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A tragic but inspiring and heartwarming story about someone running to raise money for PMRGCAuk after a friend lost her sight from GCA
A big thank you to James Robinson who's running the Leeds Marathon in support of Kate, a family friend, who lost her sight due to giant cell
.
Help James raise money to support people with PMR and GCA. Help us to raise awareness so that no-one loses their sight from this disease.
A big thank you to James Robinson who's running the Leeds Marathon in support of Kate, a family friend, who lost her sight due to giant cell
.
Help James raise money to support people with PMR and GCA. Help us to raise awareness so that no-one loses their sight from this disease.
tangocharlie
in
PMRGCAuk
5 months ago
GCA or Occipital Neauralgia
I’ve seen a rheumatologist three times in the last year Re:Temporal
Arteritis
. I’ve had a biopsy which came back negative, because previously my doctor prescribed steroids for inflammation and head pain. Rheumatologist prescribed 50mg of prednisone after a while to be gradually reduced.
I’ve seen a rheumatologist three times in the last year Re:Temporal
Arteritis
. I’ve had a biopsy which came back negative, because previously my doctor prescribed steroids for inflammation and head pain. Rheumatologist prescribed 50mg of prednisone after a while to be gradually reduced.
Qscrabble8
in
PMRGCAuk
3 months ago
"Scientists achieve breakthrough in treating 'neglected' polymyalgia rheumatica" - that's the headline but don't get too excited ...
And golly-gosh - how about THIS: "Earlier this year, a review paper published in the journal Nature Reviews by Professor Dasgupta and colleagues highlighted the emerging view that relapsing PMR patients also have underlying Giant Cell
Arteritis
, where the main blood vessel aorta and its branches become
And golly-gosh - how about THIS: "Earlier this year, a review paper published in the journal Nature Reviews by Professor Dasgupta and colleagues highlighted the emerging view that relapsing PMR patients also have underlying Giant Cell
Arteritis
, where the main blood vessel aorta and its branches become
PMRpro
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in
PMRGCAuk
9 months ago
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More about the presentation by the Irish doctor posted about this week relating to GCA in PMR
responses=150488304&utm_source=notification&utm_medium=email&utm_campaign=email_individual_response and the abstract is here https://acrabstracts.org/abstract/clinical-phenotype-of-patients-with-subclinical-giant-cell-
arteritis
-in-polymyalgia-rheumatica/#:~:text=This%20suggests%20that%20patients%20with
responses=150488304&utm_source=notification&utm_medium=email&utm_campaign=email_individual_response and the abstract is here https://acrabstracts.org/abstract/clinical-phenotype-of-patients-with-subclinical-giant-cell-
arteritis
-in-polymyalgia-rheumatica/#:~:text=This%20suggests%20that%20patients%20with
PMRpro
Ambassador
in
PMRGCAuk
6 months ago
Deniese
All great till 10 days into reduction then symptoms of
arteritis
returned and went back to 60mg as directed by rheumatologist a d start process again.
All great till 10 days into reduction then symptoms of
arteritis
returned and went back to 60mg as directed by rheumatologist a d start process again.
Den73
in
PMRGCAuk
10 months ago
MGUS and PMR/GCA
In that study, history of giant cell
arteritis
, polymyalgia rheumatica and rheumatoid arthritis was associated with a significantly increased risk of MGUS [91]. " https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4900299/
In that study, history of giant cell
arteritis
, polymyalgia rheumatica and rheumatoid arthritis was associated with a significantly increased risk of MGUS [91]. " https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4900299/
kp60
in
PMRGCAuk
6 months ago
Found this on FB....
New insights into mysterious blood vessel disease temporal
arteritis
...https://medicalxpress.com/news/2023-09-insights-mysterious-blood-vessel-disease.html
New insights into mysterious blood vessel disease temporal
arteritis
...https://medicalxpress.com/news/2023-09-insights-mysterious-blood-vessel-disease.html
Joseph14612
in
PMRGCAuk
10 months ago
Increasing Prednisone to 40 mg?
I have come across Takayasu
arteritis
as a possible diagnosis. I value your thoughts and opinions. Thank you for being there.
I have come across Takayasu
arteritis
as a possible diagnosis. I value your thoughts and opinions. Thank you for being there.
Moaningxcat
in
PMRGCAuk
2 months ago
Not good
I saw a rheumatoid doctor who had me tested for giant cell
arteritis
as all the signs were showing for this and not trigeminal neuralgia , I went through the eye hospital for tests.
I saw a rheumatoid doctor who had me tested for giant cell
arteritis
as all the signs were showing for this and not trigeminal neuralgia , I went through the eye hospital for tests.
Izb1
in
Lung Conditions Community Forum
5 days ago
Thank you
I've been told it's Giant Cell
Arteritis
, Vasculitis, Aortitis, depending on who I've seen in Rheumatology.
I've been told it's Giant Cell
Arteritis
, Vasculitis, Aortitis, depending on who I've seen in Rheumatology.
Dance62
in
PMRGCAuk
5 months ago
Ateritis, arthritis... how to make friends and family recognise the difference!
I have just been trying to explain GCA to some former work colleagues and been stumped trying to convincingly make the distinction between
arteritis
and arthritis (similar pronunciation, even in French 😏) to those not familiar with our condition.
I have just been trying to explain GCA to some former work colleagues and been stumped trying to convincingly make the distinction between
arteritis
and arthritis (similar pronunciation, even in French 😏) to those not familiar with our condition.
