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PBCer with sudden Fatigue/Exhaustion
I am a 59 yo female in the US, stage 1-2 PBC. I was diagnosed in 2006 after invests. Into my horrible bout of heartburn. I’m in pretty good health and taking Urso. I’ve done clinical trials and tried additional meds thru the years as well, in doing so I was found to have Gilbert’s? syndrome where
I am a 59 yo female in the US, stage 1-2 PBC. I was diagnosed in 2006 after invests. Into my horrible bout of heartburn. I’m in pretty good health and taking Urso. I’ve done clinical trials and tried additional meds thru the years as well, in doing so I was found to have Gilbert’s? syndrome where
Joycie193
in
PBC Foundation
1 year ago
Phase 1 trial testing CAR T-cell therapy GC012F in SLE
Gracell Biotechnologies announced the launch of a Phase 1 clinical trial in China testing GC012F, its experimental dual FastCAR T-cell therapy, for hard-to-treat systemic lupus erythematosus (SLE). The investigator-initiated trial (NCT05846347), underway at The First Affiliated Hospital of the Zhejiang
Gracell Biotechnologies announced the launch of a Phase 1 clinical trial in China testing GC012F, its experimental dual FastCAR T-cell therapy, for hard-to-treat systemic lupus erythematosus (SLE). The investigator-initiated trial (NCT05846347), underway at The First Affiliated Hospital of the Zhejiang
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Dr. John Seymour on IgHV Mutational Status
IgHV is one of the biomarkers used to predict prognosis and how an individual with CLL/SLL will respond to different treatment options. Watch our interview with Dr. John Seymour to learn more about how recent clinical trials have changed our understanding of IgHV. https://youtu.be/354hNsHsSlc
IgHV is one of the biomarkers used to predict prognosis and how an individual with CLL/SLL will respond to different treatment options. Watch our interview with Dr. John Seymour to learn more about how recent clinical trials have changed our understanding of IgHV. https://youtu.be/354hNsHsSlc
Edalv
in
CLL Support
1 year ago
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Please share your experiences with Provenge. What’s it like getting the injections and what are your results?
I’m stage four on Orgovyx and recently went castrate resistant with three small bone mets on my upper spine so we added Zytiga. I started the Eclipse clinical trial three weeks ago with PSA of 3.3 and am authorized for up to four treatments. My plan is to start Provenge after the trial is over. What
I’m stage four on Orgovyx and recently went castrate resistant with three small bone mets on my upper spine so we added Zytiga. I started the Eclipse clinical trial three weeks ago with PSA of 3.3 and am authorized for up to four treatments. My plan is to start Provenge after the trial is over. What
SViking
in
Advanced Prostate Cancer
1 year ago
P-Afib from cancer treatment causes different part of heart to misfire.
Hello Everyone,So I was diagnosed with P-Afib nearly 7 years ago. Beta blockers were a disaster and made me exceedingly ill.....Once on a calcium channel blocker, Verapamil, things however settled down. At the time I was told Ablation isn't an option for me as it could be my heart is misfiring due to
Hello Everyone,So I was diagnosed with P-Afib nearly 7 years ago. Beta blockers were a disaster and made me exceedingly ill.....Once on a calcium channel blocker, Verapamil, things however settled down. At the time I was told Ablation isn't an option for me as it could be my heart is misfiring due to
waveylines
in
Atrial Fibrillation Support
1 year ago
Waiting for Cardioversion
After 2 successful ablations RF in 2010 and Cryo in 2018 AF returned sometime last year when I noticed that my HR was taking some time to come down after exercise. I had GP appointment in August and EP on 6/12/22. ECG on that day confirmed in AF followed by Holter monitor in January which shows the AF
After 2 successful ablations RF in 2010 and Cryo in 2018 AF returned sometime last year when I noticed that my HR was taking some time to come down after exercise. I had GP appointment in August and EP on 6/12/22. ECG on that day confirmed in AF followed by Holter monitor in January which shows the AF
GordonS
in
AF Association
1 year ago
DOACs
