Search
Search
About
Log in
Join
Experiences with
Anaemia
Posts
Communities
10,270 public posts
Filter results
Just been approved for Vitamin B12 injection treatment.
hello everyone this is my first post. I have been experiencing many of the symptoms of functional b12 deficiency/pernicious anemia for close to 7 years. My doctor was reluctant for whatever reason to authorize the injections, even though I had a positive parietal cell antibody test. I guess my question
hello everyone this is my first post. I have been experiencing many of the symptoms of functional b12 deficiency/pernicious anemia for close to 7 years. My doctor was reluctant for whatever reason to authorize the injections, even though I had a positive parietal cell antibody test. I guess my question
MikeyO
in
Pernicious Anaemia Society
2 years ago
Don't trust everything you read on the internet
Just sharing the NHS website on B12 and folate deficiency
anaemia
, which reads as per the below. What this says to me is that there is a distinct difference between what actually happens in the real world vs. what we read about on the old internet.
Just sharing the NHS website on B12 and folate deficiency
anaemia
, which reads as per the below. What this says to me is that there is a distinct difference between what actually happens in the real world vs. what we read about on the old internet.
Pickle500
in
Pernicious Anaemia Society
2 years ago
any higher strength iron glycinate supplements?
Hi, thanks in advance. My teenager is taking iron glycinate 27mg iron per tablet. I sourced this after the fumarate prescribed by GP seemed to be giving stomach pain. Current dose of 1 per day is maybe not sufficient to increase her ferritin. It was around 15 for several years (till I read up about
Hi, thanks in advance. My teenager is taking iron glycinate 27mg iron per tablet. I sourced this after the fumarate prescribed by GP seemed to be giving stomach pain. Current dose of 1 per day is maybe not sufficient to increase her ferritin. It was around 15 for several years (till I read up about
camomile9
in
Thyroid UK
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Portion of long covid funding intentionally allocated to ME/CFS research
{The above was posted to Parnicious
Anaemia
Society forum here: https://healthunlocked.com/pasoc/posts/148666215/%EF%BB%BFportion-of-long-covid-funding-intentionally-allocated-to-me-cfs-research by jade_s with an invitation for me to post it here!
{The above was posted to Parnicious
Anaemia
Society forum here: https://healthunlocked.com/pasoc/posts/148666215/%EF%BB%BFportion-of-long-covid-funding-intentionally-allocated-to-me-cfs-research by jade_s with an invitation for me to post it here!
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Can you give me advice on my blood results please?
Full blood count Monitoring Total white blood count 4.7 10*9/L [3.9 - 10.2] Red blood cell count 4.48 10*12/L [3.9 - 5.2] Haemoglobin concentration 144 g/L [120.0 - 156.0] Haematocrit 0.449 L/L [0.355 - 0.455] Mean cell volume 100.1 fL [80.0 - 99.0] Above high reference limit Mean cell haemoglobin
Full blood count Monitoring Total white blood count 4.7 10*9/L [3.9 - 10.2] Red blood cell count 4.48 10*12/L [3.9 - 5.2] Haemoglobin concentration 144 g/L [120.0 - 156.0] Haematocrit 0.449 L/L [0.355 - 0.455] Mean cell volume 100.1 fL [80.0 - 99.0] Above high reference limit Mean cell haemoglobin
bubbatetley
in
Thyroid UK
2 years ago
Questions for Hematologist?
Good afternoon, I’m scheduled to meet a new oncology hematologist on Wednesday, September 7th. I would appreciate suggestions for questions. Background: I have Hashimoto’s and two thyroid cancers. Fortunately I have no evidence of disease (remission) at this time. I learned on August 4 that 55% of
Good afternoon, I’m scheduled to meet a new oncology hematologist on Wednesday, September 7th. I would appreciate suggestions for questions. Background: I have Hashimoto’s and two thyroid cancers. Fortunately I have no evidence of disease (remission) at this time. I learned on August 4 that 55% of
BgpjbA
in
Pernicious Anaemia Society
2 years ago
Spacing between Peg injections
Hello, I’ve been on Peg for PV for 2 years. Now down to 45 mcg every two weeks. Platelets remain where my doc wants them (between 100 and 200). Despite PV, I have only ever had HCT at higher end of normal - never higher than that. Over last year, my lymphocytes have been a bit low but no cause for concern
Hello, I’ve been on Peg for PV for 2 years. Now down to 45 mcg every two weeks. Platelets remain where my doc wants them (between 100 and 200). Despite PV, I have only ever had HCT at higher end of normal - never higher than that. Over last year, my lymphocytes have been a bit low but no cause for concern
Mymble
in
MPN Voice
2 years ago
Test results - can someone help?
