Experiences with

Ankylosing spondylitis

Does anyone have any experience with negative bloods but a diagnosis of ankylosing Spondylitis? Thank you for reading ❤️

I have Axial SpA, more commonly known as Ankylosing spondylitis an autoimmune disease. I looked up whether Sudden Hearing Loss and tinnitus can be related to this condition. It apparently can relate to Rheumatoid arthritis. I wondered how many people here have autoimmune diseases........?

The GP suggested that he suspects Ankylosing Spondylitis so ran some bloods (inflammation and genetic factors). These have come back negative. I know it sounds bad but I was hoping to finally be close to receiving a diagnosis.

I have been using adalimumab for 3 years for my Ankylosing spondylitis and it has been great for my neck and lower back pain. I have now developed some finger pain, wear and tear in my knees and painful toes, as well as plantur fasciitis.

Regular blood tests say I am OK, but I feel awful, a range of symptoms, including muscle pain, back pain, brain fog, eyesight blurred, numbness, don’t know if this is all attributable to Thyroid or if it’s an arthritic condition such as Ankylosing Spondylitis.

So in May this year i was diagnosed with Acute on Chronic Sacroilitis and Ankylosing Spondylitis by Rheumatology at Royal Free Hospital after having extensive MRI,s done and huge amounts of blood tests. I have also got many other medical issues too as well as CFS and Fibromyalgia.

having spent nearly two years on Pred thinking I had PMR . All credit to my rheumatologist who has been very thorough. It is amazing how symptoms can mimic other arthritic conditions. This forum has actually been very useful and supportive, but I suppose I must now say goodbye and research a new condition

Had an appointment with rheumatologist yesterday and after a discussion and looking at a 2021/2022 CT scan and an X-ray it was decided to have an MRI as “there’s a possibility I may have Ankylosing Spondylitis.

I’ve had 8 injections of Adalimumab since I last saw him for Ankylosing Spondylitis. He has stopped the jabs because he says they aren’t working. I FEEL they are working. I said it was a complicated picture because of the PMR.

Hi I have ankylosing spondylitis and inject 100ml of Simponi every 4 weeks, I just had MOHs surgery for skin cancer on my nose. I got an infection so this messed up my injections, did my injection then injected again 3 weeks later as pain was horrific.

As many of you know, I have Ankylosing Spondylitis and my rheumatologist cancelled my injections because my inflammation is going up not down. On the CT report, it states that I have multifocal moderate grade uptake in interspinous ligaments of the lumbar spine.

I have to have regular bloods done because of the Adalimumab injections I take for my Ankylosing Spondylitis. I had these done yesterday. My ESR has been hovering around 45 but has done up to 71. The CRP has gone up from being usually around 16/20 to 31.

I have ankylosing spondylitis, and inflammatory bowel disease is very common alongside it. I’m wondering if being off my immunosuppressants so long, has possibly unmasked IBD.

Said it was a misdiagnosis and thought I had ankylosing spondylitis. After MRI, diagnosed with degenerative disc disease not AS. No rheumatoid factor. He recommended swimming, physio (35 week waiting list) and co-codamol. Stopped pred end March.

I’ve been trying to start Humira for Ankylosing Spondylitis again, but the delivery company have been an absolute NIGHTMARE! It’s been so long since I last took it that I’m wondering if I need loading doses again, like you do when you first start it.

I have ankylosing spondylitis and osteoarthritis. While dealing with recent sciatica and other body aches I had several episodes of hot flushing from face to trunk and arms. This included a minty sensation, runny nose, and panic.

My mother had ankylosing spondylitis. Those facts, and my good response to prednisolone, convince me I have a autoimmune disease. Some days, I'm at my wits' end. Anyone had a similar experience?

My Dr has sent me an email this morning with info about Ankylosing spondylitis and seems to be thinking it's now an option. My pains are back related, hips, shoulders, sternum (but pretty much sore everywhere really).

According to the National Library of Medicine: 'Etanercept is a biologic TNF inhibitor commonly used to control ankylosing spondylitis, juvenile idiopathic arthritis, plaque psoriasis, psoriatic arthritis, and rheumatoid arthritis.

Finally got to see my own GP who immediately had my blood tested for inflammation markers and initially diagnosed Ankylosing Spondylitis and prescribed Naproxen which once again had no effect, then I had a MRI scan which showed there was no evidence of AS.