Search
Search
About
Log in
Join
Experiences with
Atrial myxoma
Posts
Communities
10,587 public posts
Filter results
2nd Opinion.
Hello everyone. As a few of you will know I have done all the treatments possible including Pluvicto which failed. My MO has put me on Jevtana for which I have comepleted 2 treatments so far. After my call today with my doctor it was evident he is losing hope for me ( understood) and he will look
Hello everyone. As a few of you will know I have done all the treatments possible including Pluvicto which failed. My MO has put me on Jevtana for which I have comepleted 2 treatments so far. After my call today with my doctor it was evident he is losing hope for me ( understood) and he will look
db1966
in
Advanced Prostate Cancer
1 year ago
YIKES-no Flecainide for 5 days
My ablation is in 3 days and my EP had me stop taking Flecainide 5 days prior (but I'm to remain on Eliquis until day of procedure.) I must admit I've been nervous stopping the drug. I'm moving slower, doing deep breathing throughout the day, removing any stress. I have had 3 episodes of Afib since
My ablation is in 3 days and my EP had me stop taking Flecainide 5 days prior (but I'm to remain on Eliquis until day of procedure.) I must admit I've been nervous stopping the drug. I'm moving slower, doing deep breathing throughout the day, removing any stress. I have had 3 episodes of Afib since
Elizka
in
AF Association
1 year ago
Micronized Progesterone - Does it do anything?
I started taking HRT a while ago and I felt was all over the place, sometimes on top of the world. sometimes awful - it took me a lot longer than it ought to have done to figure out that in the 2 weeks that I take Oestrogen only I'm amazing, and when I take Utrogestan with Oestrogen I can barely function
I started taking HRT a while ago and I felt was all over the place, sometimes on top of the world. sometimes awful - it took me a lot longer than it ought to have done to figure out that in the 2 weeks that I take Oestrogen only I'm amazing, and when I take Utrogestan with Oestrogen I can barely function
Abra_ka_dabra
in
Menopause and Perimenopause Support
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Do you have persistent or long-standing AF?
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
Hidden
Partner
in
Arrhythmia Alliance
1 year ago
Do you have persistent or long-standing AF?
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
Hidden
Partner
in
AF Association
1 year ago
INCA033989 phase 1 clinical trial is recruiting patients
[i]Source: https://www.rarediseaseadvisor.com/news/mf-news-briefs/phase-1-trial-testing-potential-mf-therapy-recruiting/[/i] A new phase 1 clinical trial evaluating the safety, tolerability, and dose limiting toxicity of INCA033989 as a monotherapy or in combination with ruxolitinib in patients with
[i]Source: https://www.rarediseaseadvisor.com/news/mf-news-briefs/phase-1-trial-testing-potential-mf-therapy-recruiting/[/i] A new phase 1 clinical trial evaluating the safety, tolerability, and dose limiting toxicity of INCA033989 as a monotherapy or in combination with ruxolitinib in patients with
flamboyant_hawking
in
MPN Voice
1 year ago
Treatment Options
Hi, Looking for some help with options presented by my MO. Below are my latest PSA results PSA TOTAL. 0.77. 07/10/2023 PSA TOTAL 0.67. 06/20/2023 PSA TOTAL 0.17. 03/21/2023 PSA TOTAL. 0.38. 12/20/2022 PSA TOTAL. 0.67. 11/15/2022 PSA TOTAL. 0.64. 10/25/2022 Been
Hi, Looking for some help with options presented by my MO. Below are my latest PSA results PSA TOTAL. 0.77. 07/10/2023 PSA TOTAL 0.67. 06/20/2023 PSA TOTAL 0.17. 03/21/2023 PSA TOTAL. 0.38. 12/20/2022 PSA TOTAL. 0.67. 11/15/2022 PSA TOTAL. 0.64. 10/25/2022 Been
Coachmy4
in
Advanced Prostate Cancer
1 year ago
A Drug To Prevent Suicide Associated With BiPolar Depression
Suicidal bipolar depression accounts for 40% of people who try to harm themselves, yet there’s never been an FDA-approved drug for this indication. Every second of every day, someone in the world attempts suicide. NRx Pharmaceuticals is developing a drug for people whose suicidal thoughts stem
Suicidal bipolar depression accounts for 40% of people who try to harm themselves, yet there’s never been an FDA-approved drug for this indication. Every second of every day, someone in the world attempts suicide. NRx Pharmaceuticals is developing a drug for people whose suicidal thoughts stem
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Good hair day
I hope everyone is doing well and having a happy hair day. Following on from my post a few weeks ago about losing hair since Afib diagnosis and anticoagulants.... First thank you EVERYONE for so much positive help and advice. I have done some experimenting and am finding the following has been helpful
I hope everyone is doing well and having a happy hair day. Following on from my post a few weeks ago about losing hair since Afib diagnosis and anticoagulants.... First thank you EVERYONE for so much positive help and advice. I have done some experimenting and am finding the following has been helpful
Rainfern
in
AF Association
1 year ago
PSA down but mets increasing?
