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family with OCD
I am 47 and have had OCD MY entire life. It's not mostly just my thoughts. My son is 18 and struggles when religious OCD. My daughter is 21 and her OCD has exploded over the past 4-5 years. She has been diagnosed with OCPD. She had been hospitalized 14 times for suicidal ideation or attempts. She
I am 47 and have had OCD MY entire life. It's not mostly just my thoughts. My son is 18 and struggles when religious OCD. My daughter is 21 and her OCD has exploded over the past 4-5 years. She has been diagnosed with OCPD. She had been hospitalized 14 times for suicidal ideation or attempts. She
jcozy
in
My OCD Community
11 months ago
Do low PSA-producing cells still rely on testosterone to grow?
Am curious to know what the folks here know about this question. If higher PSA cells are driven to near extinction by ADT, and if only low-PSA producing cells survive, are the latter still dependent on testosterone for survival? If not, what do they depend on to grow?
Am curious to know what the folks here know about this question. If higher PSA cells are driven to near extinction by ADT, and if only low-PSA producing cells survive, are the latter still dependent on testosterone for survival? If not, what do they depend on to grow?
novatimo
in
Advanced Prostate Cancer
9 months ago
BBB opening with focused ultrasound in nonhuman primates and Parkinson’s disease patients:
This is pretty amazing stuff. They can now briefly open select spots in the brain barrier using focused ultrasound and deliver larger particles like gene therapy (in microbubbles). So it would allow for minimally invasive, early treatment of neurological disorders. https://www.science.org/doi/10.1126
This is pretty amazing stuff. They can now briefly open select spots in the brain barrier using focused ultrasound and deliver larger particles like gene therapy (in microbubbles). So it would allow for minimally invasive, early treatment of neurological disorders. https://www.science.org/doi/10.1126
LeharLover62
in
Cure Parkinson's
1 year ago
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Hormone Replacement Therapy (HRT)
I just recently read some interesting studies that suggest HRT could help us PD people with our symptoms? I know for some HRT is controversial. And maybe I am at the point of desperation, but should I just be asking my GP for an HRT patch? Have any of you had any experience with HRT. Is one delivery
I just recently read some interesting studies that suggest HRT could help us PD people with our symptoms? I know for some HRT is controversial. And maybe I am at the point of desperation, but should I just be asking my GP for an HRT patch? Have any of you had any experience with HRT. Is one delivery
PalmSprings
in
Cure Parkinson's
9 months ago
EMBARK Study: ADT vs Enzalutamide +/- ADT
Results of the EMBARK study was published this week (10/19/23) in NEJM. It compared high risk BCR PCa treated in 3 groups: Lupron ADT alone. Enzalutamide plus ADT. And Enzalutamide monotherapy. 5 year follow up for metastasis free survival. Results below. Interesting that Enza monotherapy (No ADT) was
Results of the EMBARK study was published this week (10/19/23) in NEJM. It compared high risk BCR PCa treated in 3 groups: Lupron ADT alone. Enzalutamide plus ADT. And Enzalutamide monotherapy. 5 year follow up for metastasis free survival. Results below. Interesting that Enza monotherapy (No ADT) was
MateoBeach
in
Advanced Prostate Cancer
9 months ago
Recovery and a balanced lifestyle - fun is as important as exercise
Forgive me if I am a little old-fashioned but I trained in occupational therapy many years ago, when emotional and cognitive well-being were considered as important as exercise in recovery from both acute and chronic illnesses. I notice on this forum and also the AF forum that people talk very freely
Forgive me if I am a little old-fashioned but I trained in occupational therapy many years ago, when emotional and cognitive well-being were considered as important as exercise in recovery from both acute and chronic illnesses. I notice on this forum and also the AF forum that people talk very freely
Rainfern
in
British Heart Foundation
1 year ago
Rheumatoid, Peri-Menopause, HRT
I am 54 and have had RA for 34 years. I am at the end stage of perimenopause, and close to transitioning to Menopause. The RA feels worse. My joints are so achy even my muscles hurt at times. Anyone suggestions from experienced ladies. Does HRT help? My current medication list is Humira 40 by weekly
I am 54 and have had RA for 34 years. I am at the end stage of perimenopause, and close to transitioning to Menopause. The RA feels worse. My joints are so achy even my muscles hurt at times. Anyone suggestions from experienced ladies. Does HRT help? My current medication list is Humira 40 by weekly
ragurl
in
NRAS
9 months ago
Would I be on thin ice if I tried adaptive ADT this soon?
