Experiences with

Anaemia

Bruce Wolffenbuttel wrote a blog post for PAS (Pernicious Anaemia Society)in December 2023. https://pernicious-anaemia-society.org/blog/only-one-chance/ It's very detailed and well worth a read. Wish he'd been my doctor.... Comments can be left under the article.

Hello, I recently started taking iron supplements as my level was 90 and it's advised should be over 100. I have now had black diarrhea for three weeks and the worst stomach acid. I have now stopped the iron supplements. Does anyone have any advice on what my next step should be. I have not spoken to

Hi, my daughter has Graves and her latest blood test shows elevated liver enzymes, is this because she's on carbimazole. Prior to taking carbimazole her liver function was normal.

https://www.llaiswales.org/news-and-reports I wondered if PAS (Pernicious Anaemia Society) had had contact with Llais. PAS head office is in Bridgend, Wales. https://pernicious-anaemia-society.org/

I'd be really grateful if anyone could advise on whether I need to be concerned about my iron/ferritin levels. I'm seeing a neurologist tomorrow and want to be well informed. I have results from my last three blood tests so hopefully that might help. Serum iron level: October 2023 - 7.7 umol/L; January

Hello Friends, My porphyria symptoms showed up about 15 years ago when I suddenly became "allergic" to the sun. Symptoms include digestive inflammation, feelings of heat travelling up and down my legs and arms, and an emotional feeling of desperation. Since then I have pretty much kept out of the

I would expect the fatigue to be all the time if caused by the anaemia. The GP is repeating my bloods tomorrow. I'm wondering if there's something going on in addition to the endo and don't want the GP to just write all my symptoms off as endo if caused by something else.

I take 5mg of carbimazole- could this medication cause anaemia? Is this common in graves? I used to have thyroid blood tests 4 times a year but since covid been reduced to twice a year. Would like to know how often other people have their bloods tested?

Just had my pre-op with extra bloods for b12 and folate along with anaemia ones as suffering. 🤞, they'll provide answers. So relieved. Xx

Another interesting paper (already posted on PAS forum!) Parts are very easy to read - but not all. [i]Nutrients. 2023 Jun; 15(12): 2734.[/i] [i]Published online 2023 Jun 13. doi: 10.3390/nu15122734[/i] [i]PMCID: PMC10305463[/i] [i]PMID: 37375638[/i] [i]Vitamin B12—Multifaceted In Vivo Functions

I was successful in obtaining iron infusions with Medicare approval. My iron panels had worsened with my iron % sat decreasing from 28% in April to 15% in July, my TIBC from 333 to 320, iron from 94ug/uL to 48 and my ferritin not improving. (It had originally been 15 in January and increased to 28

Ophthalmic Neurology on Monday at the eye hospital, my first rheumatology appointment at Bristol Royal Infirmary on Wednesday and then am scheduled to have an upper GI endoscopy on Thursday ( GP doesn’t want to assume it’s the PMR causing my anaemia).

Good morning, I was just wondering if anyone has tried milk thistle to try and improve cirrhosis of the liver and to add bile salts to the body?

Can B12 deficency / pernicious anaemia cause itchy skin.

Also on the letter the doctor said I was currently well and stable but if my anaemia got worse to have Momelitinib, or possibly the KEROS trial. I’m pleased to be stable and fingers crossed I stay that way. Thank you for any information.

I have positive parietal cell antibodies and stomach inflammation showed on a endoscopy so it's autoimmune gastritis related B12 deficiency and will therefore be lifelong as with true pernicious anaemia. I went onto loading doses SI 3 x a week for 4 weeks then moved to weekly injections.

Hi all, I've been hovering around these boards for a couple of years now but this is my first post. I am a 39 year old male. As a child and adult sometimes after walking a lot during the day I would have the urge to move my legs when I was in bed trying to sleep, it would feel like I had excess

In this article: Research priorities in pernicious anaemia: James Lind Alliance Priority Setting Partnership, Staley, Kristina ; Ahmadi, Kourosh R ; Carter, Karyl ; Cowan, Katherine ; Seage, Heidi ; Visser, Petra ; Ward, Nicola ; Hooper, Martyn BMJ open, 2022, Vol.12 (8), p.e065166-e065166 the goal

In my Sunday newspaper today the usual GP column has a question put to the GP about Lansoprazole use. Following a mini stroke this lady was put on various tablets one of which was Lansoprazole, and she developed pains in her legs and hips, had a scan and was told she had early-stage osteoporosis. She

I was hoping I could get some advice on a very specific issue I am having with my maternal grandmother, who has had Pernicious Anaemia for as long as I can remember and likely where I inherited mine from.