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Thoracic Endo - advice needed
Hi, I’m currently dealing with Thoracic Endo and could really use some advice from anyone else struggling with it. I had VATs surgery last year to treat a catamenial pneumothorax, but air still seems to be getting through holes in my diaphragm. My Thoracic surgeon has suggested having more major surgery
Hi, I’m currently dealing with Thoracic Endo and could really use some advice from anyone else struggling with it. I had VATs surgery last year to treat a catamenial pneumothorax, but air still seems to be getting through holes in my diaphragm. My Thoracic surgeon has suggested having more major surgery
Pink32
in
Endometriosis UK
6 months ago
New Clinical Trial Starting: A Study of AAV2-GDNF in Adults With Moderate Parkinson's Disease (REGENERATE-PD) (REGENERATE-PD)
Here is a link to the trial on clinicaltrials.gov https://clinicaltrials.gov/study/NCT06285643?term=REGENERATE-PD&rank=1 Below is an excerpt from a news article about the trial: A new Phase II trial, REGENERATE-PD, will study AB-1005, an adeno-associated virus 2 (AAV2) glial cell line-derived neurotrophic
Here is a link to the trial on clinicaltrials.gov https://clinicaltrials.gov/study/NCT06285643?term=REGENERATE-PD&rank=1 Below is an excerpt from a news article about the trial: A new Phase II trial, REGENERATE-PD, will study AB-1005, an adeno-associated virus 2 (AAV2) glial cell line-derived neurotrophic
Canddy
in
Cure Parkinson's
4 days ago
Update on FIL -Venetoclax as a Monotherapy, Pancytopenia and Myelodysplasia
Hi everyone I have been meaning to post an update for months but things have been changing so rapidly, every day would have been a different story. So we did get to see a specialist who did a BM biopsy and recommended Venetoclax as a Monotherapy as his BM was 50% CLL. We were told it wasn't chemo
Hi everyone I have been meaning to post an update for months but things have been changing so rapidly, every day would have been a different story. So we did get to see a specialist who did a BM biopsy and recommended Venetoclax as a Monotherapy as his BM was 50% CLL. We were told it wasn't chemo
JoeMcDote
in
CLL Support
6 days ago
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Help!
Hello everyone. 💙It's been six months since my mother had herpes encephalitis type 1, but she still can't stand up and is physically weak. I don't know if occupational therapy is useful or not? What should I do to improve her physical condition?
Hello everyone. 💙It's been six months since my mother had herpes encephalitis type 1, but she still can't stand up and is physically weak. I don't know if occupational therapy is useful or not? What should I do to improve her physical condition?
Ftmz
in
Encephalitis International
7 days ago
Newly diagnosed with HCC
I am a 78 year old retired educator who has battled GIST CANCER for 20 years. To my surprise, An HCC tumor was found in my liver in between two GIST tumors. in my June 5 MRI. The GIST tumors were shrinking out of site thanks to be taking Gleevec, a targeted therapy drug. My surgeon could not safely resect
I am a 78 year old retired educator who has battled GIST CANCER for 20 years. To my surprise, An HCC tumor was found in my liver in between two GIST tumors. in my June 5 MRI. The GIST tumors were shrinking out of site thanks to be taking Gleevec, a targeted therapy drug. My surgeon could not safely resect
Dachshund45
in
Blue Faery Liver Cancer
7 days ago
Advice
Hi All, I have hearing loss in both ears and have tinnitus all the time. This is a difficult challenge for us all. The doctors just put you on betahistine or amitriptyline or alprazolam or any anti depressants they say it helps reduce tinnitus or improve blood flow to inner ear. This is the same
Hi All, I have hearing loss in both ears and have tinnitus all the time. This is a difficult challenge for us all. The doctors just put you on betahistine or amitriptyline or alprazolam or any anti depressants they say it helps reduce tinnitus or improve blood flow to inner ear. This is the same
CMRN11
in
Tinnitus UK
9 days ago
More about Cu-67 PSMA : it seems better than Pluvicto (Lutetium) and it looks like experts are pushing it toward first line treatment!
