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Tocilizumab
I have GCA and PMR. I am on 40mg Pred. The inflammation markers have normalised, but I still have headaches. Doctors want to reduce Pred because of the side effects I am experiencing. I started Methotrexate injections, but they were paused for the last two weeks to see if they were causing the headaches
I have GCA and PMR. I am on 40mg Pred. The inflammation markers have normalised, but I still have headaches. Doctors want to reduce Pred because of the side effects I am experiencing. I started Methotrexate injections, but they were paused for the last two weeks to see if they were causing the headaches
PQXZT
in
PMRGCAuk
2 years ago
Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide. 2nd edition. By Kate Gilbert
Have you all read the above book by Kate Gilbert? It’s a must if you are a sufferer of PMR or GCA. So much sound practical information and we all know that knowledge is power. Good luck on your journey fellow sufferers. The light is at the end of the tunnel. XxX
Have you all read the above book by Kate Gilbert? It’s a must if you are a sufferer of PMR or GCA. So much sound practical information and we all know that knowledge is power. Good luck on your journey fellow sufferers. The light is at the end of the tunnel. XxX
SouthStrand
in
PMRGCAuk
2 years ago
Inflammatory arthritis vs Osteoarthritis
what is the difference between these 2 types of arthritis, symptons? bloodwork?? how is one diagnosed from the other
what is the difference between these 2 types of arthritis, symptons? bloodwork?? how is one diagnosed from the other
arvine
in
PMRGCAuk
2 years ago
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conflicted!
I finally saw a rheumatologist on September 10th. She advised I continue to reduce and for the last 3 weeks I have been on 7mg of prednisone.The blood tests came back normal and in her opinion I may be treating arthritis with prednisone. Which is a no no apparently. She warned of the risk of heart attack
I finally saw a rheumatologist on September 10th. She advised I continue to reduce and for the last 3 weeks I have been on 7mg of prednisone.The blood tests came back normal and in her opinion I may be treating arthritis with prednisone. Which is a no no apparently. She warned of the risk of heart attack
AnniesRyder5
in
PMRGCAuk
2 years ago
Hashimoto's and arthritis
Can anyone tell me if having Hashimoto's can trigger flare ups with my arthritis as I am in a lot of pain at the moment
Can anyone tell me if having Hashimoto's can trigger flare ups with my arthritis as I am in a lot of pain at the moment
Loopyloo243
in
Thyroid UK
2 years ago
What treatment worked best for Seronegative Inflammatory Arthritis?
Hiya I'm a newbie to NRAS, and had lots of side effects with various treatments for SNIA (Seronegative Inflammatory Arthritis). I am just about to restart taking Baricitinib after trying Methx, Sulfzine, Tocilizumab (infusions), Benepali, etc All of the above didn't last in terms of efficacy. I did
Hiya I'm a newbie to NRAS, and had lots of side effects with various treatments for SNIA (Seronegative Inflammatory Arthritis). I am just about to restart taking Baricitinib after trying Methx, Sulfzine, Tocilizumab (infusions), Benepali, etc All of the above didn't last in terms of efficacy. I did
SeroNegArt
in
NRAS
2 years ago
Hands
Hello, I wonder if anyone here can help. My husband has Rheumatoid Arthritis and Osteoarthritis. He loves fixing things, but is finding it harder to do fine movement and often gets strong shooting pain. He is on tocilxumab infusions. He has had steroid injection before but it sent his diabetes (type
Hello, I wonder if anyone here can help. My husband has Rheumatoid Arthritis and Osteoarthritis. He loves fixing things, but is finding it harder to do fine movement and often gets strong shooting pain. He is on tocilxumab infusions. He has had steroid injection before but it sent his diabetes (type
strongmouse
in
NRAS
2 years ago
Pred affects glucose...what about thyroid?
i have been struggling to reduce my pred dose. Since I went from 22.5 to 20 every day has been different. The first day was ok. No real change. Then my pain was high....I was shakey, very tired/exhausted,efeated for the rest. Today my pain is a smidge better..but I am so tired. I have that out
i have been struggling to reduce my pred dose. Since I went from 22.5 to 20 every day has been different. The first day was ok. No real change. Then my pain was high....I was shakey, very tired/exhausted,efeated for the rest. Today my pain is a smidge better..but I am so tired. I have that out
Wallysma
in
PMRGCAuk
2 years ago
Husband in hospital with collapsed lung problems. Lost 20 kg since Feb Should his Levothyroxine have been adjusted to a lower dose?
Just a couple quick questions re the above. I don't even know if they have been testing his levels but will question this today. I am presuming they are but who knows. He is quite ill and his lung is not healing well. Has had lung drain in for 2 months now. He is constantly losing weight and they are
Just a couple quick questions re the above. I don't even know if they have been testing his levels but will question this today. I am presuming they are but who knows. He is quite ill and his lung is not healing well. Has had lung drain in for 2 months now. He is constantly losing weight and they are
Rockky
in
Thyroid UK
2 years ago
prednisolone and Covid
DOWN TO 4.5mg My Dr wants me to increase by 25mg as I have covid.I am a bit reluctant to go up that much.Would 5mg or 10mg be enough .I have temporal
arteritis
. I Have been reducing from 100mg with a lot of side effects.
DOWN TO 4.5mg My Dr wants me to increase by 25mg as I have covid.I am a bit reluctant to go up that much.Would 5mg or 10mg be enough .I have temporal
arteritis
. I Have been reducing from 100mg with a lot of side effects.
