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Happy Gobble Day
Hello, Hello, been visiting for 7 months first post…I’m a foreigner in Japan with prostate cancer … quite a journey … not that great at Japanese … which makes everything a bit more difficult .. on top of that I broke my finger 4 weeks ago so a bit difficult to type so I’ll keep this short.. appreciate
Hello, Hello, been visiting for 7 months first post…I’m a foreigner in Japan with prostate cancer … quite a journey … not that great at Japanese … which makes everything a bit more difficult .. on top of that I broke my finger 4 weeks ago so a bit difficult to type so I’ll keep this short.. appreciate
Yokohama2023
in
Advanced Prostate Cancer
9 months ago
Happy Thanksgiving Eve
Also Happy Hump Day 😁 https://youtu.be/PBsjggc5jHM?si=JPeepmKsrlzyNL0E Silly Kaiser thinks that Abiraterone is chemo and won't mail it, so gotta go down to Bakersfield monthly to get it, but this time I brought Chocolate covered Macadamia Nuts for the AIS Cancer Center Onco and Radiation staff.
Also Happy Hump Day 😁 https://youtu.be/PBsjggc5jHM?si=JPeepmKsrlzyNL0E Silly Kaiser thinks that Abiraterone is chemo and won't mail it, so gotta go down to Bakersfield monthly to get it, but this time I brought Chocolate covered Macadamia Nuts for the AIS Cancer Center Onco and Radiation staff.
dockam
in
Advanced Prostate Cancer
9 months ago
Dad with Stage 4 PCa - Need some words of wisdom...again please!
Hi everyone. Just got back from appointment with Dad's oncologist. To keep you up to speed - 3 months ago, his ADT injections stopped working and his PSA started to climb up slowly. Oncologist put Dad on Enzalutamide - been on it for 6 cycles - tolerated well but his PSA has gone from 76 to 87 in one
Hi everyone. Just got back from appointment with Dad's oncologist. To keep you up to speed - 3 months ago, his ADT injections stopped working and his PSA started to climb up slowly. Oncologist put Dad on Enzalutamide - been on it for 6 cycles - tolerated well but his PSA has gone from 76 to 87 in one
kikinini
in
Advanced Prostate Cancer
9 months ago
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When To End An ADT Holiday
Just had a lengthy conversation with my MD Anderson MO who agrees with my Houston Methodist MO, i.e., it’s probably better, after an ADT holiday, to allow PSA to reach 0.5 so a PSMA scan can be used to identify any metastices, then zap the met(s), then go back on ADT to put the cancer back into remission
Just had a lengthy conversation with my MD Anderson MO who agrees with my Houston Methodist MO, i.e., it’s probably better, after an ADT holiday, to allow PSA to reach 0.5 so a PSMA scan can be used to identify any metastices, then zap the met(s), then go back on ADT to put the cancer back into remission
6357axbz
in
Advanced Prostate Cancer
9 months ago
TRT Causing Breast Enlargement
Has anyone on this site experienced breast enlargement while on TRT? Just curious as to how common this is. Am considering it because two years after ADT. (18 months Lupron and Bicalutamide) my T level is 66, PSA .28.
Has anyone on this site experienced breast enlargement while on TRT? Just curious as to how common this is. Am considering it because two years after ADT. (18 months Lupron and Bicalutamide) my T level is 66, PSA .28.
Jack54
in
Advanced Prostate Cancer
9 months ago
Where to get Orgovyx?
