprolol Waiting for appointment with cardiologist.On a visit recently to nurse at GP surgery for BP check,I mentioned that I suffered dizzyness with meds.Later that day got a phone call from her saying that doctor had dropped dose to 1.25.Surely this would
Diagnosed with afib before Xmas and given 2.5 bisoprolol Waiting for appointment with cardiologist.On a visit recently to nurse at GP surgery for BP check,I mentioned that I suffered dizzyness with meds.Later that day got a phone call from her saying that doctor had dropped dose to 1.25.Surely this would
TheGrinch2
in
AF Association
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
‘Liquid Radiation’ promises new cancer treatment- DrMichael Hofman, Lead-212 and Lu-177 sounds very promising !
(Sorry for the cut and paste) Jill Margot Mar 31, 2023 – It’s described as “liquid radiation” and it promises to be a new pillar in the treatment of cancer. And among the groups around the world working on this technology, Australia is a leader. Professor Michael Hofman, a nuclear physician-scientist
(Sorry for the cut and paste) Jill Margot Mar 31, 2023 – It’s described as “liquid radiation” and it promises to be a new pillar in the treatment of cancer. And among the groups around the world working on this technology, Australia is a leader. Professor Michael Hofman, a nuclear physician-scientist
David1567
in
Advanced Prostate Cancer
1 year ago
An article on nutrition and aging.
An article on nutrition and aging: https://www.medscape.com/viewarticle/988578 Scientific Advances and Dietary Measures to Slow Down Aging Javier Cotelo, MD February 22, 2023 54 671 MADRID — Spectacular progress is being made in slowing down aging, with three new molecular indicators of measurable
An article on nutrition and aging: https://www.medscape.com/viewarticle/988578 Scientific Advances and Dietary Measures to Slow Down Aging Javier Cotelo, MD February 22, 2023 54 671 MADRID — Spectacular progress is being made in slowing down aging, with three new molecular indicators of measurable
WiscGuy
in
Pernicious Anaemia Society
1 year ago
Oxfordvacmedix via linked in
Well I have my final visit yet to do but phase 1a at the end announced 1 hR ago per my linked in feed. poking for funding for next phase it appears: ‘Completion of first part of OVM-200 clinical trial Oxford Vacmedix announces the successful completion of Phase 1a in the Phase 1 safety trial
Well I have my final visit yet to do but phase 1a at the end announced 1 hR ago per my linked in feed. poking for funding for next phase it appears: ‘Completion of first part of OVM-200 clinical trial Oxford Vacmedix announces the successful completion of Phase 1a in the Phase 1 safety trial
Brysonal
in
Fight Prostate Cancer
1 year ago
ARACOG TRIAL
My husband is beginning the ARACOG clinical trial. He is assigned to Darolutamide. This is through UCSF with Dr. Aggarwal. Anyone else in or been in this trial?
My husband is beginning the ARACOG clinical trial. He is assigned to Darolutamide. This is through UCSF with Dr. Aggarwal. Anyone else in or been in this trial?
JolleySprings
in
Advanced Prostate Cancer
1 year ago
Statins for paroxysmal Atrial Fibulation?
Hello Everyone. I have P-Afib which is well managed with Verapamil 120mcg. I take Ramiprimil 5mg and Apixaban. I'm lucky my Afib has remained mild once on this treatment for the last two /three years - hopefully will stay that way- providing I keep taking Verapamil. I get the odd flutter for a few seconds
Hello Everyone. I have P-Afib which is well managed with Verapamil 120mcg. I take Ramiprimil 5mg and Apixaban. I'm lucky my Afib has remained mild once on this treatment for the last two /three years - hopefully will stay that way- providing I keep taking Verapamil. I get the odd flutter for a few seconds
waveylines
in
Atrial Fibrillation Support
1 year ago
Accuracy of heart monitors during exercise
When I was recently diagnosed with AF I was told by a BHF nurse that the majority of HR monitors can't give an accurate reading due to the inconsistency of heartbeats. Yet I'm often reading concerns on this forum about HR readings on fitness monitors, fitbits etc. and wonder if there is a truly accurate
When I was recently diagnosed with AF I was told by a BHF nurse that the majority of HR monitors can't give an accurate reading due to the inconsistency of heartbeats. Yet I'm often reading concerns on this forum about HR readings on fitness monitors, fitbits etc. and wonder if there is a truly accurate
Rainfern
in
AF Association
1 year ago
Update on Failing Calquence-Pirtobrutinib Next
I spoke with my specialist from Upenn today and she wants to switch me to pirtobrutinib once it receives FDA approval for CLL in a few weeks. My questions are for those in clinical trials for pirtobrutinib. Any feedback is much appreciated as this will be my 5th treatment regimen and I’m a little
I spoke with my specialist from Upenn today and she wants to switch me to pirtobrutinib once it receives FDA approval for CLL in a few weeks. My questions are for those in clinical trials for pirtobrutinib. Any feedback is much appreciated as this will be my 5th treatment regimen and I’m a little
ReneeSusan
in
CLL Support
1 year ago
new to this forum
hello to everyone from New Mexico, US. I am finding out more about heart issues here on this forum than from my EP and cardiologist combined! Thank you all. I am 69 and had one of the first open heart surgeries done in Los Angeles at 9 years. ( for an ASD) There is still a small leak but mostly corrected
hello to everyone from New Mexico, US. I am finding out more about heart issues here on this forum than from my EP and cardiologist combined! Thank you all. I am 69 and had one of the first open heart surgeries done in Los Angeles at 9 years. ( for an ASD) There is still a small leak but mostly corrected
Petaca
in
Anticoagulation Support
2 years ago
Update on failing Calquence - Pirtobrutinib is Next
I spoke with my specialist from Upenn today and she wants to switch me to pirtobrutinib once it receives FDA approval for CLL in a few weeks. My questions are for those in clinical trials for pirtobrutinib. Any feedback is much appreciated as this will be my 5th treatment regimen and I’m a little
I spoke with my specialist from Upenn today and she wants to switch me to pirtobrutinib once it receives FDA approval for CLL in a few weeks. My questions are for those in clinical trials for pirtobrutinib. Any feedback is much appreciated as this will be my 5th treatment regimen and I’m a little
ReneeSusan
in
CLL America Support
1 year ago
Is there such a thing as ‘slow AFib?’
