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Atimos Modulite
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Hoping for the best
Last year I was diagnosed with advanced Stage 3 prostate cancer. The cancer had spread to the seminal vesicles but there was no further invasion that could be detected. Surgery failed because the prostate was to closely adhered to the rectum, so I underwent 45 sessions of IMRT. I am now on Abiraterone
Last year I was diagnosed with advanced Stage 3 prostate cancer. The cancer had spread to the seminal vesicles but there was no further invasion that could be detected. Surgery failed because the prostate was to closely adhered to the rectum, so I underwent 45 sessions of IMRT. I am now on Abiraterone
Hidden
in
Advanced Prostate Cancer
2 years ago
UPDATE AFTER IMRT
Haven't posted in a while, but here's a quick update (My Bio has the full details from diagnosis to present.). After recovering from RALP in mid February I had my PSA checked in late May. PSA was 8.11 which led to my Urology Oncologist (UO) starting me on Casodex & Eligard, and ordering a GA-68 PSMA-PET
Haven't posted in a while, but here's a quick update (My Bio has the full details from diagnosis to present.). After recovering from RALP in mid February I had my PSA checked in late May. PSA was 8.11 which led to my Urology Oncologist (UO) starting me on Casodex & Eligard, and ordering a GA-68 PSMA-PET
GMan-62
in
Advanced Prostate Cancer
2 years ago
Lookin for next phase of my PC fight
Just a short background. Surgery in 2009, IMRT completed in 08/2021 when PSA was at 0.12. I had a negative PSMA pet scan when my PSA was 0.3. My latest PSA result on 11/4/20222 was 0.42 up from 0.3 6 months ago. Because of my age, my Oncologist wants to wait as long as possible before starting me
Just a short background. Surgery in 2009, IMRT completed in 08/2021 when PSA was at 0.12. I had a negative PSMA pet scan when my PSA was 0.3. My latest PSA result on 11/4/20222 was 0.42 up from 0.3 6 months ago. Because of my age, my Oncologist wants to wait as long as possible before starting me
old64horn
in
Advanced Prostate Cancer
2 years ago
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Sacrum tumor biopsy
F/U on my post about Lynparza on my hubby, suggesting biopsy prior to IMRT, but at 80 yrs old, worried about risks going through bone and side effects. Dx last year with pc with meths to bones, G9, Orch last year, been on Nubeqa, other mets stable and psa still at <0.1. New met in Sacrum RO says was
F/U on my post about Lynparza on my hubby, suggesting biopsy prior to IMRT, but at 80 yrs old, worried about risks going through bone and side effects. Dx last year with pc with meths to bones, G9, Orch last year, been on Nubeqa, other mets stable and psa still at <0.1. New met in Sacrum RO says was
Pops78
in
Advanced Prostate Cancer
2 years ago
Anyone on Lymparza with positive results?
Have bone mets but been on Nubequa since 01/22 and have more mets now at Sacrum and tail bone. Orch last year with good PSA since. Either 3D or IMRT to start soon x 10 days for 3D, (not sure time for IMRT). RO says mets there on scans of 2/22 but small, now larger. We didn't know. MO wants to
Have bone mets but been on Nubequa since 01/22 and have more mets now at Sacrum and tail bone. Orch last year with good PSA since. Either 3D or IMRT to start soon x 10 days for 3D, (not sure time for IMRT). RO says mets there on scans of 2/22 but small, now larger. We didn't know. MO wants to
Pops78
in
Advanced Prostate Cancer
2 years ago
What Do You Make of This?
https://www.redjournal.org/article/S0360-3016(22)03349-1/fulltext I had a Gleason 4 tumor (2 cm x 1 cm) with a PSA in the 20's. Is this saying that targeted treatment with no or limited ADT would have been sufficient, especially if HDR brachytherapy were used with IMRT?
https://www.redjournal.org/article/S0360-3016(22)03349-1/fulltext I had a Gleason 4 tumor (2 cm x 1 cm) with a PSA in the 20's. Is this saying that targeted treatment with no or limited ADT would have been sufficient, especially if HDR brachytherapy were used with IMRT?
