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I just cancelled my upcoming appointment for next week. I am also due for Lupron infusion. How do I tell my well meaning MO that I will not be taking anymore infusions. I have been on it for almost two years this time. Why am I doing it? Because I feel miserable, the hot flashes, the sweat especially
I just cancelled my upcoming appointment for next week. I am also due for Lupron infusion. How do I tell my well meaning MO that I will not be taking anymore infusions. I have been on it for almost two years this time. Why am I doing it? Because I feel miserable, the hot flashes, the sweat especially
Blueribbon63
in
Advanced Prostate Cancer
2 months ago
metastatic prostate cancer
my dad has castrate resistant metastatic pc in bones- currently his psa is going up but his scans have been stable- he gets them Every three months- after Zytiga and xtandi are there still many treatments available- the scans were stable for over a year and he gets them Every three Months-
my dad has castrate resistant metastatic pc in bones- currently his psa is going up but his scans have been stable- he gets them Every three months- after Zytiga and xtandi are there still many treatments available- the scans were stable for over a year and he gets them Every three Months-
Chris52981
in
Advanced Prostate Cancer
7 months ago
liver lesions
I got the CT results today and I have multiple lesions showing in different liver lobes. I am currently on Flosodex and Piqray. Wondering about MRI or Biopsy? Med change? My head is spinning.đź’”
I got the CT results today and I have multiple lesions showing in different liver lobes. I am currently on Flosodex and Piqray. Wondering about MRI or Biopsy? Med change? My head is spinning.đź’”
BluHydrangea
in
SHARE Metastatic Breast Cancer
2 months ago
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My Father died
Its been 23 days since i asked here About CLL i got a lot of optimistic response and answers After my father had TP53 mutation with 17p Deletion i was told that my father wont respond to chemotherapy anymore i told my father that but his doctor insisted , a strong dose, it took 2 weeks my father
Its been 23 days since i asked here About CLL i got a lot of optimistic response and answers After my father had TP53 mutation with 17p Deletion i was told that my father wont respond to chemotherapy anymore i told my father that but his doctor insisted , a strong dose, it took 2 weeks my father
Ornate2001
in
CLL Support
2 months ago
ibrance
thanks for all the responses. I’ve been fighting metastatic bc since 2011 after 19 years from original diagnosis stage 2. Prognosis was very good. Surprised after 19 years. I was put on femara and Zometa. Then 2018 switched to ibrance , fasladex and Zometa. Oncologist retired so I went too Sloan. I ended
thanks for all the responses. I’ve been fighting metastatic bc since 2011 after 19 years from original diagnosis stage 2. Prognosis was very good. Surprised after 19 years. I was put on femara and Zometa. Then 2018 switched to ibrance , fasladex and Zometa. Oncologist retired so I went too Sloan. I ended
Jewelyn
in
SHARE Metastatic Breast Cancer
2 months ago
Avastin + Taxol + Carbo & eye problems
Hello ladies I am on the above drug combination for stage 4 clear cell cancer, & have been getting eye floaters whilst on treatment. Atm, I have just 1 huge floater thats driving me mad! Anyone else experience this? I had a head scan which came back normal. 4 days ago had round 5, so currently suffering
Hello ladies I am on the above drug combination for stage 4 clear cell cancer, & have been getting eye floaters whilst on treatment. Atm, I have just 1 huge floater thats driving me mad! Anyone else experience this? I had a head scan which came back normal. 4 days ago had round 5, so currently suffering
Kazzh
in
My Ovacome
2 months ago