Starting SBRT , likely next week with ADT starting at the time. I got my doc to prescribe Orgovyx rather than Lupron. On Medicare with Part D. Turns out Walgreens and Walmart cannot get Orgovyx. CVS said they could route it through a specialty pharmacy but could take 4 weeks. How have those of you taking
Starting SBRT , likely next week with ADT starting at the time. I got my doc to prescribe Orgovyx rather than Lupron. On Medicare with Part D. Turns out Walgreens and Walmart cannot get Orgovyx. CVS said they could route it through a specialty pharmacy but could take 4 weeks. How have those of you taking
ToolBeltZia
in
Prostate Cancer Network
9 months ago
Let's change the way we're treated by adding metabolic therapy to SOC
Some good recent videos on a subject Dr. Thomas Seyfried: https://youtu.be/u2s6z37YIzM?si=UXIhw6X4T0nPwAyV PCa specific discussion on the same: https://youtu.be/RbrX_ZrYxJg?si=wTRoC7-f2N6RDTY0 I must add: I've been on low-carb diet (Atkins) since 1999 and recently (August of this year) started
Some good recent videos on a subject Dr. Thomas Seyfried: https://youtu.be/u2s6z37YIzM?si=UXIhw6X4T0nPwAyV PCa specific discussion on the same: https://youtu.be/RbrX_ZrYxJg?si=wTRoC7-f2N6RDTY0 I must add: I've been on low-carb diet (Atkins) since 1999 and recently (August of this year) started
TryGuyCP
in
Advanced Prostate Cancer
9 months ago
1, 3 or 6 month ADT?
Originally, after a prostatectomy and 40 radiation treatments, I had a one month shot of Lupron followed by a six month shot of Lupron. My PSA went to undetectable. Seven years later my PSA crept up to seven and I was put on a monthly shot of Firmagon for life. My PSA is again undetectable and all scans
Originally, after a prostatectomy and 40 radiation treatments, I had a one month shot of Lupron followed by a six month shot of Lupron. My PSA went to undetectable. Seven years later my PSA crept up to seven and I was put on a monthly shot of Firmagon for life. My PSA is again undetectable and all scans
epfj3333
in
Advanced Prostate Cancer
9 months ago
Big decsions regarding SRT/ADT due to BCR post RP
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
shihtzu124
in
Advanced Prostate Cancer
9 months ago
Big decisions regarding SRT and ADT for BCR
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
shihtzu124
in
Prostate Cancer Network
9 months ago
PSA Doubled in 2 Months
PSA end of August was 0.12 now 0.24. I met with 2 ROs to discuss treatment when my PSA was 0.20 a week ago . One suggested ADT 18-24 months and prostate bed radiation. Second RO says we can avoid ADT for now as he sees 0.70 as the value he believes requires ADT. I'm scheduled for F18 PSMA scan in early
PSA end of August was 0.12 now 0.24. I met with 2 ROs to discuss treatment when my PSA was 0.20 a week ago . One suggested ADT 18-24 months and prostate bed radiation. Second RO says we can avoid ADT for now as he sees 0.70 as the value he believes requires ADT. I'm scheduled for F18 PSMA scan in early
NJWarrior
in
Advanced Prostate Cancer
9 months ago
Four minutes on Hormone Therapy
https://youtu.be/kxcr6y0Zwj0
https://youtu.be/kxcr6y0Zwj0
Darryl
Partner
in
Advanced Prostate Cancer
9 months ago
PSA level six months Eligard
I was diagnosed with PC in September 2022 with PSA level of 35 and had my prostate removed in January 2023. Since then, I started ADT in June 2023 and went through 39 sessions of SRT. My current PSA is 0.008 ng/mL. My doctor gave me a choice of continue with ADT for another six months which I already
I was diagnosed with PC in September 2022 with PSA level of 35 and had my prostate removed in January 2023. Since then, I started ADT in June 2023 and went through 39 sessions of SRT. My current PSA is 0.008 ng/mL. My doctor gave me a choice of continue with ADT for another six months which I already
toyman79912
in
Advanced Prostate Cancer
9 months ago
Opinion sought for ADT treatment duration
I started taking Orgovyx tablets last April. Then I went through the typical 45 radiation treatments of the prostate. 3 months ago my PSA had dropped from 8 to 0.7. Last week it had dropped to 0.1 ng/ml. A biopsy last year showed 1 sample identified as Gleason 8. My urologist thinks I can stop taking
I started taking Orgovyx tablets last April. Then I went through the typical 45 radiation treatments of the prostate. 3 months ago my PSA had dropped from 8 to 0.7. Last week it had dropped to 0.1 ng/ml. A biopsy last year showed 1 sample identified as Gleason 8. My urologist thinks I can stop taking
Doodlebun
in
Advanced Prostate Cancer
9 months ago
Will I be able to Radiate Prostate Bed Fossa, mass is abutting rectum and bladder?
