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Seeking anyone familiar with aggressive small cell neuroendocrine prostate cancer and/or with lurbinectedin as 2nd line chemotherapy.
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
silver5
in
Advanced Prostate Cancer
3 months ago
recent results
Just had my bloods done. Any. Help would most gratefully received. I’m now on75 mg levo a day. I will reintroduce t3 tomorrow with a quarter. Thank you
Just had my bloods done. Any. Help would most gratefully received. I’m now on75 mg levo a day. I will reintroduce t3 tomorrow with a quarter. Thank you
Rowing2
in
Thyroid UK
5 months ago
Weighing the pros and possible risks of treatment holiday.
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
Decktime
in
Advanced Prostate Cancer
3 months ago
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Radiotherapy
I’ve just finished a 3 week course of Radiotherapy and I feel dreadful. I’ve been very sick and it feels like flu. I’m very tired and sleeping a lot. Complete loss of appetite. I didn’t find chemotherapy as bad as this. Has anyone else had this experience ?
I’ve just finished a 3 week course of Radiotherapy and I feel dreadful. I’ve been very sick and it feels like flu. I’m very tired and sleeping a lot. Complete loss of appetite. I didn’t find chemotherapy as bad as this. Has anyone else had this experience ?
Hota
in
My Ovacome
3 months ago
Cancerous thyroid nodules. Are they painful sometimes?
Id be really grateful for thoughts on this please. I'm awaiting surgery on a nodule that's suspicious for follicular cancer but obviously as we know, they can't be certain until its taken out. What i want to know is, has anyone had a painful nodule that can be really sore consistently (8 months now
Id be really grateful for thoughts on this please. I'm awaiting surgery on a nodule that's suspicious for follicular cancer but obviously as we know, they can't be certain until its taken out. What i want to know is, has anyone had a painful nodule that can be really sore consistently (8 months now
Aoifel73
in
Thyroid UK
3 months ago
musician - hearing loss after surgery
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc). Unfortunately the tumour
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc). Unfortunately the tumour
domforr
in
Acoustic Neuroma Support
3 months ago
heart failure and type 2 diabetes.
I have LBBB, diagnosed at age 32, now age 66. I am type 2 diabetic diagnosed 2019 . I have Left ventricle systolic dysfunction EF 40%. Stage 3 kidney disease, diagnosed June ‘23, I cannot tolerate statins as they send my blood Glucose levels into overdrive, most recently last June. The Doctor wanted
I have LBBB, diagnosed at age 32, now age 66. I am type 2 diabetic diagnosed 2019 . I have Left ventricle systolic dysfunction EF 40%. Stage 3 kidney disease, diagnosed June ‘23, I cannot tolerate statins as they send my blood Glucose levels into overdrive, most recently last June. The Doctor wanted
Sukaya
in
British Heart Foundation
5 months ago
Low cortisol
My 40 year old daughter has Hashimoto's on T4 /T3 combination therapy for 6 years. Optimal levels plus optimal B12, folate, vit d and ferritin.Dutch test has shown very low cortisol levels throughout the day. She says she doesn't have any stress, doesn't drink alcohol or coffee, goes to the gym 2 or
My 40 year old daughter has Hashimoto's on T4 /T3 combination therapy for 6 years. Optimal levels plus optimal B12, folate, vit d and ferritin.Dutch test has shown very low cortisol levels throughout the day. She says she doesn't have any stress, doesn't drink alcohol or coffee, goes to the gym 2 or
redhead41
in
Thyroid UK
4 months ago
Update on my daughter's GP call today. So angry.
I'm so angry but not surprised. I didn't expect much tbh. My daughters last Vitamin results from 2022 were B12 290, Ferritin 24, folate 9.2 & Vit D 39. She been on thyroxine since a teenager now in her 40's. TSH levels fluctuating all over the place for past 6 years. Well the GP called today
I'm so angry but not surprised. I didn't expect much tbh. My daughters last Vitamin results from 2022 were B12 290, Ferritin 24, folate 9.2 & Vit D 39. She been on thyroxine since a teenager now in her 40's. TSH levels fluctuating all over the place for past 6 years. Well the GP called today
Otto11
in
Thyroid UK
2 months ago
Would an iodine supplement help?
I still don't feel well (very tired and the most dreadful brain fog which has stopped me driving) and wondered how I would know if an iodine supplement might help? Any thoughts would be most appreciated. Latest Medichecks results - stopped taking b12 liquid 2 weeks before test. Taking Spatone, VitaminD
I still don't feel well (very tired and the most dreadful brain fog which has stopped me driving) and wondered how I would know if an iodine supplement might help? Any thoughts would be most appreciated. Latest Medichecks results - stopped taking b12 liquid 2 weeks before test. Taking Spatone, VitaminD
Tanitha
in
Thyroid UK
2 months ago
second time lucky ?
Can I hope for a totally different result? Has anyone gone from NOTHING first round and then had a decent result on the second round? As I approach my second nhs icsi cycle I’m anxious, nervous and hopeful that I will get a better result this time. We collected three eggs which were quite small
Can I hope for a totally different result? Has anyone gone from NOTHING first round and then had a decent result on the second round? As I approach my second nhs icsi cycle I’m anxious, nervous and hopeful that I will get a better result this time. We collected three eggs which were quite small
Cuppppatea
in
Fertility Network UK
5 months ago
Can Anyone Please Advise On B12 Related Tests To Have If Normal B12 Testing is in range.