Hi all, I had an iron test (fasted, no supplements for iron in months) and could do with some help, if anyone can? Iron: 36.1 (r5.8 - 34.5) Ferritin: 60.1 (r13 - 150) So my ferritin is a little low, but why then is the iron in my blood over the normal range? Should I be worried? I can't take supplements
Hi all, I had an iron test (fasted, no supplements for iron in months) and could do with some help, if anyone can? Iron: 36.1 (r5.8 - 34.5) Ferritin: 60.1 (r13 - 150) So my ferritin is a little low, but why then is the iron in my blood over the normal range? Should I be worried? I can't take supplements
Suzanneharb
in
Thyroid UK
2 years ago
Post stent operation recovery
I don't want to go vegetarian, because I already suffer from pernicious
anaemia
which would only make my health issues worse. I am sorry for the long post, but I just want to go back to the happy life I had before the heart operation, but I can't understand why I now feel so sick?
I don't want to go vegetarian, because I already suffer from pernicious
anaemia
which would only make my health issues worse. I am sorry for the long post, but I just want to go back to the happy life I had before the heart operation, but I can't understand why I now feel so sick?
patez
in
Sudden Cardiac Arrest & Heart Attack
2 years ago
Could Members With Experience of PBC Without A Gallbladder Feels Like , Is Treatment and Diagnosis done the same way? Thanks
I was recently also diagnosed with Vitamin B 12
Anaemia
/sero negative PA , I have malabsorption problems that cause regular Vitamin D deficiency and have Chronic Migraine and Fatigue syndromes. Basically , I have many health issues that either link to my EDS and Autoimmunity.
I was recently also diagnosed with Vitamin B 12
Anaemia
/sero negative PA , I have malabsorption problems that cause regular Vitamin D deficiency and have Chronic Migraine and Fatigue syndromes. Basically , I have many health issues that either link to my EDS and Autoimmunity.
Blearyeyed
in
PBCers Organization
2 years ago
New blood test results
B12 I have stopped due to it being high on my last couple of tests (I thought I might have pernicious
anaemia
due to other family members having it, but a GP blood test ruled that out). I did buy some Thorne B Complex supplements, but am not using them due to their containing B12.
B12 I have stopped due to it being high on my last couple of tests (I thought I might have pernicious
anaemia
due to other family members having it, but a GP blood test ruled that out). I did buy some Thorne B Complex supplements, but am not using them due to their containing B12.
Justine_Case
in
Thyroid UK
2 years ago
Taking B12 injections daily.
Hi Guys and Girls, This site has been a tremendous help and blessing for me and my GP, who knew little about PA. I am injecting 1ml of methylcobalamin EOD, I have been injecting since Nov. 2021, in the early days, I really didn’t know what I was doing and my GP knew less, I was injecting once a month
Hi Guys and Girls, This site has been a tremendous help and blessing for me and my GP, who knew little about PA. I am injecting 1ml of methylcobalamin EOD, I have been injecting since Nov. 2021, in the early days, I really didn’t know what I was doing and my GP knew less, I was injecting once a month
RisingOne
in
Pernicious Anaemia Society
2 years ago
BMB results
He said reducing Anagrelide should help with
anaemia
. Bloods and review in 4 weeks, might have to go on iron tablets then, although they didn’t do much last time I was on them. So, in some ways I’m relieved no major change in medication but not sure if I’m ‘happy’ with the advice.
