Search
Search
About
Log in
Join
Experiences with
Appendix cancer
Posts
Communities
31,003 public posts
Filter results
CLL treatment
I have CLL. I be am 4 months into a 1 year targeted immunotherapy plan. I receive a monthly infusion of Obitinubinazab and 300mg venclexta daily. I am very tired everyday. Went from 400mg to 300mg to try and help. Still exhausted. Anyone have similar experience ?
I have CLL. I be am 4 months into a 1 year targeted immunotherapy plan. I receive a monthly infusion of Obitinubinazab and 300mg venclexta daily. I am very tired everyday. Went from 400mg to 300mg to try and help. Still exhausted. Anyone have similar experience ?
IhaveCLL1
in
CLL Support
1 month ago
Preclinical: IRX5010 tumor growth inhibiting anti-cancer immune responses inducer in multiple types of cancers
Tested on prostate cancer models as well https://www.globenewswire.com/news-release/2024/07/09/2910022/0/en/Io-Therapeutics-Inc-announces-presentation-of-data-on-induction-of-tumor-growth-inhibiting-anti-cancer-immune-responses-in-multiple-types-of-cancers-by-a-IRX5010-a-novel-retinoic-a.html#
Tested on prostate cancer models as well https://www.globenewswire.com/news-release/2024/07/09/2910022/0/en/Io-Therapeutics-Inc-announces-presentation-of-data-on-induction-of-tumor-growth-inhibiting-anti-cancer-immune-responses-in-multiple-types-of-cancers-by-a-IRX5010-a-novel-retinoic-a.html#
Maxone73
in
Advanced Prostate Cancer
1 month ago
diets ? Supplements?
hello, l have literally just been diagnosed with SLL Feeling shocked, anxious and not sure how l am going to tell my family…..all the usual My question is can diet help? Taking the normal advice on a healthy living and lifestyle as a given . Can supplements help? Is there any evidence? Having
hello, l have literally just been diagnosed with SLL Feeling shocked, anxious and not sure how l am going to tell my family…..all the usual My question is can diet help? Taking the normal advice on a healthy living and lifestyle as a given . Can supplements help? Is there any evidence? Having
Northseaswimmer
in
CLL Support
1 month ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
My Husband's Update
Ok, so we had the results for my husband's ct scan and bone scan.The ct scan shows nothing🙏🏻 but according to the oncologist he ordered a nuclear total bone scan and they "mistakenly" did a bone scan with trace only. Which it helped to find some decalcification on his left hip. However, not that test
Ok, so we had the results for my husband's ct scan and bone scan.The ct scan shows nothing🙏🏻 but according to the oncologist he ordered a nuclear total bone scan and they "mistakenly" did a bone scan with trace only. Which it helped to find some decalcification on his left hip. However, not that test
Chiquis
in
Advanced Prostate Cancer
1 month ago
PSA update
DX Nov 2020. PSA 960 high volume metastatic. Lowest PSA nadir 0.1 Aug 2022. Slowly rising Nov. 2023 was 0.21, Feb 2024 0.41....Doubling time 3.1 months . On Lupron and 1000 mg Abiraterone with 0.5 Dexamethasone . Darn.
DX Nov 2020. PSA 960 high volume metastatic. Lowest PSA nadir 0.1 Aug 2022. Slowly rising Nov. 2023 was 0.21, Feb 2024 0.41....Doubling time 3.1 months . On Lupron and 1000 mg Abiraterone with 0.5 Dexamethasone . Darn.
