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CALR+ eosinophilia
Greetings from Brooklyn, New York! For the past 3+ years my CBCs have consistently shown significantly high eosinophils. In the first year, I received an "eosinophilia of undetermined significance diagnosis" after a slew of tests including BMB which was apparently normal at the time. I now have a new
Greetings from Brooklyn, New York! For the past 3+ years my CBCs have consistently shown significantly high eosinophils. In the first year, I received an "eosinophilia of undetermined significance diagnosis" after a slew of tests including BMB which was apparently normal at the time. I now have a new
yung_kokonut
in
MPN Voice
1 year ago
myelofibrosis
Does anyone on here know if mf should always be treated,main symptom is fatigue, slightly enlarged spleen and slight
anaemia
( for 3 years)not sure about the watch and wait approach.
Does anyone on here know if mf should always be treated,main symptom is fatigue, slightly enlarged spleen and slight
anaemia
( for 3 years)not sure about the watch and wait approach.
glyndale
in
MPN Voice
1 year ago
Never ending problems
I have Hashimotos Thyroiditis, Arthritis, Pernicious
Anaemia
, Hypertension, Coeliac disease and now some unexplained kidney problem.
I have Hashimotos Thyroiditis, Arthritis, Pernicious
Anaemia
, Hypertension, Coeliac disease and now some unexplained kidney problem.
Loobs39
in
Kidney Disease
1 year ago
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Weird blood results Part 4
I explained my vit b12 deficiency and he said to test for pernicious
anaemia
, caeliac and put me on a course of vit injections.
I explained my vit b12 deficiency and he said to test for pernicious
anaemia
, caeliac and put me on a course of vit injections.
Stefcon1
in
Thyroid UK
1 year ago
Gut /thyroid next steps
Querying
anaemia
/pa but wondering if addressing stomach / FUT2 will resolve issues have pins needles, periodic burning foot pain enlarged tongue Taking Vit D with K2 at the moment Stopped taking B12 for now as got jittery and wanted to know if it was due to Levo increase Thank you all, this
Querying
anaemia
/pa but wondering if addressing stomach / FUT2 will resolve issues have pins needles, periodic burning foot pain enlarged tongue Taking Vit D with K2 at the moment Stopped taking B12 for now as got jittery and wanted to know if it was due to Levo increase Thank you all, this
Bacca
in
Thyroid UK
1 year ago
Vitamin B12
Hi everyone, I just read some posts relating to vitamin B12 injections.a few months ago I began getting a vitaminB12 injection privately as I believed that its harder for older people to make the vitamin, plus I hoped it would possibly lessen my RLS.im due another injection shortly, please can I have
Hi everyone, I just read some posts relating to vitamin B12 injections.a few months ago I began getting a vitaminB12 injection privately as I believed that its harder for older people to make the vitamin, plus I hoped it would possibly lessen my RLS.im due another injection shortly, please can I have
Whymelord
in
Restless Legs Syndrome
1 year ago
Iron tests included in bloodwork?
Hello! Have been on hydroxy a year now and platelets are just beneath 400. I also have begun experiencing really nasty fatigue and wonder why ferritin the a not included in bloodwork? I have seen pretty low iron levels and will begin supplementing with follow-up test I had to request. Anyone else questioned
Hello! Have been on hydroxy a year now and platelets are just beneath 400. I also have begun experiencing really nasty fatigue and wonder why ferritin the a not included in bloodwork? I have seen pretty low iron levels and will begin supplementing with follow-up test I had to request. Anyone else questioned
livwellnuff
in
MPN Voice
1 year ago
Pernicious anemia advice/ reassurance
Hello, I have had pernicious anemia/ b12 deficiency for 4 years and have been self injecting for 2.5 years. I have found injections every 3 weeks and 3 days keeps me healthy for 99% of the time. Occasionally though I have major drops where I am -unable to go to work - I can’t get my head around
Hello, I have had pernicious anemia/ b12 deficiency for 4 years and have been self injecting for 2.5 years. I have found injections every 3 weeks and 3 days keeps me healthy for 99% of the time. Occasionally though I have major drops where I am -unable to go to work - I can’t get my head around
ChloeW92
in
Pernicious Anaemia Society
1 year ago
blood test results
blood test on Monday . These are some of the results SCR 8.3 no further action required. ESR 2 ditto above. Both outside references range Platelet count 463 as above NFA Basophil 0.17 NFA ORR Can you tell me what they mean please
blood test on Monday . These are some of the results SCR 8.3 no further action required. ESR 2 ditto above. Both outside references range Platelet count 463 as above NFA Basophil 0.17 NFA ORR Can you tell me what they mean please
Suffererc
in
PMRGCAuk
1 year ago
Doctor put my b12 schedule on my records.
this week after a visit to the ED and changed symptoms related to my spine degenerative disease, I saw a different doctor at the practice, as she was going through my history, she asked about my B12 and It’s diagnosis, including the hospital discharge saying I did it EOD. I explained I had been diagnosed
this week after a visit to the ED and changed symptoms related to my spine degenerative disease, I saw a different doctor at the practice, as she was going through my history, she asked about my B12 and It’s diagnosis, including the hospital discharge saying I did it EOD. I explained I had been diagnosed
Scott-rock
in
Pernicious Anaemia Society
1 year ago
Examining the Diagnosis and Treatment Experiences of People Living With Autoimmune Gastritis and Pernicious Anemia
Publication date - yesterday. I haven't read it all but it looked to be relevant and potentially of interest. And is open access. Note that it [u]specifically[/u] discusses patient disempowerment and patient forums. [i]
Examining the Diagnosis and Treatment Experiences of People Living With Autoimmune
Publication date - yesterday. I haven't read it all but it looked to be relevant and potentially of interest. And is open access. Note that it [u]specifically[/u] discusses patient disempowerment and patient forums. [i]
Examining the Diagnosis and Treatment Experiences of People Living With Autoimmune
helvella
in
Pernicious Anaemia Society
1 year ago
High Platelet Diagnosis Update….