He said reducing Anagrelide should help with
anaemia
. Bloods and review in 4 weeks, might have to go on iron tablets then, although they didn’t do much last time I was on them. So, in some ways I’m relieved no major change in medication but not sure if I’m ‘happy’ with the advice.
lizzziep
in
MPN Voice
2 years ago
David Cassidy, alcoholism or pernicious anemia?
just watched David Cassidy's last interview with Dr Phil. It was extremely sad. I feel very strongly that David Cassidy who died of dementia had pernicious anemia along with his mother and his grandfather. I'm wondering I don't know if I'm allowed to post this link but I would love for people to watch
just watched David Cassidy's last interview with Dr Phil. It was extremely sad. I feel very strongly that David Cassidy who died of dementia had pernicious anemia along with his mother and his grandfather. I'm wondering I don't know if I'm allowed to post this link but I would love for people to watch
EllaNore
in
Pernicious Anaemia Society
2 years ago
Anti iFAB tests
Good morning all, I’m wondering about the anti IFAB test. I am aware that only 50% of people with PA test positive for these, but not sure why. Does anyone know if it’s just your luck on the day (I.e. do antibody levels fluctuate significantly, possibly when you are having a gastritis flare - I’ve
Good morning all, I’m wondering about the anti IFAB test. I am aware that only 50% of people with PA test positive for these, but not sure why. Does anyone know if it’s just your luck on the day (I.e. do antibody levels fluctuate significantly, possibly when you are having a gastritis flare - I’ve
Sparklyjenson
in
Pernicious Anaemia Society
2 years ago
Levothyroxine and iron prescription
hi everyone, Just been told I’ve got low iron by the dr from my bloods and was looking online that you can’t take levo and iron together and they have to be taken on an empty stomach. Please can someone confirm is this is correct? Thank you for your help.
hi everyone, Just been told I’ve got low iron by the dr from my bloods and was looking online that you can’t take levo and iron together and they have to be taken on an empty stomach. Please can someone confirm is this is correct? Thank you for your help.
RomyJean
in
Thyroid UK
2 years ago
Update of Mithradite Trial
BMB showed Reticulin grade 1, I have no idea what that means but the bloods have improved as I was bordering
anaemia
for a while. I seem to have swapped the itch for the fatigue but I'll take the fatigue any day over the itch. To sum up I'm happy with it.
BMB showed Reticulin grade 1, I have no idea what that means but the bloods have improved as I was bordering
anaemia
for a while. I seem to have swapped the itch for the fatigue but I'll take the fatigue any day over the itch. To sum up I'm happy with it.
JP1952
in
MPN Voice
2 years ago
Ectopic Beats or Something More?
My GP did various tests... the results of which all ruled out
anaemia
, diabetes and thyroid as being possible causes. Heart failure was also ruled out but still they kept happening.
My GP did various tests... the results of which all ruled out
anaemia
, diabetes and thyroid as being possible causes. Heart failure was also ruled out but still they kept happening.
Kendrew
in
PMRGCAuk
2 years ago
Can Pernicious Anemia cause Parkinson type symptoms?
This is my first post. I have found the information here really helpful. I was told 6 weeks ago my blood test showed a very low b12 level of 109 and i was likely to have Pernicious anemia. Because of neuro issues they told me injections every other day and if needed to continue until I improve then every
This is my first post. I have found the information here really helpful. I was told 6 weeks ago my blood test showed a very low b12 level of 109 and i was likely to have Pernicious anemia. Because of neuro issues they told me injections every other day and if needed to continue until I improve then every
Marlboro123
in
Pernicious Anaemia Society
2 years ago
Folate
I have very high parietal cell antibodies and a long history of
anaemia
and neurological and other symptoms without b12 injections but haven’t been diagnosed with PA because the IF test was negative. That was 14 years ago and I’m now 61. Should I be pressing for another IF test now I’m older?
I have very high parietal cell antibodies and a long history of
anaemia
and neurological and other symptoms without b12 injections but haven’t been diagnosed with PA because the IF test was negative. That was 14 years ago and I’m now 61. Should I be pressing for another IF test now I’m older?
Blais
in
Pernicious Anaemia Society
2 years ago
1
...
95
96
97
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
4365 results
Thyroid UK
3182 results
Restless Legs Syndrome
398 results
View top 10 communities
Sort by
Most Relevant
Newest