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confused
Hi .. having migraines for over 20 years , in 2018 New Year’s Eve I got an awful headache , freezing body and boiling hot head , this happened every month for the next few years, I would be in bed vomiting for12-15 hours, I eventually got HRT as doctors hadn’t seen these symptoms before , anyone else
Hi .. having migraines for over 20 years , in 2018 New Year’s Eve I got an awful headache , freezing body and boiling hot head , this happened every month for the next few years, I would be in bed vomiting for12-15 hours, I eventually got HRT as doctors hadn’t seen these symptoms before , anyone else
Ronniebongo
in
Menopause and Perimenopause Support
6 months ago
It's back after 7 years!
Hi ladies, not been following these groups for a while as had total hysterectomy in 2016 removing uterus and ovaries after many years of pain with stage 4 endo on womb, bowel and pouch of douglas. Went on HRT and have gradually got better since -until about 18 months ago. The symptoms I used to suffer
Hi ladies, not been following these groups for a while as had total hysterectomy in 2016 removing uterus and ovaries after many years of pain with stage 4 endo on womb, bowel and pouch of douglas. Went on HRT and have gradually got better since -until about 18 months ago. The symptoms I used to suffer
KarenBHorrocks
in
Endometriosis UK
6 months ago
Agonists vs. antagonists (the latter not to be confused with a character in a novel!)
I know many of you on this site are beyond ADT, but for those who are still holding on in that space, I'd like to share my experience with the newer antagonists drugs, degarelix ( U.S. brand, Firmagon) and relugolix (U.S. brand, Orgovyx). I started ADT exactly 8 years ago this month and during my off-and-on
I know many of you on this site are beyond ADT, but for those who are still holding on in that space, I'd like to share my experience with the newer antagonists drugs, degarelix ( U.S. brand, Firmagon) and relugolix (U.S. brand, Orgovyx). I started ADT exactly 8 years ago this month and during my off-and-on
bluesnjazz
in
Advanced Prostate Cancer
6 months ago
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QoLando Caliente El Sol 🌞
https://youtu.be/bA6GIF4A9aA?si=OxNUbL2bcqKx6l4nAlert! QoLing dead ahead, not for the ADT grumpies 😆 https://youtu.be/U3sMjm9Eloo?si=Yn-76A_KvIwzeTpP Friday pm, hubby & wife - pts for over 20 yrs, asked me to have beers/pizza with them😍 Also ran into quite a few other pts, even the cashier😂 Sat am
https://youtu.be/bA6GIF4A9aA?si=OxNUbL2bcqKx6l4nAlert! QoLing dead ahead, not for the ADT grumpies 😆 https://youtu.be/U3sMjm9Eloo?si=Yn-76A_KvIwzeTpP Friday pm, hubby & wife - pts for over 20 yrs, asked me to have beers/pizza with them😍 Also ran into quite a few other pts, even the cashier😂 Sat am
dockam
in
Advanced Prostate Cancer
6 months ago
New diagnosis
I was just diagnosed with fibromyalgia. Four years ago, I was diagnosed with Giant Cell Arteritis and, about 2 years later, Polymyalgia Rheumatica. My life has drastically changed between the pain and total exhaustion. Any words of advice would be most welcome.
I was just diagnosed with fibromyalgia. Four years ago, I was diagnosed with Giant Cell Arteritis and, about 2 years later, Polymyalgia Rheumatica. My life has drastically changed between the pain and total exhaustion. Any words of advice would be most welcome.
Miacaro45
in
Fibromyalgia Action UK
3 months ago
Post treatment post ADT time to PSMA test
Where I am receiving treatment, ADT, LD Brachytherapy, LINAC radiotherapy (15) sessions.. PSMA pet scans are not available (Japan). I planning on ending adjuvant ADT therapy within a few months and am aware of the lasting effects on testosterone (will take 6-12 months for decent testosterone levels .
Where I am receiving treatment, ADT, LD Brachytherapy, LINAC radiotherapy (15) sessions.. PSMA pet scans are not available (Japan). I planning on ending adjuvant ADT therapy within a few months and am aware of the lasting effects on testosterone (will take 6-12 months for decent testosterone levels .
