Search
Search
About
Log in
Join
Experiences with
Anaemia
Posts
Communities
9,891 public posts
Filter results
Neurologists & hematologists in London for B12 neurological symptoms - recs pls?
Hi all - Can anyone recommend a good neurologist & hematologist in London to consult with privately about my B12 treatment/symptoms? I’ve recently been found to be B12 deficient (150), high MMA, I’m 40 yrs old. I just finished getting injections over 2 weeks. My symptoms have worsened a lot during
Hi all - Can anyone recommend a good neurologist & hematologist in London to consult with privately about my B12 treatment/symptoms? I’ve recently been found to be B12 deficient (150), high MMA, I’m 40 yrs old. I just finished getting injections over 2 weeks. My symptoms have worsened a lot during
PA_newbie
in
Pernicious Anaemia Society
2 years ago
Help!
but having suffered from heavy periods over the years and knowing that my Mum suffers from
anaemia
too it would make sense that my iron levels could be causing the RLS.
but having suffered from heavy periods over the years and knowing that my Mum suffers from
anaemia
too it would make sense that my iron levels could be causing the RLS.
Lilybeans
in
Restless Legs Syndrome
2 years ago
Iron blood test result - confusing
Hi all, Recent iron test (fasted, no supplements for iron in months): Iron: 36.1 (r5.8 - 34.5) Ferritin: 60.1 (r13 - 150) So my ferritin is a little low, but why then is the iron in my blood over the normal range? Should I be worried? I can't take supplements with such a high iron result? Do I need
Hi all, Recent iron test (fasted, no supplements for iron in months): Iron: 36.1 (r5.8 - 34.5) Ferritin: 60.1 (r13 - 150) So my ferritin is a little low, but why then is the iron in my blood over the normal range? Should I be worried? I can't take supplements with such a high iron result? Do I need
Suzanneharb
in
Thyroid UK
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
bloods vit count they claim normal ?
serum iron 19.6 umol/l iron binding 63 umol/l unbound iron binding 43 umol/l percentage iron saturation 31%alkaline phosphatease level 92 u/l plasma alanine aminotransferase level ? 18 u/l serum total bilirubin level 6 umol/l serum total protein level 69 g/l plasma globulin level 33 g/l serum
serum iron 19.6 umol/l iron binding 63 umol/l unbound iron binding 43 umol/l percentage iron saturation 31%alkaline phosphatease level 92 u/l plasma alanine aminotransferase level ? 18 u/l serum total bilirubin level 6 umol/l serum total protein level 69 g/l plasma globulin level 33 g/l serum
Hidden
in
Thyroid UK
2 years ago
Blood Iron results
Hello everyone. My long awaited appointment at the gp surgery finally arrived and I was seen by a somewhat inexperienced health care assistant who suggested I drink a glass of tonic water before bed to help with my RLS! When I tried to explain my research, this forum and the Mayo Clinic algorithm
Hello everyone. My long awaited appointment at the gp surgery finally arrived and I was seen by a somewhat inexperienced health care assistant who suggested I drink a glass of tonic water before bed to help with my RLS! When I tried to explain my research, this forum and the Mayo Clinic algorithm
rlsagain
in
Restless Legs Syndrome
2 years ago
Intrinsic Factor blood test - Vitamin B12 deficiency
Today I had a blood test for Intrinsic Factor. Some Autoimmune disease can cause Pernicious anemia. Watch this space for results 💉
Today I had a blood test for Intrinsic Factor. Some Autoimmune disease can cause Pernicious anemia. Watch this space for results 💉
jules1955
in
PMRGCAuk
2 years ago
what do the different parts of my iron test mean?