I have already talked about this but it continues to look promising, so here is an update: https://www.urotoday.com/video-lectures/asco-2024/video-2/mediaitem/4152-secure-trial-copper-67-psma-therapy-for-prostate-cancer-geoffrey-johnson.html in a nutshell, improved Pluvicto: "the SECuRE trial for
I have already talked about this but it continues to look promising, so here is an update: https://www.urotoday.com/video-lectures/asco-2024/video-2/mediaitem/4152-secure-trial-copper-67-psma-therapy-for-prostate-cancer-geoffrey-johnson.html in a nutshell, improved Pluvicto: "the SECuRE trial for
Maxone73
in
Advanced Prostate Cancer
9 days ago
My PBC is getting worse. ascites causing me SOB, confusion, falls. skin is so itchy despite phototherapy. My symptoms are of late stages.
Can anyone help to elevate some symptoms. It's so effecting my life.
Can anyone help to elevate some symptoms. It's so effecting my life.
Oakleypup
in
British Liver Trust
10 days ago
First gene therapy for prevalent pathologies in neurology receives FDA IND clearance - EG 427 initiating first-in-human clinical study
https://uk.finance.yahoo.com/news/first-gene-therapy-prevalent-pathologies-060000901.html
https://uk.finance.yahoo.com/news/first-gene-therapy-prevalent-pathologies-060000901.html
Farooqji
in
Cure Parkinson's
10 days ago
Suppressed TSH on combined therapy
Is there data/medical papers I can give my doctor as to why T3 is suppressed on combination therapy? I have tried looking at the Nice guidelines but they all seem against using combination therapy.Thanks Sue
Is there data/medical papers I can give my doctor as to why T3 is suppressed on combination therapy? I have tried looking at the Nice guidelines but they all seem against using combination therapy.Thanks Sue
redhead41
in
Thyroid UK
11 days ago
Debate on T3 between Prof Bianco & Prof Pearce
These 2 well-known endos had a formal 'debate' recently at the Endo 2024 conference in Boston. Prof Bianco was 'for' the use of T3 in combination therapy, and Prof Pearce was 'against' it. We know that these are their personal stances anyway, even when not in a formal debate setting. Prof Bianco '
These 2 well-known endos had a formal 'debate' recently at the Endo 2024 conference in Boston. Prof Bianco was 'for' the use of T3 in combination therapy, and Prof Pearce was 'against' it. We know that these are their personal stances anyway, even when not in a formal debate setting. Prof Bianco '
TaraJR
in
Thyroid UK
13 days ago
PSP/CBD Symposium - Saturday, June 29, 10am-3pm Pacific (US time)
REGISTRATION IS NOW OPEN Brain Support Network and Stanford's Movement Disorders Center are co-hosting this Progressive Supranuclear Palsy/Corticobasal Degeneration (PSP/CBD) Symposium. This is a hybrid event -- some attending in-person on Stanford's campus and many attending virtually. Who should
REGISTRATION IS NOW OPEN Brain Support Network and Stanford's Movement Disorders Center are co-hosting this Progressive Supranuclear Palsy/Corticobasal Degeneration (PSP/CBD) Symposium. This is a hybrid event -- some attending in-person on Stanford's campus and many attending virtually. Who should
rriddle
in
PSP Association
13 days ago
very hard time today…need support
today I woke up not feeling well. Where I live we’re going through a heat wave. The day before I was outside quite a bit, and I went to a concert so I didn’t get a ton of sleep. I went to breakfast with a friend and then napped for two hours. I felt better and drove home from my boyfriend’s house to
today I woke up not feeling well. Where I live we’re going through a heat wave. The day before I was outside quite a bit, and I went to a concert so I didn’t get a ton of sleep. I went to breakfast with a friend and then napped for two hours. I felt better and drove home from my boyfriend’s house to
Daisy425
in
Anxiety and Depression Support
14 days ago
News we've all been waiting for!