ADTMan
in
Advanced Prostate Cancer
2 years ago
Biomarkers as Predictive Tools for Selection of Treatment
A good reference for the state of art in biomarkers...some good work is being done that may help the community of men in this group. Be forewarned; PSA of 4.0 is useless...the Dr in this presentation says; "Its one of the worst decision in Oncology." DO NOT wait for PSA to get this high...do not depend
A good reference for the state of art in biomarkers...some good work is being done that may help the community of men in this group. Be forewarned; PSA of 4.0 is useless...the Dr in this presentation says; "Its one of the worst decision in Oncology." DO NOT wait for PSA to get this high...do not depend
RMontana
in
Active Surveillance - Prostate Cancer
2 years ago
Blood in the urine
Two months ago I noticed blood in my Urine. It only happened once but then in September, it happened again so my Urologist performed a cystoscopy in his office and saw some irritation in the bladder that may have been a result of the IMRT I had last year. . He ordered a CT scan of my groin area that
Two months ago I noticed blood in my Urine. It only happened once but then in September, it happened again so my Urologist performed a cystoscopy in his office and saw some irritation in the bladder that may have been a result of the IMRT I had last year. . He ordered a CT scan of my groin area that
old64horn
in
Advanced Prostate Cancer
2 years ago
Change in orgasm feeling after PCa treatment?
Gents, Curious: are you able to orgasm after PCa treatment? If so, is the feeling different than pre-treatment? How is it different? I had IMRT, ADT, and brachyboost. Definitely different for me pre/post- treatment. Sensation is not as intense now. Location of pleasure seems to be more concentrated
Gents, Curious: are you able to orgasm after PCa treatment? If so, is the feeling different than pre-treatment? How is it different? I had IMRT, ADT, and brachyboost. Definitely different for me pre/post- treatment. Sensation is not as intense now. Location of pleasure seems to be more concentrated
EdinBmore
in
Prostate Cancer And Gay Men
2 years ago
Gleason 9 with mets and PCA = 3.7 at time of diagnosis
1st post, I've been reading and learning. Full story is in my bio. Today marks 3 months since I've started ADT, I just had my second Eligard injection and have completed my second month on Zytiga & Prednisone. I also completed day 15 off 44 - IMRT. My PSA was 3.7 at the time of diagnosis, I found
1st post, I've been reading and learning. Full story is in my bio. Today marks 3 months since I've started ADT, I just had my second Eligard injection and have completed my second month on Zytiga & Prednisone. I also completed day 15 off 44 - IMRT. My PSA was 3.7 at the time of diagnosis, I found
Huzzah1
in
Advanced Prostate Cancer
2 years ago
PET PSMA scan and low PSA and Lurpon
Will a PET PSMA scan still essentially function as well to find out where PC lesions exist if one's PSA is low say <1, because of Lupron? Lets say the PSA without Lupron might be a 10, (also no prostatectomy was ever performed.) My radiologist wants me to get the scan so I can then get set up for
Will a PET PSMA scan still essentially function as well to find out where PC lesions exist if one's PSA is low say <1, because of Lupron? Lets say the PSA without Lupron might be a 10, (also no prostatectomy was ever performed.) My radiologist wants me to get the scan so I can then get set up for
Dave78717
in
Advanced Prostate Cancer
2 years ago
SOC options have run out, PSMA negative, declining health - what's next?
My husband was diagnosed with high grade prostate cancer in 4/06 Gleason 4+3=7 in 12/12 cores with 90 to 100% involvement of the tissue cores. His original clinical staging was T2c versus T3. PSA at that time was 6.4. -First treatment was brachytherapy and IMRT. Undetectable PSA never reached. -Recurrance
My husband was diagnosed with high grade prostate cancer in 4/06 Gleason 4+3=7 in 12/12 cores with 90 to 100% involvement of the tissue cores. His original clinical staging was T2c versus T3. PSA at that time was 6.4. -First treatment was brachytherapy and IMRT. Undetectable PSA never reached. -Recurrance
Hidden
in
Advanced Prostate Cancer
2 years ago
Serrapeptase
Has anyone used serrapeptase to help with inflammation and the development of urethra scar tissue after IMRT. I have read it is used in Europe to help alleviate pulmonary fibrosis, apparently it has fibrin dissolving properties.
Has anyone used serrapeptase to help with inflammation and the development of urethra scar tissue after IMRT. I have read it is used in Europe to help alleviate pulmonary fibrosis, apparently it has fibrin dissolving properties.