A short while ago, I read a brilliant description from one of the admins (I think) explaining what all the different parts of the iron panel (serum iron, tibc, uibc, transferrin saturation, and ferritin) meant and how to interpret the results. I thought I’d saved it, but can’t find it so wondered if
A short while ago, I read a brilliant description from one of the admins (I think) explaining what all the different parts of the iron panel (serum iron, tibc, uibc, transferrin saturation, and ferritin) meant and how to interpret the results. I thought I’d saved it, but can’t find it so wondered if
Mazes
in
Thyroid UK
2 years ago
Vitamin Deficiency/ Pernicious Anaemia : How Common Are They With EDS and What's The Best Treatment for Us ? Please Tell Me Your Experience
Now , I have been found to be severely deficient in Vitamin B 12 , Iron and Vitamin D and will be tested for Intrinsic Factor tomorrow to check for Pernicious
Anaemia
or Vitamin B12 Deficiency
Anaemia
.
Now , I have been found to be severely deficient in Vitamin B 12 , Iron and Vitamin D and will be tested for Intrinsic Factor tomorrow to check for Pernicious
Anaemia
or Vitamin B12 Deficiency
Anaemia
.
Blearyeyed
in
Ehlers-Danlos Support UK
2 years ago
Test Result Comments Welcomed Pre Endo Appt
Dear Unlockers, I’ve got a telephone consultation with my endo this Friday and am writing to ask for your views on my test results in advance. I had a lot of blood work done in April in preparation for an endo appt which was rearranged, so I had to repeat the thyroid panel this month. There was very
Dear Unlockers, I’ve got a telephone consultation with my endo this Friday and am writing to ask for your views on my test results in advance. I had a lot of blood work done in April in preparation for an endo appt which was rearranged, so I had to repeat the thyroid panel this month. There was very
PDS1
in
Thyroid UK
2 years ago
DIO2 Homozygous CC
I got the test results from Regenerus today and I am homozygous CC which means 'CC infers a lower than average response and that tri-iodothyroxine (T3) perhaps should be considered'. I saw my new Endo for the first time very recently (Saturday) and he increased my levo dose from 93mcg to 100mcg, re-test
I got the test results from Regenerus today and I am homozygous CC which means 'CC infers a lower than average response and that tri-iodothyroxine (T3) perhaps should be considered'. I saw my new Endo for the first time very recently (Saturday) and he increased my levo dose from 93mcg to 100mcg, re-test
Pearlteapot
in
Thyroid UK
2 years ago
Hello 👋🏼
I have had lots of tests to check for perimenopause, thyroid problems, rheumatoid arthritis, osteoarthritis,
anaemia
, liver function, vitamin deficiencies etc etc, and the tests always come back fine.
I have had lots of tests to check for perimenopause, thyroid problems, rheumatoid arthritis, osteoarthritis,
anaemia
, liver function, vitamin deficiencies etc etc, and the tests always come back fine.
Blue_Clay
in
Fibromyalgia Action UK
1 year ago
constant battles for B12
appointment two days early for my injection because she might "lose her job" I asked her if it was ok then for me to be verbally abused by her, be under treated to the point where I'm falling over and shaking and that I might lose my job, friends, social life, sanity just because I have pernicious
anaemia
appointment two days early for my injection because she might "lose her job" I asked her if it was ok then for me to be verbally abused by her, be under treated to the point where I'm falling over and shaking and that I might lose my job, friends, social life, sanity just because I have pernicious
anaemia
LadyBothwell
in
Pernicious Anaemia Society
2 years ago
How Long is the Waiting List for Spirometry?
Also, I have
anaemia
. I have probably been anaemic for a long time, and this is despite taking iron supplements. I know
anaemia
can increase breathlessness, but can emphysema (which is what is suspected) also cause or worsen
anaemia
? Thanks
Also, I have
anaemia
. I have probably been anaemic for a long time, and this is despite taking iron supplements. I know
anaemia
can increase breathlessness, but can emphysema (which is what is suspected) also cause or worsen
anaemia
? Thanks
d0ttysslave
in
Lung Conditions Community Forum
2 years ago
Advice please - thyroid, vitamins, ferritin. Dr only wants to give statins?
