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overlap RA, medication?
I was Dx with overlap rheumatoid arthritis. I have had PBC for 15 years, controlled well by URSO. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak
I was Dx with overlap rheumatoid arthritis. I have had PBC for 15 years, controlled well by URSO. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak
CeeCee101
in
PBC Foundation
4 months ago
Bob @ 100
Hello group Some time since I posted as I had a flutter ablation 4 years ago and have had no symptoms since. Recently I have started to get a high heart rate about 140 beats which I can control with Verapamil 120 mg taken as pip. which I was given after my flutter procedure, (out of date now but all
Hello group Some time since I posted as I had a flutter ablation 4 years ago and have had no symptoms since. Recently I have started to get a high heart rate about 140 beats which I can control with Verapamil 120 mg taken as pip. which I was given after my flutter procedure, (out of date now but all
bobpitt
in
Atrial Fibrillation Support
2 months ago
Nebivolol and cold toes/fingers?
I'm still suffering badly with cold extremities on Bisoprolol, does anyone that takes Nebivolol experience similar issues at all?
I'm still suffering badly with cold extremities on Bisoprolol, does anyone that takes Nebivolol experience similar issues at all?
kitenski
in
Atrial Fibrillation Support
2 months ago
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I am 53 and require an ICD
I am 53 and require an ICD and scared but also want and need to continue an active life. Currently in Atrial Fibrillation and a degree of heart block. I also have a cardiac Gene that causes issues with conduction and cardiomyopathy. Looking for reassurance and normality and would like to live till at
I am 53 and require an ICD and scared but also want and need to continue an active life. Currently in Atrial Fibrillation and a degree of heart block. I also have a cardiac Gene that causes issues with conduction and cardiomyopathy. Looking for reassurance and normality and would like to live till at
Pottsgene
in
Heart Rhythm Disorders Support
2 months ago
What to do?
Originally I was diagnosed with lung fibrosis and earlier this year I received confirmation that I have CPFE combined pulmonary fibrosis and emphysema.I suffer from shortness of breath and some everyday tasks are becoming more difficult. Even putting my socks on can leave me short of breath. I have noticed
Originally I was diagnosed with lung fibrosis and earlier this year I received confirmation that I have CPFE combined pulmonary fibrosis and emphysema.I suffer from shortness of breath and some everyday tasks are becoming more difficult. Even putting my socks on can leave me short of breath. I have noticed
Wibble28
in
Lung Conditions Community Forum
2 months ago
atrial fibrillation then high heart rate
I started in AF last week and after 5 days of AF I have now gone into a regular high heart rate for the past 2 days. Under the instruction of the arrhythmia nurse I have increased my bisoprolol but it doesn’t seem to helping much. I have an appointment on Wednesday to discuss treatment plan while I
I started in AF last week and after 5 days of AF I have now gone into a regular high heart rate for the past 2 days. Under the instruction of the arrhythmia nurse I have increased my bisoprolol but it doesn’t seem to helping much. I have an appointment on Wednesday to discuss treatment plan while I
Dizzy3
in
Atrial Fibrillation Support
2 months ago
New Blood Thinner for Stroke Prevention
Hi all, Some exciting news for those on Blood Thinners for AF. Abelacimab is a monoclonal antibody given just once a month by subcutaneous injection. It is not cleared by the kidneys, doesn’t require dose adjustments, and is not affected by other drugs. It achieves near-complete 99% inhibition of
Hi all, Some exciting news for those on Blood Thinners for AF. Abelacimab is a monoclonal antibody given just once a month by subcutaneous injection. It is not cleared by the kidneys, doesn’t require dose adjustments, and is not affected by other drugs. It achieves near-complete 99% inhibition of