Raewynne
in
AF Association
2 years ago
change of meds
Hi I have just changed from MTX to leflunimide do I still need to take folic acid? I was off MTX for about 2 weeks before starting Lef. My psoriasis has become worse, will the 10mg of Lef.make it any better ,or will I have to up the dose , also how long before the Lef. Kicks in. Does anyone have experience
Hi I have just changed from MTX to leflunimide do I still need to take folic acid? I was off MTX for about 2 weeks before starting Lef. My psoriasis has become worse, will the 10mg of Lef.make it any better ,or will I have to up the dose , also how long before the Lef. Kicks in. Does anyone have experience
junik53
in
NRAS
2 years ago
NRAS Live: Steroid use in treating Inflammatory Arthritis
Join our Facebook Live tomorrow at 7pm with NRAS CEO Clare Jacklin in conversation with Miriam Cox & Dr Stuart Carter, Sheffield University Hospital to discuss the use of Steroids in Inflammatory Arthritis. Submit your questions https://app.sli.do/event/fUsneH9GgFXb83ozxVDTAM
Join our Facebook Live tomorrow at 7pm with NRAS CEO Clare Jacklin in conversation with Miriam Cox & Dr Stuart Carter, Sheffield University Hospital to discuss the use of Steroids in Inflammatory Arthritis. Submit your questions https://app.sli.do/event/fUsneH9GgFXb83ozxVDTAM
Aribah-NRAS
NRAS
in
NRAS
2 years ago
The Polymyalgia Rheumatica Diet: The Ultimate Nutritional Guide To Reversing And Managing Polymyalgia Rheumatica And Giant Cell Arteritis
Has anyone read this book by Hunwick Debby? Did they find it useful? Generally does your diet help improve your condition?
Has anyone read this book by Hunwick Debby? Did they find it useful? Generally does your diet help improve your condition?
Yorksman
in
PMRGCAuk
2 years ago
Here we go again!
GCA/PMR for over 5 years. Pred down to 6mg . Been taken off Tocilizumab but can’t tolerate other steroid sparers. Had appointment with Rheumie and blood test. CRP high so PET scan arranged. She has put me back up to 40mg as inflammation showing in all usual places. It feels like back to square 1. Has
GCA/PMR for over 5 years. Pred down to 6mg . Been taken off Tocilizumab but can’t tolerate other steroid sparers. Had appointment with Rheumie and blood test. CRP high so PET scan arranged. She has put me back up to 40mg as inflammation showing in all usual places. It feels like back to square 1. Has
broomfield28
in
PMRGCAuk
2 years ago
Methotrexate, Rheumatoid arthritis.
Hi Thank you in advance for any replies to this post, I had been taking Methotrexate tablets for around 4 Months and around 12 weeks ago was moved to self administered injections, I don’t feel any better than I did at the start of the medication, and I have noticed that my condition seems to flare
Hi Thank you in advance for any replies to this post, I had been taking Methotrexate tablets for around 4 Months and around 12 weeks ago was moved to self administered injections, I don’t feel any better than I did at the start of the medication, and I have noticed that my condition seems to flare
Spearos
in
Cure Arthritis Community
2 years ago
Advice about Symptoms
Hi This is my first post so im sorry if this has been asked before, I am in my 50s and all my adult life I have had various ailments which have always tested negative : arthritis, allergies, nerve damage , I’ve had discoid eczema, LP , tests for bladder and kidney issues etc I have an appointment
Hi This is my first post so im sorry if this has been asked before, I am in my 50s and all my adult life I have had various ailments which have always tested negative : arthritis, allergies, nerve damage , I’ve had discoid eczema, LP , tests for bladder and kidney issues etc I have an appointment
Shir66
in
LUPUS UK
2 years ago
perforated septum - RArelated
anyone here developed perforated septum (hole in nose cartilage) with their RA? if so, any advice on management or treatments? Hospital gave me antibiotic cream and didn’t want to advise/consider other treatment or advice. When II first noticed it was there I thought I must have caused it myself
anyone here developed perforated septum (hole in nose cartilage) with their RA? if so, any advice on management or treatments? Hospital gave me antibiotic cream and didn’t want to advise/consider other treatment or advice. When II first noticed it was there I thought I must have caused it myself
Barbara_Stark
in
NRAS
2 years ago
Scared about the outlook
Also have headaches still do which they thought temple
arteritis
but they were not sure so put on steroids which haven’t made much difference. It’s just all been overwhelming don’t know where I’m at my emotions are all over the place.
Also have headaches still do which they thought temple
arteritis
but they were not sure so put on steroids which haven’t made much difference. It’s just all been overwhelming don’t know where I’m at my emotions are all over the place.
Mauver
in
The Roy Castle Lung Cancer Foundation
2 years ago
weight loss
hi, Has anyone experienced weight loss due to rheumatoid arthritis? I have lost about a stone in the last 3 years ,since diagnosed I have had blood tests via GP and rheumatologist but can’t explain why. I take 12.5 methotrexate injection once a week. I am so tired all the time lately. 😞
hi, Has anyone experienced weight loss due to rheumatoid arthritis? I have lost about a stone in the last 3 years ,since diagnosed I have had blood tests via GP and rheumatologist but can’t explain why. I take 12.5 methotrexate injection once a week. I am so tired all the time lately. 😞
jarujuda
in
NRAS
2 years ago
Thyroid and Positive ANA Test
I have an under active thyroid and have been on 150 Levothyroxine for a few years. Latest blood tests show my thyroid is where it should be. Last year my hands and feet got painful and swollen and X-rays of my hands show osteoarthritis. Doc ordered more blood tests to check,for Rheumatoid Arthritis.
I have an under active thyroid and have been on 150 Levothyroxine for a few years. Latest blood tests show my thyroid is where it should be. Last year my hands and feet got painful and swollen and X-rays of my hands show osteoarthritis. Doc ordered more blood tests to check,for Rheumatoid Arthritis.
Plug123
in
Thyroid UK
2 years ago
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