After 6 weeks on Lupron and 9 days on abiraterone, my PSA was .1, and my testosterone was <1. This is within the criteria being used to start people on adaptive in this MCSPC Moffitt study with Jingsong Yang - (he says I can just follow the protocol without being in the study)https://pubmed.ncbi.nlm.nih.gov
After 6 weeks on Lupron and 9 days on abiraterone, my PSA was .1, and my testosterone was <1. This is within the criteria being used to start people on adaptive in this MCSPC Moffitt study with Jingsong Yang - (he says I can just follow the protocol without being in the study)https://pubmed.ncbi.nlm.nih.gov
jackwfrench
in
Advanced Prostate Cancer
9 months ago
Sleep while taking Xtandi and Adt
Hello everyone, I am sure that this has been discussed on here before, I was unable to find any post to answer my question . I am taking Xtandi ( aprox 16 months) Lupron, I had chemo. My latest PSA was less then <0.01. It has been there for over a year now. ( See my profile for my journey.) My
Hello everyone, I am sure that this has been discussed on here before, I was unable to find any post to answer my question . I am taking Xtandi ( aprox 16 months) Lupron, I had chemo. My latest PSA was less then <0.01. It has been there for over a year now. ( See my profile for my journey.) My
JD-guy
in
Advanced Prostate Cancer
9 months ago
HRT & Anxiety
hI am looking for advice am struggling at the moment with side effects from HRT patches, am only on oestrogen as have no womb. Headaches, nausea and more recent anxiety, am only on a low dose and been on for nearly 4weks. I feel am going crazy, every patch change my arms and hands feel really
hI am looking for advice am struggling at the moment with side effects from HRT patches, am only on oestrogen as have no womb. Headaches, nausea and more recent anxiety, am only on a low dose and been on for nearly 4weks. I feel am going crazy, every patch change my arms and hands feel really
Bassem1979
in
Menopause and Perimenopause Support
9 months ago
Thunking of getting an orchiectomy insted od radiation
Has anyone had an orchiectomy and if so how were your side effects and how is your life after the Big O.I'm scheduled to start Full Pelvic Radiation in 6 weeks but fear the long term side effects. I asked if anyone here had FPR and if so what were their side effects and life like since then. Thanks for
Has anyone had an orchiectomy and if so how were your side effects and how is your life after the Big O.I'm scheduled to start Full Pelvic Radiation in 6 weeks but fear the long term side effects. I asked if anyone here had FPR and if so what were their side effects and life like since then. Thanks for
woppaginny
in
Advanced Prostate Cancer
9 months ago
Reporting results from Eclipse Trial
Prior to beginning trial last June I had just gone castrate resistant and PSA was at 3.3. A few weeks after the last of four injections PSA settled in at .25 so there was still something left. However PSA now has quickly shot up to .75 And since I stopped Orgovyx and Zytiga, Testosterone is going up
Prior to beginning trial last June I had just gone castrate resistant and PSA was at 3.3. A few weeks after the last of four injections PSA settled in at .25 so there was still something left. However PSA now has quickly shot up to .75 And since I stopped Orgovyx and Zytiga, Testosterone is going up
SViking
in
Advanced Prostate Cancer
9 months ago
not diagnosed yet but need pain tips
Hi can anyone give me any tips on dealing with pain please? I’m on a years waiting list now with a gyno to check for endo and ando. I may be going on to HRT soon for the peri menopause. I’ve tried different pain killers, exercise, meditation and mint tea. Nothing works. The pain is only 5 days
Hi can anyone give me any tips on dealing with pain please? I’m on a years waiting list now with a gyno to check for endo and ando. I may be going on to HRT soon for the peri menopause. I’ve tried different pain killers, exercise, meditation and mint tea. Nothing works. The pain is only 5 days
Citrusheights79
in
Endometriosis UK
9 months ago
HOrmone Replacement Therepy
I have wondered for a while whether men also lose hormones as they age and whether patches would be beneficial. I am a complete layman, so may be talking rubbish . I read on one post that Parkinsons can give people hot flushes, so this got me thinking. Have there been any studies please?