AustinElliot
in
AF Association
7 months ago
New to in center HD
I'm in my 2nd week of in center HD and have been experiencing terrible bloating and gas. Is this related to the dialysis, or is something else going on? Juvenile diabetic, CHF, hypertension. Kidney function been decreasing last 5 years. I've been on transplant list (kidney/pancreas) for one year, was
I'm in my 2nd week of in center HD and have been experiencing terrible bloating and gas. Is this related to the dialysis, or is something else going on? Juvenile diabetic, CHF, hypertension. Kidney function been decreasing last 5 years. I've been on transplant list (kidney/pancreas) for one year, was
HersheeKisses
in
Kidney Dialysis
7 months ago
tenofovir disoproxil fumarate and weight gain
I was contacted today by a liver nurse. I found out that I have been prescribed tenofovir. I started reading about it. I saw online that it is associated not only with kidney problems, and bone density problems, but also a weight gain and body shape changes!!! What are other peoples experiences?! Have
I was contacted today by a liver nurse. I found out that I have been prescribed tenofovir. I started reading about it. I saw online that it is associated not only with kidney problems, and bone density problems, but also a weight gain and body shape changes!!! What are other peoples experiences?! Have
LittleShrew
in
British Liver Trust
7 months ago
Help me understand
I’m 32 next and since I was 25 I have had terrible joint pain and flare ups with terrible painful stiffness and swelling. Always in both my knees sometimes both my elbows all at the same time, I feel and ache all over with fatigue! I’ve been to the drs numerous times over the years with no help when
I’m 32 next and since I was 25 I have had terrible joint pain and flare ups with terrible painful stiffness and swelling. Always in both my knees sometimes both my elbows all at the same time, I feel and ache all over with fatigue! I’ve been to the drs numerous times over the years with no help when
Crazycatlady_101
in
NRAS
4 months ago
worrying heart rate through the night
I have started to wear my Fitbit to bed after my AF diagnosis but I am very worried that it says, while in AF all night, my heart beat ranges from39 to 169. I take Carvedilol 12.5mg and Apixaban 5mg twice a day. It has taken me ages to be brave enough to wear it at night but I’m thinking I might be
I have started to wear my Fitbit to bed after my AF diagnosis but I am very worried that it says, while in AF all night, my heart beat ranges from39 to 169. I take Carvedilol 12.5mg and Apixaban 5mg twice a day. It has taken me ages to be brave enough to wear it at night but I’m thinking I might be
Wilky57
in
Atrial Fibrillation Support
2 months ago
Blood flow through liver
Hello all I had a ultrasound just over a month ago but got results today showing a fatty liver and slow or low blood through my liver the nurse practitioner giving me my results could give me no reason as to why as by all accounts scarring wasn't seen only fat deposits. My liver enzymes have been rising
Hello all I had a ultrasound just over a month ago but got results today showing a fatty liver and slow or low blood through my liver the nurse practitioner giving me my results could give me no reason as to why as by all accounts scarring wasn't seen only fat deposits. My liver enzymes have been rising
nettiboo1982
in
Thyroid UK
7 months ago
T3 only and heart rate
Hi all, I was started on liothyronine only 6 months ago and it has been life changing. It has resolved 4 years of debilitating symptoms, including chronic fatigue. I have faulty D102 and am a poor converter. I was finally taken off levothyroxine following abnormal ECG and tachycardia. I had a scan and
Hi all, I was started on liothyronine only 6 months ago and it has been life changing. It has resolved 4 years of debilitating symptoms, including chronic fatigue. I have faulty D102 and am a poor converter. I was finally taken off levothyroxine following abnormal ECG and tachycardia. I had a scan and
Mhaire
in
Thyroid UK
2 months ago
Would you like to know more about your antiarrhythmic medication?