Can Anyone Please Advise On B12 related tests to have If Normal B12 Testing is in range. My daughter is having numerous issues including IBS which she had for nearly 20 years and the last 18 months undiagnosed urology issues, mostly infections that often come back as no issues and has been on numerous
Can Anyone Please Advise On B12 related tests to have If Normal B12 Testing is in range. My daughter is having numerous issues including IBS which she had for nearly 20 years and the last 18 months undiagnosed urology issues, mostly infections that often come back as no issues and has been on numerous
thyreoidea
in
Pernicious Anaemia Society
5 months ago
Voice improvement
After following advice and wisdom from this fab group over the last couple of years I have now managed to feel much better with increased thyroxine and various supplements. One unexpected bonus has been my singing voice. I am in my 70s and have sung soprano in a large choral society for years but a year
After following advice and wisdom from this fab group over the last couple of years I have now managed to feel much better with increased thyroxine and various supplements. One unexpected bonus has been my singing voice. I am in my 70s and have sung soprano in a large choral society for years but a year
Pollypet
in
Thyroid UK
5 months ago
Not a UTI
Thinking I had picked up a UTI (strange feeling in bladder area and frequent feeling of needing to urinate) I requested a urine test, which was done. The triage nurse at my surgery informed me that although it showed no infection there were in fact microscopic traces of blood in there, (which would be
Thinking I had picked up a UTI (strange feeling in bladder area and frequent feeling of needing to urinate) I requested a urine test, which was done. The triage nurse at my surgery informed me that although it showed no infection there were in fact microscopic traces of blood in there, (which would be
Pusph
in
PMRGCAuk
5 months ago
Perplexed over lab work
Hello, I am a 32 y/o white female. Some history about me that may be applicable: Surgeries: Gallbladder removed (2011), Gastric Sleeve (2017) Weight loss surgery: Started at 332lbs, currently fluctuate between 178-185. Diagnoses: Major Depressive Disorder, GERD (resulting from WLS), ADHD, Anemia
Hello, I am a 32 y/o white female. Some history about me that may be applicable: Surgeries: Gallbladder removed (2011), Gastric Sleeve (2017) Weight loss surgery: Started at 332lbs, currently fluctuate between 178-185. Diagnoses: Major Depressive Disorder, GERD (resulting from WLS), ADHD, Anemia
aybaylay
in
Pernicious Anaemia Society
2 months ago
2ND Opinion by Radiologist
I recently had mpMRI and PSMA/PET scans that indicate I have cancer in the Seminal Vesicles and Lymph Nodes. I want to have the slides sent to a radiologist for a 2nd opinion. Can anyone recommend a good radiologist that can complete this task.
I recently had mpMRI and PSMA/PET scans that indicate I have cancer in the Seminal Vesicles and Lymph Nodes. I want to have the slides sent to a radiologist for a 2nd opinion. Can anyone recommend a good radiologist that can complete this task.
Jimbo47
in
Advanced Prostate Cancer
3 months ago
T3 question
I’m currently on T3 only because of bad reaction with levothyroxine. I’ve been on Liothyronine 10mcg twice a day since 11 November. I haven’t been back to the doctors for a thyroid function test since October as I’ve read frequently that on T3 only they go more on symptoms than levels. I no longer have
I’m currently on T3 only because of bad reaction with levothyroxine. I’ve been on Liothyronine 10mcg twice a day since 11 November. I haven’t been back to the doctors for a thyroid function test since October as I’ve read frequently that on T3 only they go more on symptoms than levels. I no longer have
ScriptMaz
in
Thyroid UK
3 months ago
Rt3 - clarification
Hey all, I've been doing a fair bit of reading and I see that the stance here is that rt3 is useless. Maybe this will help someone. A cell will have a receptor for T3 and RT3 can bind to it weakly (thanks Helvella, I have corrected it). When you take too much T4 or you don't convert well, your protective
Hey all, I've been doing a fair bit of reading and I see that the stance here is that rt3 is useless. Maybe this will help someone. A cell will have a receptor for T3 and RT3 can bind to it weakly (thanks Helvella, I have corrected it). When you take too much T4 or you don't convert well, your protective
Incoguto
in
Thyroid UK
5 months ago
Blood test results
Hi all, can i have some help with blood test results? went to GP with symptoms of Hypothyroid, family history as both parents are diagnosed hypo. I was sent for full bloods incluing thyroid function 1/5/24 (bloods taken about 11am) HbA1c 31 mmol n/a Haemantinic serum vit b12 322ng/l 189-883
Hi all, can i have some help with blood test results? went to GP with symptoms of Hypothyroid, family history as both parents are diagnosed hypo. I was sent for full bloods incluing thyroid function 1/5/24 (bloods taken about 11am) HbA1c 31 mmol n/a Haemantinic serum vit b12 322ng/l 189-883
cheekysaph
in
Thyroid UK
26 days ago
Results, but no answers really
Hello everyone Thank you in advance for your help. These are my results just in this morning. What I'm surprised by is how good they are, i have felt really exhausted since Covid in December, and when i stopped my B complex high b12 (Viridian) for the test, (I ended up being off it for nearly a
Hello everyone Thank you in advance for your help. These are my results just in this morning. What I'm surprised by is how good they are, i have felt really exhausted since Covid in December, and when i stopped my B complex high b12 (Viridian) for the test, (I ended up being off it for nearly a
Indigourchin
in
Thyroid UK
2 months ago
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