Experiences with

Anaemia

Hi I have untreated hypothyroidism/hashimoto's (with a goiter) and am feeling absolutely awful. I am tingling all over, am breathless sometimes, have hair loss, palpitations aching joints, and am very very tired. Also, I keep getting hot/sweating, which I understand isn't typical with Hypo symptoms

Hi Having moved from T4 to 1 grain of Armour NDT in July on advice my private Dr, I seem to have had mixed days. These last 2 weeks have been particularly bad and I don't know why. Test results from last week: Blood test 7am. Last dose of NDT 24hr before. Biotin supplements stopped 5 days before

I am on sodium bicarbonate and epo injections for my anaemia. Loads of other meds :( I have peripheral neuropathy both long and short fibre. And proximal myopathy. But this weakness comes and goes. Very depressing Thank you x

Levo 150mcg ×2 (300mcg) Norvasc 30mg * been on Levo for 5+yrs. Yrs later, they gave me Norvasc for my heart problems from the complications of the Levo. Been taking both. My overall health has worsen gravely, my meds are killing me! Help

I finally had my hematologist appt and was pleasantly surprised by how knowledgeable she was! She is very very concerned about my ferritin level, which was 11 when I went in and after she checked it is now 9. She is sending me to an allergist to try to desensitize me to b12 shots (and find out what

Today I visited my GP to try to get an iron infusion, following a reading of ferritin level of 58. He said it was a bit low. I reminded him of the research I had shown him last time, which states that levels should be over 100 in RLS patients. Sadly he hadn't read it, wanted to be helpful, but just

So we have been given permission to do B12 shots at home combined with 200 mg ferrous sulphate and 20,000 of Vit D by our GP who will be doing further diagnostics in the mean time...the one thing I forgot to ask him is if there is a good time of day to take the B12 shots...morning, before bed, before

My only symptom is fatigue due to the anaemia, which seems to be improving, not had any Pegasys injections for four weeks. Spleen normal. Other than that I’ve never had any symptoms, so I’m well puzzled.

Hello all, I have “spells” of vertigo which I usually chalk up to sinus congestion or chronic ear problems. I injected 2 days ago, not having had any vertigo prior for a few months. The vertigo started within 12 hours of the hydroxy injection and is quite severe now 48 hours later. Could this be a side

hello everyone this is my first post. I have been experiencing many of the symptoms of functional b12 deficiency/pernicious anemia for close to 7 years. My doctor was reluctant for whatever reason to authorize the injections, even though I had a positive parietal cell antibody test. I guess my question

B12 I have stopped due to it being high on my last couple of tests (I thought I might have pernicious anaemia due to other family members having it, but a GP blood test ruled that out). I did buy some Thorne B Complex supplements, but am not using them due to their containing B12.

Hello, I have been reading the posts on this site for a few months and the information has been very beneficial. Thank you all! I stopped taking the prescribed daily dose of Ferrous Sulfate 325 mg 48 hours before getting the Iron lab test. Also, fasted before test and had done 1st thing in the morning

{The above was posted to Parnicious Anaemia Society forum here: https://healthunlocked.com/pasoc/posts/148666215/%EF%BB%BFportion-of-long-covid-funding-intentionally-allocated-to-me-cfs-research by jade_s with an invitation for me to post it here!

hi everyone, please could someone help me with this question, I have for the past year have had raised white blood cell count ranging from 11-19 cut off labs are 4.5-10 also raised CRP 18-25 cut off lab 0-9, They now never come down to the normal range and I’m feeling pretty poorly constantly, I have

I was recently also diagnosed with Vitamin B 12 Anaemia/sero negative PA , I have malabsorption problems that cause regular Vitamin D deficiency and have Chronic Migraine and Fatigue syndromes. Basically , I have many health issues that either link to my EDS and Autoimmunity.

https://pernicious-anaemia-society.org/pernicious-anaemia/

I don't want to go vegetarian, because I already suffer from pernicious anaemia which would only make my health issues worse. I am sorry for the long post, but I just want to go back to the happy life I had before the heart operation, but I can't understand why I now feel so sick? 

Hi, thanks in advance. My teenager is taking iron glycinate 27mg iron per tablet. I sourced this after the fumarate prescribed by GP seemed to be giving stomach pain. Current dose of 1 per day is maybe not sufficient to increase her ferritin. It was around 15 for several years (till I read up about

Full blood count Monitoring Total white blood count 4.7 10*9/L [3.9 - 10.2] Red blood cell count 4.48 10*12/L [3.9 - 5.2] Haemoglobin concentration 144 g/L [120.0 - 156.0] Haematocrit 0.449 L/L [0.355 - 0.455] Mean cell volume 100.1 fL [80.0 - 99.0] Above high reference limit Mean cell haemoglobin

Good afternoon, I’m scheduled to meet a new oncology hematologist on Wednesday, September 7th. I would appreciate suggestions for questions. Background: I have Hashimoto’s and two thyroid cancers. Fortunately I have no evidence of disease (remission) at this time. I learned on August 4 that 55% of