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Un knowledgable Neurologist aahhh!!
Hi, I am writing again to get the advice I have been waiting for months to see a neurologist and just heard today that the neurologist is not going to see me because of my b12 numbers He has decided even with all my neurological and neuropathy symptoms, and that after my doctor did tests and believed
Hi, I am writing again to get the advice I have been waiting for months to see a neurologist and just heard today that the neurologist is not going to see me because of my b12 numbers He has decided even with all my neurological and neuropathy symptoms, and that after my doctor did tests and believed
brenanddave
in
Pernicious Anaemia Society
9 months ago
GP wont prescribe Hydroxycobalamin until further blood tests conducted despite neuro involvement.
Good morning.I've found this forum out of desperation having experienced what I now know are symptoms of B12 deficiency for a few years. After repeated B12 levels over the years which consistently showed my levels dropping (treatable since 2021 in some parts of the country) they were finally low enough
Good morning.I've found this forum out of desperation having experienced what I now know are symptoms of B12 deficiency for a few years. After repeated B12 levels over the years which consistently showed my levels dropping (treatable since 2021 in some parts of the country) they were finally low enough
Betwelvepatient
in
Pernicious Anaemia Society
5 months ago
Advice on best treatment
I have had CLL since 2013 watch and wait. Recently hemoglobin levels dropped and a bit anemic so been advised 3 types of treatment. However left to make own choice. Guess would like to know what other people have tried and how effective treatment was.
I have had CLL since 2013 watch and wait. Recently hemoglobin levels dropped and a bit anemic so been advised 3 types of treatment. However left to make own choice. Guess would like to know what other people have tried and how effective treatment was.
Guinness4822
in
CLL Support
9 months ago
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Word confusion
(Currently trying to get tested for Pernicious
anaemia
but haven’t been diagnosed) Thanks 🙏
(Currently trying to get tested for Pernicious
anaemia
but haven’t been diagnosed) Thanks 🙏
EllsBells591
in
Thyroid UK
7 months ago
Vit B12 too high?!!
I understood you can't take too much B12 ... and my grandmother died of pernicious
anaemia
hence my taking the B12 drops as I didn't feel well at all she also had thyroid problems like me. I would appreciate any comments on the 2000 reading. Thanks!!
I understood you can't take too much B12 ... and my grandmother died of pernicious
anaemia
hence my taking the B12 drops as I didn't feel well at all she also had thyroid problems like me. I would appreciate any comments on the 2000 reading. Thanks!!
PolyannaYorkshire
in
Pernicious Anaemia Society
1 year ago
Please some help treating low b12
Hi I have had low b12 for over 15 years I was first given injections in my 20s then told I was cured I became ill and struggled to walk shortly after I was then diagnosed with chronic fatigue syndrome for the following 10 years by this time I was almost bedbound after searching the Internet with my systems
Hi I have had low b12 for over 15 years I was first given injections in my 20s then told I was cured I became ill and struggled to walk shortly after I was then diagnosed with chronic fatigue syndrome for the following 10 years by this time I was almost bedbound after searching the Internet with my systems
Tbob
in
Pernicious Anaemia Society
9 months ago
Iron and magnesium levels plus
Hi everyone. I recently had blood tests done as suggested and results have come back showing slightly low magnesium level at 0.68mmol/L and serum ferritin level of 60ng/ml. (Low?) I've been asked to go back for retest on the magnesium but no mention of the iron? Looking back on my test results I had
Hi everyone. I recently had blood tests done as suggested and results have come back showing slightly low magnesium level at 0.68mmol/L and serum ferritin level of 60ng/ml. (Low?) I've been asked to go back for retest on the magnesium but no mention of the iron? Looking back on my test results I had
GreyMaus
in
Restless Legs Syndrome
9 months ago
Is it reliable and trusty to measure homocystein after loading doses of b12 injections?
Hello everyoneone. I injected b12 shots last week. And wanted to test my homocystein level in order to make sure that i have really b12 deficiency. But i learned about homocystein after injections of b12. My lab results of vit b12 was 165pg/ml(160-944)I wondered whether homocystein level affeteed by
Hello everyoneone. I injected b12 shots last week. And wanted to test my homocystein level in order to make sure that i have really b12 deficiency. But i learned about homocystein after injections of b12. My lab results of vit b12 was 165pg/ml(160-944)I wondered whether homocystein level affeteed by
Emiroskui
in
Pernicious Anaemia Society
9 months ago
What ? and Watt !! 😜
Our power cells are called mitochondria (might oh con dria). We have trillions of them. Some cells just have one, other cells have hundreds. Special processes occur in the outer bit (or matrix) of our power cells where the food we eat and the oxygen we breathe is transformed into energy. In order for
Our power cells are called mitochondria (might oh con dria). We have trillions of them. Some cells just have one, other cells have hundreds. Special processes occur in the outer bit (or matrix) of our power cells where the food we eat and the oxygen we breathe is transformed into energy. In order for
Narwhal10
in
Pernicious Anaemia Society
9 months ago
autoimmune and Hashimotos
I feel like I am on a one woman crusade in Scotland to get Hashimotos recognised for what it is an autoimmune disease, I now have four autoimmune diseases Hashimotos, Pernicious
Anaemia
, Coeliac disease, Hyperparathyroidism, and am being referred for testing for rheumatoid arthritis.
