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Results from 4 Genomic labs
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
JolleySprings
in
Advanced Prostate Cancer
2 months ago
Allopregnanolone as a Regenerative Treatment for Parkinson's Disease (Allo-PD)
I just happened upon this trial and it is something I had never heard of. It looks like a very small trial being conducted in Tucson, AZ. https://clinicaltrials.gov/study/NCT06263010?locStr=Arizona&country=United%20States&state=Arizona&cond=Parkinson%20disease&aggFilters=status:not%20rec&rank=2 Detailed
I just happened upon this trial and it is something I had never heard of. It looks like a very small trial being conducted in Tucson, AZ. https://clinicaltrials.gov/study/NCT06263010?locStr=Arizona&country=United%20States&state=Arizona&cond=Parkinson%20disease&aggFilters=status:not%20rec&rank=2 Detailed
Boscoejean
in
Cure Parkinson's
2 months ago
Next NoSilverBullet webinar on 17th of June: Sackner-Bernstein, MD, on "Why I am optimistic that we might now have a Silver Bullet for PD".
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 17th of June. Jonathan Sackner-Bernstein, MD, will be talking to us about "Why I am optimistic that we might now have a Silver Bullet for PD". Please use the Eventbrite link
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 17th of June. Jonathan Sackner-Bernstein, MD, will be talking to us about "Why I am optimistic that we might now have a Silver Bullet for PD". Please use the Eventbrite link
Michel0220
in
Cure Parkinson's
2 months ago
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Conversion Pause
Hello to all you wonderful people. Without getting into a lot of detail, I will try and get straight to the point. I’ve been told I can make a novel out of one tiny incident…..lol After having a Holter monitor for 72 hours, my cardiologist wanted to see me right away. He said he was concerned with
Hello to all you wonderful people. Without getting into a lot of detail, I will try and get straight to the point. I’ve been told I can make a novel out of one tiny incident…..lol After having a Holter monitor for 72 hours, my cardiologist wanted to see me right away. He said he was concerned with
Vicmeister
in
AF Association
9 months ago
Stress echo after effects
I had a dobutamine stress echo on Sunday which was pretty unpleasant and triggered my paroxysmal AFib. The AFib reverted on Monday morning but I am not feeling well since. Did anyone else have any after effects please?
I had a dobutamine stress echo on Sunday which was pretty unpleasant and triggered my paroxysmal AFib. The AFib reverted on Monday morning but I am not feeling well since. Did anyone else have any after effects please?
Spj57
in
Atrial Fibrillation Support
9 months ago
why didn't you consider a clinical trial?
Please help me understand more about the barriers to participating in clinical trials. If you've ever considered joining a clinical trial but decided against it, please share what influenced your decision?
Please help me understand more about the barriers to participating in clinical trials. If you've ever considered joining a clinical trial but decided against it, please share what influenced your decision?
Darryl
Partner
in
Prostate Cancer And Gay Men
2 months ago
why didn't you consider a clinical trial?
Please help me understand more about the barriers to participating in clinical trials. If you've ever considered joining a clinical trial but decided against it, please share what influenced your decision?
Please help me understand more about the barriers to participating in clinical trials. If you've ever considered joining a clinical trial but decided against it, please share what influenced your decision?
Darryl
Partner
in
Advanced Prostate Cancer
2 months ago
clinical trial
hi. Just wondering if anyone is on the clinical trial at Dana Farber in Boston with verzenio and oserdu? Thanks. Marianne
hi. Just wondering if anyone is on the clinical trial at Dana Farber in Boston with verzenio and oserdu? Thanks. Marianne
marianne88
in
SHARE Metastatic Breast Cancer
2 months ago
New treatment
2 weeks ago I had liver ablation to remove 3 tumors on my liver. 2 were responding to treatment (anastrozole and kisqali for HER2 neg) and 1 was not. Surgery went well. Biopsy showed that the growing tumor was triple negative. Seemingly the other 2 (breast and hip met) are still HER2 negative. Anyone
2 weeks ago I had liver ablation to remove 3 tumors on my liver. 2 were responding to treatment (anastrozole and kisqali for HER2 neg) and 1 was not. Surgery went well. Biopsy showed that the growing tumor was triple negative. Seemingly the other 2 (breast and hip met) are still HER2 negative. Anyone
JulieB76
in
SHARE Metastatic Breast Cancer
2 months ago
Cancer Clinical Trial Participation May Not Actually Improve Survival, Study Says, MedPage Today May 22, 2024
[i]While an admittedly imperfect pooled analysis (w/ PCa trials amounting to 7% of total), this paper illuminates the effects of patient selection bias in clinical trial outcomes. [/i][i]
(emphasis is added.)
[/i][i] Along with the accompanying editorial, it should serve to provide some new guidance
[i]While an admittedly imperfect pooled analysis (w/ PCa trials amounting to 7% of total), this paper illuminates the effects of patient selection bias in clinical trial outcomes. [/i][i]
(emphasis is added.)