wolverine11
in
Advanced Prostate Cancer
6 months ago
liver diagnosis
I had an ablation last September now the mri indicates dots around the ablation center . This mission is over 5 years old. I was diagnosed hcc from one mri no blood tests . I went out of country for a cat scan they said no tumor no cancer and porthole hypertension come back in 6 months. I’m now at a
I had an ablation last September now the mri indicates dots around the ablation center . This mission is over 5 years old. I was diagnosed hcc from one mri no blood tests . I went out of country for a cat scan they said no tumor no cancer and porthole hypertension come back in 6 months. I’m now at a
Pinapple123
in
British Liver Trust
1 month ago
Focal nodular hyperplasia
Hi all, I've been feeling unwell for months now. I've had blood tests, scans, and have been told I have an FNH that's about 5.7cm. I've been told this has nothing to do with my symptoms, but it's in the left lobe, and I swear I can feel it when I move around. Physical activity makes the pain worse,
Hi all, I've been feeling unwell for months now. I've had blood tests, scans, and have been told I have an FNH that's about 5.7cm. I've been told this has nothing to do with my symptoms, but it's in the left lobe, and I swear I can feel it when I move around. Physical activity makes the pain worse,
MLS3789
in
British Liver Trust
1 month ago
CA markers went down progression after 6 mo
I was on Ibrance and fluvesant for 6 mo. After exemestane stable bone Mets for 3 years. CA went up to 300 came down to 89 on this treatment. Scan just showed 6 new spots progression. Does this mean I’m resistant and need to switch? I’d like to try it again for 3 mo and rescan? Is that possible or
I was on Ibrance and fluvesant for 6 mo. After exemestane stable bone Mets for 3 years. CA went up to 300 came down to 89 on this treatment. Scan just showed 6 new spots progression. Does this mean I’m resistant and need to switch? I’d like to try it again for 3 mo and rescan? Is that possible or
Praising
in
SHARE Metastatic Breast Cancer
1 month ago
Feeling fed up
Hi, just been told I'm to start chemo again in coupleoif weeks so gutted and fed up. Caelyx this time as carbo taxol didnt last 6 months. How was it? I've always had carboplatin/ packlitaxol up till now Coming up to 4years since I joined the OC club. Had chemo / radical op/ chemo/ olaparib/ more chemo
Hi, just been told I'm to start chemo again in coupleoif weeks so gutted and fed up. Caelyx this time as carbo taxol didnt last 6 months. How was it? I've always had carboplatin/ packlitaxol up till now Coming up to 4years since I joined the OC club. Had chemo / radical op/ chemo/ olaparib/ more chemo
Casamimosa
in
My Ovacome
6 months ago
low neutrophils
Hello everyone, it’s been a while since I posted anything. My PET scan in September of 2023 showed the cancer had progressed to a lymph node, I had never had surgery for my cancer and I have been on Ibrance 100 and letrozole for 7 years. My oncologist and I decided it was time for surgery, I had a double
Hello everyone, it’s been a while since I posted anything. My PET scan in September of 2023 showed the cancer had progressed to a lymph node, I had never had surgery for my cancer and I have been on Ibrance 100 and letrozole for 7 years. My oncologist and I decided it was time for surgery, I had a double
Gmaoftriplets
in
SHARE Metastatic Breast Cancer
1 month ago
FDA Clears IND of Intravenous JCXH-211 in Advanced Solid Tumors
The FDA has granted clearance to an investigational new drug (IND) application of intravenous (IV) JCXH-211 in patients with advanced solid tumors. JCXH-211 is a first-in-class, self-replicating mRNA (srRNA) encoding the engineered human interleukin (IL)-12 protein. With this IND, a phase 1/2 study
The FDA has granted clearance to an investigational new drug (IND) application of intravenous (IV) JCXH-211 in patients with advanced solid tumors. JCXH-211 is a first-in-class, self-replicating mRNA (srRNA) encoding the engineered human interleukin (IL)-12 protein. With this IND, a phase 1/2 study
God_Loves_Me
in
Advanced Prostate Cancer
1 month ago
palbociclib and letrozole
hi, taking palbo and letrozole for last 6 months and few days back gone for pet scan and scan response was good , many places were reduced and not much metabolic activity. So same medicines prescribed, but now suddenly in both legs nerves are paining like shooting pain heavily, will palbociclib or
hi, taking palbo and letrozole for last 6 months and few days back gone for pet scan and scan response was good , many places were reduced and not much metabolic activity. So same medicines prescribed, but now suddenly in both legs nerves are paining like shooting pain heavily, will palbociclib or
Wickey20
in
SHARE Metastatic Breast Cancer
1 month ago
Good news
I haven't written for a while , just getting on with life! But last week's news is worth reporting.The mammary lymph node they had been monitoring is now too small to report measurements. It was 9 mm last time and has further reduced. My cancer markers are better than two and a half years ago. 15-3 is
