Experiences with

Ankylosing spondylitis

Trying to find out if Ankylosing Spondylitis can be stopped or progression slowed down if Biologics are used or if they don't have as much of an effect on AS as they do other forms of arthritis? Any links to research, articles, videos etc is much appreciated?

I have been diagnosed with fibromyalgia and ankylosing spondylitis recently, and it’s been a hard road. However, over the past 3 weeks I’ve been experiencing nausea, head fogginess, headache, light sensitivity, and difficultly like orienting my balance.

6 years ago I was given diagnosis of Lupus after decade of pain and illness. I started taking Hydroxychloroquine which helped a little. I still take max dose. Not seen consultant since 2019. Finally agreed to see me face to face next week. I live with huge amount of pain, stiffness and inflammation.

I have ankylosing spondylitis. Im 54. Ive been offered Imraldi, Adalimumab injections but have reservations about some of the possible side effects Is there anyone that can tell me how they are getting on with this treatment or if they also were worried about using it Thank you

Help! Feeling grim second day in to Covid, all joints worse, very ' upper respiratory'ie clogged up throat.Stopped Etoricoxib as gave me a sore itchy bottom, Cocodamol gives me constipation and I'm allergic to Para cetamol!! Any ideas peeps?

Hi, I was wondering if Etoricoxib 30gr is the best drug to take when you have been diagnosed with ankylosing spondylitis.

I'm in between biologic meds for ankylosing spondylitis - off Cosentyx and starting on lxzicinumab, but a delay has left me really struggling. I have Prednisolone 5mg tablets from my rheumatologist for flares, to be used as and when needed, and they are sadly very much needed now!

Having Ulcerative colitis and Ankylosing spondylitis makes you tired and affects your mobility quite a bit and tends to make foreplay a bit difficult and what pleasure gain from it to get an erection is soon gone because of fatigue and pain, so you become flaccid again.

Having Ulcerative colitis and Ankylosing spondylitis makes you tired and affects your mobility quite a bit and tends to make foreplay a bit difficult and what pleasure gain from it to get an erection is soon gone because of fatigue and pain, so you become flaccid again.

After debilitating hip and lower back pain I was diagnosed with Ankylosing Spondylitis in 2001. In about 2013 I was prescribed Humira, which was very harsh on my immune system, and later swapped onto Simponi which I think amazing.

Ankylosing Spondylitis - so very weary of every pain (chronic back, buttock, leg, hip and knee) being put down to Fibro.

I was tested for MS, ankylosing spondylitis (still maybe on the table) and RA. My RF has been elevated in the past but normal now. Inflammatory markers have been slightly elevated for years but have been normal since the onset of this craziness. I also have Sjogren’s. Joy!

i have ankylosing spondylitis had to renew my pip claim did not go very well the people at the assessment provider never do the report wright u say one thing they put some thing else i had a nurse do my report not a arthritis specialist she don't know how my condition effects me she's a nurse as now

I'm 43 with Ankylosing Spondylitis (diagnosed in my twenties), which luckily has been treated for 5ish years with Simponi (just a wee bit of symptom break through at week 4 from injection).

I've had severe RLS for years, but I also have Ankylosing Spondylitis so I'm on Tremadol for the pain (can't take anti inflammatories due to stomach problems) the doctors have tried me on lyrica, amitriptyline and ropinirole most recently.

On reflection I think that my two AZ vaccine injections (1 Feb and 20 April) probably stimulated an auto-immune reaction, to which I am liable given a history of ankylosing spondylitis (HLA- B27 Positive) even though that burned out in my 40s, 30+ years ago.

My mom doesn’t have it but my father had ankylosing spondylitis. I just try to find out the possibility of my daughter having lupus one day. Thanks a lot before for reading <3 -dee-

I have been living with Ankylosing Spondylitis (AS) & FM since my teenage years. However, I did not get an AS diagnosis until I was 35 and I have just recently (Jan. 2021) been diagnosed with FM at the age of 48.

I had an appointment with him in February and he discussed with me the results of my nerve tests regarding carpal tunnel, which I just had surgery on last month, and also that I will be having further mri scans etc, to check for ankylosing spondylitis among other things.

I have an inflammatory arthritis called ankylosing spondylitis. I take Methotrexate as well as biologic injections fir that. My Rheumatologist has asked me to stop MTX for now as it can be a cause of PF. I’ve been on it 4.5yr to treat peripheral symptoms.