I have wondered for a while whether men also lose hormones as they age and whether patches would be beneficial. I am a complete layman, so may be talking rubbish . I read on one post that Parkinsons can give people hot flushes, so this got me thinking. Have there been any studies please?
Jo692
in
Cure Parkinson's
9 months ago
Post-prostatectomy cancer status + treatment
Where we are in the story so far ... * 46 yo, diagnosed with prostate cancer April 2023 * MRIs were negative, ultimately diagnosed via biopsy * Gleason 3+4, last PSA 6.3, 6 cores with 3+3, 2 cores were 3+4 * PSMA PET Scan prior to surgery was clean * Had RALP procedure on September 26, 3 weeks ago
Where we are in the story so far ... * 46 yo, diagnosed with prostate cancer April 2023 * MRIs were negative, ultimately diagnosed via biopsy * Gleason 3+4, last PSA 6.3, 6 cores with 3+3, 2 cores were 3+4 * PSMA PET Scan prior to surgery was clean * Had RALP procedure on September 26, 3 weeks ago
MakeItRainbows
in
Prostate Cancer Network
9 months ago
Vacation from ADT
I searched but only came up with vacations at two years or so. I had a meeting with my MO today. He is conservative but suggested I could stop the meds. I was complaining of brain fog. He said to stop the Abi for about three weeks to see if there is any improvement and if not, stop Lupron. My story
I searched but only came up with vacations at two years or so. I had a meeting with my MO today. He is conservative but suggested I could stop the meds. I was complaining of brain fog. He said to stop the Abi for about three weeks to see if there is any improvement and if not, stop Lupron. My story
gsun
in
Advanced Prostate Cancer
9 months ago
Join our Speech Therapy Session
Come and join us this
Friday, the 21st of July at 11 am - 12 pm
for a session of
Speech Therapy combined with a holistic approach
hosted by our speech therapist, Mandy Ngo. This will incorporate:
-
Exercises to strengthen the head and neck control to aid with swallowing difficulties
Come and join us this
Friday, the 21st of July at 11 am - 12 pm
for a session of
Speech Therapy combined with a holistic approach
hosted by our speech therapist, Mandy Ngo. This will incorporate:
-
Exercises to strengthen the head and neck control to aid with swallowing difficulties
Irmmy
in
Ataxia UK
1 year ago
ADT and bone health
I am 79 in exceptional physical condition. I have been on ADT after radical Prostatectomy for over 14 months and to date aside from the sexual libido loss I have had very little side effects. I have always been a health / exercise buff & continue to exercise everyday to maintain my mental & physical
I am 79 in exceptional physical condition. I have been on ADT after radical Prostatectomy for over 14 months and to date aside from the sexual libido loss I have had very little side effects. I have always been a health / exercise buff & continue to exercise everyday to maintain my mental & physical
Stevegr
in
Advanced Prostate Cancer
9 months ago
Treatment Update IMRT with ADT 18 months later
Follow up 18 months later. I am due for another ADT injection in December. Spoke to the Urologist and he feels 18months is enough keeping with the European standard while the Oncologist would like me to stay the course and do the full 2 years. I am in favor of 18 months also, that would be nice. Still
Follow up 18 months later. I am due for another ADT injection in December. Spoke to the Urologist and he feels 18months is enough keeping with the European standard while the Oncologist would like me to stay the course and do the full 2 years. I am in favor of 18 months also, that would be nice. Still
Mischa1111111
in
Advanced Prostate Cancer
9 months ago
Genomic testing
Who benefits from genetic testing and when? Is it mainly when someone becomes castrate resistant and or metastatic that they recommend it? Or is there value in doing it ahead of things while one is castrate sensitive? Had RP and then salvage radiation with 6 months ADT. 1st lab after.. T of 25 and undectable
Who benefits from genetic testing and when? Is it mainly when someone becomes castrate resistant and or metastatic that they recommend it? Or is there value in doing it ahead of things while one is castrate sensitive? Had RP and then salvage radiation with 6 months ADT. 1st lab after.. T of 25 and undectable
runtrails
in
Advanced Prostate Cancer
9 months ago
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