Upon diagnosis of Atrial fibrillation (AF) many are prescribed antiarrhythmic medication(s). These help to restore the normal (sinus) heart rhythm. They work by blocking specific electrical conduction channels in the heart. Some can slow the activation of the heart muscle, and others slow the recovery
Upon diagnosis of Atrial fibrillation (AF) many are prescribed antiarrhythmic medication(s). These help to restore the normal (sinus) heart rhythm. They work by blocking specific electrical conduction channels in the heart. Some can slow the activation of the heart muscle, and others slow the recovery
TracyAdmin
Partner
in
Atrial Fibrillation Support
2 months ago
Stress and thyroid disease
I have an treated underactive thyroid and i’m on levothyroxine. I’ve had hypothyroidism for 35 years, I’m now 61.. I’m finding that any stressful situation makes me feel very odd, all over the place, and feeling lime Ive drunk 30 cups of coffee. Awful.. Can that happen with thyroid disease. Any advice
I have an treated underactive thyroid and i’m on levothyroxine. I’ve had hypothyroidism for 35 years, I’m now 61.. I’m finding that any stressful situation makes me feel very odd, all over the place, and feeling lime Ive drunk 30 cups of coffee. Awful.. Can that happen with thyroid disease. Any advice
Atma123
in
Thyroid UK
4 months ago
Possible kidney disease
Hi friends, after a recent flare-up I got some routine testing done, and one of the kidney markers showed up in a urine test. It showed micro-proteins, or mircoalbuminuria, which is different to the protein that shows up for a UTI. Apparently, the microalbuminuria means the kidneys are leaking, which
Hi friends, after a recent flare-up I got some routine testing done, and one of the kidney markers showed up in a urine test. It showed micro-proteins, or mircoalbuminuria, which is different to the protein that shows up for a UTI. Apparently, the microalbuminuria means the kidneys are leaking, which
MusicalFurbaby
in
LUPUS UK
7 months ago
Is HE always inevitable with severe chronic liver disease?
My daughter has been told there is nothing more the doctors can do for her multiple hepatic adenomas. Transplant is not an option, due to serious underlying health conditions and also total lack of fitness . She has at least 15 of these tumours taking over her liver now. She has had a resection last
My daughter has been told there is nothing more the doctors can do for her multiple hepatic adenomas. Transplant is not an option, due to serious underlying health conditions and also total lack of fitness . She has at least 15 of these tumours taking over her liver now. She has had a resection last
Mami77
in
British Liver Trust
7 months ago
Atrial Fibrillation
I'm in the process of finding out which blood thinner is best for me. Started with bisoprolol 1.25mg twice daily and feeling ill so have changed to Edoxaban causing cold hands and feet and breathlessness. I feel that my Cardiologist hasn't taken into consideration my other health conditions, i.e. Asthma
I'm in the process of finding out which blood thinner is best for me. Started with bisoprolol 1.25mg twice daily and feeling ill so have changed to Edoxaban causing cold hands and feet and breathlessness. I feel that my Cardiologist hasn't taken into consideration my other health conditions, i.e. Asthma
magriff1
in
Pain Concern
2 months ago
Low O2
CAPS survivor here. Lately my O2 has been consistently between 87% -93% resting and walking. A trip to the ER the other day showed no PE and clear lungs. They want to follow up with pulmonologist but I think it's my blood flow. My lungs feel fine! I'm on warfarin. Anybody else going through this?
CAPS survivor here. Lately my O2 has been consistently between 87% -93% resting and walking. A trip to the ER the other day showed no PE and clear lungs. They want to follow up with pulmonologist but I think it's my blood flow. My lungs feel fine! I'm on warfarin. Anybody else going through this?
grandmagigitovivi
in
Hughes Syndrome APS Forum
2 months ago
Two weeks after ablation and I'm on the list for a cardioversion
It's two weeks today since I had an ablation for AF. I wasn't in AF before or immediately after the procedure but felt bad on day two with racing irregular pulse, dizziness etc. I had an ecg last week which showed me to be in AF and the arrhythmia nurse has called to let me know and tell me that I've
It's two weeks today since I had an ablation for AF. I wasn't in AF before or immediately after the procedure but felt bad on day two with racing irregular pulse, dizziness etc. I had an ecg last week which showed me to be in AF and the arrhythmia nurse has called to let me know and tell me that I've
JoDogBlue
in
Atrial Fibrillation Support
2 months ago
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