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48 public communities
Anticoagulation Support
3,824 members
The Anticoagulation Support community is for anyone impacted by a health condition such as atrial fibrillation, stroke, deep vein thrombosis (DVT) and pulmonary embolism (PE), aortic heart valve replacement, antiphospholipid syndrome and thrombotic disorders. These conditions can increase the risk of blood clots or thrombosis and may require anticoagulation therapy to treat or prevent blood clots from happening. Anticoagulant therapy is sometimes described as a blood thinner and can be given for a short period of time (to prevent clots after hip and knee replacement surgery) or long term for people with thrombotic disorders to prevent recurrence of clotting episodes. Some people may be offered anticoagulation medication when they are being treated for cancer. Anyone requiring anticoagulation therapy should discuss medication options with a health care provider and be given adequate information around the duration and monitoring of the treatment provided. In the UK, there are several oral anticoagulant medications available - Apixaban, Dabigatran, Edoxaban, Rivaroxaban and Warfarin. Heparin is given by injection. Anticoagulation Support aims to help individuals engage with people who have lived experience of living with a condition and being treated with anticoagulants. The site is moderated by HealthUnlocked with input from an anticoagulation patient expert and an anticoagulation healthcare professional. For information about anticoagulation therapy and related conditions visit.... NHS website - https://www.nhs.uk/ National Institute of Health and Care Excellence(NICE) - https://www.nice.org.uk
The Children's Trust
239 members
The Children’s Trust, Tadworth is a national charity working with children with brain injury. We are based at a 24 acre site in Tadworth, Surrey but offer our services to children from across the UK. We provide expert rehabilitation, education, therapy and care to support children and their families. The Children's Trust has also developed The Brain Injury Hub which is an online information and advice service for parents and other family members and includes as well as developing an online community and includes Health Unlocked.
Chronic Pancreatitis Support
873 members
Welcome to the Chronic Pancreatitis Support community, here to support anyone impacted by chronic pancreatitis and related conditions, such as EPI (Exocrine Pancreatic Insufficiency). Whether you are looking for a diagnosis or currently on Pancreatic Enzyme Replacement Therapy (PERT), here you will find peers with whom you can share experiences, information and participate in research events within the community. This community is offered by Mission: Cure on the HealthUnlocked platform. We serve the patients & communities affected by recurrent acute and chronic pancreatitis. Our impact extends to disease research and healthcare, applying innovative financing models to advance new therapies and cures. Beginning with chronic pancreatitis, we are committed to advancing new therapies and accelerating a cure for debilitating and untreatable diseases—within ten years. This community has been funded in part by Aimmune Therapeutics, Inc., a Nestlé Health Science Company. Anonymous data from the content shared in this community is used to improve the understanding of this condition.
Pelvic Pain Support Network
19,513 members
This community is run by the Pelvic Pain Support Network, a registered charity. The community forum exists to support those who wish to share and learn from others who have abdominal and/or pelvic pain and to provide peer support in managing the pain. It is moderated by trustees and members of the charity who are volunteers with personal experience of pelvic pain. Pelvic pain can be caused by many conditions affecting the pelvis such as adenomyosis, adhesions, endometriosis, painful periods, bladder pain, pelvic nerve damage, pudendal neuralgia, irritable bowel syndrome. One or more of these may be present or the person may not have a diagnosis. Pain that exists for 6 months or more, either intermittently or constant, is a condition in its own right. This community forum exists to support those who have had pain in the abdomen/pelvis for 6 months or longer with or without a diagnosis.
IBS Network
48,047 members
The IBS Network is the national charity that helps people with Irritable Bowel Syndrome (IBS) and has provided support to those with the condition and to healthcare professionals for over 25 years. Funding for the charity is received from a number of sources, including: annual memberships, an online shop for purchasing the ‘Can’t Wait’ card, Radar keys and other useful aids, in addition to income from legacies.
Tenovus
589 members
We are the leading cancer charity focusing on supporting those affected by cancer. We help patients and their families get access to treatment, advice and support.
Cancer Journeys Foundation
380 members
The Cancer Journeys Foundation is a registered non-Profit Charity with the mission of providing cancer survivors and their supporters information, tools, and a community to create and implement cancer survivor programs. Our vision is a world where no one dies from cancer because they did not know they had the disease early enough for effective treatment or because they did not know what steps they personally could take to keep their cancer at bay. A world where every cancer survivor has the information and support they need to develop and implement their own unique self-help cancer survivor journey plan. Our goal for our community here in HealthUnlocked is to tap into the past experiences of cancer survivors and caregivers to pay it forward in helping survivors just beginning their cancer journeys. Our community leader, Robert Hess, is a 13-year prostate cancer survivor. Welcome!
Wessex Cancer Trust
71 members
Welcome to Wessex Cancer Trust online community. Here you can openly talk to other people affected by cancer – whether you are going through your own cancer journey or supporting a family member or friend. We will support you through the highs and lows, help you prepare for surgery or treatment, and give you the confidence to talk to your loved ones about cancer. We can empower you to feel strong enough to make your own choices, whether you are moving on from cancer or making difficult decisions about a terminal diagnosis. We offer practical, emotional and physical support at a time when nothing seems to be in your control. All of our Support Centres will welcome you into a calm and non-clinical space in your local community, somewhere familiar and safe.
Youth Cancer Trust
140 members
We are an online support community for young cancer patients. Join us to share your experience, ask questions and support one another! Talking about your disease can be a powerful tool in learning to cope with it! So why not to start now? This community is run by the Youth Cancer Trust.
Hunts Community Cancer Network
107 members
Hunts Community Cancer Network welcomes you to this site which is designed to support people recovering from, living with or experiencing the late effects of treatment for all types of cancer. The site is managed by the HCCN nursing team who work out of Hinchingbrooke Hospital along with volunteer patients all of whom understand the challenges that can face people as they come to terms with their condition. We are supported by specialists in exercise, healthy eating, work related problems, and emotional well being who are keen to supplement the all important support people can give each other. We look forward to getting to know you.
Radiotherapy Cancer Treatment
211 members
We are an online community for people who have experienced radiotherapy. Share your experiences and support one another through treatment and beyond!
LGBT Cancer Community
218 members
A friendly, safe, informal atmosphere where we can pick each other's brains. Talking about cancer in our community is a powerful tool. Our community is run by The LGBT Cancer Project. Our community, fighting cancer, together. Our 24 hour online support group.
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