I feel like I am on a one woman crusade in Scotland to get Hashimotos recognised for what it is an autoimmune disease, I now have four autoimmune diseases Hashimotos, Pernicious
Anaemia
, Coeliac disease, Hyperparathyroidism, and am being referred for testing for rheumatoid arthritis.
Filicatlasy
in
Thyroid UK
28 days ago
intrinsic factor test
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
Painttube
in
Pernicious Anaemia Society
5 months ago
Have I progressed to PV?
Hello everyone, I have had ET, Jak2+ for 5-1/2 years and my platelets have been rising the past 1-1/2 years above normal range. Recently, I had routine blood work ordered by my GP and the results showed an almost 200 thousand increase in platelets since May from 629 to 805. I messaged my MPN specialist
Hello everyone, I have had ET, Jak2+ for 5-1/2 years and my platelets have been rising the past 1-1/2 years above normal range. Recently, I had routine blood work ordered by my GP and the results showed an almost 200 thousand increase in platelets since May from 629 to 805. I messaged my MPN specialist
mbr8076
in
MPN Voice
9 months ago
Pernicious Anaemia is the worst
Hi Newbie here. Was diagnosed with PA this Sept gone after years of weird symptoms . Have congenital heart disease too and after having complex heart surgery two years ago my health got critical. I have reduced kidney function too. Yikes. Anyone else got similar health issues. Am being treated for PA
Hi Newbie here. Was diagnosed with PA this Sept gone after years of weird symptoms . Have congenital heart disease too and after having complex heart surgery two years ago my health got critical. I have reduced kidney function too. Yikes. Anyone else got similar health issues. Am being treated for PA
Sea-blue
in
Pernicious Anaemia Society
1 year ago
accord brand of buprenorphine causing nausea???
hello - I started taking the accord brand of buprenorphine last night having moved from the morningside make because those tablets were small and difficult to cut…… after half a tablet I had panic / shakiness that I hadn’t experienced with the morningside tablets…. After three x half tablets (0.6mg)
hello - I started taking the accord brand of buprenorphine last night having moved from the morningside make because those tablets were small and difficult to cut…… after half a tablet I had panic / shakiness that I hadn’t experienced with the morningside tablets…. After three x half tablets (0.6mg)
Drls
in
Restless Legs Syndrome
9 months ago
hashimotos and hypo/hyperparathyrodism
I also have a diagnosis of pernicious
anaemia
which can also cause hypo/hyperparathyroidism. I do not believe a GP would have enough knowledge in this field to know what tests to request.
I also have a diagnosis of pernicious
anaemia
which can also cause hypo/hyperparathyroidism. I do not believe a GP would have enough knowledge in this field to know what tests to request.
hippy66
in
Thyroid UK
2 months ago
FINALLY found a scientific study that supports my theory about Brain Iron and Serum Iron. Finally!!!
First, the relevant quote from the article: “The serum iron concentration was significantly higher in the RLS group than in the control group, but remained within normal ranges in both groups. In this study, there was a significant correlation between serum and CSF iron concentrations, both in the RLS
First, the relevant quote from the article: “The serum iron concentration was significantly higher in the RLS group than in the control group, but remained within normal ranges in both groups. In this study, there was a significant correlation between serum and CSF iron concentrations, both in the RLS
DesertOasis
in
Restless Legs Syndrome
6 months ago
How quickly does homocysteine rise following cessation of B12 injections?
Previous post for context: @https://healthunlocked.com/pasoc/posts/149711971/antibody-to-transcobalamin-ii-causing-functional-b12-deficiency?responses=149728666 I have been trying to convince doctors that I need daily injections to prevent B12 deficiency symptoms from returning. They simply do not believe
Previous post for context: @https://healthunlocked.com/pasoc/posts/149711971/antibody-to-transcobalamin-ii-causing-functional-b12-deficiency?responses=149728666 I have been trying to convince doctors that I need daily injections to prevent B12 deficiency symptoms from returning. They simply do not believe
jeremycat_
in
Pernicious Anaemia Society
9 months ago
Adenosylcobalamin
I am trying to find out how to administer Adenosylcobalamin in the most efficient way. I am aware that Adenosylcobalamin is water soluble at .097 mcg/ml which with my limited chemistry knowledge means the most I could inject is .097 mcg/ml. However water solubility of hydroxocobalamin is 0.0273 mg
I am trying to find out how to administer Adenosylcobalamin in the most efficient way. I am aware that Adenosylcobalamin is water soluble at .097 mcg/ml which with my limited chemistry knowledge means the most I could inject is .097 mcg/ml. However water solubility of hydroxocobalamin is 0.0273 mg
WIZARD6787
in
Pernicious Anaemia Society
9 months ago
Liquid Iron
Has anyone with atrophic gastritis had any success with taking and tolerating liquid iron please ?I have iron deficiency finally accepted by my doctor after many visits and blood tests !
Has anyone with atrophic gastritis had any success with taking and tolerating liquid iron please ?I have iron deficiency finally accepted by my doctor after many visits and blood tests !
davina70
in
Pernicious Anaemia Society
9 months ago
My baby girl.
Good morning all. I've been writing my updates as anonymous as possible but trying to give relevant information and updates to the condition. In reality I've been writing on my wife's behalf. She was diagnosed in February this year and was taking tremendous strides in getting better. She looked fantastic
Good morning all. I've been writing my updates as anonymous as possible but trying to give relevant information and updates to the condition. In reality I've been writing on my wife's behalf. She was diagnosed in February this year and was taking tremendous strides in getting better. She looked fantastic
Hidden
in
British Liver Trust
9 months ago
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