[/i][i] Along with the accompanying editorial, it should serve to provide some new guidance
cujoe
in
Fight Prostate Cancer
2 months ago
Sepsis - a timely reminder
[i]“The paramedics were reluctant to take me in,” he said. “They thought I should go and see my GP. I could have gone back to sleep. And I would have died I suppose. After a bit of remonstration they agreed [to take me]. No doubt at all Kati saved my life. If we had got there two hours later I would
[i]“The paramedics were reluctant to take me in,” he said. “They thought I should go and see my GP. I could have gone back to sleep. And I would have died I suppose. After a bit of remonstration they agreed [to take me]. No doubt at all Kati saved my life. If we had got there two hours later I would
bennevisplace
in
CLL Support
2 months ago
📚 Understanding the Scientific Process: A Guide for Patients
The scientific process is a systematic method used by researchers to explore questions, test hypotheses, and gather reliable data. Understanding this process can help you make sense of how medical advancements and treatments are developed. Here’s a simplified overview of the key stages in the scientific
The scientific process is a systematic method used by researchers to explore questions, test hypotheses, and gather reliable data. Understanding this process can help you make sense of how medical advancements and treatments are developed. Here’s a simplified overview of the key stages in the scientific
AnnaHU
HealthUnlocked
in
Research Opportunities
2 months ago
AZD0754 Apollo Clinical Trial
Looks like my next treatment in my long PCa battle, is the AZD0754 Apollo Clinical Trial. Does anyone have any information about the trial they could share? Thanks, Cam
Looks like my next treatment in my long PCa battle, is the AZD0754 Apollo Clinical Trial. Does anyone have any information about the trial they could share? Thanks, Cam
Cam73
in
Advanced Prostate Cancer
2 months ago
cardioversion within 3 weeks of ablation?
Despite playing by the book and doing everything I could, I’ve been back in persistent AFib for 4 days since my ablation two and a half weeks ago. The arrhythmia team had me in for an ECT today and are arranging an appointment for a cardioversion possibly this Saturday. Just wondering if anyone else
Despite playing by the book and doing everything I could, I’ve been back in persistent AFib for 4 days since my ablation two and a half weeks ago. The arrhythmia team had me in for an ECT today and are arranging an appointment for a cardioversion possibly this Saturday. Just wondering if anyone else
Rainfern
in
AF Association
9 months ago
test results finally in
After waiting over a month my oncologist finally called to tell me I have the agressive form of this disease....CLL....he is looking for a clinical trial for me to join. I had a strong feeling this wasa the news I as going to get.....i am soon to 77 and hope to make it to 90. My oncolocgist tells me
After waiting over a month my oncologist finally called to tell me I have the agressive form of this disease....CLL....he is looking for a clinical trial for me to join. I had a strong feeling this wasa the news I as going to get.....i am soon to 77 and hope to make it to 90. My oncolocgist tells me
DianeSH
in
CLL America Support
2 months ago
List of good Genetic Tests in Homologous Recombination Deficiency in PCa and the Mechanisms of Resistance to PARP Inhibitors
I was searching RAD50 and PARPinhibitors and since i am going for a high risk genetic consult i came across this good explanation of different genetic testing. Title of article:
Homologous Recombination Deficiency in Ovarian, Breast, Colorectal, Pancreatic, Non-Small Cell Lung and Prostate Cancers
I was searching RAD50 and PARPinhibitors and since i am going for a high risk genetic consult i came across this good explanation of different genetic testing. Title of article:
Homologous Recombination Deficiency in Ovarian, Breast, Colorectal, Pancreatic, Non-Small Cell Lung and Prostate Cancers
KocoPr
in
Advanced Prostate Cancer
2 months ago
Experience/Opinions on: Pembrolizumab + Lenvatinib for NEPC/SCPC
In January I was diagnosed with SCPC with liver metastasis. My first line of treatment was Platinum based chemo (carboplatin+etoposide). This treatment failed after 3 infusions with radiographic progression on CT Scan. ----- ... HEPATOBILIARY: Innumerable bilobar hepatic metastasis have progressed
In January I was diagnosed with SCPC with liver metastasis. My first line of treatment was Platinum based chemo (carboplatin+etoposide). This treatment failed after 3 infusions with radiographic progression on CT Scan. ----- ... HEPATOBILIARY: Innumerable bilobar hepatic metastasis have progressed
skiingfiend
in
Advanced Prostate Cancer
2 months ago
Aspen wins $8M to advance Parkinson’s stem cell therapy
The grant, funded by the California Institute for Regenerative Medicine (CIRM), will support the ongoing Phase 1/2a clinical trial that’s evaluating the treatment in people with Parkinson’s disease. https://parkinsonsnewstoday.com/news/aspen-wins-8-m-advance-stem-cell-therapy-parkinsons-disease/
The grant, funded by the California Institute for Regenerative Medicine (CIRM), will support the ongoing Phase 1/2a clinical trial that’s evaluating the treatment in people with Parkinson’s disease. https://parkinsonsnewstoday.com/news/aspen-wins-8-m-advance-stem-cell-therapy-parkinsons-disease/
Farooqji
in
Cure Parkinson's
2 months ago
Informal Survey for Afib Sufferers
I have had to cut out many foods and drinks from my diet because of celiac disease and problems with trapped gas which were triggering my Afib. Solving my digestive issues has been very effective in also eliminating Afib episodes. My "survey" question is: Would you share with forum readers what foods
I have had to cut out many foods and drinks from my diet because of celiac disease and problems with trapped gas which were triggering my Afib. Solving my digestive issues has been very effective in also eliminating Afib episodes. My "survey" question is: Would you share with forum readers what foods
fibnum
in
AF Association
9 months ago
Clinical Trial using Pluvicto without chemo? Anyone know of any I can try?
Failed second line and looking for a clinical trial. I don't want to do chemo. Please let me know! Thx
Failed second line and looking for a clinical trial. I don't want to do chemo. Please let me know! Thx
Youngman-
in
Advanced Prostate Cancer
2 months ago
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