Dochaz
in
PMRGCAuk
1 year ago
Tired of all of this
Have Giant Cell
Arteritis
, Polymyalgia Rheumatica, MGUS, and possibly MGRS. They just listen to my heartbeat and tell me I am fine. I know my heart is involved in all of this, but no one will listen to me.
Have Giant Cell
Arteritis
, Polymyalgia Rheumatica, MGUS, and possibly MGRS. They just listen to my heartbeat and tell me I am fine. I know my heart is involved in all of this, but no one will listen to me.
phebamom
in
British Heart Foundation
8 months ago
Afib, inflammation and NSAIDs
I have Afib, polymyalgia, giant cell
arteritis
, bursitis, arthritis, spondylitis, tendonitis, IBS etc. Is there a connection between Afib and inflammation? I am unable to take NSAIDs due to being on edoxaban. Since being on DOACs my inflammation has got worse.
I have Afib, polymyalgia, giant cell
arteritis
, bursitis, arthritis, spondylitis, tendonitis, IBS etc. Is there a connection between Afib and inflammation? I am unable to take NSAIDs due to being on edoxaban. Since being on DOACs my inflammation has got worse.
Broseley
in
Atrial Fibrillation Support
4 months ago
Feature on Temporal Arteritis in 'Woman's Weekly' magazine.
Just wanted to say that I've just read a health article in this weeks 'Woman's Weekly' magazine, headed 'Coping With Temporal
Arteritis
'. I was all prepared to be quite scathing about it's content, but perhaps our message is getting through!!
Just wanted to say that I've just read a health article in this weeks 'Woman's Weekly' magazine, headed 'Coping With Temporal
Arteritis
'. I was all prepared to be quite scathing about it's content, but perhaps our message is getting through!!
Kendrew
in
PMRGCAuk
6 months ago
Arthritic hands
l have had Arthritis for many many years, but recently it has got worse. Hands being the most difficult to deal with. Over the years I have bought gloves purporting to be a great help, but I have not found any that are a help at all. Can any members give me a guide on gloves , that they have found to
l have had Arthritis for many many years, but recently it has got worse. Hands being the most difficult to deal with. Over the years I have bought gloves purporting to be a great help, but I have not found any that are a help at all. Can any members give me a guide on gloves , that they have found to
Lybra
in
Arthritis Action
2 days ago
Positive rheumatoid factor and CCP
Hi ,Will try to make a long story short. In 2018 I had a RF of 381 at the time was told its not RA but osteoarthritis and my raised RF was due to my dad having severe RA so no treatment. Just over 6 weeks ago I had pain in hands so went to GP who did blood tests my RF is now 945.4 a ccp blood test has
Hi ,Will try to make a long story short. In 2018 I had a RF of 381 at the time was told its not RA but osteoarthritis and my raised RF was due to my dad having severe RA so no treatment. Just over 6 weeks ago I had pain in hands so went to GP who did blood tests my RF is now 945.4 a ccp blood test has
nomoney
in
NRAS
3 days ago
PMR flare or not…
morning all I really don’t know what to do atm. I did a slow taper down to 2.5mg Pred and at the same time I thought I’d pulled my knee doing an exercise class as my knee swelled up & felt very sore (about 6 weeks ago this started) The GP thought it was arthritis but the physio she referred me
morning all I really don’t know what to do atm. I did a slow taper down to 2.5mg Pred and at the same time I thought I’d pulled my knee doing an exercise class as my knee swelled up & felt very sore (about 6 weeks ago this started) The GP thought it was arthritis but the physio she referred me
Doraflora
in
PMRGCAuk
5 days ago
The age thing...
I just read someone's issue with their rheumatologist denying PMR due to her age and that brings up something I've been wondering about. When I was going through a divorce at age 27, in an extreme amount of stress, I developed pain in neck, lower back and both hips. Over the years knee & shoulder pain
I just read someone's issue with their rheumatologist denying PMR due to her age and that brings up something I've been wondering about. When I was going through a divorce at age 27, in an extreme amount of stress, I developed pain in neck, lower back and both hips. Over the years knee & shoulder pain
79andCounting
in
PMRGCAuk
6 days ago
does physio help
I’m a 73yr old woman who has had PMR for nearly three years. I started at 15mg of Pred reducing slowly so that I’m now on 1.5mg. My doctor tells me this is a marathon not a sprint! However I now have very stiff shoulders and neck not to mention heavy legs and stiff hand particularly when I awake. I went
I’m a 73yr old woman who has had PMR for nearly three years. I started at 15mg of Pred reducing slowly so that I’m now on 1.5mg. My doctor tells me this is a marathon not a sprint! However I now have very stiff shoulders and neck not to mention heavy legs and stiff hand particularly when I awake. I went
Gacaro
in
PMRGCAuk
6 days ago
New food intolerance
Ok, this is a bit odd, but since I got seronegative arthritis I have also developed more food sensitivity/intolerance, the most extreme being rocket leaves, which I've had twice since my diagnosis and on both occasions had severe stomach pain and vomiting. Never had that problem before I got arthritis
Ok, this is a bit odd, but since I got seronegative arthritis I have also developed more food sensitivity/intolerance, the most extreme being rocket leaves, which I've had twice since my diagnosis and on both occasions had severe stomach pain and vomiting. Never had that problem before I got arthritis
Fluffontoast
in
NRAS
6 days ago
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