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Reference for iron, ferritin, folate, B12, D testing?
Hello, thanks to you all for offering such important and helpful information- I’m getting ready to meet with my doc and ask for these labs, and would love to present research in support. If you can, I would appreciate a reference. TIA - PBSC (in USA)
Hello, thanks to you all for offering such important and helpful information- I’m getting ready to meet with my doc and ask for these labs, and would love to present research in support. If you can, I would appreciate a reference. TIA - PBSC (in USA)
Pbsc
in
Thyroid UK
2 years ago
Assistance with Potential misdiagnosis.
Hi All, I was unsure where to turn and you guys are my last hope! In July 2020 I was diagnosed with MS ( Multiple Sclerosis ) due to having some numbness and tingling in legs and foot and cognitive problems ( forgetful and thinking issues ) and extreme fatigue. I then had an MRI which revealed lesions
Hi All, I was unsure where to turn and you guys are my last hope! In July 2020 I was diagnosed with MS ( Multiple Sclerosis ) due to having some numbness and tingling in legs and foot and cognitive problems ( forgetful and thinking issues ) and extreme fatigue. I then had an MRI which revealed lesions
smileysammi
in
Pernicious Anaemia Society
2 years ago
Iron + magnesium - bothered
I am experimenting with magnesium following some recent posts. I believe someone (jools?) is taking 100mg. I'm using magnesium bisglycinate and took one (88mg) last night, about 30 min before taking my alternate day iron bisglycinate (25mg) [on an empty stomach, of course]. The prior night had been RLS
I am experimenting with magnesium following some recent posts. I believe someone (jools?) is taking 100mg. I'm using magnesium bisglycinate and took one (88mg) last night, about 30 min before taking my alternate day iron bisglycinate (25mg) [on an empty stomach, of course]. The prior night had been RLS
PoorRichard
in
Restless Legs Syndrome
2 years ago
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Five weeks on increased dose of levo. Not sure if dipping again already
Morning😀 So after three months on 50mg levo, I was put up to 75mg and have been on that for five weeks. I started to feel better again after a week or so, got my energy back… and now, the last two days I’ve felt so tired again. Bit headachey, have been suffering a bit of shortness of breath which never
Morning😀 So after three months on 50mg levo, I was put up to 75mg and have been on that for five weeks. I started to feel better again after a week or so, got my energy back… and now, the last two days I’ve felt so tired again. Bit headachey, have been suffering a bit of shortness of breath which never
Loopnova
in
Thyroid UK
2 years ago
Blood results back. Ferritin low but haemoglobin normal. TSH slightly raised.
Hi, thank you for all your previous help when I first posted about how tired I was constantly. I was advised to repost when I got my blood results back from the doc. They didn’t test all my vitamins but these are, I think, the most relevant ones from my results. TSH 2.43 (0.3-4.50) I have an endo
Hi, thank you for all your previous help when I first posted about how tired I was constantly. I was advised to repost when I got my blood results back from the doc. They didn’t test all my vitamins but these are, I think, the most relevant ones from my results. TSH 2.43 (0.3-4.50) I have an endo
Redcar1993
in
Thyroid UK
2 years ago
Does the choice of blood test lab matter?
I want to organise a private blood test to check for pernicious
anaemia
due to symptoms and family history. My question relates to the difference between lab tests. Medichecks offers an MMA test for £127 plus £30 to get it done in a clinic. Nothing apart from mma is tested.
I want to organise a private blood test to check for pernicious
anaemia
due to symptoms and family history. My question relates to the difference between lab tests. Medichecks offers an MMA test for £127 plus £30 to get it done in a clinic. Nothing apart from mma is tested.
Sparklyjenson
in
Thyroid UK
2 years ago
ALT & ALK exceptionally HIGH. Feeling very very anxious.