Am I crazy
Hi everyone. I am HER2+ with mets to liver and bone. After treatment liver lesions undetectable and bone is stable I have been stable with no progression for 4 years on Herceptin /Prejeta. and Zometa I am in the process of booking a trip to Europe one year away. I have to book this early if I
Hi everyone. I am HER2+ with mets to liver and bone. After treatment liver lesions undetectable and bone is stable I have been stable with no progression for 4 years on Herceptin /Prejeta. and Zometa I am in the process of booking a trip to Europe one year away. I have to book this early if I
Onedayatatime60
in
SHARE Metastatic Breast Cancer
2 months ago
ibrance
I’ve been taking ibrance with faslodex since 2018. I had to stop taking ibrance because of hospitalization (3) for infections that I needed my immune system to fight. Probably 6 months. In that time I developed nodules (small) in bowel, pelvis and cervical 2. I was taken off both ibrance and faslodex
I’ve been taking ibrance with faslodex since 2018. I had to stop taking ibrance because of hospitalization (3) for infections that I needed my immune system to fight. Probably 6 months. In that time I developed nodules (small) in bowel, pelvis and cervical 2. I was taken off both ibrance and faslodex
Jewelyn
in
SHARE Metastatic Breast Cancer
2 months ago
Secondary breast cancer
Has anyone had secondary breast cancer in the bones? I need some help and advice. I had breast cancer stage 3, 7 years ago. I’ve been having a pain in my bottom for a while. First I thought it was internal haemorrhoids but now it seems to be the whole left buttock and I am wondering if the cancer has
Has anyone had secondary breast cancer in the bones? I need some help and advice. I had breast cancer stage 3, 7 years ago. I’ve been having a pain in my bottom for a while. First I thought it was internal haemorrhoids but now it seems to be the whole left buttock and I am wondering if the cancer has
maddie50
in
My Breast Cancer Community
2 months ago
Video of my first SBRT
This link is to a video of my first SBRT treatment on April 29, 2024. Thought people might be interested. https://youtu.be/KtyxcqYOnVM The CyberKnife unit is locked on the fiducials in my prostate to within 0.1 to 0.2 mm (.004 to .008 in). The internal computer follows any movement the patient make
This link is to a video of my first SBRT treatment on April 29, 2024. Thought people might be interested. https://youtu.be/KtyxcqYOnVM The CyberKnife unit is locked on the fiducials in my prostate to within 0.1 to 0.2 mm (.004 to .008 in). The internal computer follows any movement the patient make
Worked_the_World
in
Advanced Prostate Cancer
2 months ago
THIS IS NOT GOOD over 40 Liver Lesions
ON PET SCAN THEY FOUND 3 stating not psma avid on MRI stating they are psma avid How bad is this ? PSA went from in a month 0.77 to 3.61 PSA al Range May 2, 2024 3.61 ng/mL 3.61ng/mL <=3.99 ng/mL <=3.99 ng/mL Apr 4, 2024 0.77 ng/mL 0.77ng/mL <=3.99 ng/mL <=3.99 ng/mL Mar 7, 2024 0.4 ng
ON PET SCAN THEY FOUND 3 stating not psma avid on MRI stating they are psma avid How bad is this ? PSA went from in a month 0.77 to 3.61 PSA al Range May 2, 2024 3.61 ng/mL 3.61ng/mL <=3.99 ng/mL <=3.99 ng/mL Apr 4, 2024 0.77 ng/mL 0.77ng/mL <=3.99 ng/mL <=3.99 ng/mL Mar 7, 2024 0.4 ng
Shorehousejam
in
Advanced Prostate Cancer
3 months ago
Drugs interactions
I am on Lupron as the only current PC treatment. Testosterone is <>1% as of Dec/18. PCP is looking to get me on (very expensive , hard to get) Serostim to help me with HIV/PC wasting SE's Thoughts, please be kind as ADT makes me get upset for nothing. Thank you.
I am on Lupron as the only current PC treatment. Testosterone is <>1% as of Dec/18. PCP is looking to get me on (very expensive , hard to get) Serostim to help me with HIV/PC wasting SE's Thoughts, please be kind as ADT makes me get upset for nothing. Thank you.
