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PSA going down, but ALP increasing
I'm 3 weeks into a clinical trial for ARV-766, an AR degrader. At 2 weeks, my PSA had dropped from 133 to 66! Bone pain is much less. All my liver numbers are fine, but alkaline phosphatase has gone from 199 when I started to 429 at two weeks and 519 at three weeks. Doc thinks may just be a surge, but
I'm 3 weeks into a clinical trial for ARV-766, an AR degrader. At 2 weeks, my PSA had dropped from 133 to 66! Bone pain is much less. All my liver numbers are fine, but alkaline phosphatase has gone from 199 when I started to 429 at two weeks and 519 at three weeks. Doc thinks may just be a surge, but
rsgdmd
in
Advanced Prostate Cancer
1 month ago
Mistery therapy: Gastrin-releasing peptide receptors s target for PCa
I will have to dig deeper to find the 4 clinical trials mentioned, but here is the text "Each tumor has its own distinctive molecular identity. Treatment, therefore, should be tailored to this unique cancer phenotype. Theragnostics uses the same compound for targeted imaging and treatment, radiolabeled
I will have to dig deeper to find the 4 clinical trials mentioned, but here is the text "Each tumor has its own distinctive molecular identity. Treatment, therefore, should be tailored to this unique cancer phenotype. Theragnostics uses the same compound for targeted imaging and treatment, radiolabeled
Maxone73
in
Advanced Prostate Cancer
1 month ago
Slip Up!
After posting numerous comments on this forum discussing my success at avoiding Afib through controlling gas buildup, I feel that it is important to be candid about any setbacks. This past Saturday, I was awakened at 4:30 AM with Afib and remained in arrhythmia for 8 hours. I waited it out and have
After posting numerous comments on this forum discussing my success at avoiding Afib through controlling gas buildup, I feel that it is important to be candid about any setbacks. This past Saturday, I was awakened at 4:30 AM with Afib and remained in arrhythmia for 8 hours. I waited it out and have
fibnum
in
AF Association
9 months ago
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Update - Bisoprolol to Diltiazem
Just to update from my previous post where I mentioned changing from Bisoprolol to Diltiazem. I had been on 1.25 mg Bisoprolol for about 5 months but hated the awful side effects (tiredness and shortness of breath) and found I was in AF most days, even tried Flecainide twice daily but that did nothing
Just to update from my previous post where I mentioned changing from Bisoprolol to Diltiazem. I had been on 1.25 mg Bisoprolol for about 5 months but hated the awful side effects (tiredness and shortness of breath) and found I was in AF most days, even tried Flecainide twice daily but that did nothing
tealdozer
in
AF Association
9 months ago
Ablation
Here we go, I was expecting this when I saw my EP last night. Having breakthrough episodes of afib lasting over 30 hours whilst in Sotalol. My EP is not concerned about the frequency (paroxysmal afib) but the fact that they are lasting 30 hours plus he isn't happy with So, I was placed on his NHS waiting
Here we go, I was expecting this when I saw my EP last night. Having breakthrough episodes of afib lasting over 30 hours whilst in Sotalol. My EP is not concerned about the frequency (paroxysmal afib) but the fact that they are lasting 30 hours plus he isn't happy with So, I was placed on his NHS waiting
Karendeena
in
AF Association
9 months ago
Exercise or not
I felt afib or irregular heartbeat start at about 423 am today but I slept and woke about 630 am with af still there. I tried deep breathing but about 830 I took my pip, flecainide 50mg prescribed four and a half years ago by cardiologist. I saw him 6 months after I was diagnosed. My question is: is
I felt afib or irregular heartbeat start at about 423 am today but I slept and woke about 630 am with af still there. I tried deep breathing but about 830 I took my pip, flecainide 50mg prescribed four and a half years ago by cardiologist. I saw him 6 months after I was diagnosed. My question is: is
Camelia23
in
AF Association
9 months ago
The TheraPb clinical trial of targeted alpha therapy for prostate cancer is running for three years with plans for up to 100 patients
Princess Alexandra Hospital home to world first cancer trial Published Tuesday, 16 April, 2024 at 02:37 PM Minister for Health, Mental Health and Ambulance Services and Minister for Women The Honourable Shannon Fentiman A new treatment is being trialled for the first time at the PA Hospital to fight
Princess Alexandra Hospital home to world first cancer trial Published Tuesday, 16 April, 2024 at 02:37 PM Minister for Health, Mental Health and Ambulance Services and Minister for Women The Honourable Shannon Fentiman A new treatment is being trialled for the first time at the PA Hospital to fight
Seasid
in
Advanced Prostate Cancer
1 month ago
Next future of CRISPR?