My sister's surgery only seem interested in giving her statins, but I'm concerned about some of her other results instead. Please can someone else give their views? I wonder if I'm right or not. She's just 60 and has been on levo for about 30 years. Sorry, results are a bit long! Serum FT4 –
normal
My sister's surgery only seem interested in giving her statins, but I'm concerned about some of her other results instead. Please can someone else give their views? I wonder if I'm right or not. She's just 60 and has been on levo for about 30 years. Sorry, results are a bit long! Serum FT4 –
normal
TaraJR
in
Thyroid UK
2 years ago
MCV & MCH
I have posted a chart of my MCV & MCH as I have recently got copies of blood tests. As you can see most of the mch have been flagged. Looking at getting MMA and Homocysteine tests as my last Active B12 66.1 pmol/L (25.1 - 165 pmol). Need to be tested for PA as well.
I have posted a chart of my MCV & MCH as I have recently got copies of blood tests. As you can see most of the mch have been flagged. Looking at getting MMA and Homocysteine tests as my last Active B12 66.1 pmol/L (25.1 - 165 pmol). Need to be tested for PA as well.
diamondgirl9022
in
Pernicious Anaemia Society
2 years ago
which comes first? Chicken or egg
hi first time post on this group, so bit of history diagnosed with pernicious
anaemia
in 2006 after years of going gp tiredness etc.
hi first time post on this group, so bit of history diagnosed with pernicious
anaemia
in 2006 after years of going gp tiredness etc.
shortytlc
in
British Liver Trust
2 years ago
OLAPARIB
Hello all I started Olaparib at the very end of Dec 2021 I have had 2 blood transfusions after low HB one in march and then 1 in April with a dose reduction to 500mg.I have not had another transfusion since although I am expecting my bloods to be a bit low at the moment (
Anaemia
) I am about to complete
Hello all I started Olaparib at the very end of Dec 2021 I have had 2 blood transfusions after low HB one in march and then 1 in April with a dose reduction to 500mg.I have not had another transfusion since although I am expecting my bloods to be a bit low at the moment (
Anaemia
) I am about to complete
Hidden
in
My Ovacome
2 years ago
Fewer Injections, more injections or stay the course? Please advise.
I have been injecting 1 ml of methylcobalamin and cyanocobalamin, eod, alternatively for about a month. Sometimes, the numbness in my hands feels like it’s getting worse and now my right leg is weak. Should I inject once a week or skip a week. Or, should I push through the pain, numbness and weakness
I have been injecting 1 ml of methylcobalamin and cyanocobalamin, eod, alternatively for about a month. Sometimes, the numbness in my hands feels like it’s getting worse and now my right leg is weak. Should I inject once a week or skip a week. Or, should I push through the pain, numbness and weakness
RisingOne
in
Pernicious Anaemia Society
2 years ago
IRON results help please
Last year thanks to some good advice from radd and others, I was able to have an iron infusion which really improved my life. A year on, I have had the full iron panel again and my iron has dropped back to 22 from 33, and my ferritin is still way high. My GP has summoned me by email as he has
Last year thanks to some good advice from radd and others, I was able to have an iron infusion which really improved my life. A year on, I have had the full iron panel again and my iron has dropped back to 22 from 33, and my ferritin is still way high. My GP has summoned me by email as he has
Daffers123
in
Thyroid UK
2 years ago
Advice please- you have true PA or Malabsorption B12 deficiency would taking a multivitamin and increasing meat nudge up b12 levels?
hi again everyone, really need this clarification please, if you have pernicious anemia or malabsorption b12 and folate defiency , would a multivitamin and increased meat intake (meat overload lol) bring your levels up? I was B12 179ng/l beginning July now apparently I’m 199ng/l folate was July 1.5 not
hi again everyone, really need this clarification please, if you have pernicious anemia or malabsorption b12 and folate defiency , would a multivitamin and increased meat intake (meat overload lol) bring your levels up? I was B12 179ng/l beginning July now apparently I’m 199ng/l folate was July 1.5 not
Steph0077
in
Pernicious Anaemia Society
2 years ago
1
...
79
80
81
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
4209 results
Thyroid UK
3073 results
Restless Legs Syndrome
351 results
View top 10 communities
Sort by
Most Relevant
Newest