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Possible AN on my left, awaiting an MRI but struggling to take my mind off it
I also often feel a bit dizzy and stuff but I'm a long term Hypothyroidism and pernicious
anaemia
patient, so that kind of comes with the territory! GP sent me to Specsavers for a hearing test, which I believe showed age related hearing loss, more so in my right ear, but very minor.
I also often feel a bit dizzy and stuff but I'm a long term Hypothyroidism and pernicious
anaemia
patient, so that kind of comes with the territory! GP sent me to Specsavers for a hearing test, which I believe showed age related hearing loss, more so in my right ear, but very minor.
VB_Aylesbury
in
Acoustic Neuroma Support
1 year ago
Decapeptyl and bone thinning
After my second son was born in December 2018, I experienced bleeding everyday inducing
anaemia
and severe pain. I was put on Decapeptyl injections 11.25mg every 3 months and take tibolone daily.
After my second son was born in December 2018, I experienced bleeding everyday inducing
anaemia
and severe pain. I was put on Decapeptyl injections 11.25mg every 3 months and take tibolone daily.
tiger6
in
Endometriosis UK
1 year ago
serum iron
While seeing a Dr at Leicester hospital I was asked to have a blood test, it wasn’t a fasting one. I have just had a letter, my serum iron was 12 there is no mention of anything else. The registrar has written “ Low iron can make restless legs worse and therefore I would be grateful if you could investigate
While seeing a Dr at Leicester hospital I was asked to have a blood test, it wasn’t a fasting one. I have just had a letter, my serum iron was 12 there is no mention of anything else. The registrar has written “ Low iron can make restless legs worse and therefore I would be grateful if you could investigate
Elsie77
in
Restless Legs Syndrome
1 year ago
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Buprenorphine
I am writing this to highlight how miraculous Buprenorphine has been for me and many others on this site. My sleep app shows how good my sleep is. I had never heard of buprenorphine until Shumbah posted that it had resolved her severe, refractory RLS. No neurologist has ever mentioned it. Like Shumbah
I am writing this to highlight how miraculous Buprenorphine has been for me and many others on this site. My sleep app shows how good my sleep is. I had never heard of buprenorphine until Shumbah posted that it had resolved her severe, refractory RLS. No neurologist has ever mentioned it. Like Shumbah
Joolsg
in
Restless Legs Syndrome
1 year ago
article in the times
Symptoms/signs include: ● Abnormal findings on a blood count, such as
anaemia
● Cognitive difficulties, including memory problems and other symptoms of dementia ● A sore/inflamed tongue ● Unexplained eyesight changes, including blurred vision ● Mental health problems, such as anxiety and depression
Symptoms/signs include: ● Abnormal findings on a blood count, such as
anaemia
● Cognitive difficulties, including memory problems and other symptoms of dementia ● A sore/inflamed tongue ● Unexplained eyesight changes, including blurred vision ● Mental health problems, such as anxiety and depression
Hedgehogs15
in
Pernicious Anaemia Society
1 year ago
Pernicious Anaemia, Hashimoto's, Connective Tissue disorder, Migraine
Hi, I was recently diagnosed with this condition. I also have Hashimoto's thyroiditis (diagnosed in my thirties). Any advice on supplementing B12 injections would be much appreciated.
Hi, I was recently diagnosed with this condition. I also have Hashimoto's thyroiditis (diagnosed in my thirties). Any advice on supplementing B12 injections would be much appreciated.
skylark25
in
Thyroid UK
1 year ago
Hello and any advice for withdrawal?