She said that iron deficiency without
anaemia
could still cause an elevated platelet count. As such I was to take iron tablets for 6 months, I am currently at the 3 month mark and my iron has improved and platelets have come down from 565 to 513.
She said that iron deficiency without
anaemia
could still cause an elevated platelet count. As such I was to take iron tablets for 6 months, I am currently at the 3 month mark and my iron has improved and platelets have come down from 565 to 513.
Purdy13
in
MPN Voice
10 months ago
HNY!... and a warning for those who lead busy lives (aka all of us)
This is more of a warning to those of you who lead busy lives and live with pernicious
anaemia
/ B12 deficiency. I was diagnosed in November 2020 after a desperate 9 month journey in the Australian health system left me bedridden.
This is more of a warning to those of you who lead busy lives and live with pernicious
anaemia
/ B12 deficiency. I was diagnosed in November 2020 after a desperate 9 month journey in the Australian health system left me bedridden.
ottiliefloyd
in
Pernicious Anaemia Society
4 months ago
latest results please can you advise
Hello all please can you advise me on my latest results and your thoughts before I see my new Doc on the 24/4. I started new dose of Levothyroxine 100mcg on the 9/3 up from 75mcg. T3-4.40pmol/l ( 2.63-5.70) T4-16.20pmol/l (9.01-19.05) TSH-1.36miu/l (0.35-4.94) Vit B12- 236pg/ml (187-883) stopped
Hello all please can you advise me on my latest results and your thoughts before I see my new Doc on the 24/4. I started new dose of Levothyroxine 100mcg on the 9/3 up from 75mcg. T3-4.40pmol/l ( 2.63-5.70) T4-16.20pmol/l (9.01-19.05) TSH-1.36miu/l (0.35-4.94) Vit B12- 236pg/ml (187-883) stopped
Pooty
in
Thyroid UK
1 year ago
Does anyone know how can I access an iron transfusion?
Hello, My last ferritin level from a blood test in September was 73, since that date I have had a Tia ( mini stroke) and then when the medication given for that put my rls through the roof I was so sleep deprived I fell and broke my foot in three places…. I still can’t walk properly. Things have
Hello, My last ferritin level from a blood test in September was 73, since that date I have had a Tia ( mini stroke) and then when the medication given for that put my rls through the roof I was so sleep deprived I fell and broke my foot in three places…. I still can’t walk properly. Things have
Drls
in
Restless Legs Syndrome
1 year ago
Pernicious anaemia?
I am a 60 year old male leading a healthy, low stress lifestyle. I have never had any medical conditions (apart from a bout of pancreatitis a couple of years ago) and never been on any medications apart from the occasional pain killer or dose of antibiotics. I exercise and meditate daily. I don't drink
I am a 60 year old male leading a healthy, low stress lifestyle. I have never had any medical conditions (apart from a bout of pancreatitis a couple of years ago) and never been on any medications apart from the occasional pain killer or dose of antibiotics. I exercise and meditate daily. I don't drink
Bobmanner
in
Pernicious Anaemia Society
2 years ago
Some Help with Vits and Mins Please
Hello It's a constant struggle for me to raise and hold my ferritin, folate and B12 levels. They fight to drop lower all the time. I eat as much recommended iron rich foods as I can (but I just can't eat as much of this as I did because I don't have the energy to cook breakfast anymore which is where
Hello It's a constant struggle for me to raise and hold my ferritin, folate and B12 levels. They fight to drop lower all the time. I eat as much recommended iron rich foods as I can (but I just can't eat as much of this as I did because I don't have the energy to cook breakfast anymore which is where
FancyPants54
in
Thyroid UK
1 year ago
Am i better or worse, or too early to tell?
On discharge they did say i had
anaemia
which could cause this.My worry is that this is now my new heart.If it is then the one i had before was a lot better.
On discharge they did say i had
anaemia
which could cause this.My worry is that this is now my new heart.If it is then the one i had before was a lot better.
bagsypartime
in
British Heart Foundation
1 year ago
Advice on FBC Blood Test result
Any advice please on my recent FBC blood test results. For appx 18 months my Haematocrit, Mean Cell Haemaglobin, Haemaglobin Concentration & Red Blood Cell Count are above high reference range. I was referred to Neurology appx 18 months ago to seek cause and still waiting an OPA. Concerned that
Any advice please on my recent FBC blood test results. For appx 18 months my Haematocrit, Mean Cell Haemaglobin, Haemaglobin Concentration & Red Blood Cell Count are above high reference range. I was referred to Neurology appx 18 months ago to seek cause and still waiting an OPA. Concerned that
Maynan17
in
Restless Legs Syndrome
1 year ago
Iron Results
Can anyone give me some advice/insight in Iron results. Iron levels: Now and August Ferritin: 21 (15-150) Aug test (16) TIBC: 305 (250-450) Aug test (311) UIBC: 242 (131-425) Aug test (263) Iron: 63 (27-159) Aug test (48) Iron saturation: 21 (15-55) Aug Test (15) What could cause the ups and
Can anyone give me some advice/insight in Iron results. Iron levels: Now and August Ferritin: 21 (15-150) Aug test (16) TIBC: 305 (250-450) Aug test (311) UIBC: 242 (131-425) Aug test (263) Iron: 63 (27-159) Aug test (48) Iron saturation: 21 (15-55) Aug Test (15) What could cause the ups and
Batty1
in
Thyroid UK
1 year ago
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