watertender
in
Advanced Prostate Cancer
2 years ago
CBC EVERY 2 WEEKS DURING IMRT
I've had 6 of 38 IMRT sessions so far. My RO is having a CBC done every 2 weeks, and my first one was today. Everything was normal except for 3 areas that were low. WBC is at 3.2 k u/L, Hemoglobin (Only) is 13.5 g/dL, and Hematocrit (Only) is 39.1%. I won't be meeting with my RO again until Wednesday
I've had 6 of 38 IMRT sessions so far. My RO is having a CBC done every 2 weeks, and my first one was today. Everything was normal except for 3 areas that were low. WBC is at 3.2 k u/L, Hemoglobin (Only) is 13.5 g/dL, and Hematocrit (Only) is 39.1%. I won't be meeting with my RO again until Wednesday
GMan-62
in
Advanced Prostate Cancer
2 years ago
DOES MEDICARE COVER DEXA SCANS FOR MEN WITH PROSTATE CANCER
I have been on Casodex and Eligard since June 2022. My PSA was still high after RALP so I had a GA-68 PSMA PET Scan done which revealed one 11mm tumor in the Left pelvic Lymph Nodes and one 7mm Tumor in the Right pelvic Lymph Nodes. Those were the only 2 hot spots in my body. My Dr. scheduled me for
I have been on Casodex and Eligard since June 2022. My PSA was still high after RALP so I had a GA-68 PSMA PET Scan done which revealed one 11mm tumor in the Left pelvic Lymph Nodes and one 7mm Tumor in the Right pelvic Lymph Nodes. Those were the only 2 hot spots in my body. My Dr. scheduled me for
GMan-62
in
Advanced Prostate Cancer
2 years ago
TO TAKE OR TO WAIT
Quick recap. 5/27/2022 - First PSA Test Results since RALP - 8.11 6/1/2022 - Started Bicalutamide one 50mg Tab daily (will stop taking 7/30/22.) 6/14/2022 - Started Eligard 30 mg 4 month dose. 6/15/2022 - Did GA 68 LOCAMETZ PSMA-PET Scan. PET Scan showed an 11m soft tissue nodule in the posterolateral
Quick recap. 5/27/2022 - First PSA Test Results since RALP - 8.11 6/1/2022 - Started Bicalutamide one 50mg Tab daily (will stop taking 7/30/22.) 6/14/2022 - Started Eligard 30 mg 4 month dose. 6/15/2022 - Did GA 68 LOCAMETZ PSMA-PET Scan. PET Scan showed an 11m soft tissue nodule in the posterolateral
GMan-62
in
Advanced Prostate Cancer
2 years ago
T and PSA basically undetectable. Is adding testosterone or having a colonoscopy 3 years post treatment a good or bad idea for the elderly?
Cancer in late 2019 was G9 with no indication of escaping the capsule. PSA was <10. Treatment initially casodex followed by one session high dose brachy, 25 sessions IMRT and 18 months Lupron. Currently PSA undetectable and T still <2.5. Pushing through a regular exercise routine but have no energy
Cancer in late 2019 was G9 with no indication of escaping the capsule. PSA was <10. Treatment initially casodex followed by one session high dose brachy, 25 sessions IMRT and 18 months Lupron. Currently PSA undetectable and T still <2.5. Pushing through a regular exercise routine but have no energy
VN6465
in
Prostate Cancer Network
2 years ago
Good News-But Do I Belong Here?
Hello all. I comment/reply sometimes (usually about exercise), but create posts much less often. It's been awhile though, and something has come up that prompts this one, Quick recap: RP in June '19 and a subsequent clinical trial beginning Sept '19 due to positive lymph node and seminal vesicle invasion
Hello all. I comment/reply sometimes (usually about exercise), but create posts much less often. It's been awhile though, and something has come up that prompts this one, Quick recap: RP in June '19 and a subsequent clinical trial beginning Sept '19 due to positive lymph node and seminal vesicle invasion
London441
in
Advanced Prostate Cancer
2 years ago
Raising PSA with 6 months of RALP
Hi guys/ladies. I am writing this post for my son. We need your thoughts. He is a 49 yr. old male, who had RALP for pc on 3/7/22: Path : staging, pT2, pN not assigned (no nodes submitted); gleason 3+4=7, patt. 5 (less than 5%) Tumor Quan. 5%; multifocal; neg. epe; pos. sur. margin at left apex.
Hi guys/ladies. I am writing this post for my son. We need your thoughts. He is a 49 yr. old male, who had RALP for pc on 3/7/22: Path : staging, pT2, pN not assigned (no nodes submitted); gleason 3+4=7, patt. 5 (less than 5%) Tumor Quan. 5%; multifocal; neg. epe; pos. sur. margin at left apex.
Papillon2
in
Advanced Prostate Cancer
2 years ago
NEXT STEP IMRT
Just wanted to give an update on my treatment. Everything seems to be tracking along the same lines as we have discussed. Wanted to thank Tall Allen for the information provided. It has really helped me in talking with my Cancer Team. Knowing what to expect and being able to actually discuss my treatment
Just wanted to give an update on my treatment. Everything seems to be tracking along the same lines as we have discussed. Wanted to thank Tall Allen for the information provided. It has really helped me in talking with my Cancer Team. Knowing what to expect and being able to actually discuss my treatment
GMan-62
in
Advanced Prostate Cancer
2 years ago
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