Yokohama2023
in
Advanced Prostate Cancer
6 months ago
PSA rising 10 weeks after Orgovyx Holiday
PCA diagnosed 2018, PSA 6.7, GS 9 (lesions in both lobes of gland, no evidence of metastases), EBRT + Firmagon ADT treatment, ended spring 2019, PSA nadir <0.02 Nov 2019 before rising again. BCR 2022-2023, Pylarify PSMA, Nov 2022 and March 2023 indicates intense uptake areas visible again in the
PCA diagnosed 2018, PSA 6.7, GS 9 (lesions in both lobes of gland, no evidence of metastases), EBRT + Firmagon ADT treatment, ended spring 2019, PSA nadir <0.02 Nov 2019 before rising again. BCR 2022-2023, Pylarify PSMA, Nov 2022 and March 2023 indicates intense uptake areas visible again in the
ac61418
in
Advanced Prostate Cancer
6 months ago
Am i catastrophizing over my results
Hi. I’m a little confused over my situation.After Cyberknife treatment and two years on ADT with a constant PSA of 0.02 post treatment .My PSA started to rise and at 4.1 approximately I had a PSMA scan my second .i also had one 3 years previous to that and both were clear . My MO has me back on ADT
Hi. I’m a little confused over my situation.After Cyberknife treatment and two years on ADT with a constant PSA of 0.02 post treatment .My PSA started to rise and at 4.1 approximately I had a PSMA scan my second .i also had one 3 years previous to that and both were clear . My MO has me back on ADT
Walliam
in
Advanced Prostate Cancer
6 months ago
HRT after Thyroid Cancer
Hi everyone this is my first post. I had papillary thyroid cancer 12 years ago when I was 26. Radical neck dissection full thyroidectomy dozen lymph nodes removed. I've been on a rollercoaster with thyroxine for all that time struggling to feel well. Just got a new diagnosis of significant endometriosis
Hi everyone this is my first post. I had papillary thyroid cancer 12 years ago when I was 26. Radical neck dissection full thyroidectomy dozen lymph nodes removed. I've been on a rollercoaster with thyroxine for all that time struggling to feel well. Just got a new diagnosis of significant endometriosis
DarkStar85
in
Thyroid UK
6 months ago
Add Nubeqa to Orgovyx?
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
vintage42
in
Advanced Prostate Cancer
6 months ago
ADT or Orchiectomy & side effects
I have been on ADT for 18 months the Side effects are a little better but still horrible!! Q) If i have a Orchiectomy, can I stop the ADT therapy altogether? Currently on Xtandi and Orgovox. thanks
I have been on ADT for 18 months the Side effects are a little better but still horrible!! Q) If i have a Orchiectomy, can I stop the ADT therapy altogether? Currently on Xtandi and Orgovox. thanks
lookout4
in
Advanced Prostate Cancer
6 months ago
Unsure of best option in early prostate cancer diagnosis.
I have had PSA tests annually for 10 years and in Oct 2023 had an elevated 6.42 result. Was referred to a urologist, whom performed a DRE. There was prostate enlargement but no tumor discovered through DRE. After discussing several options, I decided to have a biopsy on Nov 21, 2023. Dec 5, 2023,
I have had PSA tests annually for 10 years and in Oct 2023 had an elevated 6.42 result. Was referred to a urologist, whom performed a DRE. There was prostate enlargement but no tumor discovered through DRE. After discussing several options, I decided to have a biopsy on Nov 21, 2023. Dec 5, 2023,
cobrasc429
in
Advanced Prostate Cancer
6 months ago
scabies won´t go away, help
Hello, have anybody scabies won´t go away? I have it for 2 years now and it is horrobil. I try everything (all chemicals / medicine, all natural things with vaseline and sulfur and with all ethereal oils, with enzyme, with borax, CDL, bleech and so on outside , mixed it in all ways. and inside with
Hello, have anybody scabies won´t go away? I have it for 2 years now and it is horrobil. I try everything (all chemicals / medicine, all natural things with vaseline and sulfur and with all ethereal oils, with enzyme, with borax, CDL, bleech and so on outside , mixed it in all ways. and inside with
Massio
in
BASHH
3 months ago
WORRIED ABOUT REOCCURRENCE???
Worried....
Stopped IMRT 1 year ago and stopped adt (4 mos) 9 months ago...