”Over the next 3 to 5 years, we have 70 in phase 2 clinical trials. We have, I believe, around 30, in the phase 3 clinical trials space” https://www.ajmc.com/view/dr-yuqian-liu-investigates-the-future-benefits-of-cell-gene-therapies-using-real-world-data
”Over the next 3 to 5 years, we have 70 in phase 2 clinical trials. We have, I believe, around 30, in the phase 3 clinical trials space” https://www.ajmc.com/view/dr-yuqian-liu-investigates-the-future-benefits-of-cell-gene-therapies-using-real-world-data
Maxone73
in
Advanced Prostate Cancer
1 month ago
First Patient Dosed in First-in-Human Phase 1/2a Clinical Trial of Autologous Neuronal Cell Replacement Therapy for Parkinson's Disease
Aspen Neuroscience, Inc. announced that the first patient has been dosed in the ASPIRO trial, a Phase 1/2a open label clinical trial to assess safety and tolerability of ANPD001, an autologous, dopaminergic neuron cell replacement therapy for participants with moderate to severe Parkinson's disease (
Aspen Neuroscience, Inc. announced that the first patient has been dosed in the ASPIRO trial, a Phase 1/2a open label clinical trial to assess safety and tolerability of ANPD001, an autologous, dopaminergic neuron cell replacement therapy for participants with moderate to severe Parkinson's disease (
Farooqji
in
Cure Parkinson's
2 months ago
Need advice on clinical trial RO7656594
I have updated our profile, but in a nutshell we've gone through abiraterone, Xtandi, docetaxel, Pluvicto , cabazitaxel and carboplatin. My husband's most recent PSA on 4/12 was 79.52. His MO has put a hold on chemo our last 3 appointments due to pancytopenia. He's received 2 blood transfusions on his
I have updated our profile, but in a nutshell we've gone through abiraterone, Xtandi, docetaxel, Pluvicto , cabazitaxel and carboplatin. My husband's most recent PSA on 4/12 was 79.52. His MO has put a hold on chemo our last 3 appointments due to pancytopenia. He's received 2 blood transfusions on his
Yadifan
in
Advanced Prostate Cancer
2 months ago
B12 deficiency: a hidden trigger of inflammation?
This was posted on the Pernicious Anaemia Society forum - but I thought it might be of interest to the many here who have inflammation. [i]News Release 17-Oct-2023[/i] [i]
B12 deficiency: a hidden trigger of inflammation?
[/i] [i]Peer-Reviewed Publication[/i] [i]Society of Chemical Industry[
This was posted on the Pernicious Anaemia Society forum - but I thought it might be of interest to the many here who have inflammation. [i]News Release 17-Oct-2023[/i] [i]
B12 deficiency: a hidden trigger of inflammation?
[/i] [i]Peer-Reviewed Publication[/i] [i]Society of Chemical Industry[
helvella
Thyroid UK
in
Thyroid UK
2 months ago
Clinical trial update
Trial Drugs: Inavolisib and Giredestrant. Today was my second set of scans (every 8 weeks) and the results of the chest CT and Bone scans were great, nothing new, all stable and NED in lungs. The abdomen CT showed slight increase in the size of my liver lesions. I am ER+, HER2 low +1, PR-, AR+, with
Trial Drugs: Inavolisib and Giredestrant. Today was my second set of scans (every 8 weeks) and the results of the chest CT and Bone scans were great, nothing new, all stable and NED in lungs. The abdomen CT showed slight increase in the size of my liver lesions. I am ER+, HER2 low +1, PR-, AR+, with
Trissh
in
SHARE Metastatic Breast Cancer
2 months ago
Anyone participated in AMG 509 Clinical trial? - NCT04221542
Hello Please update us if you are participate in AMG 509. Anything you know about AMG 509 ? Study of AMG 509 in Participants With Metastatic Castration-Resistant Prostate Cancer
Hello Please update us if you are participate in AMG 509. Anything you know about AMG 509 ? Study of AMG 509 in Participants With Metastatic Castration-Resistant Prostate Cancer
God_Loves_Me
in
Advanced Prostate Cancer
2 months ago
What if?