Blueribbon63
in
Advanced Prostate Cancer
7 months ago
where to donate unused meds
hi everyone - I recently transitioned from ibrance and exemastane to Faslodex and Perjeta Herceptin injections and now I have a lot of unused and brand new meds that I want to donate. Unfortunately nobody that I have asked (breast cancer society / oncologist/ community organizer friend ) knows of
hi everyone - I recently transitioned from ibrance and exemastane to Faslodex and Perjeta Herceptin injections and now I have a lot of unused and brand new meds that I want to donate. Unfortunately nobody that I have asked (breast cancer society / oncologist/ community organizer friend ) knows of
Georgelila
in
SHARE Metastatic Breast Cancer
3 months ago
PSA after radiation and Hormone therapy prognosis
https://meetings.asco.org/abstracts-presentations/218387 I have be searching for some data on the impact of radiation and short term hormone therapy on Intermediate cancer. If anyone else has some additional data or experiences please post Background. I finishing up 25 doses of radiation to the
https://meetings.asco.org/abstracts-presentations/218387 I have be searching for some data on the impact of radiation and short term hormone therapy on Intermediate cancer. If anyone else has some additional data or experiences please post Background. I finishing up 25 doses of radiation to the
Mgtd
in
Prostate Cancer Network
7 months ago
Long complicated paper on gut microbiome and PCa, human and mouse studies.
The gut microbiome-prostate cancer crosstalk is modulated by dietary polyunsaturated long-chain fatty acids Nature Communications volume 15, Article number: 3431 (2024) PMID: 38654015 PMCID: PMC11039720 DOI: 10.1038/s41467-024-45332-w Some snippets from the paper: ”Hypercaloric diets, such as
The gut microbiome-prostate cancer crosstalk is modulated by dietary polyunsaturated long-chain fatty acids Nature Communications volume 15, Article number: 3431 (2024) PMID: 38654015 PMCID: PMC11039720 DOI: 10.1038/s41467-024-45332-w Some snippets from the paper: ”Hypercaloric diets, such as
Graham49
in
Advanced Prostate Cancer
3 months ago
Dutasteride and PSA dropping
I started taking dustasteride about 1 month ago because of high DHT and my PSA dropped from 10 to 5.5. I've read that you are supposed to double the PSA to get an "equivalent" non-dutasteride level of 11. Does anyone understand why we are supposed to double the PSA value when taking dutasteride?
I started taking dustasteride about 1 month ago because of high DHT and my PSA dropped from 10 to 5.5. I've read that you are supposed to double the PSA to get an "equivalent" non-dutasteride level of 11. Does anyone understand why we are supposed to double the PSA value when taking dutasteride?
janebob99
in
Prostate Cancer Network
7 months ago
Need practical advice re:RRP for 76 year-old in fair shape
Hi everyone, My husband, just turned 76, is having a robotic radical prostatectomy on 5/13. He is (so far) Gleason 4+3, high Decipher score., clean PSMA. We eventually chose surgery as he's also been in retention for many months due to a median lobe, he preferred that to doing a HoLep followed by radiation
Hi everyone, My husband, just turned 76, is having a robotic radical prostatectomy on 5/13. He is (so far) Gleason 4+3, high Decipher score., clean PSMA. We eventually chose surgery as he's also been in retention for many months due to a median lobe, he preferred that to doing a HoLep followed by radiation
AliceinW57
in
Prostate Cancer Network
3 months ago
What category of Intermediate Risk Am I?
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
Nordman
in
Advanced Prostate Cancer
5 months ago
What's on at Ovacome next week? (week commencing Monday 6 May 2024)
Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 7 May - Gentle strengthening exercise class between 11:00am – 12:00pm : https://www.ovacome.org.uk/Event/exercise-class - Coventry &
Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 7 May - Gentle strengthening exercise class between 11:00am – 12:00pm : https://www.ovacome.org.uk/Event/exercise-class - Coventry &
OvacomeSupport
My Ovacome Team
in
My Ovacome
3 months ago
Pluvicto Treatment
So, I just completed my 3rd round of Pluvicto and my primary oncologist wanted me to do a CT scan w/contrast and a bone scan. The Ct showed some increase in cancer in the liver and a number of other spots. I am only doing Pluvicto and no other treatment as requested. Are there other people who are receiving
So, I just completed my 3rd round of Pluvicto and my primary oncologist wanted me to do a CT scan w/contrast and a bone scan. The Ct showed some increase in cancer in the liver and a number of other spots. I am only doing Pluvicto and no other treatment as requested. Are there other people who are receiving
Parscore
in
Advanced Prostate Cancer
3 months ago
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