After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team a second Medical Oncologist from Cancer
After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team a second Medical Oncologist from Cancer
Shorehousejam
in
Fight Prostate Cancer
9 months ago
Curcumin Interactions with Abiraterone
Curcumin has so many good benefits that would help to cope with ADT side effects. Does Curcumin interefers with ADT (Lupron+Zytiga)? Does anyone taking Curcumin while on Hormone Therapy? Please, share the information. Thank you.
Curcumin has so many good benefits that would help to cope with ADT side effects. Does Curcumin interefers with ADT (Lupron+Zytiga)? Does anyone taking Curcumin while on Hormone Therapy? Please, share the information. Thank you.
FightCancer101
in
Advanced Prostate Cancer
9 months ago
Can Nubeqa (Darolutamide) be used instead of normal ADT drugs for localized PCa?
Hi all. Australia has just given the green light to lower the cost of this so-called wonder drug from a staggering $40K (AUD) to a low $30. It seems that this drug has fewer side effects than the usual ADT drugs and from what I can gather does a pretty good job of preventing the growth and spread
Hi all. Australia has just given the green light to lower the cost of this so-called wonder drug from a staggering $40K (AUD) to a low $30. It seems that this drug has fewer side effects than the usual ADT drugs and from what I can gather does a pretty good job of preventing the growth and spread
Mike58
in
Advanced Prostate Cancer
9 months ago
QOL gone
Prostatectomy followed 8 months later with ADT and radiation. Mostly incontinent since. Always had overactive bladder before cancer. Urologist did cystoscope and said everything looked normal. Its been > 2 weeks and I am in constant misery. Bladder hurts and have strong feeling of needing to urinate
Prostatectomy followed 8 months later with ADT and radiation. Mostly incontinent since. Always had overactive bladder before cancer. Urologist did cystoscope and said everything looked normal. Its been > 2 weeks and I am in constant misery. Bladder hurts and have strong feeling of needing to urinate
rfgh20
in
Advanced Prostate Cancer
9 months ago
Bummed, PSA went up 0.08 in a Week! Am I failing ADT?
Ok being dramatic Rising PSA? So damn soon? 15 months in Gleason 8/9 Low Volume High Grade History Dx 07/01/2022 Firamagon @28 days Zytiga with prednisone daily Metformin 500 mg daily Completed 6 Sessions of Docetaxel by 01/06/2023 Davinci RP w/ PLNR surgery 03/14/2023 No Supplements
Ok being dramatic Rising PSA? So damn soon? 15 months in Gleason 8/9 Low Volume High Grade History Dx 07/01/2022 Firamagon @28 days Zytiga with prednisone daily Metformin 500 mg daily Completed 6 Sessions of Docetaxel by 01/06/2023 Davinci RP w/ PLNR surgery 03/14/2023 No Supplements
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Leg Pain - 4th Week on Lupron
Hi Friends, I'm on 4th week of ADT (Lupron+Abiraterone). Yesterday I started feeling right upper leg pain in the quads area. I'm not sure whether it's bone or muscle pain. But it's getting worse. I can barely walk. At first I was thinking may be I strained it. But I didn't do anything different than
Hi Friends, I'm on 4th week of ADT (Lupron+Abiraterone). Yesterday I started feeling right upper leg pain in the quads area. I'm not sure whether it's bone or muscle pain. But it's getting worse. I can barely walk. At first I was thinking may be I strained it. But I didn't do anything different than
FightCancer101
in
Advanced Prostate Cancer
9 months ago
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