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Experiences with
Arteritis
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Newly diagnosed
I have Giant Cell
Arteritis
, Polymyalgia Rheumatica, Hashimoto’s, IBS, Intestitial Cystitis and Reynaud’s. A year ago I had a heart attack. Last week I was diagnosed with fibromyalgia. Otherwise I am terrific (🤪). My doctor wants me to go on Effexor.
I have Giant Cell
Arteritis
, Polymyalgia Rheumatica, Hashimoto’s, IBS, Intestitial Cystitis and Reynaud’s. A year ago I had a heart attack. Last week I was diagnosed with fibromyalgia. Otherwise I am terrific (🤪). My doctor wants me to go on Effexor.
Miacaro45
in
Fibromyalgia Action UK
7 days ago
MGUS and PMR/GCA
In that study, history of giant cell
arteritis
, polymyalgia rheumatica and rheumatoid arthritis was associated with a significantly increased risk of MGUS [91]. " https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4900299/
In that study, history of giant cell
arteritis
, polymyalgia rheumatica and rheumatoid arthritis was associated with a significantly increased risk of MGUS [91]. " https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4900299/
kp60
in
PMRGCAuk
4 months ago
GCA or Occipital Neauralgia
I’ve seen a rheumatologist three times in the last year Re:Temporal
Arteritis
. I’ve had a biopsy which came back negative, because previously my doctor prescribed steroids for inflammation and head pain. Rheumatologist prescribed 50mg of prednisone after a while to be gradually reduced.
I’ve seen a rheumatologist three times in the last year Re:Temporal
Arteritis
. I’ve had a biopsy which came back negative, because previously my doctor prescribed steroids for inflammation and head pain. Rheumatologist prescribed 50mg of prednisone after a while to be gradually reduced.
Qscrabble8
in
PMRGCAuk
5 days ago
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Tired of all of this
Have Giant Cell
Arteritis
, Polymyalgia Rheumatica, MGUS, and possibly MGRS. They just listen to my heartbeat and tell me I am fine. I know my heart is involved in all of this, but no one will listen to me.
Have Giant Cell
Arteritis
, Polymyalgia Rheumatica, MGUS, and possibly MGRS. They just listen to my heartbeat and tell me I am fine. I know my heart is involved in all of this, but no one will listen to me.
phebamom
in
British Heart Foundation
6 months ago
Thank you
I've been told it's Giant Cell
Arteritis
, Vasculitis, Aortitis, depending on who I've seen in Rheumatology.
I've been told it's Giant Cell
Arteritis
, Vasculitis, Aortitis, depending on who I've seen in Rheumatology.
Dance62
in
PMRGCAuk
2 months ago
GCA: permanent or what?
Mine is: GCA/temporal
arteritis
permanent or will it improve and disappear, or will it get worse?
Mine is: GCA/temporal
arteritis
permanent or will it improve and disappear, or will it get worse?
AlamedaCounty
in
PMRGCAuk
9 months ago
Feature on Temporal Arteritis in 'Woman's Weekly' magazine.
Just wanted to say that I've just read a health article in this weeks 'Woman's Weekly' magazine, headed 'Coping With Temporal
Arteritis
'. I was all prepared to be quite scathing about it's content, but perhaps our message is getting through!!
Just wanted to say that I've just read a health article in this weeks 'Woman's Weekly' magazine, headed 'Coping With Temporal
Arteritis
'. I was all prepared to be quite scathing about it's content, but perhaps our message is getting through!!
Kendrew
in
PMRGCAuk
4 months ago
Afib, inflammation and NSAIDs
I have Afib, polymyalgia, giant cell
arteritis
, bursitis, arthritis, spondylitis, tendonitis, IBS etc. Is there a connection between Afib and inflammation? I am unable to take NSAIDs due to being on edoxaban. Since being on DOACs my inflammation has got worse.
I have Afib, polymyalgia, giant cell
arteritis
, bursitis, arthritis, spondylitis, tendonitis, IBS etc. Is there a connection between Afib and inflammation? I am unable to take NSAIDs due to being on edoxaban. Since being on DOACs my inflammation has got worse.
Broseley
in
Atrial Fibrillation Support
2 months ago
return of throbbing after stopping prednisolone
Diagnosed with temporal
arteritis
Nov 2021. Finally off prednisolone 2 weeks ago. Seem to be getting worse throbbing than when I started. 1. Is this usual? 2. Will it improve?
Diagnosed with temporal
arteritis
Nov 2021. Finally off prednisolone 2 weeks ago. Seem to be getting worse throbbing than when I started. 1. Is this usual? 2. Will it improve?
AlamedaCounty
in
PMRGCAuk
10 months ago
Newly diagnosed with a difficult decision to make
I am immunosupressed due to taking Tocilizumab for Rheumatoid Arthritis and Temporal
Arteritis
. I would appreciate any feed back before I make the decision.
I am immunosupressed due to taking Tocilizumab for Rheumatoid Arthritis and Temporal
Arteritis
. I would appreciate any feed back before I make the decision.
Teekay2
in
Kidney Disease
5 months ago
Clinical manifestations of GCA and PMR - the latest versions from Uptodate
https://www.uptodate.com/contents/clinical-manifestations-of-giant-cell-
arteritis
https://www.uptodate.com/contents/clinical-manifestations-and-diagnosis-of-polymyalgia-rheumatica?
https://www.uptodate.com/contents/clinical-manifestations-of-giant-cell-
arteritis
https://www.uptodate.com/contents/clinical-manifestations-and-diagnosis-of-polymyalgia-rheumatica?