9/23/23 Blood Test PSA .1 --- PSA FREE undetectable and Testosterone was 98
3/4/24 Blood Test PSA .2 ----Psa Free Undetectable and Testosterone not in yet.
I am concerned about the increase
Worried....
Stopped IMRT 1 year ago and stopped adt (4 mos) 9 months ago...
9/23/23 Blood Test PSA .1 --- PSA FREE undetectable and Testosterone was 98
3/4/24 Blood Test PSA .2 ----Psa Free Undetectable and Testosterone not in yet.
I am concerned about the increase
JWS13
in
Advanced Prostate Cancer
5 months ago
Restless legs
Morning hun. Iv had it for around 20 years iv always managed okBut Last Tuesday it started really bad and its day and night. Drs have given me some tablets for Parkinson they ste Not working. I'm just in the lounge walking all night 1-3 ,hour sleep a night Went to hospital Saturday they done bloods
Morning hun. Iv had it for around 20 years iv always managed okBut Last Tuesday it started really bad and its day and night. Drs have given me some tablets for Parkinson they ste Not working. I'm just in the lounge walking all night 1-3 ,hour sleep a night Went to hospital Saturday they done bloods
Frenhies
in
Restless Legs Syndrome
10 months ago
raised platelets
hi folks, I’ve been on the chat a few months now and I read everyone’s posts with great interest. I have developed great respect for the way you all support each other. I’ve had palindromic rheumatism for a few years which I managed with HRT (any change to this sends me into a flare that lasts till
hi folks, I’ve been on the chat a few months now and I read everyone’s posts with great interest. I have developed great respect for the way you all support each other. I’ve had palindromic rheumatism for a few years which I managed with HRT (any change to this sends me into a flare that lasts till
Memaw21
in
NRAS
6 months ago
PCA Cure and when?
7 months into my fight against castration sensitive prostate cancer. PSA is 0 on ADT and Abiraterone and methylprednisolone. Averaged 8,600 steps/day. I have just started to add occasional sprinting. I am taking multiple supplements. I am greatful that my PSA is 0. I work everyday and pray for
7 months into my fight against castration sensitive prostate cancer. PSA is 0 on ADT and Abiraterone and methylprednisolone. Averaged 8,600 steps/day. I have just started to add occasional sprinting. I am taking multiple supplements. I am greatful that my PSA is 0. I work everyday and pray for
Nowhereman9
in
Advanced Prostate Cancer
6 months ago
Nagalase count
My nagalase count is declining. 1.55 -1.37 - 1.12 today. The Clioquinol +zinc +ivermicetin is still working on the way to zero. PSA is steady at 32 Nagalase is an enzyme that cancer cells produce to protect themselves from the immune system.
My nagalase count is declining. 1.55 -1.37 - 1.12 today. The Clioquinol +zinc +ivermicetin is still working on the way to zero. PSA is steady at 32 Nagalase is an enzyme that cancer cells produce to protect themselves from the immune system.
agnut
in
Fight Prostate Cancer
3 months ago
Sweat, bad smell🤢
I've never posted this before because I'm unsure if it's got anything to do with thyroid medication 🤷♀️ but I'm beginning to think it may have.Firstly I have a good hygiene regime shower nearly everyday ect. before I became hyper (graves) i was a gym bunny had a trainer and trained 4 times a week
I've never posted this before because I'm unsure if it's got anything to do with thyroid medication 🤷♀️ but I'm beginning to think it may have.Firstly I have a good hygiene regime shower nearly everyday ect. before I became hyper (graves) i was a gym bunny had a trainer and trained 4 times a week
birkie
in
Thyroid UK
8 months ago
ADT & Mets
Quick question. Let's say that you have Mets and don't know it. You think the PCa is contained because our last Pet-scan 2 months earlier said so. Are we wasting time going onto ADT if that treatment is mainly for contained PCa? Or will the ADT put a lid on the Mets wherever they are in our body?
Quick question. Let's say that you have Mets and don't know it. You think the PCa is contained because our last Pet-scan 2 months earlier said so. Are we wasting time going onto ADT if that treatment is mainly for contained PCa? Or will the ADT put a lid on the Mets wherever they are in our body?
CJ1958
in
Advanced Prostate Cancer
6 months ago
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