I have had PAF for 22 years. Very light burden for 20 years. Over past two years episodes have increased in frequency. It’s now once a week mostly. On Donedarone for 11 months to stop syncope. Works well for that but recent 24 hour holter monitor showed a few 6 second pauses in SNR. I have bradycardia
I have had PAF for 22 years. Very light burden for 20 years. Over past two years episodes have increased in frequency. It’s now once a week mostly. On Donedarone for 11 months to stop syncope. Works well for that but recent 24 hour holter monitor showed a few 6 second pauses in SNR. I have bradycardia
President2012
in
AF Association
1 year ago
What comes first? |Silent AFib
Hi, First time posting in this hub. Previously, no issues with my heart and previously pasted all tests; no artery disease or stenosis. Out of nowhere, I had my first AFIB episode in December of last year. Restored to NSR in 30 minutes with medication. I have had 2 more, once during a stress
Hi, First time posting in this hub. Previously, no issues with my heart and previously pasted all tests; no artery disease or stenosis. Out of nowhere, I had my first AFIB episode in December of last year. Restored to NSR in 30 minutes with medication. I have had 2 more, once during a stress
Elizka
in
AF Association
1 year ago
Afib after mini maze heart ablation surgery
6 weeks post op been in afib for 2 weeks saw Mr hunter today as said he will do a cardioversion in the next few weeks is this normal will my son ever be back to normal x
6 weeks post op been in afib for 2 weeks saw Mr hunter today as said he will do a cardioversion in the next few weeks is this normal will my son ever be back to normal x
P1956
in
AF Association
1 year ago
Rusfertide...
I haven't come across any dialog about this drug on this website. It popped up on my many searches for additional info about treatment for Polycythemia Vera. It is currently in phase 2 of a clinical trial at Stanford University and so far, results with patients have been good. It sounds like
I haven't come across any dialog about this drug on this website. It popped up on my many searches for additional info about treatment for Polycythemia Vera. It is currently in phase 2 of a clinical trial at Stanford University and so far, results with patients have been good. It sounds like
K-itty
in
MPN Voice
1 year ago
Celebrating International Clinical Trials Day.
This is just a heads-up if anyone is interested. Tomorrow (19th May) There is an event taking place in the atrium of the QE Hospital, Birmingham Celebrating International Clinical Trials Day. I shall be there talking about people becoming involved in Clinical Research as a PPIE members (Patient and
This is just a heads-up if anyone is interested. Tomorrow (19th May) There is an event taking place in the atrium of the QE Hospital, Birmingham Celebrating International Clinical Trials Day. I shall be there talking about people becoming involved in Clinical Research as a PPIE members (Patient and
Richard-Allen
in
British Liver Trust
1 year ago
GREAT YouTube Health Channel by Stanford University M.D. specializing in: "HUMAN LONGEVITY"
i recently discovered a new health channel on YouTube Dr. Peter Attia, M.D. (degree from Stanford University) He specializes in "human longevity." He is also the first person to make the round-trip swim from Maui and Lanai. [u]
He personally fasts
[/u] ... 3 days straight every month (formerly
i recently discovered a new health channel on YouTube Dr. Peter Attia, M.D. (degree from Stanford University) He specializes in "human longevity." He is also the first person to make the round-trip swim from Maui and Lanai. [u]
He personally fasts
[/u] ... 3 days straight every month (formerly
PDWarrior1900
in
Cure Parkinson's
1 year ago
Cardiovascular Protections from Omega 3 supplements now Doubtful
I have been taking a combined Omega3 supplement (EPA and DHA fish oil)to improve my cardiovascular risk profile along with a statin, baby ASA and careful BP management. I am a carnivore/omnivore but only eat fish twice per week usually. (Please don’t beat me up over my diet PBWF folks!) I am not diabetic
I have been taking a combined Omega3 supplement (EPA and DHA fish oil)to improve my cardiovascular risk profile along with a statin, baby ASA and careful BP management. I am a carnivore/omnivore but only eat fish twice per week usually. (Please don’t beat me up over my diet PBWF folks!) I am not diabetic
MateoBeach
in
Fight Prostate Cancer
1 year ago
Estetrol for bone density? What estrogen test so I need, anything specific?