I've been on ADT + Xtandi for about a year (see my Bio for details) and my PSA has been slowly and steadily reducing over that time - now down to 0.05. However, my 3 CT scans (last August, December and last month) are showing a slight increase each time in the size of my lymph node mets and the bone
I've been on ADT + Xtandi for about a year (see my Bio for details) and my PSA has been slowly and steadily reducing over that time - now down to 0.05. However, my 3 CT scans (last August, December and last month) are showing a slight increase each time in the size of my lymph node mets and the bone
Benkaymel
in
Advanced Prostate Cancer
1 year ago
At a crossroads
Greetings All, I have recently been scanned and increased Mets in bones and a new small spot in my liver have been found, eliminating me from my Phase Ib clinical trial that had worked from November 2021. My earlier first line of treatment, Ibrance Fulvestrant failed after about 8 months. I am now
Greetings All, I have recently been scanned and increased Mets in bones and a new small spot in my liver have been found, eliminating me from my Phase Ib clinical trial that had worked from November 2021. My earlier first line of treatment, Ibrance Fulvestrant failed after about 8 months. I am now
Garlicgrower
in
SHARE Metastatic Breast Cancer
1 year ago
Next Steps?
Good morning my fellow warriors. I have reached another cross roads in my treatment. I was set up to have HDR and SbRT as salvage treatment, but a PSMA scan showed disease progression to more lymph nodes which caused my Radiation Onc. to cancel the HDR. My regular ONC is now recommending Chemo after
Good morning my fellow warriors. I have reached another cross roads in my treatment. I was set up to have HDR and SbRT as salvage treatment, but a PSMA scan showed disease progression to more lymph nodes which caused my Radiation Onc. to cancel the HDR. My regular ONC is now recommending Chemo after
wat380bjw
in
Advanced Prostate Cancer
1 year ago
Life after Flecainide
I have had to stop Flecainide after many years because it started giving me other arrhythmias & am now on Digoxin Bisoprolol Apixiban & Simvastatin so far since starting Digoxin I have had AF most nights sometimes all night & sometimes n separate episodes. AFsometimes continues on into the day I self
I have had to stop Flecainide after many years because it started giving me other arrhythmias & am now on Digoxin Bisoprolol Apixiban & Simvastatin so far since starting Digoxin I have had AF most nights sometimes all night & sometimes n separate episodes. AFsometimes continues on into the day I self
Koladog
in
Atrial Fibrillation Support
1 year ago
Counting the days to an ablation for Focal Atrial Tachycardia
Tanta Anna follow up! Has anyone had this type of ablation? It’s my sixth ablation! This has been an awful experience for the last four months- now weaning off atenolol, which may be feel very ill. Stayed on that medication after many other trials. I am in the US, traveling 1000 miles to Dr in
Tanta Anna follow up! Has anyone had this type of ablation? It’s my sixth ablation! This has been an awful experience for the last four months- now weaning off atenolol, which may be feel very ill. Stayed on that medication after many other trials. I am in the US, traveling 1000 miles to Dr in
Tantaanna
in
AF Association
1 year ago
supplemental pbc treatments
Does anyone have diet and supplement experience and advice to help bring fibroses down? Resist temptation to say you don’t know any other than Ursodoil, obeticholic acid, Fenofibrate and clinical trial Setanix I’m looking for supplemental treatments to practice along with these treatments western
Does anyone have diet and supplement experience and advice to help bring fibroses down? Resist temptation to say you don’t know any other than Ursodoil, obeticholic acid, Fenofibrate and clinical trial Setanix I’m looking for supplemental treatments to practice along with these treatments western
Jlruggie
in
PBC Foundation
1 year ago
Venetoclax for dummies
Venetoclax owes its origin to a lady named Eliza Hall, I bet AussieNeil has heard of her. Eliza was a lady from Melbourne Australia who married an Englishman named Walter Hall in 1874. Walter Hall and his two brothers arrived almost penniless in Australia in 1852, coming from England to search for
Venetoclax owes its origin to a lady named Eliza Hall, I bet AussieNeil has heard of her. Eliza was a lady from Melbourne Australia who married an Englishman named Walter Hall in 1874. Walter Hall and his two brothers arrived almost penniless in Australia in 1852, coming from England to search for
cajunjeff
in
CLL Support
1 year ago
Missing eliquis apixaban for 4 days??
Hi allVery stupidly I have come up to Yorkshire from London to stay with friends and I have forgotten to bring my eliquis apixaban. Eek! I am paroxysmal afib with few incidents and not for long What should I do? Just go without til Saturday afternoon (last one taken Wednesday morning? Or ring doctor
Hi allVery stupidly I have come up to Yorkshire from London to stay with friends and I have forgotten to bring my eliquis apixaban. Eek! I am paroxysmal afib with few incidents and not for long What should I do? Just go without til Saturday afternoon (last one taken Wednesday morning? Or ring doctor
Pitterpat
in
AF Association
1 year ago
Aspirin Warning: Anemia May Increase With Use
»Older people who take daily low-dose aspirin have at 20% higher risk of developing anemia even without having already had a major bleeding event, according to results from a new randomized controlled trial. In the study, which was published June 20 in the Annals of Internal Medicine, investigators
»Older people who take daily low-dose aspirin have at 20% higher risk of developing anemia even without having already had a major bleeding event, according to results from a new randomized controlled trial. In the study, which was published June 20 in the Annals of Internal Medicine, investigators
Manouche
in
MPN Voice
1 year ago
Do you have persistent or long-standing AF?
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
1 year ago
Do you have persistent or long-standing AF?
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
TracyAdmin
Partner
in
AF Association
1 year ago
1
...
66
67
68
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Atrial Fibrillation Support
4167 results
Advanced Prostate Cancer
1388 results
CLL Support
679 results
View top 10 communities
Sort by
Most Relevant
Newest