Hi, New here - this is my first post - hope all is OK. My ALT & Alk. Phos blood test have, ‘gone thru the roof’! I have been having monthly blood checks on the liver since April last year – numbers slowly reducing. My last monthly LFT was end of October, 2021 results being at the high end of normal -
Hi, New here - this is my first post - hope all is OK. My ALT & Alk. Phos blood test have, ‘gone thru the roof’! I have been having monthly blood checks on the liver since April last year – numbers slowly reducing. My last monthly LFT was end of October, 2021 results being at the high end of normal -
blaisepascal
in
British Liver Trust
2 years ago
B12 level
Hi I’ve posted on here the other day to say I had left it 6 weeks in between my B12 jab instead of 4 weeks and have had a horrible week of symptoms, I went yesterday to have my B12 administered and asked my practitioner ( I have to have them done privately ) would she do a blood test before my Jab to
Hi I’ve posted on here the other day to say I had left it 6 weeks in between my B12 jab instead of 4 weeks and have had a horrible week of symptoms, I went yesterday to have my B12 administered and asked my practitioner ( I have to have them done privately ) would she do a blood test before my Jab to
Hidden
in
Pernicious Anaemia Society
2 years ago
IFab or MMA
Hello I am trying to investigate low active b12 results (at the low end of the reference range). Am I better to organise a private iFab test or an MMA test? Medichecks suggested MMA but is iFab better? My mum didn’t get diagnosed with PA with low intrinsic factor until she was very severely disabled
Hello I am trying to investigate low active b12 results (at the low end of the reference range). Am I better to organise a private iFab test or an MMA test? Medichecks suggested MMA but is iFab better? My mum didn’t get diagnosed with PA with low intrinsic factor until she was very severely disabled
Sparklyjenson
in
Pernicious Anaemia Society
2 years ago
FIRST HYDROXOCOBALAMIN INJECTION - feel even worse
Hi My 22 year old daughter started hydroxocobalamin injections for the first time yesterday for pernicious
anaemia
and she told me afterwards she felt pretty bad and very tired.
Hi My 22 year old daughter started hydroxocobalamin injections for the first time yesterday for pernicious
anaemia
and she told me afterwards she felt pretty bad and very tired.
Chenders
in
Pernicious Anaemia Society
2 years ago
Has anyone tried methyl cobalamin for injection from India, japan and Malaysia?
In these countries methylcobalamine is sold in supermarket. Indian methylcobalamine is so cheap and look like they have proper certificates for quality assurance. In the meantime there are some facilitators for continuous delivery of hydroxocobalamin which are so cheap and work like insulin pump work
In these countries methylcobalamine is sold in supermarket. Indian methylcobalamine is so cheap and look like they have proper certificates for quality assurance. In the meantime there are some facilitators for continuous delivery of hydroxocobalamin which are so cheap and work like insulin pump work
Hamayeshguy
in
Pernicious Anaemia Society
2 years ago
Why in Dutch guideline for PA and B12 deficiency emphasis is just on IM injection and SC injection not mentioned?
I'm wondering why in dutch guideline for PA and B12 deficiency there is no SC injection. Is there any difference between IM injection and SC injection results? Why frequency of injection is different than NGS NICE guideline? In my experience more retention of B12 is the only key factor in symptoms improvement
I'm wondering why in dutch guideline for PA and B12 deficiency there is no SC injection. Is there any difference between IM injection and SC injection results? Why frequency of injection is different than NGS NICE guideline? In my experience more retention of B12 is the only key factor in symptoms improvement
Hamayeshguy
in
Pernicious Anaemia Society
2 years ago
Underactive Thyroid, Hashimoto, Anaemia or none of the above
Any thoughts on the below please? I am considered normal but hoping to see an Endo specialist privately. I do have some more blood test results re: blood count but thought these might be the key ones. Can add if needed Creatinine 83 (range 53 - 97) Calcium 2.41 mmol (no normal range) CKD 75ml/min/1.73m2
Any thoughts on the below please? I am considered normal but hoping to see an Endo specialist privately. I do have some more blood test results re: blood count but thought these might be the key ones. Can add if needed Creatinine 83 (range 53 - 97) Calcium 2.41 mmol (no normal range) CKD 75ml/min/1.73m2
Harlie2020
in
Thyroid UK
2 years ago
Folate deficiency - inherited ?
I have folate deficiency
anaemia
, all the time unless I take folate. Fatigue/exhaustion. My grandad had pernicious
anaemia
and thyroid bless him. I wonder if it’s related… I also have thyroid disorder.