I've been an RLS sufferer since I was 13 and I'm now 56. I've done all the good lifestyle stuff and nothing much helps. After 14 years in clinic with Professor Chaudhuri, told at every 6m appointment there have been no breakthroughs or new developments, have learned about iron infusion. I have requested
I've been an RLS sufferer since I was 13 and I'm now 56. I've done all the good lifestyle stuff and nothing much helps. After 14 years in clinic with Professor Chaudhuri, told at every 6m appointment there have been no breakthroughs or new developments, have learned about iron infusion. I have requested
familynash5
in
Restless Legs Syndrome
1 year ago
Query
E.T. Jak2 positive since 2018. On Hydroxicarbamide since autumn 2019. Bloods every three months and platelets reduced and more or less stable. This last six months, HCT has crept from 0.44 where it usually stays to 0.46.Dr suggested increasing HU to two tablets, four times a week and one tablet three
E.T. Jak2 positive since 2018. On Hydroxicarbamide since autumn 2019. Bloods every three months and platelets reduced and more or less stable. This last six months, HCT has crept from 0.44 where it usually stays to 0.46.Dr suggested increasing HU to two tablets, four times a week and one tablet three
Mcrg
in
MPN Voice
1 year ago
Advice on iron supplements
So... the next steps in taking control of my own treatment. I've been for my private bloods this morning including IFAB and gastric parietal antibodies, MMA and homocyeine. I've now resumed B12 SI and am taking vit D and K2 supplements. My ferrin is low, so I'm going to start iron supplements. I'd
So... the next steps in taking control of my own treatment. I've been for my private bloods this morning including IFAB and gastric parietal antibodies, MMA and homocyeine. I've now resumed B12 SI and am taking vit D and K2 supplements. My ferrin is low, so I'm going to start iron supplements. I'd
KBird01
in
Pernicious Anaemia Society
1 year ago
Intrinsic factor antibody result
Hi all, I've only just seen the result of an Intrinsic Factor Antibody test that was done in December before I started SI which I don't know how to interpret. I got a result of 2 u/ml (reference range is 0-24 u/ml). Is that a positive or a negative result? Does that confirm PA or not? Can someone explain
Hi all, I've only just seen the result of an Intrinsic Factor Antibody test that was done in December before I started SI which I don't know how to interpret. I got a result of 2 u/ml (reference range is 0-24 u/ml). Is that a positive or a negative result? Does that confirm PA or not? Can someone explain
Gecko22
in
Pernicious Anaemia Society
1 year ago
B12 injections stopped by GP
I have been on B12 injections for 4 years. (I had exhaustion, nausea, headaches etc and B12 was confirmed as being 40.)Had.loading dose and been having 3 monthly injections ever since. Intrinsic Factor was negative, but I do not have a restrictive diet. Anyway, GP decided to check my B12 when I asked
I have been on B12 injections for 4 years. (I had exhaustion, nausea, headaches etc and B12 was confirmed as being 40.)Had.loading dose and been having 3 monthly injections ever since. Intrinsic Factor was negative, but I do not have a restrictive diet. Anyway, GP decided to check my B12 when I asked
ValentinoBlue
in
Pernicious Anaemia Society
1 year ago
different b12 form
diagnosed mid January with low b12 and PA. Originally told to do once a week cyanocobalamin and that just wasn’t helping so start of feb I did everyday injections of methylcobalamin at iv clinic (very $$$) finally found a doctor end of February who isn’t scared to prescribed and has me on a lot b12 of
diagnosed mid January with low b12 and PA. Originally told to do once a week cyanocobalamin and that just wasn’t helping so start of feb I did everyday injections of methylcobalamin at iv clinic (very $$$) finally found a doctor end of February who isn’t scared to prescribed and has me on a lot b12 of
Asb2
in
Pernicious Anaemia Society
1 year ago
Iron low
Hello, I just got back my blood work test and the iron read a little low, so I was wondering if anyone else here on the panel with pernicious anemia has had low iron. My iron binding is within range. Iron level is in range but iron percent transferring saturation is reading slightly low
Hello, I just got back my blood work test and the iron read a little low, so I was wondering if anyone else here on the panel with pernicious anemia has had low iron. My iron binding is within range. Iron level is in range but iron percent transferring saturation is reading slightly low
25092
in
Pernicious Anaemia Society
1 year ago
Elderly mum's blood test results (part 2)
I didn't ask for the pernicious
anaemia
test - would it be a good idea to do this tomorrow? My mum does have slow onset dementia too so all this is very hard for her.