I haven't written for a while , just getting on with life! But last week's news is worth reporting.The mammary lymph node they had been monitoring is now too small to report measurements. It was 9 mm last time and has further reduced. My cancer markers are better than two and a half years ago. 15-3 is
Beryl71
in
SHARE Metastatic Breast Cancer
1 month ago
My mother's good news
Hello ladies, I wanted to share our good news as a positive example. My mother was diagnosed with ovarian cancer staga 4a in December 2019 (you can read her story in my profile.) She had a PET scan two weeks ago and the results are good - she is stable! The doctors said she will stop taking Olaparib
Hello ladies, I wanted to share our good news as a positive example. My mother was diagnosed with ovarian cancer staga 4a in December 2019 (you can read her story in my profile.) She had a PET scan two weeks ago and the results are good - she is stable! The doctors said she will stop taking Olaparib
Uniquem
in
My Ovacome
1 month ago
What's different between Xtandi vs NUBEQA® (darolutamide) vs ERLEADA® (apalutamide)
Hello Everyone, zytiga didn’t work so move to xtandi After two months, Xtandi did not work, and PSA started going up; I suggested to the doctor to prescribe other medicine ( NUBEQA® (darolutamide) or ERLEADA® (apalutamide) based on this group's recommendations. Dr keeps telling me NO and tells
Hello Everyone, zytiga didn’t work so move to xtandi After two months, Xtandi did not work, and PSA started going up; I suggested to the doctor to prescribe other medicine ( NUBEQA® (darolutamide) or ERLEADA® (apalutamide) based on this group's recommendations. Dr keeps telling me NO and tells
God_Loves_Me
in
Advanced Prostate Cancer
6 months ago
IMRT WITHOUT THE JELL
I'm scheduled for IMRT Radistion without the jell. Doc says the jell may push cancer microscopic cells away from the prostate. He said the cancer is about to protrude through the capsule and microsopic cancer cells could be out of the capsule and did not want to take a chance of putting the jell in and
I'm scheduled for IMRT Radistion without the jell. Doc says the jell may push cancer microscopic cells away from the prostate. He said the cancer is about to protrude through the capsule and microsopic cancer cells could be out of the capsule and did not want to take a chance of putting the jell in and
woppaginny
in
Advanced Prostate Cancer
5 months ago
21Bedlam21
I have had CLL for a couple of years now. I am on watch and wait. I have posted on this sight before. I had reconstruction from my breast cancer a number of years ago. Both sides. It looks like one side may have ruptured. I have a fast tracked appointment on Friday. I am worried sick. I know I need to
I have had CLL for a couple of years now. I am on watch and wait. I have posted on this sight before. I had reconstruction from my breast cancer a number of years ago. Both sides. It looks like one side may have ruptured. I have a fast tracked appointment on Friday. I am worried sick. I know I need to
21Bedlam21
in
CLL Support
1 month ago
NEPC RESEARCH
Any research done on NEPC (neuroendocrine prostate cancer) ie ademo that morphs into a neuroendocrine carcinoma?
Any research done on NEPC (neuroendocrine prostate cancer) ie ademo that morphs into a neuroendocrine carcinoma?
safari123
in
Advanced Prostate Cancer
6 months ago
stage 4 prostrate cancer
I read many ways to approach prostrate cancer, I was diagnosed 2021, stage 4- Gleason 9, Mets- bones- lymph nodes, both lungs, so weak I barely got to MO with a Cain over 2 year’s later I’m running steps -refused chemo- took ADT 18 months read Dr. Dach book- cracking cancer toolkit- glad I did
I read many ways to approach prostrate cancer, I was diagnosed 2021, stage 4- Gleason 9, Mets- bones- lymph nodes, both lungs, so weak I barely got to MO with a Cain over 2 year’s later I’m running steps -refused chemo- took ADT 18 months read Dr. Dach book- cracking cancer toolkit- glad I did
bubbacora
in
Advanced Prostate Cancer
6 months ago
Update for kestrel5
Diagnosed in Spring 2010 (Stage IIB - pT2c, N0, M0). Lung mets confirmed in September 2015. I am, as they say, heavily pre-treated. Recent scans and bloodwork: no evidence of cancer, three years of undetectable PSA. Never say 'cured,' but I am enjoying a period of durable treatment effects.
Diagnosed in Spring 2010 (Stage IIB - pT2c, N0, M0). Lung mets confirmed in September 2015. I am, as they say, heavily pre-treated. Recent scans and bloodwork: no evidence of cancer, three years of undetectable PSA. Never say 'cured,' but I am enjoying a period of durable treatment effects.
Kestrel5
in
Advanced Prostate Cancer
6 months ago
1
...
55
56
57
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
12361 results
My Ovacome
3554 results
SHARE Metastatic Breast Cancer
2213 results
View top 10 communities
Sort by
Most Relevant
Newest