I mentioned to you that one of the main premises of the Summit was to think about "what ifs" that we could change about how PBC is perceived and/or treated. One of these suggestions was "
what if
" we could totally eliminate the use of placebos in all clinical trials. Some of you may have participated
I mentioned to you that one of the main premises of the Summit was to think about "what ifs" that we could change about how PBC is perceived and/or treated. One of these suggestions was "
what if
" we could totally eliminate the use of placebos in all clinical trials. Some of you may have participated
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Bisoprolol and PIP
Hi, I unfortunately had a 14 hr A and E visit on Friday. I stated early evening. I am on 60mg of bisoprolol and 1.25 of Bisoprolol. So took another 1.25 and after a few hours still in AF so had to go. I have asthma and I have felt that lately I thought the Bisoprolol was to blame for more shortness of
Hi, I unfortunately had a 14 hr A and E visit on Friday. I stated early evening. I am on 60mg of bisoprolol and 1.25 of Bisoprolol. So took another 1.25 and after a few hours still in AF so had to go. I have asthma and I have felt that lately I thought the Bisoprolol was to blame for more shortness of
Rhoded
in
AF Association
9 months ago
linesteps 1
hi all , at present my af burden is quite low compared to others I have an episode approx every 2 weeks lasting no more than 24hrs , on eliquis and a statin , I dont think about what causes it cos it drive me mad !! I’ve done the obligatory , no alcohol ,balanced healthy diet don’t smoke plenty of
hi all , at present my af burden is quite low compared to others I have an episode approx every 2 weeks lasting no more than 24hrs , on eliquis and a statin , I dont think about what causes it cos it drive me mad !! I’ve done the obligatory , no alcohol ,balanced healthy diet don’t smoke plenty of
Linesteps
in
AF Association
9 months ago
question for those who have stopped Lupron after many years of ADT
I have been on Lupron for 8 years with the short-term exception of a high/T clinical trial,( but even during the trial I stayed on Lupron). Anyway I’m undetectable and decided to stop Lupron. 3 months after not getting my shot my T is now a whopping 37. I am curious to hear from some of you who
I have been on Lupron for 8 years with the short-term exception of a high/T clinical trial,( but even during the trial I stayed on Lupron). Anyway I’m undetectable and decided to stop Lupron. 3 months after not getting my shot my T is now a whopping 37. I am curious to hear from some of you who
Chugach
in
Advanced Prostate Cancer
2 months ago
Homeward bound...soon
Four amazing days have come to an end. Attending The International PBC Foundation Summit was nothing short of amazing ! Patients, patient advocates, nurses, and clinicians all together to make our lives better while educating others about our rare disease. There were several topics of "what if " that
Four amazing days have come to an end. Attending The International PBC Foundation Summit was nothing short of amazing ! Patients, patient advocates, nurses, and clinicians all together to make our lives better while educating others about our rare disease. There were several topics of "what if " that
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Have taken the plunge full Thyroid test!
Hi After reading many posts on here regarding Thyroid testing I have just received a full Thyroid Function test from Blue Horizon. My Thyroid has not been medicated correctly since I started taking 100mg Levothyroxine 4 yrs ago. Everytime I have a test the parameters seem to change from one test to
Hi After reading many posts on here regarding Thyroid testing I have just received a full Thyroid Function test from Blue Horizon. My Thyroid has not been medicated correctly since I started taking 100mg Levothyroxine 4 yrs ago. Everytime I have a test the parameters seem to change from one test to
Ontherun81
in
Thyroid UK
2 months ago
follow up post laparoscopy?
hello all, I hope you’re having a comfortable day. Can I ask what others have had experience of post lap with regards to appointments to discuss findings/treatment/recovery etc? (UK/NHS) I had my first laparoscopy last Tuesday. Confirmed endo and merina replaced. I am in a clinical trial so I
hello all, I hope you’re having a comfortable day. Can I ask what others have had experience of post lap with regards to appointments to discuss findings/treatment/recovery etc? (UK/NHS) I had my first laparoscopy last Tuesday. Confirmed endo and merina replaced. I am in a clinical trial so I
JEWM
in
Endometriosis UK
2 months ago
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