Ralph's had the most amazing few days. On Tuesday he had the swallow x-ray and the speech therapist was amazed at the results. Firstly he gave him some sour tasting stuff, which Ralph insisted he tried to see how horrible it was, lol. Then he had barium mixed with water, then barium with yoghurt then
Ralph's had the most amazing few days. On Tuesday he had the swallow x-ray and the speech therapist was amazed at the results. Firstly he gave him some sour tasting stuff, which Ralph insisted he tried to see how horrible it was, lol. Then he had barium mixed with water, then barium with yoghurt then
Gardenview10
in
British Heart Foundation
14 days ago
Seeking Advice: Non-Medication Methods for Managing Hand Joint Pain Flare-Ups
Hello everyone, I'm reaching out to this community for some advice and personal experiences. I have been living with lupus for six years now, and I've been dealing with joint pain in my hands for quite a while. I'm particularly interested in non-medication methods to manage flare-ups. I've heard
Hello everyone, I'm reaching out to this community for some advice and personal experiences. I have been living with lupus for six years now, and I've been dealing with joint pain in my hands for quite a while. I'm particularly interested in non-medication methods to manage flare-ups. I've heard
Sophieeeee
in
LUPUS UK
15 days ago
cruise next week
next week I am going on a cruise with my boyfriend and his family. I have been on a cruise before but with my family. I am scared of getting sea sick from rough seas. We are going from NYC to Bermuda. Last summer I went on a. Girls trip to Nashville and I struggled a lot. Since then I have done outpatient
next week I am going on a cruise with my boyfriend and his family. I have been on a cruise before but with my family. I am scared of getting sea sick from rough seas. We are going from NYC to Bermuda. Last summer I went on a. Girls trip to Nashville and I struggled a lot. Since then I have done outpatient
Daisy425
in
Anxiety and Depression Support
17 days ago
Upcoming Webinar - Enjoy the Beat: Music, Brain Health, and MS
Music plays an important role in our lives. Research also suggests that music can benefit our physical and mental health in numerous ways. Join MSAA’s upcoming webinar “Enjoy the Beat: Music, Brain Health, and MS” Monday, June 17th, at 8:00PM Eastern with MS specialist Dr. Augusto Miravalle and MS
Music plays an important role in our lives. Research also suggests that music can benefit our physical and mental health in numerous ways. Join MSAA’s upcoming webinar “Enjoy the Beat: Music, Brain Health, and MS” Monday, June 17th, at 8:00PM Eastern with MS specialist Dr. Augusto Miravalle and MS
DanaMSAA
Partner
in
My MSAA Community
23 days ago
My DIY red light therapy / photobiomodulation helmet build. If you have built one and would like to share pictures please do.
I originally posted here asking some questions about building a red light therapy hat. https://healthunlocked.com/cure-parkinsons/posts/150630223/a-question-for-anyone-who-built-a-red-light-therapy-helmet-hat.?responses=150932897 I would like to say thank you to the people in that thread for helping
I originally posted here asking some questions about building a red light therapy hat. https://healthunlocked.com/cure-parkinsons/posts/150630223/a-question-for-anyone-who-built-a-red-light-therapy-helmet-hat.?responses=150932897 I would like to say thank you to the people in that thread for helping
Glenfarclas
in
Cure Parkinson's
24 days ago
Has anyone done the proton therapy?
Just curious if anyone had their MO suggest doing the proton therapy? When I have my discussion with my new MO, I want to ask if proton therapy would be a fit for myself. I have to deal with the prostate cancer and the met pelvic lymph nodes as well as the met bone issue.
Just curious if anyone had their MO suggest doing the proton therapy? When I have my discussion with my new MO, I want to ask if proton therapy would be a fit for myself. I have to deal with the prostate cancer and the met pelvic lymph nodes as well as the met bone issue.
PARKER3237
in
Advanced Prostate Cancer
24 days ago
update on oxygen therapy
a friend with MS got me into this, we are lucky to have an MS centre with a hyperbaric chamber in Hereford. It’s not NHS They kindly accepted me as a trial as it’s usually MS patients, burns patients and cancer recovery but also fibromyalgia and inflammation. I’ve just completed my 20th session which
a friend with MS got me into this, we are lucky to have an MS centre with a hyperbaric chamber in Hereford. It’s not NHS They kindly accepted me as a trial as it’s usually MS patients, burns patients and cancer recovery but also fibromyalgia and inflammation. I’ve just completed my 20th session which
Regenallotment
in
Thyroid UK
27 days ago
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