I have folate deficiency
anaemia
, all the time unless I take folate. Fatigue/exhaustion. My grandad had pernicious
anaemia
and thyroid bless him. I wonder if it’s related… I also have thyroid disorder.
Catlover46
in
Pernicious Anaemia Society
3 years ago
Low Folate - Pernicious Anemia?
Hi, I was diagnosed with pernicious anemia in October and had the B12 loading doses - i also took 1000mcg a day sublingual following that and 3 month later my b12 is 877ng/L. My Serum Folate was 6.5 back in october and in the following 3 months dropped to 2.7mg/mL and wasnt treat in october it was considered
Hi, I was diagnosed with pernicious anemia in October and had the B12 loading doses - i also took 1000mcg a day sublingual following that and 3 month later my b12 is 877ng/L. My Serum Folate was 6.5 back in october and in the following 3 months dropped to 2.7mg/mL and wasnt treat in october it was considered
Minimanic
in
Pernicious Anaemia Society
2 years ago
Should I have been tested for PA before starting loading doses?
Hi everyone, I'm currently on my loading doses and have a sneaking worry that my treatment/investigatons into PA aren't as efficient as I'd previously thought - I'd appreciate some advice as I sometimes find the clinical information online very complicated/contradicting. Firstly they will only give me
Hi everyone, I'm currently on my loading doses and have a sneaking worry that my treatment/investigatons into PA aren't as efficient as I'd previously thought - I'd appreciate some advice as I sometimes find the clinical information online very complicated/contradicting. Firstly they will only give me
franrose
in
Pernicious Anaemia Society
2 years ago
Niraparib - GALAHAD trial
In the safety analysis population, the most common treatment-emergent adverse events of any grade were nausea (169 [58%] of 289),
anaemia
(156 [54%]), and vomiting (111 [38%]); the most common grade 3 or worse events were haematological (
anaemia
in 95 [33%] of 289; thrombocytopenia in 47 [16%]; and neutropenia
In the safety analysis population, the most common treatment-emergent adverse events of any grade were nausea (169 [58%] of 289),
anaemia
(156 [54%]), and vomiting (111 [38%]); the most common grade 3 or worse events were haematological (
anaemia
in 95 [33%] of 289; thrombocytopenia in 47 [16%]; and neutropenia
pjoshea13
in
Advanced Prostate Cancer
2 years ago
Golden Anniversary
To the relief of both of us (as I think Dr Wool was getting a bit frustrated with my long, ongoing “condition” too) the second Schillings Test had showed that I was suffering from Pernicious
Anaemia
and I was to have Cytamen (cyanocobalamin) injections every four weeks from then on.
To the relief of both of us (as I think Dr Wool was getting a bit frustrated with my long, ongoing “condition” too) the second Schillings Test had showed that I was suffering from Pernicious
Anaemia
and I was to have Cytamen (cyanocobalamin) injections every four weeks from then on.
clivealive
Forum Support
in
Pernicious Anaemia Society
2 years ago
Can you help me interpret?
This was on a CDC handout that an immunologist friend gave me regarding vaccines. Does this mean we have to stop our ibrutinib, for example, two weeks before the vaccine ? or two weeks before and two weeks after we get the vaccine or booster? Quote: “Whenever possible, COVID-19 vaccines should be
This was on a CDC handout that an immunologist friend gave me regarding vaccines. Does this mean we have to stop our ibrutinib, for example, two weeks before the vaccine ? or two weeks before and two weeks after we get the vaccine or booster? Quote: “Whenever possible, COVID-19 vaccines should be
ElMaga
in
CLL Support
2 years ago
Venetoclax and calquence combo for Cll
Anyone have experience with V and Calquence together? My husband has been on calquence 4 months but Haemotolgist states his bone marrow still 80 to 90% full of cancerous lymphocytes. Doc wants V and R but husband has had no issues with Calquence and would prefer to stay on it along with Venetoclax. Lymphocytes
Anyone have experience with V and Calquence together? My husband has been on calquence 4 months but Haemotolgist states his bone marrow still 80 to 90% full of cancerous lymphocytes. Doc wants V and R but husband has had no issues with Calquence and would prefer to stay on it along with Venetoclax. Lymphocytes
smirnof
in
CLL Support
2 years ago
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