I didn't ask for the pernicious
anaemia
test - would it be a good idea to do this tomorrow? My mum does have slow onset dementia too so all this is very hard for her.
Pinkpetite
in
Thyroid UK
1 year ago
Confused newbie
I'm so glad I've found this forum, I've feel like I've learned a lot already from all of the experience's, advice and information provided by you amazing peeps 😊 I'm hoping you may be able to point me in the right direction and help me decide my next step as everytime I interact with my doctor's surgery
I'm so glad I've found this forum, I've feel like I've learned a lot already from all of the experience's, advice and information provided by you amazing peeps 😊 I'm hoping you may be able to point me in the right direction and help me decide my next step as everytime I interact with my doctor's surgery
woo79
in
Pernicious Anaemia Society
1 year ago
Update
I saw a consultant yesterday, different from last time, after being off Anagrelide for four weeks my platelets had jumped to nearly 800, however my
anaemia
was worse! I was taken off the Anagrelide to help get my blood count up but that didn’t work!
I saw a consultant yesterday, different from last time, after being off Anagrelide for four weeks my platelets had jumped to nearly 800, however my
anaemia
was worse! I was taken off the Anagrelide to help get my blood count up but that didn’t work!
lizzziep
in
MPN Voice
1 year ago
blood test back - any thoughts?
So now I am off all my meds, and started taking 200mg iron a night a month ago, my ferritin level just came back as 80, which I was quite surprised. The last one in 2020 was over 120. Should I double the dose and split it through the day or take 2 tabs before bed? Also my white blood count came back
So now I am off all my meds, and started taking 200mg iron a night a month ago, my ferritin level just came back as 80, which I was quite surprised. The last one in 2020 was over 120. Should I double the dose and split it through the day or take 2 tabs before bed? Also my white blood count came back
Phantom38
in
Restless Legs Syndrome
1 year ago
Blood test results - Help Please!
Hi. I recently posted on here because I feel my doctor doesn't really take an interest in my hpothyroidism. And so I've recently taken some private bloods to check my doses are OK. I finally have all my tests back now. Can you help me interpret them please? I'm on 50mg of Levothyroxene. TSH level
Hi. I recently posted on here because I feel my doctor doesn't really take an interest in my hpothyroidism. And so I've recently taken some private bloods to check my doses are OK. I finally have all my tests back now. Can you help me interpret them please? I'm on 50mg of Levothyroxene. TSH level
mids_thyman
in
Thyroid UK
1 year ago
Checking on my understanding of Folic Acid
The friend I am giving information to and not advising has Serum Folate test results of 3.3 ug/l. It is my understanding it is thought that folic acid 5mg once a day should be taken to bring folic acid into mid range and then monitored to keep the level in mid range during any B12 supplementation.
The friend I am giving information to and not advising has Serum Folate test results of 3.3 ug/l. It is my understanding it is thought that folic acid 5mg once a day should be taken to bring folic acid into mid range and then monitored to keep the level in mid range during any B12 supplementation.
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Confused & could do with some advice please...
I had to have a re-blood test done a couple of days ago since having my b12 loading doses in Nov/Dec 2022 when I was told that I have Pernacious Aneamia caused by B12 deficiency & given a sheet of paper telling me all about it etc... I was told my results today & they say everything is normal apart
I had to have a re-blood test done a couple of days ago since having my b12 loading doses in Nov/Dec 2022 when I was told that I have Pernacious Aneamia caused by B12 deficiency & given a sheet of paper telling me all about it etc... I was told my results today & they say everything is normal apart
Electricblue22
in
Pernicious Anaemia Society
1 year ago
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