Possible kidney disease

[MusicalFurbaby]

Hi friends, after a recent flare-up I got some routine testing done, and one of the kidney markers showed up in a urine test. It showed micro-proteins, or mircoalbuminuria, which is different to the protein that shows up for a UTI. Apparently, the microalbuminuria means the kidneys are leaking, which can be a sign of early stage kidney disease.

I have no symptoms, except perhaps for increased urination at night. The doc is sending me for further testing and to see a nephrologist.

I’ve never encountered kidney problems before. I know lupus can target the kidneys, but I thought I had sidestepped it. Until now. This is all new to me. Any advice—apart from screaming into the wind?

[Sarah74]

sorry to hear this.

Firstly have a good scream, get it out, then feel sorry for yourself for a bit not too long and then get on with it.

Most importantly get the correct treatment.

The nephrologist is the right guy/girl.

I unfortunately got my first renal damage at age 18, couple of flares lost a bit more function and was stable for 30 years..

I’m 50 next year.

What I hadn’t appreciated is although on meds my renal function has slowly been declining, once it’s gone it’s gone.

The lupus for some reason has now decided to attack the kidneys again so I’m down for some thing called Rituximab which apparently is a great drug, this with myfortic acid and the steroids I already take is going to assist!

It may raise you BP so you may be asked to measure that and you’ll have to pee into lots of bottles and have lots of tests!!

I keep a supply of bottles at home

I’m also good with my diet… not too much salt and keep hydrated!!! Still easy chocolate and have a glass of wine

Best wishes

[MusicalFurbaby in reply to Sarah74]

Hi Sarah, thank you! It’s good to hear you’ve been stable for 30 years, that gives me a bit of hope; even in spite of the recent flare-up. Lupus will be lupus! Yes, I’m already having to do lots of peeing for people, and I’ll see the nephrologist in the new year. My diet is great, although I do indulge in chocolate/cake fairly regularly, but otherwise is a balanced, low-carb diet. And I drink tonnes of water! Thanks for sharing.