Hello all! St Barts in London have offered me an ablation! Taunton referred me to Bristol but they were unwilling because I also have hypertrophic cardiomyopathy and they didn’t have a good success rate for people like me.☹️ I was then referred to St Barts and they have said they’ll give it a go.
Hello all! St Barts in London have offered me an ablation! Taunton referred me to Bristol but they were unwilling because I also have hypertrophic cardiomyopathy and they didn’t have a good success rate for people like me.☹️ I was then referred to St Barts and they have said they’ll give it a go.
Slidingdoors99
in
Atrial Fibrillation Support
2 years ago
Abiraterone vs Docetaxel
In the CHAARTED trial, metastatic burden was divided into low burden (4 lesions). CHAARTED’s criteria seems to have become the standard for evaluating how metastatic burden affects choices of treatment and outcome. I bring up the metastatic burden, because I could not find a clinical trial where ADT
In the CHAARTED trial, metastatic burden was divided into low burden (4 lesions). CHAARTED’s criteria seems to have become the standard for evaluating how metastatic burden affects choices of treatment and outcome. I bring up the metastatic burden, because I could not find a clinical trial where ADT
TMcgee
in
Advanced Prostate Cancer
1 year ago
Ectopic beats , 7yrs after rf ablation
Hi all , I've been good now for around 7yrs after rf ablation , got on with life running, gym , all good , so this week I felt tight in my chest with a few thumps checked my pulse and there's ectopic beats , pulse is fine , blood pressure fine , attended a&e they picked up the ectopic on ecg , did bloods
Hi all , I've been good now for around 7yrs after rf ablation , got on with life running, gym , all good , so this week I felt tight in my chest with a few thumps checked my pulse and there's ectopic beats , pulse is fine , blood pressure fine , attended a&e they picked up the ectopic on ecg , did bloods
Runcrans
in
AF Association
2 years ago
RGA 314 gene therapy
my doctor asked me to participate in phase 3 RGA 314 gene therapy for macular degeneration. I received the reading material to decide if I want to enter the clinical trials. When I read the possible ricks of the procedure, this statement worried me “once RGA 314 is given to you, there may not be a way
my doctor asked me to participate in phase 3 RGA 314 gene therapy for macular degeneration. I received the reading material to decide if I want to enter the clinical trials. When I read the possible ricks of the procedure, this statement worried me “once RGA 314 is given to you, there may not be a way
Slattery
in
Macular Society
1 year ago
Walking in rhythm
Hello, long time lurker on here and thank you to all the regular posters who keep us lurkers so well informed. Sorry in advance for the long post :) My afib story started in Feb 19 and like all new Afibbers I was scared and ignorant of the condition. I am very lucky to have no symptoms and don't
Hello, long time lurker on here and thank you to all the regular posters who keep us lurkers so well informed. Sorry in advance for the long post :) My afib story started in Feb 19 and like all new Afibbers I was scared and ignorant of the condition. I am very lucky to have no symptoms and don't
diminished7th
in
Atrial Fibrillation Support
2 years ago
Targeting Glutamine Metabolism
New paper below [1a]. Full text: [1b]. First, a few notes. "Studies have indicated the importance of glutamine in certain tumors. For example, the inhibition of glutamine metabolism was reported to prevent growth of several tumors such as breast, liver, kidney and T-cell lymphoblastic leukemia." Wiki
New paper below [1a]. Full text: [1b]. First, a few notes. "Studies have indicated the importance of glutamine in certain tumors. For example, the inhibition of glutamine metabolism was reported to prevent growth of several tumors such as breast, liver, kidney and T-cell lymphoblastic leukemia." Wiki
pjoshea13
in
Fight Prostate Cancer
1 year ago
Ambroxol: Experimental treatment for PD
Does anyone know anything about the clinical trials going on in the UK with Ambroxol as a treatment for PD (a repurposed cough medicine)? The preliminary results look good. I understand that results have been released but I can't find It. Please reply if you have info. Thanks
Does anyone know anything about the clinical trials going on in the UK with Ambroxol as a treatment for PD (a repurposed cough medicine)? The preliminary results look good. I understand that results have been released but I can't find It. Please reply if you have info. Thanks
Badmouth
in
Cure Parkinson's
1 year ago
Amiodarone
I had 3 ablations at MUSC to address PVC’s and ARVC, got an ICD after that, then developed AFib followed by an atrial ablation and finally a cardioversion to fix atrial flutter a month after the shocker. I’ve felt fine through all of this - asymptomatic all along. I’m 70 and was a runner for 22 years
I had 3 ablations at MUSC to address PVC’s and ARVC, got an ICD after that, then developed AFib followed by an atrial ablation and finally a cardioversion to fix atrial flutter a month after the shocker. I’ve felt fine through all of this - asymptomatic all along. I’m 70 and was a runner for 22 years
AblatedCyclist
in
AF Association
2 years ago
1
...
80
81
82
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Atrial Fibrillation Support
4167 results
Advanced Prostate Cancer
1388 results
CLL Support
679 results
View top 10 communities
Sort by
Most Relevant
Newest