PMRpro
Ambassador
in
PMRGCAuk
5 months ago
CRP and ESR
rheumatoid arthritis (RA) patients who have failed to respond to conventional synthetic disease‐modifying antirheumatic drugs (csDMARDs) and/or tumour necrosis factor antagonists.2 It is also approved for systemic juvenile idiopathic arthritis, polyarticular juvenile idiopathic arthritis and giant cell
arteritis
rheumatoid arthritis (RA) patients who have failed to respond to conventional synthetic disease‐modifying antirheumatic drugs (csDMARDs) and/or tumour necrosis factor antagonists.2 It is also approved for systemic juvenile idiopathic arthritis, polyarticular juvenile idiopathic arthritis and giant cell
arteritis
Joseph14612
in
PMRGCAuk
11 months ago
Did Covid trigger my GCA?
But, 3 months later in late January I was diagnosed with giant cell
arteritis
. I am still taking medication for that but I do wonder whether Covid caused an underlying inflammation problem that then led to GCA?
But, 3 months later in late January I was diagnosed with giant cell
arteritis
. I am still taking medication for that but I do wonder whether Covid caused an underlying inflammation problem that then led to GCA?
Handloomweaver
in
PMRGCAuk
7 months ago
Inflammatory Arthritis with Levothyroxine
Has anyone else had severe pains in their tendons and muscles due to Levothyroxine? 18 years ago I had an ESR blood test at my G.P.'s surgery as I had severe pains on Levothyroxine, this proved I had Inflammatory Arthritis, so I bought Armour Thyroid from the US as the only alternative at that time.
Has anyone else had severe pains in their tendons and muscles due to Levothyroxine? 18 years ago I had an ESR blood test at my G.P.'s surgery as I had severe pains on Levothyroxine, this proved I had Inflammatory Arthritis, so I bought Armour Thyroid from the US as the only alternative at that time.
Denise500
in
Thyroid UK
2 days ago
? Psoriasis on face
I have Psoaratic Arthritis and have been battling dry red scaly patches on my face. On google it does look like Psoriasis.Anyone else have this problem, and what are they using? My pharmacist has advised Epaderm which is working I think.
I have Psoaratic Arthritis and have been battling dry red scaly patches on my face. On google it does look like Psoriasis.Anyone else have this problem, and what are they using? My pharmacist has advised Epaderm which is working I think.
vonniesims
in
NRAS
7 days ago
Osteoarthritis in knee
Hello I am new on this site and would like to thank admin for letting me on here. Going back about January 2024 time my left knee started to feel a little odd at the back (ham) think this is what it's name is, anyhow about 6/8 weeks ago plucked up enough courage to see a G.P at my local doctors, a
Hello I am new on this site and would like to thank admin for letting me on here. Going back about January 2024 time my left knee started to feel a little odd at the back (ham) think this is what it's name is, anyhow about 6/8 weeks ago plucked up enough courage to see a G.P at my local doctors, a
completely-zero654
in
Couch to 5K
7 days ago
Are you a parent with Inflammatory Arthritis?
Having inflammatory arthritis can be hard, add to this the ‘joys’ of raising children and the challenges can begin to pile up. As a parent with IA, it can get frustrating, and you aren’t alone if you feel this way. We’d love to have you join our Parenting with IA meeting, a safe space for you to laugh
Having inflammatory arthritis can be hard, add to this the ‘joys’ of raising children and the challenges can begin to pile up. As a parent with IA, it can get frustrating, and you aren’t alone if you feel this way. We’d love to have you join our Parenting with IA meeting, a safe space for you to laugh
karenf-NRAS
Administrator
in
NRAS
9 days ago
Webinar - Navigating Arthritis: The Young Adult Perspective
Please join our next webinar Navigating Arthritis: The Young Adult Perspective, where we will discuss what it’s like to live with arthritis at a younger age. From navigating symptoms, looking after physical and emotional health, socialising and managing relationships, to taking control of medical appointments
Please join our next webinar Navigating Arthritis: The Young Adult Perspective, where we will discuss what it’s like to live with arthritis at a younger age. From navigating symptoms, looking after physical and emotional health, socialising and managing relationships, to taking control of medical appointments
arthritis_action
Partner
in
Arthritis Action
9 days ago
Steroid reduction
Two weeks ago I was told reduce your dosage from 4 to3 which I have done. Blood test last week and was told normal . Don't know what normal is as the past few days had pain in shoulders hips and lower back. I also have osteoarthritis in most joints so wondering if it's that that is causing all the pain
Two weeks ago I was told reduce your dosage from 4 to3 which I have done. Blood test last week and was told normal . Don't know what normal is as the past few days had pain in shoulders hips and lower back. I also have osteoarthritis in most joints so wondering if it's that that is causing all the pain
kathyrob
in
PMRGCAuk
10 days ago
Lady Julia
Hi there I was diagnosed with osteoarthritis and fibromyalgia 7years ago. I live alone with no support. Am finding it hard to cope at the moment with the relentless pain and ability to move around. Have tried everything.nothing has worked. It's only my cats that keep me going I just can't bear to let
Hi there I was diagnosed with osteoarthritis and fibromyalgia 7years ago. I live alone with no support. Am finding it hard to cope at the moment with the relentless pain and ability to move around. Have tried everything.nothing has worked. It's only my cats that keep me going I just can't bear to let
ladyjulia
in
Fibromyalgia Action UK
14 days ago
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