Found this interesting article on estetrol and wondering if anyone out there has taken this form of estrogen? I see a lot of posts relating to estradiol patches but the E4 estrogen form appears to be much better at least on first look. The clinical trials were done in the Netherlands so it may be something
Found this interesting article on estetrol and wondering if anyone out there has taken this form of estrogen? I see a lot of posts relating to estradiol patches but the E4 estrogen form appears to be much better at least on first look. The clinical trials were done in the Netherlands so it may be something
watertender
in
Advanced Prostate Cancer
1 year ago
Not in AF but so Breathless
Hi Everyone. I have only had two instances of AF since I was diagnosed in A&E in November 2022. My last occurance of AF was on 30 December. Since then my GP has let me come off the Diltiazem which had some unpleasant side effects but I am still on Flecainide 50mg twice daiy and Edoxoban. I bought a
Hi Everyone. I have only had two instances of AF since I was diagnosed in A&E in November 2022. My last occurance of AF was on 30 December. Since then my GP has let me come off the Diltiazem which had some unpleasant side effects but I am still on Flecainide 50mg twice daiy and Edoxoban. I bought a
MKG50
in
AF Association
1 year ago
High diastolic blood pressure
Been having issues over the last 6 months (and increasingly severe for the last 3 months after I had COVID) with feeling dizzy and like I am about to faint, with some shortness of breath and a pounding chest. I went to my doctor thinking that maybe it was just stress or anxiety. My blood pressure was
Been having issues over the last 6 months (and increasingly severe for the last 3 months after I had COVID) with feeling dizzy and like I am about to faint, with some shortness of breath and a pounding chest. I went to my doctor thinking that maybe it was just stress or anxiety. My blood pressure was
biitsy
in
Arrhythmia Alliance
1 year ago
Lung Cancer Research
Are you interested in being part of research but there is no clinical trial open to you at present? By using Your Health Companion, you will be part of a long-term research project designed to improve your experience and open the door to new and better cancer medicines for all. Many research projects
Are you interested in being part of research but there is no clinical trial open to you at present? By using Your Health Companion, you will be part of a long-term research project designed to improve your experience and open the door to new and better cancer medicines for all. Many research projects
YourHealthCompanion
in
The Roy Castle Lung Cancer Foundation
1 year ago
Hyperbaric Oxjen Chamber/ Portable unit
Hi, My partner of 26 years has stage 4 metastatic prostate cancer. He has been fighting it for 10 years He is 74. He had it removed immediately, 10yrs ago - Gleason was a 9. He did low dose chemo following that and so many drugs on and off over the years as well as Lupron which has left him without
Hi, My partner of 26 years has stage 4 metastatic prostate cancer. He has been fighting it for 10 years He is 74. He had it removed immediately, 10yrs ago - Gleason was a 9. He did low dose chemo following that and so many drugs on and off over the years as well as Lupron which has left him without
Peanutdog123
in
Advanced Prostate Cancer
1 year ago
Heart Quiver
I have had Arterial Fibrillation since October 2021, was taken ill and had really high infection markers. On medication, had a Cardioversion in August last year, when I woke up was told back in rhythm, however, step outside the hospital, and it came back with a vengeance, (seems never happened that quickly
I have had Arterial Fibrillation since October 2021, was taken ill and had really high infection markers. On medication, had a Cardioversion in August last year, when I woke up was told back in rhythm, however, step outside the hospital, and it came back with a vengeance, (seems never happened that quickly
BHFK967
in
Atrial Fibrillation Support
1 year ago
Slow pulse after ablation
My normal sinus pulse is 55 to 60 resting. Digoxin and flecanide have sent it even lower.Also meds are giving me all sorts of different rhythms and pauses. My cardiologist will do an ablation but says I may need a pacemaker after. Anyone with experience of bradycardia from drugs ?
My normal sinus pulse is 55 to 60 resting. Digoxin and flecanide have sent it even lower.Also meds are giving me all sorts of different rhythms and pauses. My cardiologist will do an ablation but says I may need a pacemaker after. Anyone with experience of bradycardia from drugs ?
Cassag
in
AF Association
1 year ago
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